personal autonomy

个人自主权
  • 文章类型: Journal Article
    该研究的目的是测试基于自主支持的动机风格的元学科干预对中学生能力发展的影响。它是通过准实验设计进行的,持续了三个月。
    共有62名年龄在12至16岁之间的学生(M=13.61;SD=1.16)参加,实验组为33,对照组为29,以及12名教师(干预组7名,对照组5名)。这项研究测量了教学动机风格,满足基本心理需求,动机,和关键能力。
    结果表明,自主支持激励风格的改进,满足自主性的基本心理需求,自主动机,和实验组的能力,而对照组表现出混沌风格的增加。
    这些发现揭示了支持性激励风格对关键能力发展的积极影响,有效,和可靠的方法来激励中学生。
    UNASSIGNED: The aim of the study was to test the effect of a meta-disciplinary intervention based on the motivational style of autonomy support on the development of competencies in secondary school students. It was carried out by means of a quasi-experimental design and lasted for three months.
    UNASSIGNED: A total of 62 students between the ages of 12 and 16 (M = 13.61; SD = 1.16) participated, with 33 in the experimental group and 29 in the control group, along with 12 teachers (7 in the intervention group and 5 in the control group). The study measured teaching motivational style, satisfaction of basic psychological needs, motivation, and key competencies.
    UNASSIGNED: The results demonstrate improvements in the autonomy-supportive motivational style, satisfaction of the basic psychological need for autonomy, autonomous motivation, and competencies in the experimental group, while the control group exhibited an increase in the chaos style.
    UNASSIGNED: These findings reveal the positive impact of the supportive motivational style on the development of key competencies establishing it as an active, valid, and reliable methodology to motivate secondary school students.
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  • 文章类型: Journal Article
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  • 文章类型: Journal Article
    在大多数自决理论(SDT)研究中,改进(去)激励教学风格为学生和教师提供了许多好处,尽管后者的证据较少。尽管最近的环绕模型提供了不同(去)激励教学风格的细粒度图片(即,自治支持,结构,control,和混乱)体育(体育)教师可以在他们的课程中使用,以前没有基于这种模式的激励培训计划。此外,所有SDT培训计划都通过不同的小组会议实施,但个别会议尚未举行。这项研究概述了激励培训计划的协议,从环绕模型中导出,旨在增强体育教师的激励教学风格(并防止或减少激励教学风格)。因此,该计划旨在改善教师和学生的动机变量和影响(正常)适应性结果。采用混合方法的随机对照试验设计。至少16名中等体育教师将被分配到实验组或对照组,和他们的一些学生一起。培训计划包括四个面对面的小组会议和两个后续会议(一个人和一个小组会议)。体育教师将学习如何支持自主性和提供结构,以及减少对学生的控制和混乱。在大约五个月的时间里,教师将在体育课上实施这些激励策略。不同的(去)激励教学风格,动机变量,和(正常)适应性结果将在体育教师和他们的学生在三个不同的点进行评估:在培训计划之前(T1),在干预期间(T2),在干预结束时(T3)。此外,将举行两个讨论小组,涉及所有实验体育教师(一个在培训计划之后,另一个在干预结束时)。这项研究的结果可能有助于为在职体育教师制定动机培训计划。临床试验注册:ClinicalTrials.gov,标识符[NTC06479369]。
    In most self-determination theory (SDT) research, improving (de)motivating teaching styles provides numerous benefits for students and teachers, although there is less evidence of the latter. Although the recent circumplex model provides a fine-grained picture of the different (de)motivating teaching styles (i.e., autonomy support, structure, control, and chaos) that physical education (PE) teachers can use in their lessons, no previous motivational training programs have been based on this model. Moreover, all SDT-training programs have been implemented through different group sessions, but individual sessions have not been delivered. This study outlines the protocol of a motivational training program, derived from the circumplex model, designed to enhance motivating teaching styles (and prevent or decrease demotivating teaching styles) among PE teachers. Consequently, this program seeks to improve motivational variables and influence (mal)adaptive outcomes in both teachers and students. A randomised controlled trial design with a mixed-method approach. At least 16 secondary PE teachers will be assigned to either an experimental group or a control group, together with some of their students. The training program comprises four face-to-face group sessions and two follow-up sessions (one individual and one group session). PE teachers will learn how to support autonomy and provide structure, as well as to be less controlling and chaotic towards students. Over approximately five months, teachers will implement these motivational strategies during their PE classes. Different (de)motivating teaching styles, motivational variables, and (mal)adaptive outcomes will be assessed in both PE teachers and their students at three distinct points: before the training program (T1), during the intervention (T2), and at the end of the intervention (T3). Additionally, two discussion groups involving all experimental PE teachers will be held (one following the training program and another at the end of the intervention). The results from this study could be useful for developing motivational training programs for in-service PE teachers. Clinical trial registration: ClinicalTrials.gov, identifier [NTC06479369].
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  • 文章类型: Journal Article
    目的:及时发现和诊断痴呆有利于提供适当的,预期护理和预防急性情况。然而,启动诊断测试是一个复杂而动态的过程,需要全科医生(GP)平衡相互竞争的优先事项.以前确定的障碍,比如缺乏时间,知识,和资源,可能不能完全代表这一过程中涉及的挑战。因此,本研究旨在研究全科医生在启动痴呆诊断轨迹时的更多内隐考虑因素.
    方法:使用半结构化访谈对14名荷兰全科医生进行了定性研究,这些医生是通过最大变异抽样有目的地选择的。多学科研究小组使用主题分析对访谈笔录进行了多轮归纳分析。
    结果:全科医生开始痴呆症诊断轨迹的考虑可以总结为三个相互关联的主题:(1)“假定患者的意愿”,也就是说,在拒绝或没有诊断请求的情况下,面临着想要尊重患者自主权的困境,同时识别问题并感到采取行动的紧迫性;(2)“GP试图不伤害”,也就是说,在不想伤害患者和/或亲属与痴呆的负担标签和晚期诊断可能的负面后果之间取得平衡;和(3)时间,信任,和跨专业合作影响诊断工作的及时性,也就是说,可供咨询的时间,时间作为诊断因素,GP的诊断信心,和信任的医患关系。
    结论:这项研究表明,关于患者自主性和不伤害原则的重要伦理困境存在于启动痴呆症诊断测试的实际GP障碍背后。时间,信任,发现跨专业合作有助于全科医生确定每个患者及其亲属的正确决定和时机。未来的研究可以探索明确涉及患者及其亲属参与这种平衡行为的诊断决策辅助工具的价值。
    OBJECTIVE: Timely detection and diagnosis of dementia are beneficial for providing appropriate, anticipatory care and preventing acute situations. However, initiating diagnostic testing is a complex and dynamic process that requires general practitioners (GPs) to balance competing priorities. Previously identified barriers, such as a lack of time, knowledge, and resources, may not fully represent the challenges involved in this process. Therefore, this study aimed to examine GPs\' more implicit considerations on starting the diagnostic trajectory for dementia.
    METHODS: A qualitative study was conducted using semi-structured interviews with 14 Dutch GPs who were purposively selected through maximum variation sampling. The interview transcripts were inductively analyzed in multiple rounds by a multidisciplinary research team using thematic analysis.
    RESULTS: GPs\' considerations on starting the diagnostic trajectory for dementia can be summarized in three main themes that are interconnected: (1) \'the presumed patient\'s willingness\', that is, facing a dilemma of wanting to respect patient autonomy in cases of denial or an absence of a diagnostic request, while at the same time identifying a problem and feeling the urgency to act; (2) \'the GP\'s attempt not to harm\', that is, balancing between not wanting to harm the patient and/or relatives with the burdensome label of dementia and with the possible negative consequences of a late diagnosis; and (3) \'time, trust, and interprofessional collaboration influence timeliness of diagnostic work-up\', that is, time available for consultations, time as a diagnostic factor, GP\'s diagnostic confidence, and trustful physician-patient relationship.
    CONCLUSIONS: This study revealed that important ethical dilemmas regarding patient autonomy and the principle of doing no harm lie behind practical GP barriers to initiating diagnostic testing for dementia. Time, trust, and interprofessional collaboration were found to facilitate GPs in determining the right decision and timing with each individual patient and their relatives. Future research could explore the value of diagnostic decision aids that explicitly involve patients and their relatives in this balancing act.
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  • 文章类型: Journal Article
    背景:动态同意的原则是基于通过为个人健康数据的共享和利用提供个性化选项来保护个人自主权的想法。为了促进在实践中广泛引入动态同意概念,个人必须认为这些程序有用且易于使用。本研究考察了基于同意的动态应用程序的用户体验,特别是关注个性化选择,并探讨了这种方法在确保数据主体在个人健康数据使用中的自主性方面是否有用。
    方法:本研究调查了MyHealthHub的用户体验,一个动态的基于同意的应用程序,居住在韩国的18岁或以上的成年人。探索动态同意原则的主要方面的八项任务-包括提供同意,监控同意历史记录,并为参与者提供了个性化的管理选项。通过多项选择和开放式问卷项目收集了对MyHealthHub测试经验的反馈。
    结果:共有30名参与者通过MyHealthHub应用程序提供了动态同意书。大多数参与者在没有帮助的情况下成功完成了所有提供的任务,并对个性化选择持积极态度。人们对基于数字的同意系统的安全性和可靠性提出了担忧,与其他方面引起的积极回应相反,如感知的有用性和易用性。
    结论:动态同意是分享和利用个人健康数据的一种伦理上有利的方法。个性化选择有可能成为个人在共享和利用个人健康数据方面的自主权的务实保障。将动态同意的原则纳入现实世界的场景需要剩余的问题,例如需要强大的身份验证机制来增强隐私和安全性,有待解决。这将增强动态的基于同意的应用程序的可信度,同时保留其道德优势。
    BACKGROUND: The principles of dynamic consent are based on the idea of safeguarding the autonomy of individuals by providing them with personalized options to choose from regarding the sharing and utilization of personal health data. To facilitate the widespread introduction of dynamic consent concepts in practice, individuals must perceive these procedures as useful and easy to use. This study examines the user experience of a dynamic consent-based application, in particular focusing on personalized options, and explores whether this approach may be useful in terms of ensuring the autonomy of data subjects in personal health data usage.
    METHODS: This study investigated the user experience of MyHealthHub, a dynamic consent-based application, among adults aged 18 years or older living in South Korea. Eight tasks exploring the primary aspects of dynamic consent principles-including providing consent, monitoring consent history, and managing personalized options were provided to participants. Feedback on the experiences of testing MyHealthHub was gathered via multiple-choice and open-ended questionnaire items.
    RESULTS: A total of 30 participants provided dynamic consent through the MyHealthHub application. Most participants successfully completed all the provided tasks without assistance and regarded the personalized options favourably. Concerns about the security and reliability of the digital-based consent system were raised, in contrast to positive responses elicited in other aspects, such as perceived usefulness and ease of use.
    CONCLUSIONS: Dynamic consent is an ethically advantageous approach for the sharing and utilization of personal health data. Personalized options have the potential to serve as pragmatic safeguards for the autonomy of individuals in the sharing and utilization of personal health data. Incorporating the principles of dynamic consent into real-world scenarios requires remaining issues, such as the need for powerful authentication mechanisms that bolster privacy and security, to be addressed. This would enhance the trustworthiness of dynamic consent-based applications while preserving their ethical advantages.
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  • 文章类型: Journal Article
    背景:患者自主权是提供尊重产妇护理的核心。使妇女能够在不受歧视和胁迫的情况下作出决定,尊重他们的隐私和保密性可以促进积极的分娩体验。这项研究旨在加深对贝宁在分时护理期间如何通过社会实践反映患者自主性的理解。
    方法:对妇女和助产士进行半结构化访谈,与女性生育伙伴的焦点小组讨论,分娩室的非参与者观察是在ALERT研究项目的框架内进行的。本研究通过反身性主题分析方法分析数据,跟Braun和Clarke保持一致.
    结果:我们确定了两个主题和五个子主题。由于提供护理的条件,患者在分娩过程中的自主性受到了系统的抑制,各种形式的胁迫和妇女放弃自主权。妇女使用其他护理方法,例如替代医学和精神护理,抵消在分院护理过程中自主性有限的经验。
    结论:结果指出了女性有限的患者自主性的经验,以及她们使用替代和精神护理实践来恢复患者自主性的经验。这项研究将精神自主性确定为患者自主性的新兴维度。增加妇女在分娩过程中的自主性可以改善她们的分娩体验,以及提供优质和尊重的产妇护理。
    BACKGROUND: Patient autonomy is central to the provision of respectful maternity care. Enabling women to make decisions free of discrimination and coercion, and respecting their privacy and confidentiality can contribute to positive childbirth experiences. This study aimed to deepen the understanding of how patient autonomy is reflected through social practices during intrapartum care in Benin.
    METHODS: Semi-structured interviews with women and midwives, a focus-group discussion with women\'s birth companions, and non-participant observations in the delivery room were conducted within the frame of the ALERT research project. This study analysed data through a reflexive thematic analysis approach, in line with Braun and Clarke.
    RESULTS: We identified two themes and five sub-themes. Patient autonomy was systemically suppressed over the course of birth as a result of the conditions of care provision, various forms of coercion and women\'s surrendering of their autonomy. Women used other care practices, such as alternative medicine and spiritual care, to counteract experiences of limited autonomy during intrapartum care.
    CONCLUSIONS: The results pointed to women\'s experiences of limited patient autonomy and their use of alternative and spiritual care practices to reclaim their patient autonomy. This study identified spiritual autonomy as an emergent dimension of patient autonomy. Increasing women\'s autonomy during childbirth may improve their experiences of childbirth, and the provision of quality and respectful maternity care.
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  • 文章类型: Journal Article
    严重疾病或受伤的经历经常导致脆弱性增加。在决策能力受损的情况下,这个漏洞是由威胁到病人的自主权。此病例报告提供了一个机会,可以探讨依赖代理决策者的严重损害患者的自主性与脆弱性之间的精心交织的关系。对自主性和脆弱性的扩展观点适用于患有严重和改变生活的脊髓损伤和医源性决策能力丧失的年轻妇女,以说明尽管有特殊的脆弱性,人们如何能够体验到增强的自主性,并通过代孕调解的自主性变得不那么脆弱。还揭示了代理人的态度和行为如何增强致病性脆弱性并破坏患者自主性和脆弱性之间的平衡。通过有条理的审查和强有力的审议,临床伦理委员会可以在帮助困境护理团队调和两者方面发挥稳定作用.
    The experience of serious illness or injury frequently results in increased vulnerability. In cases in which decision-making capacity is compromised, this vulnerability is compounded by threats to a patient\'s autonomy. This case report presents an opportunity to explore the elaborately entwined relationship between autonomy and vulnerability in patients with severe impairment who are reliant on surrogate decision-makers. Expanded views of autonomy and vulnerability are applied to the case of a young woman with a severe and life-altering spinal cord injury and iatrogenic loss of decisional capacity to illustrate how one can experience enhanced autonomy despite special vulnerability and can be made less vulnerable through surrogate-mediated autonomy. Also revealed is how attitudes and actions of surrogates can potentiate pathogenic vulnerability and disturb the balance between patient autonomy and vulnerability. Through methodical review and robust deliberation, clinical ethics committees can play a stabilizing role in helping distressed care teams reconcile the two.
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  • 文章类型: Journal Article
    目的:加拿大的死亡医疗援助(MAiD)将医疗提供者置于流程的中心。MAiD提供者对确定资格负有主要责任,并熟悉患者的内心欲望和痛苦表达。随后是施用致死剂并在合格患者死亡时存在的MAiD程序。我们报告参与者对这一角色的情感和道德影响的看法。
    方法:MAiD在加拿大合法化两年后,采访了22名早期收养医生的提供者。使用现象学分析和对匿名访谈摘录子集的新型ChatGPT增强分析来检查数据。
    结果:参与者将MAiD描述为具有挑战和奖励的情感挑衅。提供者在帮助优化患者的自主性和道德安慰及其在减轻痛苦方面的作用时,表达了积极的道德影响。供应商经历了围绕专业职责和平衡自我与服务他人的紧张关系。个人选择和耐心感激增强了提供者的体验,而不确定性和冲突增加了困难。
    结论:参与者将MAiD规定描述为与以患者为中心的实践精神密切相关。这项研究表明,尽管面临挑战,提供MAiD对医生来说是一种有意义和令人满意的做法。了解情感和道德影响以及增强或减损提供者经验的因素,可以使未来的利益相关者以符合患者利益的方式设计和规范辅助死亡,提供者,家庭和社会。
    OBJECTIVE: Medical assistance in dying (MAiD) in Canada places the medical provider at the centre of the process. The MAiD provider holds primary responsibility for determining eligibility and becomes acquainted with patients\' inner desires and expressions of suffering. This is followed by the MAiD procedure of administering the lethal agent and being present at the death of eligible patients. We report participants\' perceptions of the emotional and moral impacts of this role.
    METHODS: Two years after MAiD was legalised in Canada, 22 early-adopting physician providers were interviewed. Data were examined using both phenomenological analysis and a novel ChatGPT-enhanced analysis of an anonymised subset of interview excerpts.
    RESULTS: Participants described MAiD as emotionally provocative with both challenges and rewards. Providers expressed a positive moral impact when helping to optimise a patient\'s autonomy and moral comfort with their role in relieving suffering. Providers experienced tensions around professional duty and balancing self with service to others. Personal choice and patient gratitude enhanced the provider experience, while uncertainty and conflict added difficulty.
    CONCLUSIONS: Participants described MAiD provision as strongly aligned with a patient-centred ethos of practice. This study suggests that, despite challenges, providing MAiD can be a meaningful and satisfying practice for physicians. Understanding the emotional and moral impact and factors that enhance or detract from the providers\' experience allows future stakeholders to design and regulate assisted dying in ways congruent with the interests of patients, providers, families and society.
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  • 文章类型: Journal Article
    本研究通过使用青少年学生学校基本心理需求量表的多维视角来探索青春期的心理健康,源自自决理论。ASBPNSS侧重于三个基本的心理需求(能力,自主性,和相关性)在青春期,尚未在意大利的学校环境中使用。本研究的主要目标是:(1)验证ASBPNSS的初步意大利语版本;(2)分析学校幸福感与自我调节学习的自我效能感之间的关联;(3)验证性别是否存在差异。395名学生(平均年龄=17.5;SD=0.75)完成了ASBPNSS和自我调节学习自我效能感量表。阶乘结构,复合可靠性,并检查了ASBPNSS的性别不变性。使用结构方程模型(CFI=0.935,TLI=0.925;RMSEA=0.054)测试了学校幸福感与自我效能感之间的关联。幸福感的测量与学校自我效能感对自我调节学习有关,预测能力(β=0.639),相关性(β=0.350),和自主性(β=0.309)。这些关系在性别上是不变的,尽管女孩报告了相关性因子的潜在均值较低。这项研究强调了在青春期促进学校自我效能感和幸福感的重要性。
    This study explores psychological well-being in adolescence through a multidimensional perspective using the Adolescent Students\' Basic Psychological Needs at School Scale, derived from the Self-Determination Theory. The ASBPNSS focuses on three basic psychological needs (Competence, Autonomy, and Relatedness) in adolescence and has not yet been used within the school context in Italy. This study\'s main objectives are: (1) to validate a preliminary Italian version of the ASBPNSS; (2) to analyze the association between well-being at school and self-efficacy for self-regulated learning; and (3) to verify whether there are differences by gender. A sample of 395 students (mean age = 17.5; SD = 0.75) completed the ASBPNSS and the Self-Efficacy for Self-Regulated Learning Scale. The factorial structure, composite reliability, and gender invariance of the ASBPNSS were examined. Associations between well-being at school and self-efficacy were tested with structural equation models (CFI = 0.935, TLI = 0.925; RMSEA = 0.054). Measures of well-being were associated with school self-efficacy for self-regulated learning, which predicted Competence (beta = 0.639), Relatedness (beta = 0.350), and Autonomy (beta = 0.309). These relationships were invariant over gender, although girls reported lower latent means in the Relatedness factor. This study highlights the importance of promoting school self-efficacy and well-being in adolescence.
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  • 文章类型: Journal Article
    残疾人领域面临的挑战是采用一种可用于指导服务转型的范式,supports,和研究实践,以确保和增强个人自主权,权利,以及残疾人的社区融合。本文介绍了与创新的系统扩散和可持续性相关的策略,例如新兴的共享公民范式(SCP),具有引导转型的潜力。系统扩散过程包含五个组成部分:知识,说服,decision,实施,和确认。系统过程还解决了不和谐的风险,背隙,意想不到的后果,以及当范式的可持续性得不到支持时可能出现的倒退。在整篇文章中,我们强调,组织和系统的有意义的变化需要使用范式,如SCP及其原则和基础支柱来指导变化,以及本文所述的系统过程,以实现和维持变化。
    The field of disabilities is being challenged to adopt a paradigm that can be used to guide the transformation of services, supports, and research practices to ensure and enhance the personal autonomy, rights, and community inclusion of people with disabilities. This article describes strategies associated with the systematic diffusion and sustainability of an innovation such as the emerging Shared Citizenship Paradigm (SCP), which has the potential to guide the transformation. The systematic diffusion process incorporates five components: knowledge, persuasion, decision, implementation, and confirmation. The systematic process also addresses the risks of dissonance, backlash, unintended consequences, and backsliding that can emerge when the sustainability of a paradigm is not supported. Throughout the article, we stress that meaningful change in organizations and systems requires use of a paradigm such as the SCP and its principles and foundation pillars to guide the change, and a systematic process such as that described in this article to bring about and sustain the change.
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