关键词: Cancer childhood infrequent pediatric rare

Mesh : Adolescent Child Child, Preschool Consensus Global Health Humans Infant Infant, Newborn International Cooperation Neoplasms / epidemiology Prevalence Rare Diseases / epidemiology Registries

来  源:   DOI:10.1002/cam4.426

Abstract:
Rare childhood cancers have not benefited to the same extent from the gains that have been made for their frequently occurring counterparts. In recent years, this gap has been recognized and a number of vehicles now exist to improve outcome, including rare tumor groups, disease-specific registries, and clinics. The multitude of approaches has allowed significant progress, however, this framework is limited by patient number and is not inclusive for every type of rare childhood cancer. These shortcomings can be overcome by a single global unified approach to the study of rare childhood tumors.
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