Abstract：
OBJECTIVE: We aimed to: (1) summarize the quantitative evidence on the information needs of relatives of childhood cancer patients, survivors, and children deceased from cancer; and (2) identify factors associated with these needs.
METHODS: PubMed, PsycINFO, Scopus, and CINAHL were systematically searched. The methodological quality of all included publications was assessed, and the extracted data were analyzed using narrative synthesis.
RESULTS: Of 5810 identified articles, 45 were included. Information needs were classified as unmet, met (satisfied), and unspecified and categorized into five domains: medical information, cancer-related consequences, lifestyle, family, and support. Most unmet information needs concerned cancer-related consequences (e.g., late effects), while information needs on support were generally met. Migrant background and higher education were associated with higher information needs among parents. Siblings had lower information needs than parents.
CONCLUSIONS: This systematic review provides a comprehensive overview of the information needs of relatives in the context of childhood cancer, showing that information on cancer-related consequences is needed most often. The socioeconomic background of the relatives needs continued consideration throughout the cancer trajectory.
CONCLUSIONS: Our findings suggest the need for personalized information. Healthcare professionals should adapt their communication strategies to respond to the different and evolving needs of all affected relatives.
METHODS: PubMed, PsycINFO, Scopus, and CINAHL were systematically searched. The methodological quality of all included publications was assessed, and the extracted data were analyzed using narrative synthesis.
RESULTS: Of 5810 identified articles, 45 were included. Information needs were classified as unmet, met (satisfied), and unspecified and categorized into five domains: medical information, cancer-related consequences, lifestyle, family, and support. Most unmet information needs concerned cancer-related consequences (e.g., late effects), while information needs on support were generally met. Migrant background and higher education were associated with higher information needs among parents. Siblings had lower information needs than parents.
CONCLUSIONS: This systematic review provides a comprehensive overview of the information needs of relatives in the context of childhood cancer, showing that information on cancer-related consequences is needed most often. The socioeconomic background of the relatives needs continued consideration throughout the cancer trajectory.
CONCLUSIONS: Our findings suggest the need for personalized information. Healthcare professionals should adapt their communication strategies to respond to the different and evolving needs of all affected relatives.
摘要：
目的：我们旨在：（1）总结儿童癌症患者亲属信息需求的定量证据，幸存者,和死于癌症的儿童；（2）确定与这些需求相关的因素。
方法：PubMed，PsycINFO,Scopus,系统搜索了CINAHL。评估了所有纳入出版物的方法学质量，并对提取的数据进行叙事综合分析。
结果：在5810篇确定的文章中，45人被包括在内。信息需求被归类为未满足，满足（满意），和未指定，分为五个领域：医疗信息，癌症相关的后果，生活方式,家庭,和支持。大多数未满足的信息需求与癌症相关的后果有关(例如，后期效应)，而关于支持的信息需求通常得到满足。移民背景和高等教育与父母更高的信息需求相关。兄弟姐妹的信息需求低于父母。
结论：本系统综述全面概述了儿童癌症背景下亲属的信息需求，表明癌症相关后果的信息是最需要的。亲属的社会经济背景需要在整个癌症轨迹中继续考虑。
结论：我们的研究结果表明需要个性化信息。医疗保健专业人员应调整其沟通策略，以应对所有受影响亲属的不同和不断变化的需求。
方法：PubMed，PsycINFO,Scopus,系统搜索了CINAHL。评估了所有纳入出版物的方法学质量，并对提取的数据进行叙事综合分析。
结果：在5810篇确定的文章中，45人被包括在内。信息需求被归类为未满足，满足（满意），和未指定，分为五个领域：医疗信息，癌症相关的后果，生活方式,家庭,和支持。大多数未满足的信息需求与癌症相关的后果有关(例如，后期效应)，而关于支持的信息需求通常得到满足。移民背景和高等教育与父母更高的信息需求相关。兄弟姐妹的信息需求低于父母。
结论：本系统综述全面概述了儿童癌症背景下亲属的信息需求，表明癌症相关后果的信息是最需要的。亲属的社会经济背景需要在整个癌症轨迹中继续考虑。
结论：我们的研究结果表明需要个性化信息。医疗保健专业人员应调整其沟通策略，以应对所有受影响亲属的不同和不断变化的需求。
