关键词: health care decision-making legitimacy participation representation responsiveness

Mesh : Community Participation / methods Decision Making Delivery of Health Care Dissent and Disputes Humans

来  源:   DOI:10.1111/hex.13483

Abstract:
The involvement of lay people in health care decision-making processes is now the norm in many countries. However, one important aspect of participation has not received sufficient attention in the past and remains underexplored: representation.
This paper explores the question of how public participation efforts in collective health care decision-making processes can attempt to aim for legitimate representation so that those individuals or groups not present can be taken into account in the decisions affecting them. This paper argues that to make decisions that effectively address those affected, representation needs to be seen as a relevant part of any participatory setting. To support this argument, the paper outlines the concepts of participation and representation and transfers them to health care contexts.
A conceptual reflection on responsiveness and the characteristics of representative actors in representative-participatory settings is introduced, which could provide actors planning to conduct participatory health care projects with tools to reflect on the merits and possible flaws of participatory constellations.
The paper contributes to improving public participation in health care decision-making.
摘要:
现在,在许多国家,非专业人员参与医疗保健决策过程已成为常态。然而,参与的一个重要方面过去没有得到足够的重视,仍然没有得到充分的探索:代表性。
本文探讨了集体医疗保健决策过程中的公众参与努力如何试图以合法代表为目标,以便在影响他们的决策中考虑那些不在场的个人或群体。本文认为,要做出有效解决受影响者的决策,代表性需要被视为任何参与性设置的相关部分。为了支持这一论点,本文概述了参与和代表性的概念,并将其转移到医疗保健环境中。
介绍了对代表性参与式环境中的响应性和代表性参与者特征的概念反思,这可以为计划开展参与性医疗保健项目的行为者提供工具,以反映参与性星座的优点和可能的缺陷。
本文有助于提高公众对医疗保健决策的参与。
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