背景:护理人员和家庭在1型糖尿病(T1DM)儿科患者的管理和护理中发挥着重要作用。然而,照顾通常与社会和经济负担有关。这项研究评估了T1DM儿科患者沙特护理人员的负担以及潜在的社会和财务因素。
方法:对在法哈德国王医院(KFH)的糖尿病中心和萨尔曼本·阿卜杜勒阿齐兹国王医疗城(KSAMC)的糖尿病中心就诊的T1DM儿科患者的照顾者和家属进行了横断面研究。沙特阿拉伯王国(KSA)从2024年1月至2024年6月。使用Zarit负担问卷和照顾者护理成本评估问卷进行数据收集。
结果:该研究调查了376名参与者,主要是女性(N=285,75.8%)和已婚(N=317,84.3%),大多数年龄在18至47岁之间(N=322,85.6%)。T1DM儿科患者的家庭所经历的负担是中等的,平均总负担水平得分为27.8±16.3。对于那些受雇的人,大多数报告照常工作(N=107,81.1%),大多数人每周护理时间少于两小时(N=76,57.6%)。护理对储蓄的财务影响之间存在显着关联,消费,一般经济压力和社会负担(p<0.01)。
结论:研究结果表明,1型糖尿病儿科患者的照顾者所面临的负担适中,照顾对储蓄的财务影响之间有很强的相关性,消费,以及一般的财务压力和负担水平。研究结果还强调了护理对护理人员所承受的财务压力和生活方式变化的重大影响。
BACKGROUND: Caregivers and families play an essential role in managing and caring for type 1 diabetes mellitus (T1DM) pediatric patients. However, caregiving is usually associated with social and financial burdens. This study assesses the burden and underlying social and financial factors among Saudi caregivers of pediatric patients with T1DM.
METHODS: A cross-sectional study was conducted among caregivers and families of T1DM pediatric patients attending the Diabetic Center at King Fahad Hospital (KFH) and the Diabetic Center at King Salman Bin Abdulaziz Medical City (KSAMC) in Al-Madinah City, Kingdom of Saudi Arabia (KSA) from January 2024 to June 2024. The data collection was done using the Zarit Burden Questionnaire and the Caregiver Care Cost Assessment Questionnaire.
RESULTS: The study surveyed 376 participants, primarily females (N = 285, 75.8%) and married (N = 317, 84.3%), with a majority aged between 18 and 47 years (N = 322, 85.6%). The burden experienced by families with T1DM pediatric patients was moderate, with a mean total burden level score of 27.8 ± 16.3. For those employed, most reported working as usual (N = 107, 81.1%), with most spending less than two hours on care weekly (N = 76, 57.6%). A significant association was found between the financial impact of caregiving on saving, spending, and general financial stress and social burden (p < 0.01).
CONCLUSIONS: The findings show a moderate burden faced by caretakers of T1DM pediatric patients, with a strong correlation between the financial impact of caregiving on saving, spending, and general financial stress and burden level. The findings also highlight the significant impact of caregiving on the financial stress and lifestyle changes that caregivers endure.