关键词: Cognitive impairment Dementia Ethnic groups Minority people Scoping review

Mesh : Humans Dementia / ethnology psychology Minority Groups / psychology Language Health Knowledge, Attitudes, Practice / ethnology Ethnicity / psychology Communication Barriers

来  源:   DOI:10.1159/000539446   PDF(Pubmed)

Abstract:
BACKGROUND: Dementia as a neurocognitive disorder is becoming increasingly common worldwide, and minority groups are more vulnerable than the general population. Many factors may contribute to their vulnerability such as misconceptions, language barriers, cultural factors, invalid assessment tools, lack of knowledge, or assigning spiritual beliefs to dementia symptoms. Therefore, this scoping literature review aimed to clarify how empirical studies reflect the meaning of dementia, language, and translation among minority ethnic groups.
CONCLUSIONS: The PRISMA extension for the scoping review protocol was used. Thirty-eight studies published in English were reviewed and analysed. The findings revealed that lack of knowledge about dementia and attributing the disease to the normal ageing process were frequent among minority groups. Furthermore, their cultural-specific perspectives and worldviews of wellness and well-being can impact the way dementia is perceived, consequent help-seeking behaviours, or caregiving. Facilitating educational programs to enhance the knowledge and experiences of ethnic communities might be beneficial. Moreover, language is shown to be an important aspect in dementia assessment and participants\' educational level could significantly impact their functional capacity when responding to cognitive measures. Even though there are some useful screening tests, diagnosis barriers might be eased by assessment tool development, modifications, and accurate translations for ethnic communities.
CONCLUSIONS: A promising pathway to support ethnically diverse communities regarding dementia can be raising awareness, providing ethnic-specific services, developing cultural-specific tools to assess dementia or any cognitive impairment by considering perceptions, language, and culture among ethnic groups. Cultural and spiritual considerations could also encourage engagement during assessment.
摘要:
背景:痴呆作为一种神经认知障碍在世界范围内变得越来越普遍,少数群体比一般人口更脆弱。许多因素可能导致他们的脆弱性,如误解,语言障碍,文化因素,无效的评估工具,缺乏知识或将精神信仰赋予痴呆症状。因此,这篇范围界定的文献综述旨在阐明实证研究如何反映痴呆症的含义,语言,和少数民族之间的翻译。
结论:使用范围审查方案的PRISMA扩展。对38项以英文发表的研究进行了回顾和分析。研究结果表明,在少数群体中,经常缺乏有关痴呆症的知识,并将疾病归因于正常的衰老过程。此外,他们对健康和幸福的文化特定观点和世界观会影响痴呆症的感知方式,随之而来的求助行为,或照顾。促进教育计划以增强种族社区的知识和经验可能是有益的。此外,语言被证明是痴呆症评估的一个重要方面,参与者的教育水平可能会显著影响他们在应对认知措施时的功能能力。即使有一些有用的筛查测试,诊断障碍可能会通过评估工具的开发来缓解,修改,和种族社区的准确翻译。
结论:支持不同种族的痴呆症社区的一个有希望的途径是提高人们的认识,提供特定种族的服务,开发特定文化的工具,通过考虑认知来评估痴呆症或任何认知障碍,语言,和民族之间的文化。文化和精神考虑也可以鼓励评估期间的参与。
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