关键词: data governance information law logic philosophy privacy trust

来  源:   DOI:10.3389/fgene.2024.1290658   PDF(Pubmed)

Abstract:
Information, as the most elusive subject, is central to all forms of thought, governance, economic structure, science, and society. Regulation of information, especially within the healthcare field, is proving to be a difficult task globally, given the lack of a qualitative framework and understanding of the concept and properties of information (or data) itself. The presentation of the overall qualitative framework, comprising a qualitative analysis of information, data, and knowledge, will be valuable and of great assistance in delineating regulatory, ethical, and strategic trajectories. In addition, this framework provides insights (and answers) regarding (1) data privacy and protection; (2) delineations between information, data, and knowledge based on the important notion of trust; (3) a structured approach to establishing the necessary conditions for an open society and system, and the maintenance of said openness, based on the work of Karl Popper and Georg Wilhelm Friedrich Hegel; (4) an active agent approach that promotes autonomy and freedom and protects the open society; and (5) a data governance mechanism based on the work of Friedrich Hayek, which structures the current legal-ethical-financial and social society. This is insightful for questions relating to the extent of rights and duties, the extent of biological bodies and freedom, and the structure of relations in distributed networked systems. There is great value offered in this framework; furthermore, it provides critical insights and thoughts about (and uncovers the interplay between) academic culture, politics, science, society, and societal decay. Note that, in line with the ideas expressed in this manuscript, such as incorporation of personal experience (thereby mending the Kantian and Cartesian gap), a first-person perspective will be used, where relevant.
摘要:
信息,作为最难以捉摸的主题,是所有思想形式的核心,治理,经济结构,科学,和社会。信息监管,尤其是在医疗保健领域,在全球范围内被证明是一项艰巨的任务,鉴于缺乏定性框架和对信息(或数据)本身的概念和属性的理解。总体定性框架的介绍,包括对信息的定性分析,数据,和知识,将是有价值的,对划定监管有很大帮助,伦理,和战略轨迹。此外,这个框架提供了关于(1)数据隐私和保护的见解(和答案);(2)信息之间的划分,数据,和基于信任的重要概念的知识;(3)建立开放社会和制度的必要条件的结构化方法,保持这种开放性,基于卡尔·波普尔和乔治·威廉·弗里德里希·黑格尔的工作;(4)促进自治和自由并保护开放社会的积极代理方法;(5)基于弗里德里希·哈耶克的工作的数据治理机制,构建了当前的法律-道德-金融和社会社会。这对于有关权利和义务的范围的问题是有见地的,生物体和自由的程度,以及分布式网络系统中的关系结构。这个框架提供了巨大的价值;此外,它提供了关于学术文化的批判性见解和想法(并揭示了它们之间的相互作用),政治,科学,社会,和社会衰败。请注意,根据这份手稿中表达的想法,例如结合个人经验(从而弥补康德和笛卡尔差距),将使用第一人称视角,在相关的地方。
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