PDF(Pubmed)
Abstract：
BACKGROUND: Community-based social participation has shown promise in delaying cognitive decline in older adults with mild cognitive impairment (MCI) who are at risk of developing dementia. Although group storytelling interventions have proven effective, the need for a skilled workforce to support people with MCI can limit broader community implementation. Technology-based interventions may offer a solution to this limitation by replicating the abilities of therapists.
OBJECTIVE: This study aims to co-design a digital storytelling intervention and evaluate its usability.
METHODS: This co-design process involved 3 stages, engaging people with MCI (n=12), their caregivers (n=4), and therapists (n=5) in Beijing, China. In the first stage, we used card sorting and voting methods to identify potential incentives for social participation and target the specific abilities that people with MCI wanted to enhance. In the second stage, we conducted brainstorming sessions with people with MCI and their caregivers to identify the potential features of a digital storytelling application named Huiyou (\"meeting new friends\" in Chinese). Finally, we assessed Huiyou\'s usability with people with MCI and therapists, leading to iterative improvements based on the usability findings.
RESULTS: We uncovered a crucial link between boosting the self-confidence of people with MCI and their ability to address social participation challenges. Notably, we identified memory improvement and enhanced language expression as key factors for effective communication with grandchildren. Subsequently, participants suggested features and interfaces to address these challenges, leading to the development of Huiyou, a group-based digital storytelling application featuring functions such as generating story materials, conducting memory retrieval activities, and sharing stories. It received an \"excellent\" rating in the User Experience Questionnaire benchmark, displaying high levels of attractiveness, dependability, stimulation, and novelty. People with MCI achieved an average task completion rate of 87% (n=19; SD 0.13) of the 22 tasks. However, feedback from people with MCI and therapists highlighted usability issues in navigation, activity management, user interface, and feature optimization, indicating a need for improved accessibility and efficiency.
CONCLUSIONS: The co-design approach contributed to developing the Huiyou prototype, supporting community-based social participation. User feedback highlighted the potential of Huiyou to enhance well-being and facilitate meaningful social interactions while maintaining crucial existing relationships.
OBJECTIVE: This study aims to co-design a digital storytelling intervention and evaluate its usability.
METHODS: This co-design process involved 3 stages, engaging people with MCI (n=12), their caregivers (n=4), and therapists (n=5) in Beijing, China. In the first stage, we used card sorting and voting methods to identify potential incentives for social participation and target the specific abilities that people with MCI wanted to enhance. In the second stage, we conducted brainstorming sessions with people with MCI and their caregivers to identify the potential features of a digital storytelling application named Huiyou (\"meeting new friends\" in Chinese). Finally, we assessed Huiyou\'s usability with people with MCI and therapists, leading to iterative improvements based on the usability findings.
RESULTS: We uncovered a crucial link between boosting the self-confidence of people with MCI and their ability to address social participation challenges. Notably, we identified memory improvement and enhanced language expression as key factors for effective communication with grandchildren. Subsequently, participants suggested features and interfaces to address these challenges, leading to the development of Huiyou, a group-based digital storytelling application featuring functions such as generating story materials, conducting memory retrieval activities, and sharing stories. It received an \"excellent\" rating in the User Experience Questionnaire benchmark, displaying high levels of attractiveness, dependability, stimulation, and novelty. People with MCI achieved an average task completion rate of 87% (n=19; SD 0.13) of the 22 tasks. However, feedback from people with MCI and therapists highlighted usability issues in navigation, activity management, user interface, and feature optimization, indicating a need for improved accessibility and efficiency.
CONCLUSIONS: The co-design approach contributed to developing the Huiyou prototype, supporting community-based social participation. User feedback highlighted the potential of Huiyou to enhance well-being and facilitate meaningful social interactions while maintaining crucial existing relationships.
摘要：
背景：以社区为基础的社会参与已显示出在延缓患有轻度认知障碍（MCI）且有患痴呆症风险的老年人的认知能力下降方面的前景。尽管集体讲故事干预已被证明是有效的，需要熟练的劳动力来支持MCI的人可能会限制更广泛的社区实施。基于技术的干预措施可以通过复制治疗师的能力来解决这一限制。
目的：本研究旨在共同设计数字讲故事干预措施并评估其可用性。
方法：这个共同设计过程包括三个阶段，参与MCI的人（n=12），他们的照顾者(n=4)，和北京的治疗师（n=5），中国。在第一阶段,我们使用卡片分类和投票方法来确定社会参与的潜在诱因,并针对MCI患者希望增强的特定能力.在第二阶段,我们进行了头脑风暴会议与人与MCI和他们的照顾者，以确定数字讲故事应用程序的潜在功能名为惠优（“会见新朋友”）。最后,我们评估了汇友与MCI和治疗师的可用性，导致基于可用性发现的迭代改进。
结果：我们发现了提高MCI患者的自信心与他们应对社会参与挑战的能力之间的关键联系。值得注意的是,我们认为记忆改善和语言表达增强是与孙辈有效沟通的关键因素。随后，参与者建议了应对这些挑战的功能和接口，导致汇友的发展，基于组的数字讲故事应用程序，具有生成故事材料等功能，进行记忆检索活动，分享故事。它在用户体验问卷基准中获得了“优秀”评级，显示出高水平的吸引力，可靠性，刺激,和新奇。MCI患者在22项任务中的平均任务完成率为87％（n=19；SD0.13）。然而,MCI患者和治疗师的反馈强调了导航中的可用性问题，活动管理，用户界面，和功能优化，表明需要提高可访问性和效率。
结论：共同设计方法有助于开发汇友原型，支持以社区为基础的社会参与。用户反馈强调了汇友在维持重要的现有关系的同时，增强福祉并促进有意义的社交互动的潜力。
目的：本研究旨在共同设计数字讲故事干预措施并评估其可用性。
方法：这个共同设计过程包括三个阶段，参与MCI的人（n=12），他们的照顾者(n=4)，和北京的治疗师（n=5），中国。在第一阶段,我们使用卡片分类和投票方法来确定社会参与的潜在诱因,并针对MCI患者希望增强的特定能力.在第二阶段,我们进行了头脑风暴会议与人与MCI和他们的照顾者，以确定数字讲故事应用程序的潜在功能名为惠优（“会见新朋友”）。最后,我们评估了汇友与MCI和治疗师的可用性，导致基于可用性发现的迭代改进。
结果：我们发现了提高MCI患者的自信心与他们应对社会参与挑战的能力之间的关键联系。值得注意的是,我们认为记忆改善和语言表达增强是与孙辈有效沟通的关键因素。随后，参与者建议了应对这些挑战的功能和接口，导致汇友的发展，基于组的数字讲故事应用程序，具有生成故事材料等功能，进行记忆检索活动，分享故事。它在用户体验问卷基准中获得了“优秀”评级，显示出高水平的吸引力，可靠性，刺激,和新奇。MCI患者在22项任务中的平均任务完成率为87％（n=19；SD0.13）。然而,MCI患者和治疗师的反馈强调了导航中的可用性问题，活动管理，用户界面，和功能优化，表明需要提高可访问性和效率。
结论：共同设计方法有助于开发汇友原型，支持以社区为基础的社会参与。用户反馈强调了汇友在维持重要的现有关系的同时，增强福祉并促进有意义的社交互动的潜力。
