关键词: decision-making family genetic counselling interpretative phenomenological analysis psychological intervention risk communication

Mesh : Adult Decision Making Family / psychology Female Genetic Counseling / methods psychology Humans Male Neuromuscular Diseases / genetics psychology Qualitative Research Risk Assessment

来  源:   DOI:10.1177/1359105312470852   PDF(Sci-hub)

Abstract:
This study explored the processes of significance about the risk communication in prenatal/preconception setting within 1 month to the end of genetic counselling intervention. Participants were all attending a programme of Cardiomyology and Medical Genetics in Naples, Italy, for the first time. Transcripts of 18 semi-structured interviews were analysed using interpretative phenomenological analysis. Themes arising included the following: the familiar outcomes of genetic counselling, the risk representation and the impacts on decision-making. The findings suggest the significance of the experience of genetic risk and the implications for the support of individuals and their family after the conclusion of the genetic counselling intervention.
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