risk communication

风险沟通
  • 文章类型: Journal Article
    讲故事吸引观众,传承传统和历史,教育,并帮助人们理解和解释他们的环境。许多从事农业工作的人从小就成为讲故事传统的一部分。研究证明了个人故事的情感影响,以及如何通过这种沟通方式有效地传达“农民对农民”的预防信息。
    自2016年以来,“讲故事项目”为那些直接或间接参与农业事件的人提供了一个空间,让他们分享他们的故事和关于如何避免类似事件的独特观点。
    这个合作项目,在国家职业安全与健康研究所(NIOSH)农业安全中心之间开发,在一个专门的网站上产生了11个故事,安全和卫生资源,和教育指南。这些故事和教育指南已经通过传统和社交媒体来源进行了广泛的营销,受雇于安全培训,并受到农业项目教育工作者的欢迎。该网站提供了超过35,000次访问的国家和国际范围。
    对故事的定性主题分析提供了有关导致每个事件的情况的数据,关于讲故事的人如何解释后果的有价值的信息,以及关于安全专业人员如何创建消息的新颖观点,这些消息将引起农业社区的共鸣。
    UNASSIGNED: Storytelling engages audiences, passes down traditions and history, educates, and helps people understand and interpret their environment. Many of those who work in agriculture have been part of the storytelling tradition since childhood. Research has demonstrated the emotional impact of personal stories and how prevention information is conveyed effectively \"farmer to farmer\" through this method of communication.
    UNASSIGNED: Since 2016, the Telling the Story Project has provided a space for those directly or indirectly involved in an agricultural incident to share their story and unique perspectives on how similar incidents can be avoided.
    UNASSIGNED: This collaborative project, developed between the National Institute for Occupational Safety and Health (NIOSH) Agriculture Safety Centers, has resulted in 11 stories on a dedicated website, safety and health resources, and educational guides. The stories and educational guidelines have been marketed extensively through traditional and social media sources, employed in safety training, and embraced by educators in agricultural programs. The website has provided a national and international reach with more than 35,000 visits.
    UNASSIGNED: Qualitative thematic analysis of the stories provided data on the circumstances leading up to each incident, valuable information on how the storytellers interpreted the aftermath, and a novel perspective on how safety professionals can create messaging that will resonate with the farming community.
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  • 文章类型: Journal Article
    以前已经记录了严重影响,因此,严重结果的口头概率表达的数字翻译高于非严重结果。最近的工作还在相反的方向上显示出相同的效果(将数字概率转换为单词)。这里,我们的目的是测试这些影响是否会导致整个沟通链的主观概率升级.在四个“沟通链”研究中,每个交流阶段的参与者要么将口头概率表达翻译成数字,或将数字转换为口头表达(其中要翻译的概率与先前的参与者相关联)。在这四项研究中,我们发现了一般的概率升级效应,由此主观概率随着随后的严重通信而增加,非严重和阳性事件。排除了一些替代解释,我们认为,最可能的解释是在沟通方面,将注意力引向事件的发生。重点结果的概率估计在沟通阶段增加。
    A severity effect has previously been documented, whereby numerical translations of verbal probability expressions are higher for severe outcomes than for non-severe outcomes. Recent work has additionally shown the same effect in the opposite direction (translating numerical probabilities into words). Here, we aimed to test whether these effects lead to an escalation of subjective probabilities across a communication chain. In four \'communication chain\' studies, participants at each communication stage either translated a verbal probability expression into a number, or a number into a verbal expression (where the probability to be translated was yoked to a previous participant). Across these four studies, we found a general Probability Escalation Effect, whereby subjective probabilities increased with subsequent communications for severe, non-severe and positive events. Having ruled out some alternative explanations, we propose that the most likely explanation is in terms of communications directing attention towards an event\'s occurrence. Probability estimates of focal outcomes increase across communication stages.
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  • 文章类型: Journal Article
    分析风险意识应该是综合自然灾害风险管理的初始阶段,以促进在多风险框架内采取适当和有效的措施来减轻风险和加强社会抵御能力。然而,早期的研究集中于横断面数据,而忽略了风险意识水平和相关自变量随时间的变化.这项研究首次分析了来自瑞士(2015-2021年期间,包括COVID-19的流行)的1612个受访者年度观察的全国平衡面板数据集,以检查并比较潜在的独立变量对四个维度的影响自然灾害风险意识(NHRA)。从最广泛的相关性维度到事件感知概率的更高维度,感知到对生命和贵重物品的威胁,和感知的情境威胁。本研究中的分析结合了随机效应模型(RE)的多种方法,广义线性模型(GLM),调解分析。结果表明,瑞士的NHRA增加了不同程度(高达23.24%),具体取决于维度。事件记忆,感知的信息影响和报告的个人知情水平似乎是影响面板NHRA的最一致的独立变量.其中,感知信息影响作为风险沟通的重要指标,还发现充当从风险准备到风险意识的调解人。通过鼓励居民参与“思考前开始做”(BDBT)计划,以利用潜意识效应和自我反省,这项研究提出,行为-认知反馈循环可能促进良性循环。我们有希望的观察结果为有效的提高认识策略设计提供了建议,并从未来潜在的短期面板分析中提出了广泛的见解。
    The analysis of risk awareness should be the initial stage in integrated natural hazard risk management to promote appropriate and effective measures for mitigating risks and strengthening social resilience inside the multi-risk framework. Nevertheless, earlier studies focused on cross-sectional data and overlooked the changes in risk awareness levels and associated independent variables with time. This study analyzes for the first time a balanced nationwide panel dataset of 1612 respondent-year observations from Switzerland (period 2015-2021, including the epidemic of COVID-19) to examine and compare the effects of potential independent variables on the four dimensions of natural hazard risk awareness (NHRA), ranging from the broadest dimension of Relevance to higher dimensions of Perceived Probability of an event, Perceived Threat to life and valuables, and Perceived Situational Threat. The analysis in this study incorporates multiple methods of Random-Effect Model (RE), Generalized Linear Model (GLM), and mediation analysis. Results show that NHRA increased in Switzerland to different extents (up to 23.24%) depending on the dimension. Event memory, perceived information impact and reported individual informed level appeared to be the most consistent independent variables positively influencing panel NHRA. Among these, perceived information impact as an important indicator of risk communication, was also found to serve as a mediator from risk preparedness to risk awareness. By encouraging residents to engage in \"Begin Doing Before Thinking\" (BDBT) programs to leverage subliminal effects and self-reflection, this study proposes that behavior-cognition feedback loops may facilitate a virtuous cycle. Our promising observations provide recommendations for an effective awareness-rising strategy design and suggest extensive insights from potential short-interval panel analysis in the future.
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  • 文章类型: Journal Article
    背景:需要有关阿尔茨海默病(AD)生物标志物检测在有AD风险的成年人中的心理社会影响的信息,以告知传达生物标志物结果的最佳实践。
    方法:九十九名认知未受损的老年人学习了淀粉样蛋白正电子发射断层扫描(PET)结果(平均年龄=72.0±4.8,95%白人,28%淀粉样蛋白升高)。使用线性混合效应回归模型来测试PET结果×时间对学习结果后6个月的心理社会结果的主要影响和交互作用。
    结果:观察到对AD的关注(β=0.28,p=0.02)和侵入性思想和回避(β=-0.82,p<0.001)的PET结果×时间的显着交互作用。对于AD测试相关的窘迫,观察到PET结果的主要影响(β=12.09,p<0.001)。
    结论:认知未受损的成年人学习淀粉样蛋白升高的PET结果报告了最初披露后的轻度侵入性想法/回避,但是这些症状随着时间的推移而减少。与未升高淀粉样蛋白参与者相比,升高淀粉样蛋白参与者对AD痴呆和AD生物标志物测试相关困扰的担忧仍然更高。
    结论:对淀粉样蛋白PET显示后的心理社会反应进行纵向评估。学习淀粉样蛋白升高的结果后,短暂的高度侵入性思维或回避。接受淀粉样蛋白升高结果后持续测试结果相关的困扰。在接受淀粉样蛋白升高的结果后,人们对AD痴呆的关注增加。在接受非淀粉样蛋白升高的结果后,会感到幸福和缓解。
    BACKGROUND: Information on the psychosocial impact of Alzheimer\'s disease (AD) biomarker testing in adults at risk of AD is needed to inform best practices for communicating biomarker results.
    METHODS: Ninety-nine cognitively unimpaired older adults learned amyloid positron emission tomography (PET) results (mean age = 72.0 ± 4.8, 95% White, 28% elevated amyloid). Linear mixed-effects regression models were used to test the main effects and interaction of PET result × time on psychosocial outcomes up to 6 months after learning results.
    RESULTS: A significant interaction of PET result × time was observed for concern about AD (β = 0.28, p = 0.02) and intrusive thoughts and avoidance (β = -0.82, p < 0.001). A main effect of PET result was observed for AD test-related distress (β = 12.09, p < 0.001).
    CONCLUSIONS: Cognitively unimpaired adults learning elevated-amyloid PET results reported mildly intrusive thoughts/avoidance initially following disclosure, but these symptoms decreased over time. Concern about AD dementia and AD biomarker test-related distress remained higher in elevated-amyloid compared to non-elevated-amyloid participants.
    CONCLUSIONS: Longitudinal assessment of psychosocial reactions after amyloid PET disclosure was conducted. Transient highly intrusive thoughts or avoidance after learning elevated amyloid results. Persistent test result-related distress after receiving elevated-amyloid results. There is increased concern about AD dementia after receiving elevated-amyloid results. Happiness and relief are experienced after receiving non-elevated-amyloid results.
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  • 文章类型: Journal Article
    健康信息的发展和传播是减少健康差距的重要组成部分。来自六个Dene社区的人类生物监测研究的参与者(n=87)对有关污染物的健康交流的调查做出了回应。调查包括有关对健康信息的认识以及与国家食品和污染物有关的风险认知的问题。绝大多数参与者报告说吃乡村食品(99%),并听说乡村食品具有有益的营养素(90%)。百分之七十的受访者听说或看过有关汞含量高的鱼类的信息,60%的人担心他们消费的国家食品的安全性或质量。自听到有关鱼和汞的信息以来,报告说他们吃的鱼数量减少的受访者头发中的汞浓度较低(p=0.04),与那些没有听到消息的人相比。然而,对于报告改变了钓鱼地点的受访者,没有观察到头发汞的差异,自从听到消息以来,选择了较小的鱼或吃了较少的掠食性鱼。结果表明,需要检查自我报告行为变化的原因,除了意识。这项研究的结论可以为有关土著人口中污染物的消息传递和风险管理决策的发展提供信息。
    The development and dissemination of health messaging is a critical component of reducing health disparities. Participants (n = 87) from a human biomonitoring study in six Dene communities responded to a survey about health communication regarding contaminants. The survey included questions on awareness of health messages and risk perceptions related to country foods and contaminants. The vast majority of participants reported eating country foods (99%) and heard that country foods had beneficial nutrients (90%). Seventy per cent of respondents had heard or seen messages about fish with high levels of mercury, and 60% had concerns about the safety or quality of country foods they consumed. Respondents who reported decreasing the number of fish they ate since hearing the messages about fish and mercury had lower (p = 0.04) mercury concentration in hair, compared to those who had not heard the messages. However, no differences in hair mercury were observed for respondents who reported to have changed their fishing location, chosen smaller fish or eaten less predatory fish since hearing the messages. Results indicate the need to examine reasons for self-reported behaviour changes, in addition to awareness. The conclusions of this study can inform the development of messaging and risk management decisions about contaminants within Indigenous populations.
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  • 文章类型: Journal Article
    患者,卫生专业人员,社区使用社交媒体传达有关健康决定因素和相关风险因素的信息。研究强调了社交媒体覆盖服务不足人群的潜力,建议这些平台可用于传播针对多样化和难以接触到的人群的健康信息。鲜为人知,然而,关于在美洲印第安人和阿拉斯加原住民中使用社交媒体。这项横断面研究的目的是更好地了解社交媒体平台在这些人群中传播信息的使用。我们的团队调查了429名参加华盛顿州文化活动的美洲印第安人和阿拉斯加原住民成年人对各种类型社交媒体的使用情况。我们使用逻辑回归来评估参与者对Twitter的使用情况,Snapchat,Facebook,和与参与者人口统计相关的Instagram,包括年龄,性别,教育,和他们的居住地(保留,农村保留区,或大城市地区)。调查结果显示,与其他平台相比,Facebook被更多的参与者使用(79%)。其次是Instagram(31%)。近一半的参与者只使用一个社交媒体平台(48%)。年龄与使用Instagram呈负相关(0.8或,95%CI:0.7,0.9)和Snapchat(0.6或,95%CI:0.5,0.7)。与没有任何大学教育的人相比,大学教育与使用额外社交媒体平台的几率更高(2.0或,95%CI:1.1,3.6)。大多数参与者使用社交媒体平台,这表明这些平台可能是向美洲印第安人和阿拉斯加原住民传播信息的有用工具。进一步的研究应记录如何使用社交媒体来有效传播风险和健康信息,并评估它是否会影响这些人群的健康知识和行为。
    Patients, health professionals, and communities use social media to communicate information about health determinants and associated risk factors. Studies have highlighted the potential for social media to reach underserved populations, suggesting these platforms can be used to disseminate health information tailored for diverse and hard-to-reach populations. Little is known, however, about the use of social media among American Indian and Alaska Native populations. The objective of this cross-sectional study is to better understand the use of social media platforms to disseminate information across these populations. Our team surveyed 429 American Indian and Alaska Native adults attending cultural events in Washington State on their use of various types of social media. We used logistic regressions to assess participant use of Twitter, Snapchat, Facebook, and Instagram as related to participant demographics, including age, gender, education, and their place of residence (on-reservation, rural off-reservation areas, or large metropolitan areas). Findings showed that Facebook was used by more participants than other platforms (79%), followed by Instagram (31%). Nearly half of participants used only one social media platform (48%). Age was negatively associated with using Instagram (0.8 OR, 95% CI: 0.7, 0.9) and Snapchat (0.6 OR, 95% CI: 0.5, 0.7). College education was associated with higher odds of using an additional social media platform compared to those without any college education (2.0 OR, 95% CI: 1.1, 3.6). Most participants used social media platforms, which suggests these platforms may be a useful tool in disseminating information to American Indian and Alaska Native peoples. Further research should document how social media can be used to effectively disseminate risk and health information and assess whether it can influence health knowledge and behaviors among these populations.
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  • 文章类型: Journal Article
    背景:我们公开了淀粉样蛋白正电子发射断层扫描(PET)在主观认知减退(SCD)个体中的结果,并研究了患者在6个月期间的经历和结果。
    方法:来自主观认知障碍队列(SCIENCe)的57名参与者(66±8岁,21[37%]F,迷你精神状态检查29±1,15[26%]淀粉样蛋白阳性[A+])前1周完成问卷(T0),1天后(T1),和淀粉样蛋白PET公开后6个月(T2)。问卷调查涉及患者报告的经验和结果。
    结果:与淀粉样蛋白状态无关,参与者对会诊(量表1~10;7.9±1.7)和所提供的信息(量表1~4;T1:3.3±0.9,T2:3.2±0.8)感到满意.六个月后,A+参与者报告了更多的信息需求(45%与12%,p=0.02)。独立于淀粉样蛋白状态,决策后悔(量表1-5;A+:1.5±0.9,A-:1.4±0.6,p=0.53)和负面情绪(负面影响,不确定性,焦虑)较低(所有p>0.15,P相互作用>0.60)。
    结论:患有SCD的参与者对淀粉样蛋白PET显示的评价是积极的,不管淀粉样蛋白的状态。6个月后需要信息,在A+个体中更强,强调了后续行动的重要性。
    结论:主观认知功能下降(SCD)的参与者对淀粉样蛋白正电子发射断层扫描(PET)的披露呈正价值。SCD参与者的决策遗憾程度较低。我们没有观察到负面情绪的增加。六个月后,淀粉样蛋白阳性个体想要更多的信息.
    BACKGROUND: We disclosed amyloid positron emission tomography (PET) results in individuals with subjective cognitive decline (SCD) and studied patient experiences and outcomes over a 6-month period.
    METHODS: Fifty-seven participants from the Subjective Cognitive Impairment Cohort (SCIENCe) (66 ± 8 years, 21 [37%] F, Mini-Mental State Examination 29 ± 1, 15 [26%] amyloid positive [A+]) completed questionnaires 1 week prior (T0), 1 day after (T1), and 6 months after amyloid PET disclosure (T2). Questionnaires addressed patient-reported experiences and outcomes.
    RESULTS: Independent of amyloid status, participants were satisfied with the consultation (scale 1-10; 7.9 ± 1.7) and information provided (scale 1-4; T1: 3.3 ± 0.9, T2: 3.2 ± 0.8). After 6 months, A+ participants reported more information needs (45% vs. 12%, p = 0.02). Independent of amyloid status, decision regret (scale 1-5; A+: 1.5 ± 0.9, A-: 1.4 ± 0.6, p = 0.53) and negative emotions (negative affect, uncertainty, anxiety) were low (all p > 0.15 and Pinteraction > 0.60).
    CONCLUSIONS: Participants with SCD valued amyloid PET disclosure positively, regardless of amyloid status. The need for information after 6 months, which was stronger in A+ individuals, underscores the importance of follow-up.
    CONCLUSIONS: Participants with subjective cognitive decline (SCD) positively valued amyloid positron emission tomography (PET) disclosure. Participants with SCD experienced low levels of decision regret. We did not observe an increase in negative emotions. After 6 months, amyloid-positive individuals wanted more information.
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  • 文章类型: Journal Article
    作为宠物交易和饲养的外来动物可以将多种疾病传播给人类和其他动物,反之亦然。因此,这对宠物主人来说是必不可少的,特别是弱势群体,了解相关风险。兽医在告知宠物主人与人畜共患病原体和抗菌素耐药性(AMR)相关的健康风险方面发挥着至关重要的作用,因此,具有良好的沟通能力,可以有效地将信息传递给宠物主人。因此,德国异国情调的宠物主人对畜牧业进行了调查,兽医咨询和风险沟通。为了评估沟通的感知,使用自行编制的问卷得出沟通评分.对兽医交流的感知获得了很高的平均得分,显示出很高的满意度。兽医-客户关系的持续时间与更好的沟通感知相关,人畜共患病和AMR的交流频率与常任兽医的存在有关。然而,结果表明,兽医传播人畜共患病和/或AMR信息的频率低于宠物主人的期望.因此,应该提供更多关于人畜共患病和AMR的教育材料,应通过大学的进一步教育和培训来提高对风险沟通的认识。
    Exotic animals traded and kept as pets can transmit a variety of diseases to humans and other animals, and vice versa. Therefore, it is essential for pet owners, particularly vulnerable groups, to be informed about associated risks. Veterinarians play a crucial role in informing pet owners about health risks associated with zoonotic pathogens and antimicrobial resistance (AMR) and should, therefore, have good communication skills to effectively transfer information to pet owners. Thus, exotic pet owners in Germany were surveyed on animal husbandry, veterinary consultation and risk communication. To evaluate the perception of communication, a self-developed questionnaire was used to derive a communication score. The perception of veterinarian communication received a high average score showing a high level of satisfaction. The duration of the veterinarian-client relationship was associated with better communication perception, and the frequency of communication on zoonoses and AMR was associated with the presence of a permanent veterinarian. However, the results indicated that the frequency of disseminated information on zoonoses and/or AMR from veterinarians was lower than desired by the pet owners. Therefore, more educational material on zoonoses and AMR should be made available, and the awareness concerning risk communication should be increased by further education and training at universities.
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  • 文章类型: Journal Article
    背景:图标阵列已被证明是传达医疗风险信息的有效方法。然而,在实践中,用于可视化个人风险的图标数组通常在图标的类型和颜色上有所不同。这项研究的目的是检查图标类型和颜色对心血管风险的感知和回忆的影响,关于颜色如何影响图标数组的感知知之甚少。
    方法:共有866名年龄在40至90岁之间的参与者完成了一项在线实验,这些参与者在性别和年龄方面代表了德国人口。使用2×2的科目间设计,参与者被随机分配到4个实验组中的1个.他们使用图标阵列接收他们假设的10年心血管风险,该图标阵列根据图标类型(笑脸v.人)和颜色(黑/白v.红/黄)而变化。我们测量了风险感知,情绪反应,采取行动降低风险的意图(例如,增加一个人的身体活动),风险召回,和图形评估/可信度,以及算术和图形素养。
    结果:使用人图标的图标阵列得到了更积极的评价。图标或颜色对风险感知没有影响,情绪反应,采取行动降低风险的意图,或图的可信度。虽然更多的数字/图形识字的参与者更有可能正确地回忆提出的风险估计,图标类型和颜色不会影响正确召回的概率。
    结论:所测试的图标阵列的感知差异相当小,这表明它们可能同样适合传达医疗风险。进一步研究这些结果在其他颜色上的鲁棒性,图标,和风险领域可以添加到视觉辅助设计的指导方针。
    结论:使用不同的图标和颜色不会影响感知和回忆10年心血管风险的概率,情绪反应,或降低当前风险的意图。具有人图标的图标阵列被更积极地评价。没有证据表明所研究的图标数组的有效性根据个人的数字或图形素养水平而变化,对于有或没有CVD病史的患者或对于CVD风险增加的药物治疗患者,这也没有区别.
    BACKGROUND: Icon arrays have been shown to be an effective method for communicating medical risk information. However, in practice, icon arrays used to visualize personal risks often differ in the type and color of the icons. The aim of this study was to examine the influence of icon type and color on the perception and recall of cardiovascular risk, as little is known about how color affects the perception of icon arrays.
    METHODS: A total of 866 participants aged 40 to 90 years representative of the German population in terms of gender and age completed an online experiment. Using a 2 × 2 between-subjects design, participants were randomly assigned to 1 of 4 experimental groups. They received their hypothetical 10-year cardiovascular risk using an icon array that varied by icon type (smiley v. person) and color (black/white v. red/yellow). We measured risk perception, emotional response, intentions of taking action to reduce the risk (e.g., increasing one\'s physical activity), risk recall, and graph evaluation/trustworthiness, as well as numeracy and graphical literacy.
    RESULTS: Icon arrays using person icons were evaluated more positively. There was no effect of icons or color on risk perception, emotional response, intentions of taking action to reduce the risk, or trustworthiness of the graph. While more numerate/graphical literate participants were more likely to correctly recall the presented risk estimate, icon type and color did not influence the probability of correct recall.
    CONCLUSIONS: Differences in the perception of the tested icon arrays were rather small, suggesting that they may be equally suitable for communicating medical risks. Further research on the robustness of these results across other colors, icons, and risk domains could add to guidelines on the design of visual aids.
    CONCLUSIONS: The use of different icons and colors did not influence the perception and the probability of recalling the 10-year cardiovascular risk, the emotional response, or the intentions to reduce the presented risk.Icon arrays with person icons were evaluated more positively.There was no evidence to suggest that the effectiveness of the studied icon arrays varied based on individuals\' levels of numerical or graphical literacy, nor did it differ between people with or without a history of CVD or on medication for an increased CVD risk.
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  • 文章类型: Journal Article
    目的:研究表明,接受基因检测和咨询的患者通常不能很好地理解癌症遗传风险。我们描述了理解遗传风险的障碍以及接受基因检测的高危人群和癌症幸存者的需求。
    方法:使用对居住在美国的成年人进行互联网调查的数据,这些成年人对曾经进行过基因测试以确定癌症风险(N=696)的回答“是”,我们进行了双变量分析和多变量逻辑回归模型来评估人口统计学,临床,以及与沟通相关的变量,由我们的关键结果与没有足够的遗传和癌症信息与家人交谈。计算了对有关未满足的信息需求的查询的“是”和“否”响应的百分比。还计算了患者对咨询的满意度以及对家庭遗传风险状况的披露百分比。
    结果:我们发现,提供者缺乏告知家庭成员的资源,以及缺乏与基因检测结果一起提供的材料,与缺乏有关遗传学和癌症的足够信息密切相关(分别为4.5495%CI2.40-8.59和2.1995%CI1.16-4.14)。在接受遗传咨询的参与者中,几乎一半的人报告需要更多的信息,关于遗传风险对他们和他们的家庭意味着什么,以及基因检测结果可能如何影响未来的筛查。
    结论:对遗传咨询的高满意度可能无法全面了解患者与提供者之间的相互作用,可能会错过患者潜在的未满足需求。可访问的资源和更新家族史信息的持续机会可以加强有关遗传风险的知识。
    OBJECTIVE: Research has shown that cancer genetic risk is often not well understood by patients undergoing genetic testing and counseling. We describe the barriers to understanding genetic risk and the needs of high-risk persons and cancer survivors who have undergone genetic testing.
    METHODS: Using data from an internet survey of adults living in the USA who responded \'yes\' to having ever had a genetic test to determine cancer risk (N = 696), we conducted bivariate analyses and multivariable logistic regression models to evaluate associations between demographic, clinical, and communication-related variables by our key outcome of having vs. not having enough information about genetics and cancer to speak with family. Percentages for yes and no responses to queries about unmet informational needs were calculated. Patient satisfaction with counseling and percentage disclosure of genetic risk status to family were also calculated.
    RESULTS: We found that a lack of resources provided by provider to inform family members and a lack of materials provided along with genetic test results were strongly associated with not having enough information about genetics and cancer (OR 4.54 95% CI 2.40-8.59 and OR 2.19 95% CI 1.16-4.14 respectively). Among participants undergoing genetic counseling, almost half reported needing more information on what genetic risk means for them and their family and how genetic testing results might impact future screening.
    CONCLUSIONS: High levels of satisfaction with genetic counseling may not give a full picture of the patient-provider interaction and may miss potential unmet needs of the patient. Accessible resources and ongoing opportunities for updating family history information could reinforce knowledge about genetic risk.
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