stigma by association

按协会划分的污名
  • 文章类型: Journal Article
    精神障碍在社会中经常受到污名化。精神疾病的污名会影响患有精神疾病的人本身及其家庭成员-这种现象称为协会污名(SBA)。患有精神疾病(COPMI)的父母的孩子是SBA的特殊弱势群体。在我们的系统审查中,经验丰富的SBA,预期的SBA,附属SBA,结构性歧视被确定为患有精神疾病的父母子女的相关污名化维度。评估与患有精神疾病的父母一起长大的青少年的SBA,开发了COPMI-SQ。
    N=930名青少年完成了这项研究。其中,N=380名青少年(样本1;72.6%为女性,平均年龄17.12(SD=2.01)岁)报告与至少一位患有精神疾病的父母一起长大。使用验证性因素分析(CFA)和探索性因素分析(EFA)以及标准项目和可靠性分析,我们对第一个样本的COPMI-SQ进行了分析和修正。为了验证修订后的COPMI-SQ的阶乘结构,CFA也在其他N=550青少年的独立样本中进行(样本2;80.0%女性,平均年龄16.36(SD=1.98)岁),报告没有与患有精神疾病的父母一起长大。要测试四个测量不变性,在报告父母有或无精神疾病成长的青少年的合并样本中进行了多组CFA(样本1和样本2).
    样本1中的CFA导致理论上假定的四因素结构的模型拟合不充分(CFI=.687;RMSEA=.064(90%CI=.062-.066);SRMR=.092;AIC=229155.63)。在对样本1进行EFA和项目和可靠性分析后,COPMI-SQ降低到四个量表(“有经验的SBA,\“\”附属公司SBA,\"\"羞耻,\"和\"预期SBA\")和两个额外的筛查量表(\"医疗保健\"和\"社会支持\")。为了方便问卷的使用,每个量表只保留了三个最好的项目,将项目总数减少到12个,外加5个额外的筛选项目。样本2中的CFA也导致理论上假定的四因素结构的模型拟合不充分(CFI=.667;RMSEA=.065(90%CI=.063-.066);SRMR=.101;AIC=335651.99)。相比之下,最终版本的COPMI-SQ-r显示出最佳的模型拟合(CFI=.945;RMSEA=.062(90%CI=.052-.072);SRMR=.049;AIC=60008.05)。在多组CFA(样本1和样本2)中,建立了度量不变性(χ2(208)=481.58,p<.001;CFI=.939;RMSEA=.053(90%CI=.047-.059);SRMR=.056)。在样本2中,发现内部一致性对于总量表(α=.84)是好的,对于子量表(α=.64至.78)几乎可以接受。
    COPMI-SQ(COPMI-SQ-r)的修订版是一种可靠且经济的问卷,用于评估与患有精神疾病的父母一起长大的青少年的SBA。COPMI-SQ-r可用于帮助开发和评估受影响青少年的反污名和一般干预措施。
    UNASSIGNED: Mental disorders are often stigmatized in society. The stigma of mental illness affects people with a mental illness themselves as well as their family members-a phenomenon called stigma by association (SBA). Children of parents with a mental illness (COPMI) are a particular vulnerable group for SBA. In our systematic review, experienced SBA, anticipated SBA, affiliate SBA, and structural discrimination were identified as relevant stigma dimensions for children of parents with a mental illness. To assess SBA in adolescents who grow up with a parent with a mental illness, the COPMI-SQ was developed.
    UNASSIGNED: N = 930 adolescents completed the study. Of those, N = 380 adolescents (sample 1; 72.6% female, mean age 17.12 (SD = 2.01) years) reported growing up with at least one parent with a mental illness. Using confirmatory (CFA) and exploratory factor analyses (EFA) as well as standard item and reliability analyses, we analyzed and revised the COPMI-SQ in the first sample. To validate the factorial structure of the revised COPMI-SQ, CFA was also conducted in the independent sample of the other N = 550 adolescents (sample 2; 80.0% female, mean age 16.36 (SD = 1.98) years) who reported not growing up with a parent with a mental illness. To test four measurement invariance, a multiple-group CFA was conducted in the combined sample of adolescents who reported growing up with and without a parent with a mental illness (sample 1 and sample 2).
    UNASSIGNED: CFA in sample 1 resulted in an inadequate model fit for the theoretically assumed four-factor structure (CFI = .687; RMSEA = .064 (90% CI = .062-.066); SRMR = .092; AIC = 229 155.63). Following EFA and item and reliability analyses in sample 1, the COPMI-SQ was reduced to four scales (\"Experienced SBA,\" \"Affiliate SBA,\" \"Shame,\" and \"Anticipated SBA\") and two additional screening scales (\"Healthcare\" and \"Social support\"). To facilitate questionnaire use, only the three best items were retained in each scale, reducing the total item number to 12 plus five additional screener items. CFA in sample 2 also resulted in an inadequate model fit for the theoretically assumed four factor structure (CFI = .667; RMSEA = .065 (90% CI = .063-.066); SRMR = .101; AIC = 335 651.99). In comparison, the final version of the COPMI-SQ-r showed the best model fit (CFI = .945; RMSEA = .062 (90% CI = .052-.072); SRMR = .049; AIC = 60 008.05). In the multiple-group CFA (sample 1 and sample 2), metric invariance was established (χ2 (208) = 481.58, p < .001; CFI = .939; RMSEA = .053 (90% CI = .047-.059); SRMR = .056). In sample 2, internal consistency was found to be good for the total scale (α = .84) and almost acceptable to almost good for the subscales (α = .64 to.78).
    UNASSIGNED: The revised version of the COPMI-SQ (COPMI-SQ-r) is a reliable and economic questionnaire to assess SBA in adolescents who grow up with a parent with a mental illness. The COPMI-SQ-r can be used to help develop and evaluate anti-stigma and general interventions for affected adolescents.
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  • 文章类型: Journal Article
    背景:人们对使用酒精或其他药物(AOD)的人所持的消极态度也会影响与该社区合作的人,导致生产力和福祉下降。在AOD和减少伤害部门中,这种污名化的影响尤其显着,因为工人可能拥有AOD使用的生活经验,并与他们的客户群强烈认同。这项研究旨在研究AOD/减少伤害部门的卫生工作者之间的污名与工作场所结果的关系。次要目的是探索生活经验如何通过联想影响污名体验。
    方法:研究使用了横断面调查设计,数据收集发生在2023年。澳大利亚AOD/减少伤害的工人(n=228)完成了一项在线调查,评估了协会的污名以及各种工作场所结果指标。
    结果:报告因协会而遭受更多污名的参与者的工作场所幸福感较差,更高的倦怠和更大的意图离开AOD/伤害减少领域。协会的污名经历与工作满意度无关。其他分析显示,有生活经验的参与者报告的工作满意度更高,离开该行业的意愿降低。但是通过关联方式得出的污名及其对工作场所结果的影响的发现与没有生活经验的发现没有差异。
    结论:通过协会识别员工的耻辱经历,并制定支持和倡导机制来解决这一问题,这可能是减少这些经历并最终增加AOD和减少伤害员工的积极工作成果的关键。
    BACKGROUND: The negative attitudes people hold towards those who use alcohol or other drugs (AOD) can also affect the people who work with this community, leading to lowered productivity and wellbeing. The impact of this stigma by association in the AOD and harm reduction sector is particularly significant because workers may have lived experience of AOD use and identify strongly with their client group. This study aimed to examine how stigma by association among health workers in the AOD/harm reduction sector relates to workplace outcomes. A secondary aim was to explore how lived experience influences experiences of stigma by association.
    METHODS: The research used a cross-sectional survey design and data collection occurred in 2023. Australian AOD/harm reduction workers (n = 228) completed an online survey assessing stigma by association as well as various workplace outcomes measures.
    RESULTS: Participants who reported experiencing more stigma by association experienced poorer workplace wellbeing, higher burnout and greater intentions to leave the AOD/harm reduction field. Experiences of stigma by association were unrelated to job satisfaction. Additional analyses revealed that participants with lived experience reported higher levels of job satisfaction and lowered intentions to leave the sector, but findings of stigma by association and its impacts on workplace outcomes did not differ from those without lived experience.
    CONCLUSIONS: Identifying staff experiences of stigma by association and developing support and advocacy mechanisms to address this is likely to be key to reducing these experiences and ultimately to increasing positive workplace outcomes for AOD and harm reduction staff.
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  • 文章类型: Review
    艾滋病毒相关的污名对社会工作者的影响,临床医生,辅导员,并倡导在为艾滋病毒感染者(PLWH)服务的组织中工作,很少考虑。与PLWH合作或代表PLWH工作时,专业人士会经历“礼貌的耻辱”,无论他们的个人艾滋病毒状况如何。PubMed,Medline,和PsycInfo数据库,连同对相关参考名单和转介的审查,确定了13项针对这一现象的研究。虽然有限,这份简短的审查表明,艾滋病毒工作人员确实面临挑战,这些挑战损害了他们的个人和职业福祉。解决专业人员的污名化是必要的,以支持在该领域工作的人的健康,并避免破坏这一重要劳动力的努力。需要更多的研究来了解礼貌污名的看法和经验,以及这种污名如何对心理健康产生不利影响,社会功能,和艾滋病毒专业人员的专业实践。
    The impact of HIV-related stigma on social workers, clinicians, counselors, and advocates working in organizations serving people living with HIV (PLWH), is rarely considered. Professionals experience \"courtesy stigma\" when working with or on behalf of PLWH, regardless of their personal HIV status. PubMed, Medline, and PsycInfo databases, along with a review of relevant reference lists and referrals, identified 13 studies addressing this phenomenon. Although limited, this brief review suggests that members of the HIV workforce do indeed face challenges that compromise their personal and professional well-being as a result of courtesy stigma. Addressing stigma among professionals is necessary to support the health of those working in the field, and to avoid undermining the efforts of this important workforce. More research is needed to understand the perceptions and experiences of courtesy stigma and how this stigma may adversely impact the psychological well-being, social functioning, and professional practice of HIV professionals.
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  • 文章类型: Journal Article
    精神疾病的污名从中世纪至今一直存在,并且扩展到被诊断患有精神疾病的人的家庭。被诊断患有精神疾病的成员的家庭会受到精神疾病的礼貌污名化,这会影响他们的生活质量。
    这项研究旨在探索和描述在Lobatse被诊断患有精神疾病的家庭的礼貌污名化经历,博茨瓦纳。
    这项研究是在Lobatse的一家精神病医院进行的,博茨瓦纳。
    本研究采用了定性的语境现象学设计。该人群由患有精神疾病的家庭成员组成,样本量为15名参与者。半结构化的深入个人访谈是通过电话进行的。
    该研究产生了三个主要主题和相关的子主题。主题是:家庭遭受耻辱的经历,家庭的耻辱体验,通过协会,和家庭内部耻辱的经历。
    被诊断患有精神疾病的家庭受到耻辱,相关的污名和内部污名。这些家庭经历了由于与精神病患者家庭成员的联系,他们收到了公众的非人性化标签。
    从这项研究的结果中获得的见解,可以制定方案,提高人们对精神疾病污名的认识,并促进对被诊断患有精神疾病的人的家庭的支持。
    UNASSIGNED: The stigma of mental illness has been in existence from medieval times to date and it is extended to families of people diagnosed with mental illness. Families with a member diagnosed with a mental illness experience courtesy stigma of mental illness and it affects the quality of their lives.
    UNASSIGNED: This study aimed to explore and describe the experiences of courtesy stigma of families with a member diagnosed with a mental illness in Lobatse, Botswana.
    UNASSIGNED: The study was conducted at a psychiatric hospital in Lobatse, Botswana.
    UNASSIGNED: A qualitative contextual phenomenological design was used for this study. The population comprised of members from families with a person diagnosed with a mental illness and the sample size was 15 participants. Semi-structured in-depth individual interviews were conducted telephonically.
    UNASSIGNED: The study yielded three main themes and related subthemes. The themes were: families\' experiences of received stigma, families\' experiences of stigma by association, and families\' experiences of internal stigma.
    UNASSIGNED: Families with a member diagnosed with mental illness experience received stigma, associated stigma and internal stigma. The families experienced that they received dehumanising labels from the public because of their association with their mentally ill family members.
    UNASSIGNED: With the insights gained from the findings of this study, programmes can be developed that raise awareness on stigma of mental illness and to promote support of families of people diagnosed with a mental illness.
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  • 文章类型: Journal Article
    在对被诊断患有精神疾病的亲戚的家庭成员的定性研究中,描绘了他们对这种关系的公开羞耻感。然而,到目前为止,实证研究相对较少,部分原因是家庭成员的孤立影响了研究人员的招募。为了解决这个差距,对124名家庭成员进行了在线调查,比较那些谁住在同一个家庭与他们生病的亲戚(n=81)和那些谁不(n=43)。报告说,三分之一的家庭成员因协会而遭受耻辱。那些生活在患病亲属中的人通过使用经过调整的问卷测量的关联报告了相对较高的污名水平。两组都经历了孤独(中等水平),但重要的是,同居亲属认为自己缺乏朋友和其他家庭成员的支持。相关性分析显示,那些因联想而污名化加剧的人报告了反物质的加剧:也就是说,感觉其他人对待他们好像他们是微不足道和无形的。反物质也与更多的孤独和减少的社会支持有关。我们的讨论集中在这样一个主题上,即实际上与精神病患者亲属生活在一起的家庭成员经历了高度的社会孤立,由于公众的耻辱问题,这种孤立被低估了。感觉自己的生活对他人无关紧要。对似乎特别边缘化的被污名化的家庭成员考虑了公共卫生影响。
    Stigma by association is described in qualitative research of family members who have relatives diagnosed with mental illness, depicting their sense of public shame for having these relationship ties. However, there have been relatively few empirical studies thus far, in part due to the isolation of family members affecting research recruitment. In order to address this gap, an online survey was administered to 124 family members, comparing those who live in the same home with their ill relative (n = 81) and those who do not (n = 43). A remarkable incidence of one in three family members reported experiencing stigma by association. Those living with an ill relative reported comparatively higher levels of stigma by association using an adapted questionnaire measure. Both groups experienced loneliness (moderate levels), but importantly, the cohabiting relatives perceived themselves as lacking support from friends and other family members. Correlational analyses revealed that those with heightened stigma by association reported heightened anti-mattering: that is, feeling that other people treat them as if they are insignificant and invisible. Anti-mattering was also associated with more loneliness and reduced social support. Our discussion focuses on the theme that family members who actually live with mentally ill relatives experience heightened social isolation that is under-recognized due to public stigma concerns, compounded by feeling their own lives do not matter to others. Public health implications are considered for the stigmatized family members who appear to be particularly marginalized.
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  • 文章类型: Journal Article
    UNASSIGNED:尽管污名化和护理负担对于心理健康恢复很重要,在中国农村地区,很少有关于精神分裂症患者(FCPWS)的家庭照顾者的关联污名和照顾负担的研究.
    UNASSIGNED:本研究旨在检查附属机构的耻辱和护理负担的严重程度,并确定中国农村FCPWS之间的相关性。
    未经评估:在新津县进行了一项心理健康调查(N=253FCPWS),四川省,中国。使用了会员自我污名量表和Zarit负担访谈简短表格。进行回归分析以探索污名和负担的相关性。
    非ASSIGNED:大多数FCPWS报告经历了高度和严重的附属污名(78.66%)和护理负担(95.26%)。中年家庭照顾者,失业,高护理负担和低生活质量(QoL),表现出更严重的会员污名。家庭照顾者是女性,年长的,低收入,高会员污名和低QoL,经历了更大的照顾负担。
    UNASSIGNED:中国农村地区的大部分FCPWS经历了严重的附属污名,照顾负担和生活质量差。至关重要的是,制定针对文化的反污名干预措施,以减少照顾者的污名和照顾负担。提高QoL。在制定卫生政策和基于社区的精神卫生服务时,应考虑家庭照顾者的附属污名和照顾负担的特定风险因素。
    Although stigma and caregiving burden are important in relation to mental health recovery, few studies have been conducted on affiliate stigma and caregiving burden among family caregivers of persons with schizophrenia (FCPWS) in rural China.
    This study aimed to examine the severity level of affiliate stigma and caregiving burden, and identify the correlates among FCPWS in rural China.
    A mental health survey was conducted (N = 253 FCPWS) in Xinjin county, Sichuan province, China. Affiliate Self-Stigma Scale and Zarit Burden Interview Short Form were used. The regression analysis was performed to explore the correlates of stigma and burden.
    Most FCPWS reported experiencing high and severe level of affiliate stigma (78.66%) and caregiving burden (95.26%). Family caregivers who were middle aged, unemployed, with high caregiving burden and low quality of life (QoL), showed more severe affiliate stigma. Family caregivers who were female, older, with low income, high affiliate stigma and low QoL, experienced greater caregiving burden.
    The large majority of FCPWS in rural China experienced severe affiliate stigma, caregiving burden and poor QoL. It is crucial to develop culture-specific anti-stigma interventions to reduce caregivers\' stigma and caregiving burden, and improve QoL. Specific risk factors of family caregivers\' affiliate stigma and caregiving burden should be considered for development of health policy and community-based mental health services.
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  • 文章类型: Journal Article
    患有精神疾病的父母的孩子是一个特别脆弱的群体,因为他们自己有很高的患精神障碍的风险,并且那些与高污名有关。此外,就像污名的主要接受者一样,他们受到围绕精神疾病的社会禁忌的影响:他们没有得到足够的信息,经常独自面对他们的问题,因此被认为是“看不见的孩子”。在以前的研究中,家庭污名仅通过对所有家庭成员的一般问卷进行评估。尚未得到充分调查的是,污名化困难如何特别影响患有精神疾病的父母的孩子。为了解决这些限制,我们开发了患有精神疾病的父母的孩子-污名问卷(COPMI-SQ),12-19岁年轻人的自我报告工具,旨在评估年轻人在日常生活中的污名体验。根据问卷前的系统回顾,我们为患有精神疾病的父母的孩子确定了相关的污名维度,这导致了93个项目,根据理论,这些项目被假定在四个不同的尺度上加载:经历的污名,预期的耻辱,自我污名,结构性歧视。专家讨论,随后对目标群体进行了可理解性分析。在本文中,我们报告了COPMI-SQ的心理测量特性的开发过程和初始试点数据(N=32)。通过项目难度指数进行项目分析,歧视性权力,以及内部一致性分析导致修订后的工具减少到67个项目。我们观察到分量表的内部一致性非常高(在α=0.868和α=0.975之间)。制定COPMI-SQ的方法遵循科学公认的原则,确保不同的施工阶段,被认为是进一步可靠性和有效性研究的坚实基础。该研究正在进行中,并正在进行进一步的验证调查;维度和因素结构也将被检查。
    Children of parents with a mental illness are a particularly vulnerable group as they have a high risk to develop a mental disorder themselves and those are associated with high stigma. Moreover, just like primary recipients of stigma, they are affected by the social taboo surrounding mental illness: they do not receive enough information, are often left alone with their problems, and are thus considered \"invisible children\". In previous research, family stigma has only been assessed through general questionnaires for all family members. What has not yet been adequately investigated is how stigma difficulties affect the children of parents with mental illness in particular. To address these limitations, we developed the Children of Parents with Mental Illness-Stigma-Questionnaire (COPMI-SQ), a self-report instrument for young people aged 12-19 years, designed to assess young people\'s stigma experiences in daily life. Based on a systematic review preceding the questionnaire, we identified relevant stigma dimensions for children of parents with a mental illness that resulted in 93 items that according to theory were assumed to load on four different scales: experienced stigma, anticipated stigma, self-stigma, and structural discrimination. An expert discussion, and a comprehensibility analysis with the target group followed. In this paper, we report on the development process and initial pilot data (N = 32) on the psychometric properties of the COPMI-SQ. Item analyses via an item difficulty index, discriminatory power, as well as internal consistency analysis resulted in a revised instrument reduced to 67 items. We observed very high internal consistencies (between α = 0.868 and α = 0.975) for the subscales. The approach taken to develop the COPMI-SQ followed scientifically accepted principles by ensuring different construction phases and is considered a solid basis for further reliability and validity studies. The study is ongoing and undergoing a further validation investigation; dimensionality and factor structure will also be examined.
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  • 文章类型: Journal Article
    Trying to cope with stigma by association (SBA) often results in behaviors leading to social isolation and withdrawal. This study aimed at exploring the stigma-related experiences of family members of persons living with bipolar disorder (PW-BD). A semi-structured interview was conducted with relatives of PW-BD. Open-ended questions addressed three issues: awareness of public stigma of bipolar disorder, experiences of associative stigma, and ways of coping with experiences of SBA. Data were collected from a purposive sample of 21 family members. Experiences of SBA were specifically related to the different family roles. Parents had to deal with responsibility, partners with the choice of staying or not, and siblings with \"a sort of duty.\" These specific prejudices enhanced specific coping strategies. This is the first study to highlight specific issues and coping from the perspective of family members. Based on these findings, specific targeted interventions could be developed.
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  • 文章类型: Journal Article
    Military families who have a family member with a mental illness see themselves confronted with many demands. Stigmatization is one of these challenges. Stigmatization affects not only the individual who suffers from a mental illness but also other family members via stigma by association and vicarious stigma. Stigma by association occurs when mental illness stigma spills over to individuals associated with an individual with a mental illness. Vicarious stigma describes the suffering of family members when they note the impact of stigma on their relative with mental illness. As a societal phenomenon, stigma plays out in social interactions and might therefore influence the social networks of families. It is also associated with healthcare utilization.
    Narrative interviews were conducted with 15 family members (partners, spouses, parents and children) of former soldiers of the German Armed Forces with a service-induced mental illness. The transcribed interview data were analyzed using a thematic analysis approach, in which codes were formed and emerging themes were systemized. Relationships between stigma, the families\' reactions to it, its effects on their social relationships and its interference with their healthcare utilization were analyzed.
    This study provides a detailed description of how relatives of former German soldiers with mental health problems experience stigma by association and vicarious stigma. Their perceptions are shown in a model that describes stigma-related attitudes, reactions to them and their effects on the social relationships of former soldiers\' families. These families felt stigmatized because of the former soldiers\' mental illness (mental illness stigma) and the military context in which it occurred (former soldier stigma). They reacted with nondisclosure, anger, acceptance and self-blame. Stigma was associated with smaller and weaker social networks that were characterized by social exclusion, self-segregation and conflicts with extended family, friends and colleagues. Stigma also affected the families\' healthcare utilization.
    Urgently needed anti-stigma campaigns, particularly in the civilian context, should address the stigmatization of both mental illness and the military participation of the families affected. They should consider the needs of both former soldiers with a mental illness and their families.
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  • 文章类型: Journal Article
    HIV stigma - both \'self-stigma\' towards positive individuals and \'stigma by association\' towards their families - is linked with adverse mental health. This study examined how stigma was associated with the mental health of parents and children in South Africa. Parent-child dyads (n=2477 dyads) in South Africa participated in a cross-sectional survey. For both parents and children, greater stigma was associated with their own reports of greater anxious and depressive symptoms. Parents reports of stigma was associated with children\'s greater anxious and depressive symptoms. Children\'s reports of stigma was related to parents greater anxious and depressive symptoms. There was a significant interaction, such that the association between parent stigma and depression was stronger when children also reported high levels of stigma. Findings provide support the effect of HIV stigma on the mental health of families and illustrate the importance of taking a family-based approach to stigma-reduction interventions to alleviate mental health problems.
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