Abstract：
Public health approaches to palliative care are internationally endorsed for their potential to improve the social determinants of dying such as energy costs, transport and housing. Enhancing public understanding of inequities in end of life experiences, which exist even in economically advanced countries, is vital if the value of public health approaches are to be endorsed and invested in. Visual exhibitions have a strong tradition of raising awareness and influencing public health discourse. The UK-based Cost of Dying exhibition (April-August 2023) presented real examples of how financial hardship and deprivation intersect with end of life experience through professional portraits, photovoice imagery taken by individuals at the end of their lives, and digital stories co-produced with bereaved relatives. Three iterations of the exhibition were displayed at public venues and a health conference. Evaluation methods comprised anonymous feedback cards (n=208), panel discussions and social media reactions. Thematic analysis was used to identify themes within the feedback. The emotional resonance of the exhibition was a key theme, with attendees expressing sadness, anger, empathy and hope. Visitors found the exhibition thought-provoking and expressed that it countered existing stereotypes about what it means to experience financial hardship at the end of life. The exhibition spurred calls for change, with some attendees questioning in what capacity they could help. Individuals with expertise in end of life care reported that the imagery validated their professional experiences. In conclusion, the Cost of Dying exhibition made visible the struggles endured by individuals confronting financial hardship and material deprivation at the end of life. Such exhibitions can challenge the traditional view of dying as a swift process taking place sequestered in institutions, revealing that it often unfolds over time and individuals may continue to live at home in the community, struggling with unmet needs and unresponsive state services.
摘要：
姑息治疗的公共卫生方法在国际上得到认可，因为它们有可能改善死亡的社会决定因素，例如能源成本，交通和住房。增强公众对生命终结体验中不平等的理解，甚至在经济发达国家也存在，如果公共卫生方法的价值得到认可和投资，这是至关重要的。视觉展览具有提高认识和影响公共卫生话语的强烈传统。总部位于英国的“死亡成本”展览（2023年4月至8月）通过专业肖像展示了经济困难和贫困如何与生命终结经验相交的真实例子，个人在生命结束时拍摄的photovoice图像，以及与失去亲人的亲戚共同制作的数字故事。展览的三个迭代在公共场所和健康会议上展出。评估方法包括匿名反馈卡(n=208)，小组讨论和社交媒体反应。主题分析用于确定反馈中的主题。展览的情感共鸣是一个关键主题，与会者表达悲伤，愤怒,同情和希望。参观者发现展览发人深省，并表示它反驳了现有的陈规定型观念，即在生命结束时经历财务困难意味着什么。展览激起了人们对变革的呼吁，一些与会者质疑他们能提供什么帮助。具有临终关怀专业知识的个人报告说，这些图像验证了他们的专业经验。总之,垂死的代价展览使人们看到了在生命终结时面临经济困难和物质匮乏的个人所经历的斗争。这样的展览可以挑战传统的观点，即死亡是一个被隔离在机构中的快速过程，揭示了它经常随着时间的推移而展开，个人可能会继续住在社区的家中，与未满足的需求和无响应的国家服务作斗争。
