METHODS: The German PACIC short form (11 items) was adapted to a nine-item version for surveying bereaved persons on the decedent\'s LYOL (PACIC-S9-Proxy). Items were rated on a five-point Likert scale. The PACIC adaptation and validation was part of a cross-sectional survey in the region of Cologne. Participants were recruited through self-selection and active recruitment by practice partners. Sociodemographic characteristics and missing data were analyzed using descriptive statistics. An exploratory factor analysis was conducted in order to assess the structure of the PACIC-S9-Proxy. Internal consistency was estimated using Cronbach\'s alpha.
RESULTS: Of the 351 informants who participated in the survey, 230 (65.52%) considered their decedent to have suffered from chronic illness prior to death. 193 of these informants (83.91%) completed ≥5 items of the questionnaire and were included in the analysis. The least answered item was item (74.09%) was item 4 (encouragement to group & classes for coping). The most frequently answered item (96.89%) was item 2 (satisfaction with care organization). Informants rated the item\" Given a copy of their treatment plan\" highest (mean 3.96), whereas \"encouragement to get to a specific group or class to cope with the condition\" (mean 1.74) was rated lowest. Cronbach\'s alpha was 0.84. A unidimensional structure of the questionnaire was found (Kaiser-Meyer-Olkin 0.86, Bartlett\'s test for sphericity p < 0.001), with items\' factor loadings ranging from 0.46 to 0.82.
CONCLUSIONS: The nine-item questionnaire can be used as efficient tool for assessing PCC during the LYOL retrospectively and by proxies.
BACKGROUND: The study was registered in the German Clinical Trials Register ( DRKS00011925 ) on 13 June 2017.
方法:德国PACIC简表(11项)适用于九项版本,用于在死者的LYOL(PACIC-S9-Proxy)上测量丧亲者。项目按五点李克特量表进行评级。PACIC适应和验证是科隆地区横断面调查的一部分。参与者是通过自我选择和实践伙伴积极招募的。使用描述性统计分析社会人口统计学特征和缺失数据。进行探索性因素分析以评估PACIC-S9-Proxy的结构。内部一致性是使用Cronbach的alpha进行估计的。
结果:在参与调查的351名举报人中,230人(65.52%)认为死者在死亡前患有慢性病。其中193人(83.91%)完成了问卷的≥5项,并被纳入分析。回答最少的项目是项目(74.09%)是项目4(鼓励分组和班级应对)。最常回答的项目(96.89%)是项目2(对护理组织的满意度)。举报人对“给定其治疗计划的副本”项目的评分最高(平均3.96),而“鼓励去特定的群体或班级应对这种情况”(平均1.74)被评为最低。克朗巴赫的阿尔法是0.84。发现问卷的一维结构(Kaiser-Meyer-Olkin0.86,Bartlett\的球形度测试p<0.001),项目的系数载荷范围从0.46到0.82。
结论:九项问卷可作为回顾性分析和代理评估生命周期中PCC的有效工具。
背景:该研究于2017年6月13日在德国临床试验注册中心(DRKS00011925)注册。