关键词: allergic reaction children content analysis food allergy grounded theory health care professionals information needs information seeking parents prediction prevention risk factors

来  源:   DOI:10.2196/41436   PDF(Pubmed)

Abstract:
BACKGROUND: Food allergy in children is increasing in prevalence in the western world and appears to become an important health problem. Parents of children at risk of food allergy live with the fear of allergic reaction, especially when the children are very young. The paradigm shift in allergy prevention in the last decade-away from allergen avoidance toward a tolerance induction approach-challenges both parents and health care professionals, as they have to deal with changing information and new evidence that often contradicts previous assumptions. Yet, research on health information-seeking behavior and needs of parents on primary prevention of food allergy in children as well as on prediction and prevention strategies of German health care professionals is lacking.
OBJECTIVE: The aim of the study is to explore and understand parents\' and health care professionals\' perspectives on the prediction and prevention of food allergies. We are particularly interested in information needs, information seeking, and health care usage and place a special focus on families\' experiences when their child is at risk or diagnosed with food allergies. Furthermore, food allergy prediction and prevention strategies of health care professionals will be explored.
METHODS: This study is part of the NAMIBIO (food allergy biomarker) app consortium, which aims to identify early predictors for the development of food allergy in children and develop apps to guide health care professionals and parents of children with a high risk of food allergy toward prevention and timely tolerance induction. The study uses a qualitative approach with topic-guided interviews and focus groups with parents of children (0-3 years) and health care professionals. Data collection will continue until theoretical saturation is reached. The qualitative content analysis will be used according to Kuckartz to identify overarching themes toward information needs and seeking behavior as well as usage of health care and health care professionals\' predictive and preventive strategies. In addition, a constructivist grounded theory approach will be used to explore and understand parents\' experiences, interactions, and social processes in families in daily life.
RESULTS: Recruitment and data collection started in February 2022 and is still ongoing.
CONCLUSIONS: The qualitative study will provide insight into parents\' information-seeking behavior and needs regarding the prevention of food allergy in children, parents\' use of pediatric primary care, and health care professionals strategies for the prediction and prevention of food allergies in children. We assume that our results will highlight the challenges associated with the paradigm shift in allergy prevention for both parents and health care professionals. The results will be used to make practical recommendations from the user\'s perspective and inform the development of the NAMIBIO apps.
UNASSIGNED: DERR1-10.2196/41436.
摘要:
背景:在西方世界,儿童中的食物过敏患病率正在增加,并且似乎已成为重要的健康问题。有食物过敏风险的儿童的父母生活在对过敏反应的恐惧中,尤其是当孩子们很小的时候。在过去的十年中,预防过敏的范式转变-从避免过敏原转向耐受性诱导方法-挑战了父母和医疗保健专业人员。因为他们必须处理经常与先前假设相矛盾的不断变化的信息和新证据。然而,缺乏对健康信息寻求行为和父母对儿童食物过敏一级预防的需求以及德国卫生保健专业人员的预测和预防策略的研究。
目的:这项研究的目的是探索和了解父母和卫生保健专业人员对食物过敏的预测和预防的观点。我们对信息需求特别感兴趣,寻求信息,和医疗保健的使用,并特别关注家庭的经历,当他们的孩子处于危险之中或被诊断患有食物过敏时。此外,将探讨卫生保健专业人员的食物过敏预测和预防策略。
方法:这项研究是NAMIBIO(食物过敏生物标志物)应用程序联盟的一部分,该项目旨在确定儿童食物过敏发展的早期预测因素,并开发应用程序,以指导医疗保健专业人员和食物过敏高风险儿童的父母预防和及时诱导耐受。该研究采用定性方法,对儿童(0-3岁)的父母和医疗保健专业人员进行主题指导访谈和焦点小组。数据收集将继续,直到达到理论饱和。根据Kuckartz的说法,定性内容分析将用于确定信息需求和寻求行为的总体主题,以及医疗保健和医疗保健专业人员的预测和预防策略的使用。此外,建构主义扎根的理论方法将用于探索和理解父母的经验,互动,以及日常生活中家庭的社会过程。
结果:招聘和数据收集始于2022年2月,目前仍在进行中。
结论:定性研究将深入了解父母在预防儿童食物过敏方面的信息寻求行为和需求,父母使用儿科初级保健,以及卫生保健专业人员预测和预防儿童食物过敏的策略。我们假设我们的结果将突出与父母和医疗保健专业人员过敏预防范式转变相关的挑战。结果将用于从用户的角度提出实际建议,并为NAMBIO应用程序的开发提供信息。
DERR1-10.2196/41436。
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