PDF(Pubmed)
Abstract：
BACKGROUND: Family caregivers of children living with HIV/AIDS in most cases are found to be overwhelmed and under-resourced, yet they are believed to be the primary source of support for children living with HIV/AIDS. Family caregivers experience different challenges that affect their children\'s antiretroviral therapy (ART) adherence.
OBJECTIVE: This study explored the lived experiences of family caregivers of children living with HIV/AIDS who sought ART services for these children at the St Joseph\'s Hospital of Jirapa, Ghana.
METHODS: Using a qualitative phenomenology design and a semistructured in-depth interview guide and using purposive sampling, data were gathered from 13 family caregivers of children living with HIV/AIDS receiving ART treatment at St Joseph\'s Hospital, Jirapa following ethical approval. All interviews were audio-taped and transcribed verbatim. Reflexive thematic analysis was used to analyse the transcribed data.
RESULTS: Six themes were generated: five challenges and one support. Family caregivers of children living with HIV/AIDS experienced: (1) Financial challenges, (2) Human-related challenges, (3) Challenges at HIV testing and counselling (HTC) centres, (4) Challenges with transportation, (5) Challenges in disclosing children\'s HIV status to them and (6) Support received from HTC and their family members.
CONCLUSIONS: Family caregivers of children living with HIV/AIDS experience daunting challenges in their quest to care for their children. Governmental and non-governmental HIV/AIDS programme support should include small business skills training and acquisition including capital to help set up small-scale businesses for such caregivers to reduce their financial challenges. Access to ART at clinics closer to caregivers is also key to promoting adherence. Family and community support has been recognised as key to enhancing ART adherence. Education of caregivers on policy regarding disclosure of the HIV/AIDS status of children, the need to work to reduce the time spent by caregivers at HTC, and ensuring privacy by limiting access to HTCs to only caregivers and their children, are important to enhancing adherence.
OBJECTIVE: This study explored the lived experiences of family caregivers of children living with HIV/AIDS who sought ART services for these children at the St Joseph\'s Hospital of Jirapa, Ghana.
METHODS: Using a qualitative phenomenology design and a semistructured in-depth interview guide and using purposive sampling, data were gathered from 13 family caregivers of children living with HIV/AIDS receiving ART treatment at St Joseph\'s Hospital, Jirapa following ethical approval. All interviews were audio-taped and transcribed verbatim. Reflexive thematic analysis was used to analyse the transcribed data.
RESULTS: Six themes were generated: five challenges and one support. Family caregivers of children living with HIV/AIDS experienced: (1) Financial challenges, (2) Human-related challenges, (3) Challenges at HIV testing and counselling (HTC) centres, (4) Challenges with transportation, (5) Challenges in disclosing children\'s HIV status to them and (6) Support received from HTC and their family members.
CONCLUSIONS: Family caregivers of children living with HIV/AIDS experience daunting challenges in their quest to care for their children. Governmental and non-governmental HIV/AIDS programme support should include small business skills training and acquisition including capital to help set up small-scale businesses for such caregivers to reduce their financial challenges. Access to ART at clinics closer to caregivers is also key to promoting adherence. Family and community support has been recognised as key to enhancing ART adherence. Education of caregivers on policy regarding disclosure of the HIV/AIDS status of children, the need to work to reduce the time spent by caregivers at HTC, and ensuring privacy by limiting access to HTCs to only caregivers and their children, are important to enhancing adherence.
摘要：
背景：在大多数情况下，感染艾滋病毒/艾滋病儿童的家庭照顾者被发现不堪重负，资源不足，然而，他们被认为是支持感染艾滋病毒/艾滋病的儿童的主要来源。家庭照顾者经历不同的挑战，影响他们的孩子的抗逆转录病毒治疗（ART）的依从性。
目的：本研究探讨了在Jirapa圣约瑟夫医院为这些儿童寻求ART服务的HIV/AIDS患儿的家庭照顾者的生活经历。加纳。
方法：使用定性现象学设计和半结构化的深度访谈指南，并使用目的性抽样，数据来自圣约瑟夫医院接受ART治疗的13名艾滋病毒/艾滋病患者的家庭照顾者，Jirapa遵循道德批准。所有采访都是录音录音和逐字转录的。使用自反性主题分析对转录数据进行分析。
结果：产生了六个主题：五个挑战和一个支持。感染艾滋病毒/艾滋病儿童的家庭照顾者经历了:(1)财务挑战，（2）与人类有关的挑战，(3)艾滋病毒检测和咨询(HTC)中心面临的挑战，（4）交通方面的挑战，（5）向他们披露儿童的艾滋病毒状况的挑战，以及（6）从HTC及其家庭成员那里获得的支持。
结论：艾滋病毒/艾滋病患儿的家庭照顾者在寻求照顾子女的过程中面临着严峻的挑战。政府和非政府的艾滋病毒/艾滋病方案支持应包括小企业技能培训和收购，包括资本，以帮助为这些护理人员建立小企业，以减少他们的财务挑战。在更靠近护理人员的诊所获得ART也是促进依从性的关键。家庭和社区支持已被认为是提高ART依从性的关键。对护理人员进行关于披露儿童艾滋病毒/艾滋病状况的政策教育，需要努力减少护理人员在HTC花费的时间，并通过限制仅照顾者及其子女访问HTCs来确保隐私，对加强坚持很重要。
目的：本研究探讨了在Jirapa圣约瑟夫医院为这些儿童寻求ART服务的HIV/AIDS患儿的家庭照顾者的生活经历。加纳。
方法：使用定性现象学设计和半结构化的深度访谈指南，并使用目的性抽样，数据来自圣约瑟夫医院接受ART治疗的13名艾滋病毒/艾滋病患者的家庭照顾者，Jirapa遵循道德批准。所有采访都是录音录音和逐字转录的。使用自反性主题分析对转录数据进行分析。
结果：产生了六个主题：五个挑战和一个支持。感染艾滋病毒/艾滋病儿童的家庭照顾者经历了:(1)财务挑战，（2）与人类有关的挑战，(3)艾滋病毒检测和咨询(HTC)中心面临的挑战，（4）交通方面的挑战，（5）向他们披露儿童的艾滋病毒状况的挑战，以及（6）从HTC及其家庭成员那里获得的支持。
结论：艾滋病毒/艾滋病患儿的家庭照顾者在寻求照顾子女的过程中面临着严峻的挑战。政府和非政府的艾滋病毒/艾滋病方案支持应包括小企业技能培训和收购，包括资本，以帮助为这些护理人员建立小企业，以减少他们的财务挑战。在更靠近护理人员的诊所获得ART也是促进依从性的关键。家庭和社区支持已被认为是提高ART依从性的关键。对护理人员进行关于披露儿童艾滋病毒/艾滋病状况的政策教育，需要努力减少护理人员在HTC花费的时间，并通过限制仅照顾者及其子女访问HTCs来确保隐私，对加强坚持很重要。
