• 文章类型: Journal Article
    目的:在文献中很少强调肘部尺神经卡压手术时的疼痛。本研究旨在探讨慢性疼痛(持续时间≥3个月)结合肘部尺神经卡压手术患者的生活体验。后果和应用的应对策略。
    方法:对10名年龄在18-60岁的参与者进行了深入访谈。使用归纳法和内容分析对叙述进行了分析。
    结果:分析揭示了七个主要类别:“身体症状/障碍”和“情绪和情绪”包括肘部尺神经卡压和慢性疼痛引起的症状;“日常生活中的后果”包括日常生活中的挑战和障碍,对休闲活动和社交生活的影响;“与自我形象斗争”包括与身份密切相关的经验;“应对策略”涵盖适应性资源;“缓解经验”描述了感知的改善;“未来护理的关键信息”包括医疗保健提供者需要考虑的重要方面。
    结论:结果阐明了医护人员在治疗肘部尺神经卡压患者时需要采用生物心理社会方法。情绪症状和睡眠障碍应识别和适当治疗,因为它们会增加个人的沉重负担。
    OBJECTIVE: Pain in conjunction with surgery for ulnar nerve entrapment at the elbow is seldom highlighted in the literature. This study aimed to explore patients\' experiences of living with chronic pain (≥3 months duration) in conjunction with surgery for ulnar nerve entrapment at the elbow, the consequences and the coping strategies applied.
    METHODS: In-depth interviews were conducted with 10 participants aged 18-60 years. The narratives were analyzed using an inductive approach and content-analysis.
    RESULTS: The analysis revealed seven main categories: \"Physical symptoms/impairments\" and \"Mood and emotions\"comprise symptoms caused by ulnar nerve entrapment at the elbow and chronic pain; \"Consequences in daily life\" includes challenges and obstacles in every-day life, impact on leisure activities and social life; \"Struggling with self-image\" embraces experiences closely related to identity; \"Coping strategies\" covers adaptive resources; \"Experience of relief \"describes perceived improvements; \"Key message for future care\" comprises important aspects for healthcare providers to consider.
    CONCLUSIONS: The results clarify the need for healthcare personnel to adopt a biopsychosocial approach when treating patients with ulnar nerve entrapment at the elbow. Emotional symptoms and sleep disturbances should be identified and treated properly since they contribute to the heavy burden experienced by the individual.
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  • 文章类型: Journal Article
    背景:患有神经发育障碍(NDD)的儿童的父母比通常发育中的儿童的父母经历更多的压力。在与专家和父母共同创造的过程中,开发了一种基于积极心理学和正念原理的低门槛应用程序。此应用程序,叫做“Adappt,“旨在提高NDD儿童的父母和照顾者的适应能力,并支持他们的心理健康。该协议描述了Adappt有效性的评估研究,其核心工作机制和用户体验。
    方法:一项务实的国际多中心随机对照试验将比较Adappt与(延迟)等待名单对照条件的有效性。至少212名被诊断患有或怀疑患有NDD的18岁以下儿童的父母或主要看护人将被随机分配到干预或等待控制条件。如果参与者有严重的焦虑或抑郁水平或正在治疗心理健康问题,则将被排除在外。措施将在基线在线收集,干预后(基线后1个月),基线后4个月和7个月。主要结果是在4个月的随访中,通过通用适应能力量表(GSAAS;(FrontPsychol14:985408,2023))测量的通用适应能力的改善。次要结果是心理健康,(父母)痛苦,和客户对“Adappt”的满意度。
    结论:这项研究的结果将有助于了解多个国家NDD儿童父母的低阈值应用的有效性。如果发现该应用程序可有效改善心理健康,将提出在医疗保健中实施的建议。
    背景:这项研究于2024年2月8日在clinicaltrials.gov(NCT06248762)和开放科学框架(https://osf.io/5znqv)上注册。
    BACKGROUND: Parents of children with a neurodevelopmental disorder (NDD) experience more stress than parents of typically developing children. In a cocreation process with experts and parents, a low-threshold application that uses exercises based on the principles of positive psychology and mindfulness was developed. This application, called \"Adappt,\" aims at enhancing the ability to adapt of the parents and caregivers of children with NDDs and at supporting their mental health. This protocol describes the evaluation study of the effectiveness of Adappt, its core working mechanisms and user experiences.
    METHODS: A pragmatic international multicenter randomized controlled trial will compare the effectiveness of Adappt with a (delayed) waitlist control condition. At least 212 parents or primary caregivers of children younger than 18 years diagnosed with or suspected of a NDD will be randomly assigned to the intervention or waitlist control condition. Participants are excluded if they have severe anxiety or depression levels or are in treatment for mental health issues. Measures will be collected online at baseline, post-intervention (1 month after baseline), and 4 and 7 months after baseline. The primary outcome is the improvement in generic sense of ability to adapt as measured with the Generic Sense of Ability to Adapt Scale (GSAAS; (Front Psychol 14:985408, 2023)) at 4-month follow-up. Secondary outcomes are mental well-being, (parental) distress, and client satisfaction with \"Adappt.\"
    CONCLUSIONS: Results of this study will contribute to knowledge on the effectiveness of a low-threshold application for parents of children with a NDD in multiple countries. If the application is found to be effective in improving mental health, recommendations will be made for implementation in health care.
    BACKGROUND: This study is registered on clinicaltrials.gov (NCT06248762) on February 8, 2024, and the Open Science Framework ( https://osf.io/5znqv ).
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  • 文章类型: Journal Article
    背景:非运动症状(NMS)是帕金森病(PD)患者经常经历的症状,通常被认为是他们最麻烦的症状。然而,在临床管理欠佳的情况下,我们仍然对这些问题知之甚少.这些未满足的需求是PD中与健康相关的生活质量(QoL)的重要决定因素。
    目的:本研究的目的是使用参与式行动方法实时了解与PD的NMS一起生活的经验。
    方法:使用photovoice方法,有14名PD的人拍摄了照片,以记录他们与PDNMS一起生活的经历。他们撰写了相应的书面叙述,以捕捉NMS对其日常活动和QoL的影响。总的来说,152张照片和相应的叙述进行了分析,使用主题分析与归纳法。
    结果:确定了四个相互关联的主题。情绪幸福感和自我意识包含了适应与PD生活的过程。从事有价值的活动,采取积极的心态和利用应对策略被认为可以增强信心和自尊。社会支持和社会意识强调了支持关系和社交对帮助参与和避免孤立的重要性。社会参与的障碍包括NMS的不可预测性和不可见的NMS被忽视或误解。
    结论:研究结果表明,PD的非运动方面对情绪,职业和社会层面。这些需求可以通过以人为本和全面的护理方法来解决。
    这项研究采用了参与式研究方法,允许参与者选择对他们重要的主题以及如何展示他们的结果。此外,与PD的人一起举行了一个小组研讨会,他们的家庭成员和医疗保健专业人员指导主题发展。
    BACKGROUND: Nonmotor symptoms (NMSs) are frequently experienced by people with Parkinson\'s disease (PD) and are often perceived as their most bothersome symptoms. However, these remain poorly understood with suboptimal clinical management. These unmet needs are an important determinant of health-related quality of life (QoL) in PD.
    OBJECTIVE: The aim of this study was to gain insights into the experience of living with the NMS of PD in real-time using participatory action methodology.
    METHODS: Using the photovoice method, 14 people with PD took photographs to document their experiences of living with the NMS of PD. They composed corresponding written narratives to capture the impact of NMS on their daily activities and QoL. In total, 152 photographs and corresponding narratives were analysed using thematic analysis with an inductive approach.
    RESULTS: Four interrelated themes were identified. Emotional well-being and sense of self encompassed a process of adjustment to living with PD. Engaging in valued activities, adopting a positive mindset and utilising coping strategies were thought to enhance confidence and self-esteem. Social support and societal awareness highlighted the importance of supportive relationships and socialising to aid participation and avoid isolation. Barriers to social engagement included the unpredictability of NMS and nonvisible NMS being neglected or misunderstood.
    CONCLUSIONS: Findings demonstrated the far-reaching impact of nonmotor aspects of PD on emotional, occupational and social dimensions. These needs could be addressed through person-centred and comprehensive approaches to care.
    UNASSIGNED: This study utilised a participatory research approach allowing participants to choose the subjects that mattered to them and how to present their results. Additionally, a group workshop was held with people with PD, their family members and healthcare professionals to guide theme development.
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  • 文章类型: Journal Article
    肌萎缩侧索硬化症(PALS)患者如何处理其诊断并进行临终决策?他们对有关维持生命治疗和临终护理的咨询有哪些信息或支持需求?哪些相关条件和影响与这些需求有关,以及它们如何与死亡或生存的愿望联系在一起?我们于2019年3月至2021年4月在德国对13名ALS患者进行了定性访谈研究。数据收集和分析遵循了基于理论的方法,揭示了应对之间的密切关系,信息需求和决策准备。我们确定了应对策略\“避免考虑生命终结\”及其对应策略,\'提前计划做好充分准备,并将后者区分为“退出生命并采取预防措施以防止延长生命”和“寻找生命的新意义并为维持生命的治疗做准备”的模式。这些方法是基于个人的感知,态度和动机,可以积极/消极地加强医疗保健专业人员(HCP),家庭和其他人际网络,但也有疾病进展和对医疗保健服务的反应。有关信息和咨询的需求类型和程度因应对策略而异。这些策略可能会随着时间的推移而变化,导致不同的支持需求。我们的研究结果表明,需要深入了解PALS的应对过程,以了解他们关于维持生命治疗的决策。医疗保健专业人员应该对医疗方面以外的疾病经历保持敏感,并促进作为传记过程的应对,以更好地支持ALS患者。
    How do people with amyotrophic lateral sclerosis (PALS) deal with their diagnosis and engage in end-of-life decision-making? What informational or supportive needs do they have for counselling about life-sustaining treatment and end-of-life care? Which correlating conditions and influences relate to these needs and how do they connect to the wish to die or wish to live? We conducted a qualitative interview study with 13 people with ALS in Germany from March 2019 to April 2021. Data collection and analysis followed a grounded theory-based approach and revealed close relationships between coping, informational needs and the preparedness for decision-making. We identified the coping strategies \'avoid thinking about end-of-life\' and its counterpart, \'planning ahead to be well-prepared,\' and differentiated the latter into the patterns \'withdrawing from life and taking precautions against life-prolongation\' and \'searching for a new meaning in life and preparing for life-sustaining treatment\'. The approaches are based on individual perceptions, attitudes and motives and can be positively/negatively reinforced by healthcare professionals (HCP), family and other interpersonal networks, but also by disease progression and in reaction to health care services. Type and degree of needs concerning information and counselling differed according to coping strategies. These strategies may vary over time, resulting in different support needs. Our findings signify that deep insight is needed into PALS\' coping processes to understand their decision-making about life-sustaining treatment. Healthcare professionals should be sensitive to illness experiences beyond medical aspects and foster coping as a biographical process to better support people with ALS.
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  • 文章类型: Journal Article
    文献尚未审查自然环境教学(NET)和离散试验教学(DTT)对适应技能的不同影响。142名年龄在16至35个月之间被诊断患有ASD的儿童的样本接受了DTT,NET,或两种干预措施(NET+DTT)。使用Bayley婴儿和幼儿发育量表(BSID)自适应子量表和言语行为里程碑评估和安置计划(VB-MAPP)障碍评估作为基线和后测指标。与DTT条件相比,接受NET和NETDTT条件的儿童表现出显着改善,表明NET的添加导致参与者的适应技能增加和障碍行为减少。DTT也可能为有更严重延误的儿童发挥必要的基础作用。这些结果为在基于社区的早期干预中结合使用教学策略提供了支持,并完善了向患有ASD的幼儿教授适应技能的协议。
    The literature has yet to review the differential effects of Natural Environment Teaching (NET) and Discrete Trial Teaching (DTT) on adaptive skills. A sample of 142 children diagnosed with ASD between the ages of 16 and 35 months received either DTT, NET, or both interventions (NET+ DTT). The Bayley Scales of Infant and Toddler Development (BSID) Adaptive Subscale and the Verbal Behavior Milestones Assessment and Placement Program (VB-MAPP) Barriers Assessment were used as baseline and posttest measures. Children who received NET and NET+DTT conditions showed significant improvements compared to the DTT condition indicating that the addition of NET leads to increased adaptive skills and decreased barrier behaviors in participants. DTT may also play a necessary foundational role for children with more significant delays. These results provide support for the use of a combination of teaching strategies in community-based early intervention and refine protocols for teaching adaptive skills to toddlers with ASD.
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  • 文章类型: Journal Article
    乳腺癌诊断伴随着死亡焦虑和适应不良应对。巴勒斯坦乳腺癌患者的应对机制和死亡焦虑尚未研究。
    评估在伯利恒BeitJala政府医院接受治疗的巴勒斯坦乳腺癌妇女中死亡焦虑的患病率及其与应对策略的关系。
    使用了横截面设计,并招募了214名在伯利恒BeitJala政府医院就诊的乳腺癌患者。使用Templer的死亡焦虑量表和简短的COPE量表。探讨应对策略与死亡焦虑的关系,频率,百分比,卡方检验,并利用皮尔逊的相关性检验。
    结果显示58.40%的患者出现死亡焦虑。使用正重构的参与者(调整后优势比(AOR)=1.487,p=<0.026),自责(AOR=1.309,p=<0.023),和宗教(AOR=1.260,p=<0.031)作为应对机制更容易经历死亡焦虑。相反,采用物质使用(AOR=0.657,p<0.005)和积极应对(AOR=0.629,p<0.007)作为应对策略的参与者出现死亡焦虑的可能性较低.
    研究表明,乳腺癌患者倾向于使用功能和情绪应对策略的组合,并且这些患者中有很大一部分(58.4%)出现了死亡焦虑症状。这项研究强调了筛查死亡焦虑和了解患者使用的应对策略的重要性。获得这种理解将有助于识别需要更多指导和支持的患者。
    UNASSIGNED: Death anxiety and maladaptive coping accompany breast cancer diagnoses. The coping mechanisms and death anxiety among Palestinian patients with breast cancer have not been studied.
    UNASSIGNED: To assess the prevalence of death anxiety and its relationship with coping strategies among Palestinian women with breast cancer who are treated in Beit Jala Governmental Hospital in Bethlehem.
    UNASSIGNED: A cross-sectional design was used, and 214 breast cancer patients who visited the Beit Jala Governmental Hospital in Bethlehem were recruited. Templer\'s Death Anxiety Scale and the Brief COPE Scale were used. To investigate the relationship between coping strategies and death anxiety, frequency, percentages, chi-square tests, and Pearson\'s correlation tests were utilized.
    UNASSIGNED: The results indicated that 58.40% of the patients experienced death anxiety. The participants who used positive reframing (adjusted odds ratio (AOR) = 1.487, p = < 0.026), self-blame (AOR = 1.309, p = < 0.023), and religion (AOR = 1.260, p = < 0.031) as coping mechanisms were more likely to experience death anxiety. Conversely, the participants who adopted substance use (AOR = 0.657, p < 0.005) and active coping (AOR = 0.629, p < 0.007) as coping strategies had a lower likelihood of experiencing death anxiety.
    UNASSIGNED: The study revealed that breast cancer patients tended to use a combination of functional and emotional coping strategies and that a significant proportion of these patients (58.4%) experienced symptoms of death anxiety. This study emphasizes the significance of screening for death anxiety and understanding the coping strategies utilized by the patients. Gaining this understanding will assist in identifying patients who need more guidance and support.
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  • 文章类型: Journal Article
    背景:倦怠构成了实质性的,对医护人员(HCW)福祉和安全交付的持续威胁,优质的医疗保健。虽然医疗保健的系统和组织层面的变化至关重要,HCW还需要个人水平的技能来提高韧性。这个试验的目的是测试可行性,可接受性,和PARK的功效,在线自我引导的积极情感调节干预,在COVID-19大流行期间的医护人员样本中。
    方法:在COVID-19大流行期间倦怠空前上升的背景下,我们进行了一项为期五周的积极影响调节sKills(PARK)计划的随机候补对照试验,在线,自我指导的应对技能干预嵌套在一个正在进行的HCWs队列中。N=554名医护人员被随机分配立即接受干预或在大约12周后接受干预。结果包括倦怠的变化,情绪健康(积极的影响,意义和目的,抑郁症,焦虑)和睡眠超过大约12周。分析包括混合效应线性回归模型,比较干预和控制条件之间结果随时间的变化。
    结果:2022年4月,HCWs队列中三分之一(n=554)的参与者同意参加并加入PARK。与那些没有报名的人相比,试验的参与者报告了更高的倦怠,较差的情绪健康,基线时睡眠较差(4月,2022年;所有PS<0.05)。意向治疗分析表明,立即随机分配到干预(PARK-Now)的参与者在焦虑方面显着改善(PROMIST评分=-0.63;p=.003),而等待名单(PARK-Later)中的参与者则没有(在组T评分变化0.04,p=0.90)。组间差异的变化,然而,无统计学意义(B=-0.67p=0.10)。与等待名单相比,干预组的其他健康结果均无明显变化。其他经过处理的分析表明,与参加PARK但完成零课程的参与者相比,完成所有5个每周在线课程的参与者(N=52;9.4%)在积极影响的主要结果上的改善幅度更大(n=237;42.8%;B=2.85;p=.0001)。
    结论:像PARK这样的在线自我指导应对技巧干预措施在有针对性的样本中可以有效,未来的工作将集中在适应上,以增加参与度,并为最可能受益的HCW量身定制PARK。
    BACKGROUND: Burnout poses a substantial, ongoing threat to healthcare worker (HCW) wellbeing and to the delivery of safe, quality healthcare. While systemic and organization-level changes in healthcare are critically important, HCWs also need individual-level skills to promote resilience. The objective of this trial is to test feasibility, acceptability, and efficacy of PARK, an online self-guided positive affect regulation intervention, in a sample of healthcare workers during the COVID-19 pandemic.
    METHODS: In the context of the unprecedented rise in burnout during the COVID-19 pandemic, we conducted a randomized waitlist-controlled trial of the Positive Affect Regulation sKills (PARK) program-a five-week, online, self-guided coping skills intervention nested within an ongoing cohort of HCWs. N = 554 healthcare workers were randomly assigned to receive the intervention immediately or to receive the intervention after approximately 12 weeks. Outcomes included change in burnout, emotional wellbeing (positive affect, meaning and purpose, depression, anxiety) and sleep over approximately 12 weeks. Analyses included mixed-effects linear regression models comparing change over time in outcomes between intervention and control conditions.
    RESULTS: One third (n = 554) of the participants in the cohort of HCWs consented to participate and enrolled in PARK in April 2022. Compared to those who did not enroll, participants in the trial reported higher burnout, poorer emotional wellbeing, and poorer sleep at baseline (April, 2022; all ps < .05). Intent-to-treat analyses showed that participants randomly assigned to the intervention immediately (PARK-Now) improved significantly on anxiety (within-group change on PROMIS T-score = -0.63; p = .003) whereas those in the waitlist (PARK-Later) did not (within group T-score change 0.04, p = 0.90). The between-group difference in change, however, was not statistically significant (B = -0.67 p = 0.10). None of the other wellbeing outcomes changed significantly in the intervention group compared to the waitlist. Additional as-treated analyses indicated that those participants who completed all 5 of the weekly online lessons (N = 52; 9.4%) improved significantly more on the primary outcome of positive affect compared to those who enrolled in PARK but completed zero lessons (n = 237; 42.8%; B = 2.85; p = .0001).
    CONCLUSIONS: Online self-guided coping skills interventions like PARK can be effective in targeted samples and future work will focus on adaptations to increase engagement and tailor PARK for HCWs who could most benefit.
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  • 文章类型: Journal Article
    背景:护士倦怠导致营业额增加,这是医疗保健系统中的一个严重问题。虽然有充分的证据表明护士工作倦怠,以前的研究中制定的干预措施是一般性的,没有考虑特定的倦怠维度和个体特征.
    目的:本研究的目的是开发和优化针对护士职业倦怠的首个量身定制的移动干预措施,它推荐基于人工智能(AI)算法的程序,并测试其可用性,有效性,和满意度。
    方法:在本研究中,基于人工智能的移动干预,护士治疗空间,旨在为护士职业倦怠提供量身定制的计划。为期4周的计划包括正念冥想,笑声疗法,讲故事,反思写作,接受和承诺疗法。人工智能算法通过由参与者人口统计学组成的预测试计算相似性,向参与者推荐了其中一个程序,研究变量,以及用哥本哈根倦怠量表测量的倦怠维度得分。完成为期4周的课程后,倦怠,工作压力,使用应激反应清单修改表格的应激反应,应用程序的可用性,应对策略指标的应对策略,和程序满意度(1:非常不满意;5:非常满意)进行了测量。如果用户的倦怠分数在2周计划后降低,AI将推荐的计划识别为有效,并相应地更新算法。经过试点测试(n=10),进行AI优化(n=300)。配对双尾t检验,方差分析,用Spearman相关性检验干预效果和算法优化。
    结果:NurseHealingSpace被实现为一个移动应用程序,该应用程序配备了一个系统,该系统根据用户之间的相似性通过AI推荐4个程序中的1个程序。AI算法可以很好地匹配推荐给使用有效数据最相似的参与者的程序。用户对便利性和视觉质量感到满意,但对没有通知和无法自定义程序不满意。该应用程序的总体可用性评分为3.4分,满分5分。护士的职业倦怠分数在第一个2周项目完成后显著下降(t=7.012;P<.001),在第二个2周项目后进一步下降(t=2.811;P=.01)。完成护士治疗空间计划后,工作压力(t=6.765;P<.001)和应激反应(t=5.864;P<.001)显著降低。在第二个为期两周的节目中,倦怠水平按参与顺序降低(r=-0.138;P=.04)。第一个程序(F=3.493;P=.03)和第二个程序(F=3.911;P=.02)的用户满意度均有所提高。
    结论:该计划有效地减少了倦怠,工作压力,和应激反应。护士管理人员能够使用这种基于AI的计划来防止护士辞职并保持医疗服务质量,从而为护士职业倦怠提供量身定制的干预措施。因此,这个应用程序可以改善定性医疗保健,提高员工满意度,降低成本,并最终提高医疗保健系统的效率。
    BACKGROUND: Nurse burnout leads to an increase in turnover, which is a serious problem in the health care system. Although there is ample evidence of nurse burnout, interventions developed in previous studies were general and did not consider specific burnout dimensions and individual characteristics.
    OBJECTIVE: The objectives of this study were to develop and optimize the first tailored mobile intervention for nurse burnout, which recommends programs based on artificial intelligence (AI) algorithms, and to test its usability, effectiveness, and satisfaction.
    METHODS: In this study, an AI-based mobile intervention, Nurse Healing Space, was developed to provide tailored programs for nurse burnout. The 4-week program included mindfulness meditation, laughter therapy, storytelling, reflective writing, and acceptance and commitment therapy. The AI algorithm recommended one of these programs to participants by calculating similarity through a pretest consisting of participants\' demographics, research variables, and burnout dimension scores measured with the Copenhagen Burnout Inventory. After completing a 4-week program, burnout, job stress, stress response using the Stress Response Inventory Modified Form, the usability of the app, coping strategy by the coping strategy indicator, and program satisfaction (1: very dissatisfied; 5: very satisfied) were measured. The AI recognized the recommended program as effective if the user\'s burnout score reduced after the 2-week program and updated the algorithm accordingly. After a pilot test (n=10), AI optimization was performed (n=300). A paired 2-tailed t test, ANOVA, and the Spearman correlation were used to test the effect of the intervention and algorithm optimization.
    RESULTS: Nurse Healing Space was implemented as a mobile app equipped with a system that recommended 1 program out of 4 based on similarity between users through AI. The AI algorithm worked well in matching the program recommended to participants who were most similar using valid data. Users were satisfied with the convenience and visual quality but were dissatisfied with the absence of notifications and inability to customize the program. The overall usability score of the app was 3.4 out of 5 points. Nurses\' burnout scores decreased significantly after the completion of the first 2-week program (t=7.012; P<.001) and reduced further after the second 2-week program (t=2.811; P=.01). After completing the Nurse Healing Space program, job stress (t=6.765; P<.001) and stress responses (t=5.864; P<.001) decreased significantly. During the second 2-week program, the burnout level reduced in the order of participation (r=-0.138; P=.04). User satisfaction increased for both the first (F=3.493; P=.03) and second programs (F=3.911; P=.02).
    CONCLUSIONS: This program effectively reduced burnout, job stress, and stress responses. Nurse managers were able to prevent nurses from resigning and maintain the quality of medical services using this AI-based program to provide tailored interventions for nurse burnout. Thus, this app could improve qualitative health care, increase employee satisfaction, reduce costs, and ultimately improve the efficiency of the health care system.
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  • 文章类型: Journal Article
    目的:近年来,经济毒性已显著影响结直肠癌患者的身心健康和生活质量。然而,这个问题没有引起医疗保健专业人员的足够重视。本研究旨在探讨结直肠癌瘘患者的经济毒性及应对策略。这些发现旨在为制定合适且有效的干预计划提供信息,以解决该患者人群中的经济毒性。
    方法:本定性研究采用描述性现象学方法,使用半结构化方法收集和分析访谈数据。采用传统的内容分析方法,包括编码,分类和主题蒸馏。继续进行数据分析,直到达到主题饱和,没有新的主题出现。
    方法:南京医科大学连云港临床医学院.
    方法:采用目的性抽样的方法,选取21例结直肠癌瘘患者作为访谈对象。评选时间为2022年5月至2023年5月,患者在连云港市某三级医院住院期间,江苏省,中国。
    结果:总计,提炼了三件作品和八个子主题:主观感受(对治疗费用的担忧,对未来不确定性的担忧,对日常生活的担忧),应对方式(独自应对,不愿帮忙,预购保险,处理疾病,放弃治疗,无法负担费用)和需求和愿望(卫生政策的需求,需要社会支持)。
    结论:结直肠癌瘘患者经历经济毒性,导致身体和心理健康的显著损害。尽管采用了各种应对策略,医疗保健专业人员必须优先解决患者的经济毒性问题.实施合理有效的干预措施可以极大地帮助患者有效地管理经济毒性。
    OBJECTIVE: In recent years, economic toxicity has significantly affected the physical and mental health as well as the quality of life of patients with colorectal cancer. However, this issue has not garnered adequate attention from healthcare professionals. This study aims to investigate the experiences of economic toxicity and coping strategies among patients with colorectal cancer fistula. The findings are intended to inform the development of suitable and effective intervention programmes to address economic toxicity within this patient population.
    METHODS: A descriptive phenomenological approach was employed in this qualitative research, using a semistructured method for data collection and analysis of interview data. Traditional content analysis methods were applied, encompassing coding, categorisation and theme distillation. Data analysis continued until thematic saturation was achieved, with no new themes emerging.
    METHODS: Nanjing Medical University Lianyungang Clinical Medical College.
    METHODS: A total of 21 patients with colorectal cancer fistula were selected as interview subjects through purposive sampling. The selection took place from May 2022 to May 2023, involving patients during their stay at a tertiary hospital in Lianyungang city, Jiangsu province, China.
    RESULTS: In total, three pieces and eight subthemes were distilled: subjective feelings (worries about treatment costs, concerns about uncertainty about the future, worries about daily life), coping styles (coping alone, unwillingness to help, prepurchased insurance, dealing with illness, giving up treatment, inability to afford costs) and needs and aspirations (need for health policies, need for social support).
    CONCLUSIONS: Patients with colorectal cancer fistulae experience economic toxicity, leading to significant impairment in both physical and mental health. Despite employing various coping strategies, healthcare professionals must prioritise addressing the economic toxicity issue in patients. Implementing rational and effective interventions can greatly assist patients in effectively managing economic toxicity.
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