关键词: Cancer survivorship Education material Fertility preservation Online material Patient education Readability index

Mesh : Cancer Survivors Comprehension Fertility Preservation Humans Neoplasms / therapy Research Writing

来  源:   DOI:10.1016/j.jcpo.2021.100276   PDF(Sci-hub)

Abstract:
National Institute of Health recommends that patient education material should be written at no greater than 6th-grade level. Cancer survivorship and fertility preservation discussion with patients is recommended by many national societies and being done more frequently. We sought to analyze online patient information on cancer survivorship and fertility preservation to see if they meet the criteria set by national guidelines.
Online patient information on cancer survivorship and fertility preservation was collected and analyzed by six of the most common readability tests. Only websites in English and free to access were used.
A total of 15 separate websites for cancer survivorship and fertility preservation was used. All websites failed to meet national guidelines. Cancer survivorship information was written at a high school senior and a 12th-grade level. Fertility preservation information was written at a high school-senior and junior college level.
Online patient information on cancer survivorship and fertility preservation did not meet national guidelines. Testing across six of the most used readability indexes showed that information is challenging to understand for the general patient population.
This article shares an insight into the complex and growing fields of cancer survivorship and fertility preservation. Educating patients about their condition is critical and improves outcomes and participation in shared decision making. Healthcare policy should focus on implementing a system that will provide culturally and linguistically appropriate information in the community for patients about their disease.
摘要:
美国国立卫生研究院建议患者教育材料的编写应不超过6年级。许多国家协会建议与患者进行癌症生存率和生育能力保护讨论,并且这种讨论更加频繁。我们试图分析有关癌症生存率和生育力保护的在线患者信息,以查看它们是否符合国家指南设定的标准。
通过六种最常见的可读性测试,收集并分析了有关癌症生存率和生育力保护的在线患者信息。仅使用英文和免费访问的网站。
总共使用了15个独立的癌症生存和生育能力保存网站。所有网站都不符合国家准则。癌症生存信息是在高中和12年级写的。生育力保存信息是在高中和初中阶段编写的。
关于癌症生存率和生育力保护的在线患者信息不符合国家指南。对六个最常用的可读性指标进行的测试表明,对于一般患者人群而言,理解信息具有挑战性。
本文分享了对癌症生存率和生育能力保护的复杂和不断增长的领域的见解。对患者进行有关其病情的教育至关重要,可以改善结果并参与共同决策。医疗保健政策应侧重于实施一个系统,该系统将在社区中为患者提供有关其疾病的文化和语言上适当的信息。
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