背景:运动和非运动症状的自我报告对于理解帕金森病(PwPD)患者的日常挑战是不可或缺的。护理伙伴经常被要求作为关于症状严重程度的线人,提出了与PwPD自我报告的一致性问题,特别是关于内化(不可见)的症状。
目的:在多个领域评估了PwPD与患者对运动和非运动症状的评分之间的一致性。
方法:在60个PwPD告密者对中,我们比较了11项在线自我报告指标的评分,包括33项总分,其中2/3代表纯粹内化的症状。对于不一致的分数,多元回归分析用于检查人口统计学/临床预测因子.
结果:虽然85%的措施一致,普华永道认可更多的非运动症状,身体不适,污名,和运动症状比线人。对于PwPD,年龄较小,更严重的疾病,女性性别预测了不和谐。
结论:PwPD与举报人在评估症状的措施上的不一致可能需要有针对性的教育。
BACKGROUND: Self-report of motor and non-motor symptoms is integral to understanding daily challenges of persons with Parkinson\'s disease (PwPD). Care partners are often asked to serve as informants regarding symptom severity, raising the question of concordance with PwPD self-reports, especially regarding internalized (not outwardly visible) symptoms.
OBJECTIVE: Concordance between PwPD and informant ratings of motor and non-motor symptoms was evaluated across multiple domains.
METHODS: In 60 PwPD-informant pairs, we compared ratings on 11 online self-report measures comprising 33 total scores, 2/3 of which represented purely internalized symptoms. For discordant scores, multiple regression analyses were used to examine demographic/clinical predictors.
RESULTS: Though concordant on 85% of measures, PwPD endorsed more non-motor symptoms, bodily discomfort, stigma, and motor symptoms than informants. For PwPD, younger age, greater disease severity, and female gender predicted discordance.
CONCLUSIONS: Discordance between PwPD and informants on measures assessing symptoms that cannot be outwardly observed may require targeted education.