未经评估:在2020年初,我们启动了电话热线,2019年冠状病毒病(COVID-19)肾脏或移植听力和资源中心,了解更多关于COVID-19大流行对透析和移植患者压力和信息寻求行为的影响。
未经评估:混合方法研究,包括半结构化,定性访谈探索情感,健康,以及经历过的财务挑战和定量调查,评估抑郁和焦虑水平以及寻求信息的行为。
未经评估:99名参与者(28名透析患者;71名移植患者),因种族和民族而异(西班牙裔,25.3%;白色,23.2%;亚洲,24.2%;黑色,24.2%),通过电话分享了他们的COVID-19大流行经历和寻求信息的行为。访谈和调查于2020年6月17日至2020年11月24日进行。
未经评估:使用主题分析确定了定性主题。使用抑郁和焦虑的患者健康问卷以及寻求信息的行为类型来计算频率以评估抑郁和焦虑的水平。
UNASSIGNED:出现了7个主题和16个次主题。通常报告的压力源的主题包括推迟医疗访问;获得药物的可及性降低;难以获得最新的,以患者为中心的健康信息和透析用品;以及医疗预约的延误。其他压力源包括健康保险和收入损失,并提高对避免感染COVID-19的行为的警惕。15名参与者有中度至重度焦虑和抑郁症状,并报告在COVID-19大流行后出现更频繁和更严重的惊恐发作。参与者寻求家人的情感支持,朋友,信仰社区。他们通常还从新闻媒体获得信息,并报告需要更多关于COVID-19的移植特定更新,以及他们的肾脏和移植专家的频繁沟通。
UNASSIGNED:这种愿意通过电话热线分享经验的个人的便利样本可能不会推广到所有透析和移植患者;这些患者与COVID-19大流行相关的压力源继续变化。
联合国:随着大流行的影响继续,为肾脏和移植社区量身定制的基于需求的干预措施,包括获得精神卫生资源,教育,以及对护理过渡的支持,应该继续。
UNASSIGNED: In early 2020, we activated a telephone hotline, the coronavirus disease 2019 (COVID-19) Kidney or Transplant Listening and Resource Center, to learn more about the impact of the COVID-19 pandemic on the stress and information-seeking behaviors of dialysis and transplant patients.
UNASSIGNED: A mixed-methods study including semi-structured, qualitative interviews probing about emotional, health, and financial challenges experienced and quantitative surveys assessing depression and anxiety levels and information-seeking behaviors.
UNASSIGNED: 99 participants (28 dialysis patients; 71 transplant patients), varying by race and ethnicity (Hispanic, 25.3%; White, 23.2%; Asian, 24.2%; Black, 24.2%), shared their COVID-19 pandemic experiences and information-seeking behaviors by telephone. Interviews and surveys were conducted from June 17, 2020, to November 24, 2020.
UNASSIGNED: Qualitative themes were identified using thematic analysis. Frequencies were calculated to assess levels of depression and anxiety using the Patient Health Questionnaire for Depression and Anxiety and types of information-seeking behaviors.
UNASSIGNED: 7 themes and 16 subthemes emerged. Themes of commonly reported stressors include postponing medical visits; decreased accessibility of getting medication; difficulty in receiving up-to-date, patient-focused health information and dialysis supplies; and delays in medical appointments. Other stressors include losses of health insurance and income, and increased vigilance in behaviors to avoid contracting COVID-19. 15 participants had moderate to severe anxiety and depression symptoms and reported more frequent and severe panic attacks after the COVID-19 pandemic. Participants sought emotional support from family, friends, and faith communities. They also commonly obtained information from news media and reported needing more transplant-specific updates about COVID-19, and frequent communication from their kidney and transplant specialists.
UNASSIGNED: This convenience sample of individuals willing to share their experiences through a telephone hotline may not generalize to all dialysis and transplant patients; stressors related to the COVID-19 pandemic for these patients continue to change.
UNASSIGNED: As the impact of the pandemic continues, needs-based interventions tailored for the kidney and transplant community, including access to mental health resources, education, and support for care transitions, should continue.