PDF(Pubmed)
Abstract：
BACKGROUND: We aimed to define levels of unmet supportive care needs in people with primary brain tumor and to reach expert consensus on feasibility of addressing patients\' needs in clinical practice.
METHODS: We conducted secondary analysis of a prospective cohort study of people diagnosed with high-grade glioma (n = 116) who completed the Supportive Care Needs Survey-Short Form during adjuvant chemoradiation therapy. Participants were allocated to 1 of 3 categories: no need (\"no need\" for help on all items), low need (\"low need\" for help on at least 1 item, but no \"moderate\" or \"high\" need), or moderate/high need (at least 1 \"moderate\" or \"high\" need indicated). Clinical capacity to respond to the proportion of patients needing to be prioritized was assessed.
RESULTS: Overall, 13% (n = 5) were categorized as no need, 23% (n = 27) low need, and 64% (n = 74) moderate/high need. At least 1 moderate/high need was reported in the physical and daily living domain (42%) and the psychological (34%) domain. In recognition of health system capacity, the moderate/high need category was modified to distinguish between moderate need (\"moderate\" need indicated for at least 1 item but \"high\" need was not selected for any item) and high need (at least 1 \"high\" need indicated). Results revealed 24% (n = 28) moderate need and 40% (n = 46) high need. Those categorized as high need indicated needing assistance navigating the health system and information.
CONCLUSIONS: Using four step allocations resulted in 40% of patients indicating high need. Categories may facilitate appropriate triaging and guide stepped models of healthcare delivery.
METHODS: We conducted secondary analysis of a prospective cohort study of people diagnosed with high-grade glioma (n = 116) who completed the Supportive Care Needs Survey-Short Form during adjuvant chemoradiation therapy. Participants were allocated to 1 of 3 categories: no need (\"no need\" for help on all items), low need (\"low need\" for help on at least 1 item, but no \"moderate\" or \"high\" need), or moderate/high need (at least 1 \"moderate\" or \"high\" need indicated). Clinical capacity to respond to the proportion of patients needing to be prioritized was assessed.
RESULTS: Overall, 13% (n = 5) were categorized as no need, 23% (n = 27) low need, and 64% (n = 74) moderate/high need. At least 1 moderate/high need was reported in the physical and daily living domain (42%) and the psychological (34%) domain. In recognition of health system capacity, the moderate/high need category was modified to distinguish between moderate need (\"moderate\" need indicated for at least 1 item but \"high\" need was not selected for any item) and high need (at least 1 \"high\" need indicated). Results revealed 24% (n = 28) moderate need and 40% (n = 46) high need. Those categorized as high need indicated needing assistance navigating the health system and information.
CONCLUSIONS: Using four step allocations resulted in 40% of patients indicating high need. Categories may facilitate appropriate triaging and guide stepped models of healthcare delivery.
摘要：
背景：我们旨在确定原发性脑肿瘤患者未满足的支持性护理需求水平，并就临床实践中满足患者需求的可行性达成专家共识。
方法：我们对在辅助放化疗期间完成支持性护理需求调查SF34的高级别神经胶质瘤患者（n=116）进行了一项前瞻性队列研究的二次分析。参与者被分配到三个类别之一：不需要（“不需要”帮助所有项目），低需求(\'低需求\'对于至少一个项目的帮助,但没有\'中等\'或\'高\'需要)，或中等/高需求(至少指示一个“中等”或“高”需求)。评估了对需要优先考虑的患者比例的临床反应能力。
结果：总体而言，13%(n=5)被归类为不需要，23%(n=27)低需求，64%(n=74)中/高需求。在身体和日常生活领域至少报告了一种中度/高度需求（42％），和心理领域(34%)。认识到卫生系统的能力，对中等/高需求类别进行了修改，以区分:中等需求(至少一个项目表示“中等”需求，但任何项目均未选择“高”需求)和高需求(至少一个“高”需求)。结果显示24％（n=28）中等需求和40％（n=46）高需求。被归类为高需求的人表示需要协助导航卫生系统和信息。
结论：使用四步分配导致40%的患者表示高需求。类别可能有助于适当的分类，并指导医疗保健交付的阶梯式模式。
方法：我们对在辅助放化疗期间完成支持性护理需求调查SF34的高级别神经胶质瘤患者（n=116）进行了一项前瞻性队列研究的二次分析。参与者被分配到三个类别之一：不需要（“不需要”帮助所有项目），低需求(\'低需求\'对于至少一个项目的帮助,但没有\'中等\'或\'高\'需要)，或中等/高需求(至少指示一个“中等”或“高”需求)。评估了对需要优先考虑的患者比例的临床反应能力。
结果：总体而言，13%(n=5)被归类为不需要，23%(n=27)低需求，64%(n=74)中/高需求。在身体和日常生活领域至少报告了一种中度/高度需求（42％），和心理领域(34%)。认识到卫生系统的能力，对中等/高需求类别进行了修改，以区分:中等需求(至少一个项目表示“中等”需求，但任何项目均未选择“高”需求)和高需求(至少一个“高”需求)。结果显示24％（n=28）中等需求和40％（n=46）高需求。被归类为高需求的人表示需要协助导航卫生系统和信息。
结论：使用四步分配导致40%的患者表示高需求。类别可能有助于适当的分类，并指导医疗保健交付的阶梯式模式。
