Abstract：
UNASSIGNED: Patient and public involvement (PPI) is becoming more common in research, but has been problematized for lack of diversity. While PPI literature increasingly focuses on assessment of PPI on research, a focus on the contributors is less common. This study tracked the experiences of involvement among four refugee parents involved as public contributors in a child mental health trial, over three years.
UNASSIGNED: The study used a longitudinal qualitative design with focus group discussions. Data were analysed using thematic analysis combined with a longitudinal analysis approach.
UNASSIGNED: The refugee parents\' motivations for being involved changed from focusing on individual benefits to societal change. They initially viewed themselves as guests, which transformed into utilizing the group for social support. Time impacted trust-building positively, with continued collaboration strengthening trust. Practical aspects were dominant in the beginning, which shifted over time to allow more focus on research. They identified several learnings they gained from involvement. A discrepancy in how parents and researchers viewed involvement was identified, where parents saw researchers as owners of the research.
UNASSIGNED: To sustain successful PPI collaboration over time, researchers need to prioritize investment in time and resources, in communication, including working with interpreters, and in continued adjustments.
UNASSIGNED: The study used a longitudinal qualitative design with focus group discussions. Data were analysed using thematic analysis combined with a longitudinal analysis approach.
UNASSIGNED: The refugee parents\' motivations for being involved changed from focusing on individual benefits to societal change. They initially viewed themselves as guests, which transformed into utilizing the group for social support. Time impacted trust-building positively, with continued collaboration strengthening trust. Practical aspects were dominant in the beginning, which shifted over time to allow more focus on research. They identified several learnings they gained from involvement. A discrepancy in how parents and researchers viewed involvement was identified, where parents saw researchers as owners of the research.
UNASSIGNED: To sustain successful PPI collaboration over time, researchers need to prioritize investment in time and resources, in communication, including working with interpreters, and in continued adjustments.
摘要：
■患者和公众参与(PPI)在研究中变得越来越普遍，但由于缺乏多样性而受到质疑。虽然PPI文献越来越关注对PPI的评估研究，关注贡献者并不常见。这项研究追踪了四名难民父母作为公共贡献者参与儿童心理健康试验的经历，超过三年。
■该研究采用了纵向定性设计，并进行了焦点小组讨论。使用主题分析结合纵向分析方法对数据进行分析。
■难民父母参与的动机从关注个人利益转变为社会变革。他们最初将自己视为客人，转变为利用该群体获得社会支持。时间对建立信任产生了积极影响，继续合作，加强信任。实践方面在开始时占主导地位，随着时间的推移，这使得更多的注意力集中在研究上。他们确定了从参与中获得的一些教训。确定了父母和研究人员如何看待参与的差异，父母将研究人员视为研究的所有者。
■为了随着时间的推移维持成功的PPI合作，研究人员需要优先考虑时间和资源的投资，在沟通中,包括与口译员合作，并继续调整。
■该研究采用了纵向定性设计，并进行了焦点小组讨论。使用主题分析结合纵向分析方法对数据进行分析。
■难民父母参与的动机从关注个人利益转变为社会变革。他们最初将自己视为客人，转变为利用该群体获得社会支持。时间对建立信任产生了积极影响，继续合作，加强信任。实践方面在开始时占主导地位，随着时间的推移，这使得更多的注意力集中在研究上。他们确定了从参与中获得的一些教训。确定了父母和研究人员如何看待参与的差异，父母将研究人员视为研究的所有者。
■为了随着时间的推移维持成功的PPI合作，研究人员需要优先考虑时间和资源的投资，在沟通中,包括与口译员合作，并继续调整。
