psychoeducation

心理教育
  • 文章类型: Journal Article
    背景:研究表明,考虑传统男性气质意识形态(TMI)的男性针对重度抑郁症(MDD)的心理治疗方法可能会提高治疗效果并减少治疗退出。然而,研究男性特异性心理治疗MDD或特定治疗方面的研究仍然缺乏.方法:一项关于男性心理健康的匿名在线研究调查了来自欧洲德语国家的152名自我报告的智障男性(Mage=25.5±9.1)。在完成状态自尊的基线评估(T1)后,国家的耻辱,积极/消极影响,抑郁症状,还有TMI,男性被随机分配阅读针对MDD的男性特异性(MSP)或认知行为疗法导向(CBT)心理教育文本.紧接着,参与者对其有用性进行了评分,并完成了随访评估(T2).结果:与CBT心理教育条件下的男性相比,MSP条件下的男性在羞耻和负面影响方面表现出更强的下降。此外,在MSP条件下,与CBT-心理教育相比,典型的抑郁症状倾向于增加,而男性典型的外化抑郁症状趋于减轻。结论:与CBT心理教育相比,MDD的MSP可以帮助抑郁症患者减轻对MDD的羞愧,并且对病情的负面影响较小。此外,MDD的MSP可能会导致男性典型的外化抑郁症状转变为典型的抑郁症状。
    Background: Research suggests that male-specific psychotherapy approaches for major depressive disorder (MDD) that consider traditional masculinity ideologies (TMI) may achieve improved treatment efficacy and reduced therapy dropout. However, studies examining male-specific psychotherapy for MDD or specific therapy aspects remain lacking. Methods: An anonymous online study on men\'s mental health examined 152 self-reporting mentally distressed cisgender men (Mage = 25.5 ± 9.1) from German-speaking countries of Europe. After completing baseline assessments (T1) of state self-esteem, state shame, positive/negative affect, depressive symptoms, and TMI, men were randomly assigned to read either a male-specific (MSP) or a cognitive behavioral therapy-oriented (CBT) psychoeducation text for MDD. Immediately afterwards, participants rated its usefulness and completed follow-up assessments (T2). Results: Men in the MSP condition showed a stronger decrease in shame and negative affect as compared to men in the CBT-psychoeducation condition. Furthermore, in the MSP condition, prototypical depression symptoms tended to increase as compared to the CBT-psychoeducation, whereas male-typical externalizing depression symptoms tended to decrease. Conclusion: MSP for MDD may help depressed men feel less ashamed about their MDD and experience less negative affect about their condition than CBT-psychoeducation. Furthermore, MSP for MDD may elicit a shift from male-typical externalizing depression symptoms to prototypical depression symptoms.
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  • 文章类型: Journal Article
    比以往任何时候都更多的成年人在成年后寻求自闭症诊断。虽然接受诊断可能是有益的,许多自闭症患者都在努力驾驭他们的新诊断,需要支持。这项研究对先前在英国成年后被诊断为无智力残疾的自闭症成年人的诊断后可用支持(诊断后支持)的研究进行了系统回顾。系统评价是一种预先计划的方法,用于搜索所有相关研究,在结合这些来回答一个更大的问题之前。该研究旨在调查此类支持的可用性及其有效性,并探索自闭症成年人获得支持的经验。我们还使用公开可用的信息来创建目前在英国可用的诊断后支持服务的地图。对七个数据库进行了系统检索,确定2012年后发表的英国研究。19项研究符合纳入研究的条件。尽管在英国大多数地区都提供某种形式的诊断后支持,这主要包括向其他服务部门提供信息和“路标”。这些选择可能无法满足自闭症患者的需求,谁想要的服务,如心理教育(治疗,使个人接受有关其诊断的教育,以提高理解和自我管理),和同行支持。研究结果强调需要足够的支持来缓解自闭症成年人面临的诊断后挑战。由于在已发表的研究中缺乏有关这方面的信息,该研究无法评估英国支持选择的有效性。研究表明,自闭症成年人喜欢低级别的支持服务,心理教育,和同行支持,也可能更喜欢自闭症主导的支持。需要进一步研究以制定和评估包括这些要素的诊断后支助方案。
    UNASSIGNED: More adults than ever before are seeking an autism diagnosis in adulthood. While receiving a diagnosis may be beneficial, many autistic people struggle to navigate their new diagnosis, and require support. This study conducted a systematic review of previous research on the support available after diagnosis (post-diagnostic support) for autistic adults without intellectual disability who were diagnosed in adulthood in the UK. A systematic review is a pre-planned method of searching for all relevant studies, before combining these to answer a larger question. The study aimed to investigate the availability of such support and its effectiveness, and to explore autistic adults\' experiences of accessing support. We also used publicly available information to create a map of the post-diagnostic support services currently available across the UK. A systematic search of seven databases was conducted, to identify UK-based studies published after 2012. Nineteen studies were eligible to be included in the study. Although some form of post-diagnostic support is available across most areas in the UK, this mostly consists of providing information and \'signposting\' the person to other services. These options may not meet the needs of autistic people, who want services such as psychoeducation (therapy whereby an individual receives education about their diagnosis to improve understanding and self-management), and peer support. Findings highlight the need for adequate support to alleviate the post-diagnostic challenges autistic adults face. The study could not evaluate the effectiveness of support options in the UK due to a lack of information about this in published research. Research shows that autistic adults would like low-level support services, psychoeducation, and peer support, and may also prefer autistic-led support. Further research is required to develop and evaluate post-diagnostic support programmes which include these elements.
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  • 文章类型: Journal Article
    现有的心理健康康复模式优先考虑自我授权和以人为本,以社区为基础的护理,这就需要家庭护理人员合作,以支持社区中的精神分裂症患者。然而,家庭照顾者的角色往往被低估,因此得不到充分的支持。因此,这损害了护理人员的福祉,最终,精神分裂症患者的康复。尽管以照顾者为目标的心理教育可能会提供实际支持,其有效性缺乏确凿的证据。这篇综述旨在评估心理教育对照顾者相关结果的影响(照顾者负担,生活质量和表达的情感)。从开始到2023年9月搜索了八个电子数据库,并通过手工搜索最终参考列表进行了补充。两名审稿人以预定的资格标准独立进行标题和摘要筛选。咨询了第三位审查员以解决任何差异。进行了随机效应荟萃分析,以评估合并效应大小以及亚组和敏感性分析。包括21项研究(总计1639名护理人员),基于此,心理教育有助于在护理者相关结局方面有统计学意义的改善。鉴于巨大的异质性,对心理教育的持续时间和评估量表进行了亚组和敏感性分析.在大多数研究中,质量评估显示不清楚或偏差很大。尽管存在异质性,效应大小的方向一致地表明了心理教育在所有结局中的有效性.这一发现与拉撒路的压力评估和应对理论相一致,其中指出,心理教育提高了护理人员的知识,应对机制和形势评估。我们的发现提供了令人鼓舞的证据来倡导将心理教育纳入医疗保健服务,但是,基于政策的支持对于持续实施是必要的。需要进一步的研究来优化其持续时间和内容,并通过针对客观和主观结果的特定疾病量表评估其长期影响。
    The existing paradigm on recovery in mental health prioritises self-empowerment and person-centred, community-based care, which necessitates family caregivers\' collaboration to support individuals with schizophrenia in the community. However, the role of family caregivers is often under-recognised and hence insufficiently supported. This consequently compromises caregivers\' well-being and, ultimately, the recovery of individuals with schizophrenia. Although caregiver-targeted psychoeducation may offer practical support, its effectiveness lacks conclusive evidence. This review aimed to evaluate the impacts of psychoeducation on caregiver-related outcomes (caregiver burden, quality of life and expressed emotion). Eight electronic databases were searched from inception to September 2023, supplemented by hand searching of end-reference lists. Two reviewers independently conducted title and abstract screening with predetermined eligibility criteria. A third reviewer was consulted to resolve any discrepancies. A random-effects meta-analysis was performed to estimate pooled effect sizes alongside subgroup and sensitivity analyses where appropriate. Twenty-one studies (totalling 1639 caregivers) were included, based on which psychoeducation contributed to a statistically significant improvement in caregiver-related outcomes. Given substantial heterogeneity, subgroup and sensitivity analyses were done for the durations and the evaluative scales for psychoeducation. Quality appraisal revealed unclear or high bias in most studies. Notwithstanding the heterogeneity, the directions of the effect sizes consistently indicated the effectiveness of psychoeducation across all outcomes. This finding aligned with Lazarus\' stress appraisal and coping theory, which states that psychoeducation improves caregivers\' knowledge, coping mechanisms and situation appraisal. Our findings offer encouraging evidence to advocate the integration of psychoeducation into healthcare services, but policy-based support is warranted for sustained implementation. Further research is merited to optimise its duration and content and appraise its long-term impacts through disease-specific scales for objective and subjective outcomes.
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  • 文章类型: Case Reports
    精神性非癫痫发作(PNES),与癫痫发作(ES)非常相似,通常由心理困扰引发,代表临床实践中遇到的最普遍的转换障碍形式。多种身体状况可以沉淀和维持PNES发作。癫痫,一种常见的神经系统疾病,施加了巨大的情感和身体负担,经常导致焦虑和抑郁水平升高。该病例报告详细介绍了一名19岁女性的临床过程,该女性的PNES因癫痫的诊断和疾病负担而加剧。病人童年创伤的背景,欺凌,性虐待可能使她倾向于发展PNES。在接受癫痫诊断后,以起源于左顶叶区域的局灶性癫痫发作为特征,患者焦虑加剧,需要频繁住院.尽管她调整了治疗方案,包括左乙拉西坦(LEV)和拉科沙胺(LCM),她的癫痫发作持续。综合评价,包括脑电图(EEG)和单光子发射计算机断层扫描(SPECT),表明癫痫和PNES共存。尽管最初考虑了手术干预,它最终被认为是不必要的,随后缓解了患者的焦虑。通过持续的药物治疗来强调癫痫的可管理性的心理教育显着减少了她的PNES发作。这个案例强调了解决与癫痫诊断相关的社会心理负担的关键作用。因为这些因素可能会加剧PNES。它还强调了将心理支持与医疗管理相结合的整体治疗方法的重要性。
    Psychogenic non-epileptic seizures (PNES), which closely resemble epileptic seizures (ES), are typically triggered by psychological distress and represent the most prevalent form of conversion disorder encountered in clinical practice. Multiple physical conditions can both precipitate and sustain PNES episodes. Epilepsy, a common neurological disorder, imposes significant emotional and physical burdens, frequently resulting in elevated levels of anxiety and depression. This case report details the clinical course of a 19-year-old female whose PNES was exacerbated by the diagnosis and disease burden of epilepsy. The patient\'s background of childhood trauma, bullying, and sexual abuse likely predisposed her to the development of PNES. Upon receiving a diagnosis of epilepsy, characterized by focal seizures originating from the left parietal region, the patient experienced increased anxiety and required frequent hospitalizations. Despite adjustments to her treatment regimen, including the administration of levetiracetam (LEV) and lacosamide (LCM), her seizures persisted. Comprehensive evaluations, comprising electroencephalography (EEG) and single-photon emission computed tomography (SPECT), indicated the coexistence of epilepsy and PNES. Although surgical intervention was initially considered, it was ultimately deemed unnecessary, which subsequently alleviated the patient\'s anxiety. Psychoeducation highlighting the manageability of her epilepsy with ongoing pharmacotherapy significantly reduced her PNES episodes. This case emphasizes the critical role of addressing the psychosocial burden associated with an epilepsy diagnosis, as these factors may exacerbate PNES. It also underscores the importance of a holistic treatment approach that integrates psychological support with medical management.
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  • 文章类型: Journal Article
    目的:自杀是大学生中一个严重的心理健康问题。当前的研究旨在通过增强自尊和自我同情来研究针对自杀风险的新型干预措施的有效性。
    方法:参与者从日本大学的医疗中心招募。自杀风险的测量,自我同情,自尊,和其他心理变量在基线时收集,干预后,四周随访,8周随访,和12周的随访。参与者还对该计划的可接受性提供了反馈。
    结果:共有17名参与者同意参与干预,14个已完成的治疗后评估,10人完成了为期四周的随访评估,8人完成了为期8周和12周的随访评估。干预之后,这项研究观察到自尊的中等到大的改善,自我同情,绝望,抑郁症,和自杀风险。参与者还报告了临床结果的可靠变化和对该计划的积极看法。
    结论:心理教育计划表现出很高的可接受性和可行性,并且有希望的早期结果。尽管样本量小,缺乏对照组,这些发现表明了该计划的潜在益处.进一步的研究检查程序的有效性是非常必要的。
    OBJECTIVE: Suicide is a serious mental health problem among university students. The current study aimed to examine the effectiveness of a novel intervention that targets suicide risk by enhancing self-esteem and self-compassion.
    METHODS: Participants were recruited from the healthcare center at a Japanese University. Measurements of suicidal risk, self-compassion, self-esteem, and other psychological variables were collected at baseline, post-intervention, four-week follow-up, eight-week follow-up, and twelve-week follow-up. Participants also provided feedback on the program\'s acceptability.
    RESULTS: A total of 17 participants consented to participate in the intervention, 14 completed post-treatment assessment, 10 completed the four-week follow-up assessment, and 8 completed the eight-week and twelve-week follow-up assessment. Following the intervention, the study observed moderate to large improvements in self-esteem, self-compassion, hopelessness, depression, and suicide risk. The participants also reported reliable changes in clinical outcomes and positive perceptions of the program.
    CONCLUSIONS: The psychoeducation program exhibited high acceptability and feasibility and promising early outcomes. Despite the small sample size and lack of a control group, these findings suggest potential benefits of the program. Further studies for examining the efficacy of the program are highly warranted.
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  • 文章类型: Journal Article
    分析疼痛心理教育计划作为纤维肌痛患者的非药物治疗的感知益处和局限性。
    应用解释性现象学分析来分析参加疼痛心理教育计划的11名纤维肌痛患者的主观经历。该计划包括解决疼痛理解的教育课程,应对策略,和放松技巧。进行了半结构化访谈,转录,并使用ATLAS进行分析。ti软件。
    患者报告了认知功能能力和社会情绪能力的显着改善,包括更好的疾病理解和管理,情绪稳定,和人际关系。尽管有这些好处,他们发现了节目个性化的局限性和对某些主题的报道不足,例如性健康和残疾的法律方面。自我管理能力增强明显,观察到疾病感知和应对策略的变化。
    心理教育计划得到了积极的评价,影响功能,认知,和情感增强。尽管如此,有人指出,需要增加方案个性化和扩大社会经济支持。未来的研究应该集中在心理教育的长期影响和量身定制的干预措施的可行性。
    UNASSIGNED: To analyze the perceived benefits and limitations of a pain psychoeducation program as a non-pharmacological treatment for patients with fibromyalgia.
    UNASSIGNED: An interpretative phenomenological analysis was applied to analyze the subjective experiences of 11 patients with fibromyalgia who participated in a pain psychoeducation program. This program includes educational sessions that address pain understanding, coping strategies, and relaxation techniques. Semi-structured interviews were conducted, transcribed, and analyzed using ATLAS.ti software.
    UNASSIGNED: Patients reported significant improvements in cognitive-functional capacity and socio-emotional ability, including better disease understanding and management, emotional stability, and interpersonal relationships. Despite these benefits, they identified limitations in program individualization and insufficient coverage of certain topics, such as sexual health and legal aspects of disability. Enhanced self-management skills were evident, with observed shifts in disease perception and coping strategies.
    UNASSIGNED: The psychoeducation program was viewed positively, influencing functional, cognitive, and emotional enhancements. Nonetheless, the need for increased program personalization and expanded socio-economic support was noted. Future research should focus on the long-term impacts of psychoeducation and the feasibility of tailored interventions.
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  • 文章类型: Journal Article
    目的:开发并确定基于群体的数字健康心理教育干预的可接受性,旨在减少对胰腺癌高危人群的接受和承诺疗法的癌症担忧。
    13名具有遗传变异或家族史的胰腺癌高危个体。
    三组几乎每周一小时,共四周。这些会议提供了心理教育材料。数字资源提供了正念和教育内容。报告的测量包括定性反应和参与者报告的可接受性。
    结果:所有参与者都认为这些会议是有用的,并将其推荐给其他人。前两组的建议包括访问远程会话期间提供的内容的请求,为第三组的数字内容创作做出贡献。
    结论:胰腺癌高危人群可以从心理教育中受益,以减少对癌症的担忧。这可以通过数字心理教育干预来实现。
    OBJECTIVE: To develop and determine the acceptability of a group-based digital health psychoeducational intervention aimed at reducing cancer worry based on acceptance and commitment therapy for individuals at high risk for pancreatic cancer.
    UNASSIGNED: 13 individuals at high risk for pancreatic cancer with a genetic variant or family history.
    UNASSIGNED: Three groups met virtually for one hour each week for four weeks. These sessions provided psychoeducational materials. Digital resources provided mindfulness and educational content. Reported measurements included qualitative responses and participant-reported acceptability.
    RESULTS: All participants found the sessions to be useful and would recommend them to others. Recommendations from the first two groups included requests to access the content provided during the remote sessions, contributing to the creation of digital content for the third group.
    CONCLUSIONS: Individuals at high risk for pancreatic cancer can benefit from psychoeducation to reduce cancer worry, which can be accomplished through digital psychoeducational interventions.
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  • 文章类型: Journal Article
    背景:晚期癌症显著影响患者和家庭照顾者的生活质量。当患者和护理人员同时作为二元支持时,每个人的幸福都得到了优化。家庭,Outlook,Communication,不确定性,症状管理(FOCUS)是一个二元的,在美国发展的心理教育干预,改善晚期癌症患者及其主要护理人员的健康和生活质量。最初,由护士亲自干预,FOCUS已被改编为自我管理的基于网络的欧洲交付干预。
    目的:这项研究的目的是(1)使FOCUS适应澳大利亚环境(FOCUSau);(2)评估FOCUSau相对于常规护理对照组在改善晚期癌症患者及其主要护理人员的情绪健康和自我效能方面的有效性;(3)比较干预组和对照组之间的医疗保健使用;(4)评估可接受性,可行性,和FOCUSau的可扩展性,以便为将来在澳大利亚医疗保健系统内实施干预措施提供信息。
    方法:将在试验开始前调整重点,使用迭代的利益相关者反馈过程来创建FOCUSau。为了检查FOCUSau的功效和成本效益,并评估其可接受性,可行性,和可扩展性,我们将开展一项混合1型实施研究,包括一项3期(临床有效性)试验和一项观察性实施研究.参与者将包括18岁以上的癌症患者,能够访问互联网,并能够确定也可以与参与的主要支持人员或护理人员。样本量由每个臂中的173个二元组组成(即,总共346个二元组合)。将在完成随机化前的基线(T0);基线后12周的第一次随访(T1;N=346);以及基线后24周的第二次随访(T2)时收集患者-护理人员二元数据。
    结果:该研究于2022年3月获得资助。2024年7月开始招聘。
    结论:如果证明有效,这种干预措施将改善晚期癌症患者及其家庭护理人员的福祉,无论他们的位置或目前的医疗保健支持水平。
    背景:ClinicalTrials.govNCT06082128;https://clinicaltrials.gov/study/NCT06082128。
    PRR1-10.2196/55252。
    BACKGROUND: Advanced cancer significantly impacts patients\' and family caregivers\' quality of life. When patients and caregivers are supported concurrently as a dyad, the well-being of each person is optimized. Family, Outlook, Communication, Uncertainty, Symptom management (FOCUS) is a dyadic, psychoeducational intervention developed in the United States, shown to improve the well-being and quality of life of patients with advanced cancer and their primary caregivers. Originally, a nurse-delivered in-person intervention, FOCUS has been adapted into a self-administered web-based intervention for European delivery.
    OBJECTIVE: The aims of this study are to (1) adapt FOCUS to the Australian context (FOCUSau); (2) evaluate the effectiveness of FOCUSau in improving the emotional well-being and self-efficacy of patients with advanced cancer and their primary caregiver relative to usual care control group; (3) compare health care use between the intervention and control groups; and (4) assess the acceptability, feasibility, and scalability of FOCUSau in order to inform future maintainable implementation of the intervention within the Australian health care system.
    METHODS: FOCUS will be adapted prior to trial commencement, using an iterative stakeholder feedback process to create FOCUSau. To examine the efficacy and cost-effectiveness of FOCUSau and assess its acceptability, feasibility, and scalability, we will undertake a hybrid type 1 implementation study consisting of a phase 3 (clinical effectiveness) trial along with an observational implementation study. Participants will include patients with cancer who are older than 18 years, able to access the internet, and able to identify a primary support person or caregiver who can also be approached for participation. The sample size consists of 173 dyads in each arm (ie, 346 dyads in total). Patient-caregiver dyad data will be collected at 3 time points-baseline (T0) completed prerandomization; first follow-up (T1; N=346) at 12 weeks post baseline; and second follow-up (T2) at 24 weeks post baseline.
    RESULTS: The study was funded in March 2022. Recruitment commenced in July 2024.
    CONCLUSIONS: If shown to be effective, this intervention will improve the well-being of patients with advanced cancer and their family caregivers, regardless of their location or current level of health care support.
    BACKGROUND: ClinicalTrials.gov NCT06082128; https://clinicaltrials.gov/study/NCT06082128.
    UNASSIGNED: PRR1-10.2196/55252.
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  • 文章类型: Journal Article
    当前试点研究的目的是调查基于视频会议的认知行为(CBT)干预对患有轻度认知障碍或早期阿尔茨海默病的个人的照顾者的可行性和可接受性。干预包括对情绪的心理教育,管理无用情绪和思想的策略,行为激活,呼吸和放松,关于外部资源的沟通和信息战略。
    这项研究采用了横断面设计,两组四名护理人员通过视频会议接受了为期8周的基于CBT的干预。收集了干预后的可行性和可接受性措施以及改进建议。
    8名女性护理人员参加了干预,一名与会者在第七届会议上选择退出。那些完成计划的人,所有参与者报告说,使用在线模式很容易参与.所有参与者都认为干预措施至少部分适应了他们作为护理人员的经验和需求。七分之五的参与者(71%)表示他们感觉更好,并会建议另一位护理人员进行干预。
    当前的研究表明,与MCI或轻度AD女性护理人员一起使用基于视频会议CBT的团体干预是可行且可接受的。
    这是针对MCI或轻度AD患者的照顾者的第一个基于视频会议的认知行为干预。
    UNASSIGNED: The objective of the current pilot study was to investigate the feasibility and acceptability of a videoconference-based cognitive behavioral (CBT) intervention for caregivers of individuals living with mild cognitive impairment or early Alzheimer\'s disease. The intervention included psychoeducation on emotions, strategies for management of unhelpful emotions and thoughts, behavioral activation, breathing and relaxation, strategies for communication and information on external resources.
    UNASSIGNED: This study used a cross-sectional design with two groups of four caregivers who received an 8-week CBT-based intervention via videoconference. Measures of feasibility and acceptability were collected post-intervention as well as suggestions for improvements.
    UNASSIGNED: Eight female caregivers were enrolled in the intervention, one participant opted out at the seventh session. Of those who completed the program, all participants reported that it was very easy to participate using the online modality. All participants felt that the intervention was at least partly adapted to their experience and needs as a caregiver. Five out of seven participants (71%) indicated that they felt better and would recommend the intervention to another caregiver.
    UNASSIGNED: The current study demonstrated that it is feasible and acceptable to use a videoconference CBT-based group intervention with MCI or mild AD female caregivers.
    UNASSIGNED: This is the first videoconference-based cognitive behavioral intervention for caregivers of individuals living with MCI or mild AD.
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  • 文章类型: Journal Article
    背景:针对神经发散儿童认知功能的干预措施通常集中在单一功能上,例如工作记忆训练。他们通常专注于“赤字”模型,而缺乏对理解个人优势和困难领域的重视,以此作为适当支持的先决条件。这些儿童认知特征的多维性质和表型变异性表明,需要一个多成分定制的干预计划,重点是理解和支持单个儿童的认知功能。
    目标:“EPIC”干预(爱丁堡儿童和青少年心理教育干预)的重点是改善认知,神经发散儿童的学习和行为,例如患有注意力缺陷多动障碍(ADHD)或自闭症的儿童。在我们之前的联合制作工作的基础上,本研究旨在使用参与式方法来开发与我们的关键原则相关的EPIC实践和材料,其中包括心理教育,多组分,个性化的方法,优势和困难分析,并将孩子的个人优势和困难与内部和外部策略配对。我们还着手评估EPIC的可行性和可接受性,并与神经发散的儿童及其父母和老师一起试用这种新颖的工具包干预措施。
    方法:干预实践,EPIC的材料和策略是与神经分化儿童共同制作的,他们的父母,教师和临床医生采取优势和困难的方法。确定心理教育活动和策略实践(例如思维导图,分块),在为期两周的为期8周的计划中,进行了可行性测试和试点数据收集。11名7至12岁的神经分化儿童完成了16次个性化计划。通过在儿童和教师访谈中得出的定性报告以及儿童的享乐评级来确定可接受性和可行性。在参与干预前后收集了试点评估数据,和跨认知评估(CANTAB,简讯),教育程度(WIAT)以及家长和教师问卷,测量临床症状和行为(Conners,AQ,SDQ,自我感知)。将数据与匹配的神经发散治疗照常对照组进行比较(N=9)。
    结果:共同制作的EPIC干预措施既可行,也可被儿童接受,父母和他们的老师。试点数据表明,为期8周的干预改善了认知(短期和工作记忆)和识字(接受词汇,口语单词流利,听力理解)。干预组的父母报告的儿童行为困难和攻击性也有所改善,和教师报告的学术能力。产生的效应大小(Cohen'sd)范围为0.65至2.83。家长在参加该计划一年后接受采访时报告说,他们继续使用EPIC策略。
    结论:本研究完全符合我们的目标。“EPIC”(爱丁堡儿童和青少年心理教育干预)在家庭和学校环境中是可行的,并改善了认知的一系列方面,神经发散儿童的学习和行为。我们的研究结果表明,EPIC适合在全面试验中进行评估。
    BACKGROUND: Interventions focused on cognitive function in neurodivergent children typically focus on single functions, e.g. working memory training. They are often focused on \'deficit\' models and lack an emphasis on understanding areas of individual strengths and difficulties as a prerequisite to appropriate support. The multidimensional nature and phenotypic variability of cognitive profiles in these children indicate a need for a multicomponent-tailored intervention programme focused on understanding and supporting an individual child\'s cognitive functioning.
    OBJECTIVE: The \'EPIC\' intervention (Edinburgh Psychoeducation Intervention for Children and Young People) is focused on improving cognition, learning and behaviour in neurodivergent children such as those with attention deficit hyperactivity disorder (ADHD) or who are autistic. Building on our previous co-production work, this study aimed to use a participatory methods approach to develop EPIC practices and materials in relation to our key principles which include psychoeducation, multicomponent, individualised approach, strengths and difficulties profiling and pairing of a child\'s individual strengths and difficulties with internal and external strategies. We also set out to assess the feasibility and acceptability of EPIC, and pilot this novel tool-kit intervention with neurodivergent children and their parents and teachers.
    METHODS: The intervention practices, materials and strategies of EPIC were co-produced with neurodivergent children, their parents, teachers and clinicians taking a strengths and difficulties approach. Identification of psychoeducation activities and strategy practices (e.g. mind-maps, chunking), testing of feasibility and collection of pilot data were conducted over a bi-weekly 8-week programme. Eleven neurodivergent children aged 7 to 12 completed the 16-session individualised programme. Acceptability and feasibility were ascertained via qualitative reports elicited within child and teacher interviews and child ratings of enjoyment. Pilot evaluation data was collected pre- and post-intervention participation, and across cognitive assessments (CANTAB, BRIEF), educational attainment (WIAT) and parent and teacher questionnaires measuring clinical symptoms and behaviour (Conners, AQ, SDQ, self-perception). Data was compared with a matched neurodivergent treatment-as-usual control group (N = 9).
    RESULTS: The co-produced EPIC intervention was both feasible to deliver and acceptable to children, parents and their teachers. Pilot data identified that the 8-week intervention improved cognition (short-term and working memory) and literacy (receptive vocabulary, oral word fluency, listening comprehension). Improvements in the intervention group were also found for parent-reported child behavioural difficulties and aggression, and teacher-reported scholastic competence. Effect sizes generated (Cohen\'s d) ranged from 0.65 to 2.83. Parents reported continuing to use EPIC strategies when interviewed over a year after participating in the programme.
    CONCLUSIONS: The current study met our objectives fully. \'EPIC\' (Edinburgh Psychoeducation Intervention for Children and Young People) is feasible in home and school contexts and improves a range of aspects of cognition, learning and behaviour in neurodivergent children. Our findings show EPIC is suitable to be assessed within a full-scale trial.
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