Abstract：
Patients who need a live donor kidney transplant (LDKT) must often ask potential donors (PLDs) themselves. This is a difficult task and healthcare could unburden them by making this first contact, ensuring also that PLDs receive correct information. We investigated how PLDs experience receiving a letter from healthcare about LDKT, live kidney donation, and inviting them to meet with professionals to get more information.
The letter (LD-letter) was sent to a cohort of 46 individuals, from which a purposeful sample of 15 were interviewed using a semi-structured guide covering their experience of the letter, views on being approached by healthcare, and opinions on style and content. Interviews were analyzed using conventional inductive analysis.
We identified three categories of experiences: Category (1) Reflections on receiving the letter, contains three subcategories relating to how the letter did not induce pressure to donate, did not affect the PLD\'s relationship with the patient with kidney disease, and made the letter-receiver feel important in the transplant process; Category (2) The letter creates clarification and trust, also contains three subcategories, relating to how it clarified the voluntariness of donation and neutrality of healthcare providers with respect to the PLD\'s decision, elucidated the patient with kidney disease\'s current stage of disease (where transplantation was approaching), and unburdened patients from the responsibility of contacting PLDs on their own; Category (3) Opinions and suggestions about the letter and further communication, with four subcategories, relating to preference of a letter as the first step for communication about LDKT, suggestions on style and content, views on following up the letter, and how open meetings about LDKT were an important information source. Furthermore, 80% of the interviewees found the letter\'s information comprehensive, 67% found it easy to read and respectful, and 86% rated it as good or very good.
Potential donors prefer and recommend a letter as the first step for communication regarding LD. The LD-letter unburdens patients from the task of asking PLDs and stresses the voluntariness of donation, does not leave PLDs feeling coerced or lead to negative effects in their relationship with the patient.
The letter (LD-letter) was sent to a cohort of 46 individuals, from which a purposeful sample of 15 were interviewed using a semi-structured guide covering their experience of the letter, views on being approached by healthcare, and opinions on style and content. Interviews were analyzed using conventional inductive analysis.
We identified three categories of experiences: Category (1) Reflections on receiving the letter, contains three subcategories relating to how the letter did not induce pressure to donate, did not affect the PLD\'s relationship with the patient with kidney disease, and made the letter-receiver feel important in the transplant process; Category (2) The letter creates clarification and trust, also contains three subcategories, relating to how it clarified the voluntariness of donation and neutrality of healthcare providers with respect to the PLD\'s decision, elucidated the patient with kidney disease\'s current stage of disease (where transplantation was approaching), and unburdened patients from the responsibility of contacting PLDs on their own; Category (3) Opinions and suggestions about the letter and further communication, with four subcategories, relating to preference of a letter as the first step for communication about LDKT, suggestions on style and content, views on following up the letter, and how open meetings about LDKT were an important information source. Furthermore, 80% of the interviewees found the letter\'s information comprehensive, 67% found it easy to read and respectful, and 86% rated it as good or very good.
Potential donors prefer and recommend a letter as the first step for communication regarding LD. The LD-letter unburdens patients from the task of asking PLDs and stresses the voluntariness of donation, does not leave PLDs feeling coerced or lead to negative effects in their relationship with the patient.
摘要：
需要活体供体肾脏移植（LDKT）的患者必须经常自己询问潜在供体（PLD）。这是一项艰巨的任务，医疗保健可以通过第一次接触来减轻他们的负担，还确保PLD收到正确的信息。我们调查了PLD如何收到来自医疗保健的关于LDKT的信，活体肾脏捐赠,并邀请他们与专业人士会面以获取更多信息。
这封信（LD-letter）被发送给了46个人，其中有目的的15人样本使用半结构化指南进行了采访，涵盖了他们对这封信的经历，关于被医疗保健接触的观点，以及关于风格和内容的意见。使用常规归纳分析对访谈进行分析。
我们确定了三类经验：类别（1）对收到信件的思考，包含三个子类别，涉及这封信如何没有引起捐赠压力，不影响PLD与肾病患者的关系，并使收信人在移植过程中感到重要；类别（2）这封信创造了澄清和信任，还包含三个子类别，关于它如何澄清捐赠的自愿性和医疗保健提供者关于PLD的决定的中立性，阐明了患有肾脏疾病的患者的当前疾病阶段（移植即将到来），无患者自行联系PLDs的责任；第（3）类关于信函和进一步沟通的意见和建议，有四个子类别，关于将一封信作为关于LDKT的沟通的第一步，关于风格和内容的建议，对跟进这封信的意见，以及关于LDKT的公开会议如何成为重要的信息来源。此外，80%的受访者认为这封信的信息全面，67%的人发现它易于阅读和尊重。86%的人认为它很好或非常好。
潜在的捐献者喜欢并推荐一封信，作为关于LD沟通的第一步。LD-letter解除了患者询问PLDs的负担，并强调捐赠的自愿性，不会让PLDs感到被胁迫或导致与患者的关系产生负面影响。
这封信（LD-letter）被发送给了46个人，其中有目的的15人样本使用半结构化指南进行了采访，涵盖了他们对这封信的经历，关于被医疗保健接触的观点，以及关于风格和内容的意见。使用常规归纳分析对访谈进行分析。
我们确定了三类经验：类别（1）对收到信件的思考，包含三个子类别，涉及这封信如何没有引起捐赠压力，不影响PLD与肾病患者的关系，并使收信人在移植过程中感到重要；类别（2）这封信创造了澄清和信任，还包含三个子类别，关于它如何澄清捐赠的自愿性和医疗保健提供者关于PLD的决定的中立性，阐明了患有肾脏疾病的患者的当前疾病阶段（移植即将到来），无患者自行联系PLDs的责任；第（3）类关于信函和进一步沟通的意见和建议，有四个子类别，关于将一封信作为关于LDKT的沟通的第一步，关于风格和内容的建议，对跟进这封信的意见，以及关于LDKT的公开会议如何成为重要的信息来源。此外，80%的受访者认为这封信的信息全面，67%的人发现它易于阅读和尊重。86%的人认为它很好或非常好。
潜在的捐献者喜欢并推荐一封信，作为关于LD沟通的第一步。LD-letter解除了患者询问PLDs的负担，并强调捐赠的自愿性，不会让PLDs感到被胁迫或导致与患者的关系产生负面影响。
