peer-support

对等支持
  • 文章类型: Journal Article
    背景:乳腺癌(BC)是全球女性中最普遍的癌症诊断。一些随机对照试验和系统评价已经显示了运动之前的益处,during,并在癌症治疗后管理与癌症及其治疗相关的副作用。然而,这些在整个疾病范围内执行不力,具体来说,在术前设置。方法:诊断为BC并参与一项基于北欧步行的康复计划效果的随机对照试验的患者,肌肉加强,和治疗教育被邀请参加这项定性子研究。两组患者各8例,转录本并使用专门的软件(Atlas-Ti®,版本24)。结果:在轴向编码阶段,22个独特的代码和6个主要主题被确定与他们的经验与程序,即,(1)参与之前收到的信息;(2)参与的动机;(3)障碍;(4)促进者;(5)医护人员和同行的支持程度;(6)对康复计划特征的满意度。结论:接受采访的患者对康复表现出极大的兴趣,以此作为在身体和心理上为手术做准备的一种方式。为了实施这些干预措施,医疗保健系统需要承认障碍和促进者,以及需要对这些项目进行监督和监测,以避免不良事件。
    Background: Breast cancer (BC) is the most prevalent cancer diagnosis among women worldwide. Several randomized controlled trials and systematic reviews have shown the benefits of exercise before, during, and after cancer treatment to manage side effects related to cancer and its therapies. However, these are poorly implemented across the disease-span, specifically, during the preoperative setting. Methods: Patients diagnosed with BC and participating in a randomized controlled trial on the effects of a prehabilitation program based on Nordic walking, muscle strengthening, and therapeutic education were invited to participate in this qualitative substudy. Two groups of eight patients each were recorded, transcript and analyzed using a specialized software (Atlas-Ti®, version 24). Results: During the axial codification phase, 22 unique codes and 6 main themes were identified related to their experience with the program, namely, (1) information received prior to participating; (2) motivation to participate; (3) barriers; (4) facilitators; (5) perceived degree of support from healthcare workers as well as peers; and (6) satisfaction with the characteristics of the prehabilitation program. Conclusions: Patients interviewed showed great interest in prehabilitation as a way to prepare both physically and mentally for surgery. In order to implement these interventions, healthcare systems need to acknowledge barriers and facilitators as well as the need for these programs to be supervised and monitored to avoid adverse events.
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  • 文章类型: Journal Article
    大约20%的脑膜炎幸存者经历后遗症。然而,关于他们的心理影响的研究很少。本报告详细介绍了对这些心理影响的小型探索性调查。
    探讨后遗症对脑膜炎幸存者的影响。
    一百个个人用户博客文章的主题分析,诊断脑膜炎后自我报告一个或多个后遗症。
    博客海报的经历千差万别。经验的共同趋势被映射到三个主题上。\'努力适应新常态\'捕捉博客海报\'努力在住院后恢复生活。“积极的可能性导航”探讨了博客海报如何报告由于他们的疾病经历或感到压力而产生的积极变化,或无能,这样做。“知识和支持的影响”概括了两个子主题;“缺乏意识导致进一步的痛苦”和“验证导致叙事转变”。这些子主题对比不同的体验博客海报报道,有知识和没有知识,他们症状的原因和支持处理由此产生的困难。
    一致和结构化的后期护理将使经历后遗症的患者受益。提出了可能采用的格式的建议。此外,疾病感知的自我调节模型有助于解释博客海报体验的一些变化,还提出了基于这些模型的可能干预计划。然而,局限性,包括相对较小和高度选择的样本,意味着需要进一步的研究来验证研究结果并评估其有效性,广泛的适用性,和财务可行性。
    UNASSIGNED: Around twenty percent of meningitis survivors experience after-effects. However, very little research on their psychological impact has been conducted. This report details a small explorative investigation into these psychological impacts.
    UNASSIGNED: To explore the impact sequelae have on the meningitis survivors affected.
    UNASSIGNED: Thematic analysis of one-hundred individual user\'s blog posts, self-reporting one or more sequelae after a diagnosis of meningitis.
    UNASSIGNED: Blog posters\' experiences varied greatly. Common trends in experience were mapped onto three themes. \'Struggling to Adjust to the New Normal\' captures blog posters\' struggles in returning to their lives post-hospitalization. \'Navigating Possibilities for Positivity\' explores how blog posters either reported positive change due to their illness experience or felt a pressure, or inability, to do so. \'The Impact of Knowledge and Support\' overarching two sub-themes; \'Lack of Awareness Causing Further Suffering\' and \'Validation Leads to Narrative Shift\'. These sub-themes contrast differences in experience blog posters reported, with and without knowledge, of the cause of their symptoms and support in dealing with the resulting difficulties.
    UNASSIGNED: Consistent and structured after-care would benefit patients experiencing sequelae. Suggestions of a possible format this could take are put forward. In addition, self-regulatory models of illness perception help explain some variations in blog posters experiences, with possible intervention plans based on these models also suggested. However, limitations, including the comparatively small and highly selected sample, mean that further research is necessary to validate the findings and assess their validity, widespread applicability, and financial feasibility.
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  • 文章类型: Journal Article
    压力是乳腺癌(BC)患者的压倒性感觉。然而,虚拟教育的效果尚未得到充分调节。因此,本研究旨在比较两种虚拟教育方法对BC女性感知压力和压力应对的影响。
    在315名被转诊到德黑兰癌症研究所的BC患者中进行了一项三臂随机临床试验。他们被随机分配到3组:(a)以家庭为基础,接受基于家庭的培训包;(b)同伴支持,接收同伴支持教育包;和(C)控制,接受常规医院护理。通过人口统计学和疾病特征收集数据,感知压力量表(PSS-14),干预前和干预后3个月的压力情况应对量表(CISS-21)问卷。
    控制干预前得分后的群体因素对感知压力的影响,以问题为导向,以情感为导向,和回避策略分别为P<0.0001,P=0.015,P<0.0001和P=0.111。此外,BC疾病分期的混杂因素在因变量中的影响分别为P=0.527,P=0.275,P=0.358和P=0.609.效应大小测试表明,在干预之前,感知压力的平均分数,以问题为导向,以情感为导向,和回避策略分别为32.00±7.03、19.36±4.68、25.10±5.90和17.65±6.64,但是在干预后,感知压力的平均得分降低了,以情感为导向,和回避策略。
    当面向问题的应对方式增加时,虚拟的基于家庭的教育中充满活力的东西比同伴支持有效得多。相反,应考虑减少接受足够信息和家庭支持的BC女性的感知压力。
    UNASSIGNED: Stress is an overwhelming feeling in patients with breast cancer (BC). However, The effect of virtual education has not been fully regulated. Hence, this study intends to compare the impact of 2 virtual education methods on perceived stress and stress coping in women with BC.
    UNASSIGNED: A 3-armed randomized clinical trial was conducted among 315 women with BC who were referred to the Cancer Institute in Tehran. They were randomly assigned to 3 groups: (a) Family-based, receiving family-based training package; (b) peer-support, receiving peer-support educational package; and (c) control, receiving routine hospital care. Data were collected through demographic and disease characteristics, the Perceived Stress Scale (PSS-14), and Coping Inventory for Stressful Situations (CISS-21) questionnaires before and 3 months after the intervention.
    UNASSIGNED: The effect of the group factor after controlling the before-intervention scores in perceived stress, problem-oriented, emotion-oriented, and avoidance-oriented strategies were P < 0.0001, P = 0.015, P < 0.0001, and P = 0.111, respectively. Also, the effect of the confounding factor of BC disease stage in the dependent variables was P = 0.527, P = 0.275, P = 0.358, and P = 0.609, respectively. The effect size test showed that before the intervention, the mean scores of perceived stress, problem-oriented, emotion-oriented, and avoidance-oriented strategies were 32.00 ± 7.03, 19.36 ± 4.68, 25.10 ± 5.90, and 17.65 ± 6.64 respectively, but after the intervention showed a decrease in mean scores of perceived stress, emotion-oriented, and avoidance strategies.
    UNASSIGNED: What is vibrant in virtual family-based education is far more effective than peer support when problem-oriented coping increases. Conversely, reducing perceived stress in women with BC receiving enough information and family support should be considered.
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  • 文章类型: Journal Article
    为了解决年轻照顾者(YC)对空间和机会的需求,以反映和交流,一个有指导的同行支持方案,“聚会”,于2018年与瑞士YC合作开发。为了评估Get-togethers是否能够满足他们最初设定的目标(1)加强YC之间的支持,(2)提高他们的生活技能,(3)加强他们的社交网络,(4)促进YC的包容和参与,Get-togethers的参与者被要求完成一份简短的问卷,关于他们参加Get-togethers的经历。我们还分析了2021年5月至2023年9月期间举行的17次Get-together的标准文件。总的来说,在调查和文件的几乎所有领域,聚会都得到了积极的评价,表明四个最初设定的Get-togethers目标(至少在很大程度上)已经实现。聚会满足了YC的很大一部分需求,例如情感上的支持和放松的机会,以及与处于类似情况的人交流的机会,然而,他们在很大程度上未能达到次要YC和男性YC。应制定进一步的支助方案,以满足不同群体的不同需求。
    To address Young Carers\' (YCs) needs for space and opportunities to reflect and exchange, a guided peer-support programme, the \"Get-togethers\", was developed in collaboration with YC in Switzerland in 2018. In order to evaluate if the Get-togethers were able to meet their originally set goals of (1) strengthening support among YCs, (2) promoting their life skills, (3) strengthening their social network and (4) promoting the inclusion and participation of YCs, participants of the Get-togethers were asked to complete a short questionnaire about their participation in and experiences with the Get-togethers. We also analysed the standard documentation of 17 Get-togethers held between May 2021 and September 2023. Overall, the Get-togethers were rated positively in almost all areas of the survey and the documentation, indicating that the four originally set objectives of the Get-togethers were (at least largely) achieved. The Get-togethers covered a large part of the needs of YCs, such as emotional support and opportunities to relax and exchange with people in a similar situation, yet they largely failed to reach minor YCs and male YCs. Further support programmes should be developed to address the different needs of different groups of YCs.
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  • 文章类型: Journal Article
    背景:妊娠期糖尿病(GDM)的患病率近年来急剧上升。对一些人来说,自我管理包括在Facebook上使用GDM在线社区。这些社区可以填补参与者无法在其他地方获得的信息和支持方面的空白,以解决未满足的需求。鉴于在Facebook上分享怀孕信息的普及以及糖尿病在线社区的成文益处,GDM在线社区可能也是如此。
    目的:本研究旨在对GDMFacebook群组中正在讨论的内容进行分类和量化,包括信息和情感上的求助行为,以及同行如何通过评论和反应来证明这种支持和参与。
    方法:我们从澳大利亚两个最大的专注于GDM的Facebook团体中获取了数据。对两组的原始帖子进行了总结性内容分析,并针对主题和寻求帮助类型进行了编码。该编码方案基于Liang和Scammon的先前工作。可见的参与度指标,包括评论和“反应”的数量,“已提交表格并手动评估。
    结果:有388个原始帖子,分析产生了6个主题:GDM自我管理(199/388,51.3%),GDM临床管理(120/388,30.9%),准备分娩(40/388,10.3%),精神困扰(35/388,9%),出生公告(29/388,7.5%),和GDM旅程反射(21/388,5.4%)。求助类型的二级编码显示,超过一半的帖子是信息求助(224/388,57.7%),虽然一小部分是信息和情感求助(44/388,11.3%),有些人(12/388,3.1%)只寻求情感帮助。自我披露被确定为第四类,占所有职位的近四分之一(90/388,23.2%)。针对原始帖子共发布了6022条评论,所有帖子都有4452个反应。情感求助吸引了最多的评论每个线程(平均21.5,标准差19.8),其次是信息和情感求助(平均值20.2,标准差14.7),信息求助(平均值15.6,标准差14.6),和自我披露(平均值14.3,标准差21.8)。在所有寻求帮助的类别中,与评论相比,反应很少;相比之下,自我披露吸引了大量的反应(平均9.4,SD45.3)。
    结论:这是第一批在Facebook上的GDM在线社区中检查同伴支持的研究之一。我们的研究结果表明,活跃的参与者对GDM相关信息和支持的需求在一定程度上得到了同行主导的在线社区的满足。鉴于正规医疗保健的实际局限性,包括提供持续的社会支持,重要的是要认识到GDM在线社区如何补充正规医疗保健并帮助解决未满足的需求。
    BACKGROUND: The prevalence of gestational diabetes mellitus (GDM) has drastically risen in recent years. For some, self-management includes the use of GDM online communities on Facebook. Such communities can fill gaps in information and support that participants are not able to access elsewhere to address unmet needs. Given the popularity of sharing information about pregnancy on Facebook and the documented benefits of diabetes online communities, the same may be true of GDM online communities.
    OBJECTIVE: This study aimed to categorize and quantify what is being discussed in GDM Facebook groups, including informational and emotional help-seeking behavior, and how this support and engagement may be demonstrated by peers through comments and reactions.
    METHODS: We sourced the data from the 2 largest Facebook groups focused on GDM in Australia. A summative content analysis was conducted on original posts across the 2 groups and coded for topics as well as help-seeking types. The coding scheme was based on the previous work of Liang and Scammon. Visible indicators of engagement, including the number of comments and \"reactions,\" were tabled and manually evaluated.
    RESULTS: There were 388 original posts, and the analysis produced 6 topics: GDM self-management (199/388, 51.3%), GDM clinical management (120/388, 30.9%), preparing for birth (40/388, 10.3%), mental distress (35/388, 9%), birth announcement (29/388, 7.5%), and GDM journey reflections (21/388, 5.4%). Secondary coding of help-seeking type revealed more than half of the posts were informational help-seeking (224/388, 57.7%), while a small proportion were both informational and emotional help-seeking (44/388, 11.3%), and some (12/388, 3.1%) were emotional help-seeking only. Self-disclosure was identified as a fourth category, comprising almost a quarter of all posts (90/388, 23.2%). A total of 6022 comments were posted in response to the original posts, and there were 4452 reactions across all posts. Emotional help-seeking attracted the most comments per thread (mean 21.5, SD 19.8), followed by informational and emotional help-seeking (mean 20.2, SD 14.7), informational help-seeking (mean 15.6, SD 14.6), and self-disclosure (mean 14.3, SD 21.8). Across all help-seeking categories, few reactions occurred compared to comments; in contrast, self-disclosure attracted a large number of reactions (mean 9.4, SD 45.3).
    CONCLUSIONS: This is one of the first studies to examine peer support in a GDM online community on Facebook. Our findings suggest that active participants\' needs around information and support in relation to GDM are being somewhat met by peer-led online communities. Given the practical limitations of formal health care, including the provision of ongoing social support, it is important to recognize how GDM online communities can complement formal health care and help address unmet needs.
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  • 文章类型: Journal Article
    背景:基于在线正念的认知疗法(eMBCT)已被证明可以减轻癌症患者的心理困扰。然而,这一人群报告说,缺乏支持和异步通信是eMBCT的障碍,导致比面对面MBCT更高的不依从率。使用共同创造过程,我们开发了两种格式的eMBCT:组,混合(治疗师指导小组和个人在线会议的组合)和个人,无指导的(个人,仅限无指导的在线会话)。Group,混合eMBCT提供同行支持和指导,而个人,无指导的eMBCT提供了灵活性和大规模实施的可能性。
    目的:这项非随机可行性研究的目的是评估小组的可行性,混合和个体,无指导的eMBCT干预。
    方法:参与者是癌症患者,他们在组间进行选择,混合和个体,无引导的eMBCT。两种干预条件都遵循相同的8周eMBCT计划,包括介绍性会议和无声日(共10个会议)。所有个人会议,无指导的eMBCT通过Minddistrict平台发生,而集团,混合eMBCT包括由正念老师指导的3次在线视频会议和通过Minddistrict的5次会议。我们通过评估参与者的可接受性来定量和定性评估干预的可行性。此外,我们通过观察干预前和干预后参与者完成问卷的数量来评估有限的疗效.
    结果:我们在每种eMBCT条件下纳入了12名参与者。小组参与者,完成混合eMBCT,平均而言,10届会议的9.7,与个人平均8.3次相比,无引导的eMBCT(不包括退出)。在24名参与者中,13人(54%)同意接受采访(5人无指导,8人混合采访)。这两种情况的参与者都报告了积极的经历,包括不必旅行的便利性以及选择何时何地参加的灵活性。然而,在参与的障碍中,小组的参与者,混合条件报告了更多小组会议的偏好,和个体的参与者,无指导条件报告缺乏指导。此外,对于团体来说,混合条件,所有结局指标的效应大小都很小(对冲g范围=0.01-0.36),除了疲劳,具有中等效应大小(Hedgesg=0.57)。对于个人来说,无导向条件,所有结果测量的效应大小都很小(对冲g范围=0.24-0.46),除了正念技能(对冲g=0.52)和参与干预(对冲g=1.53)。
    结论:这项研究的参与者对小组有积极的体验,混合和个体,无引导的eMBCT。根据这项研究的结果,在进行全面随机对照试验之前,我们将调整干预措施,以评估有效性;我们将在组中增加1组会议,使用Zoom作为小组会议平台的混合eMBCT;我们将向参与者发送提醒以完成问卷。
    背景:ClinicalTrials.govNCT05336916;https://clinicaltrials.gov/ct2/show/NCT05336916。
    BACKGROUND: Online mindfulness based cognitive therapy (eMBCT) has been shown to reduce psychological distress in people with cancer. However, this population has reported lack of support and asynchronous communication as barriers to eMBCT, resulting in higher nonadherence rates than with face-to-face MBCT. Using a co-creation process, we developed 2 formats of eMBCT: group, blended (combination of therapist-guided group and individual online sessions) and individual, unguided (individual, unguided online sessions only). Group, blended eMBCT offers peer support and guidance, whereas individual, unguided eMBCT offers flexibility and the possibility of large-scale implementation.
    OBJECTIVE: The objective of this nonrandomized feasibility study was to assess aspects of feasibility of the group, blended and individual, unguided eMBCT interventions.
    METHODS: Participants were people with cancer who chose between group, blended and individual, unguided eMBCT. Both intervention conditions followed the same 8-week eMBCT program, including an introductory session and a silent day (10 sessions total). All sessions for individual, unguided eMBCT occurred via the platform Minddistrict, whereas group, blended eMBCT consisted of 3 online videoconference sessions guided by a mindfulness teacher and 5 sessions via Minddistrict. We assessed the feasibility of the intervention quantitatively and qualitatively by evaluating its acceptability among participants. Additionally, we assessed limited efficacy by looking at the number of questionnaires participants completed pre- and postintervention.
    RESULTS: We included 12 participants for each eMBCT condition. Participants in group, blended eMBCT completed, on average, 9.7 of 10 sessions, compared with an average 8.3 sessions for individual, unguided eMBCT (excluding dropouts). Of the 24 participants, 13 (54%) agreed to be interviewed (5 unguided and 8 blended). Participants in both conditions reported positive experiences, including the convenience of not having to travel and the flexibility to choose when and where to participate. However, among the barriers for participation, participants in the group, blended condition reported a preference for more group sessions, and participants in the individual, unguided condition reported a lack of guidance. Additionally, for the group, blended condition, the effect sizes were small for all outcome measures (Hedges g range=0.01-0.36), except for fatigue, which had a moderate effect size (Hedges g=0.57). For the individual, unguided condition, the effect sizes were small for all outcome measures (Hedges g range=0.24-0.46), except for mindfulness skills (Hedges g=0.52) and engagement with the intervention (Hedges g=1.53).
    CONCLUSIONS: Participants in this study had a positive experience with group, blended and individual, unguided eMBCT. Based on the results from this study, we will adjust the intervention prior to conducting a full-scale randomized controlled trial to evaluate effectiveness; we will add 1 group session to the group, blended eMBCT using Zoom as the platform for the group sessions; and we will send reminders to participants to complete questionnaires.
    BACKGROUND: ClinicalTrials.gov NCT05336916; https://clinicaltrials.gov/ct2/show/NCT05336916.
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  • 文章类型: Journal Article
    目的:本文报告了澳大利亚首个住宿同伴支持服务对有自杀风险的人的影响的初步证据。方法:在干预前测量心理困扰,干预后,3个月后,采用配对t检验进行分析。干预后进行访谈,并使用主题分析进行分析。结果:从干预前到干预后(n=16,d=1.77)和随访时(n=5,d=1.12),心理困扰显着改善。访谈(n=10)表明,参与者的心理健康和联系感得到了改善,喘息,以及与其他服务合作的信心。同行支持人员是关键。一些与会者认为地点太偏僻,提供的信息太少了,住得更久更可取.局限性:该研究不包括对照组,样本相对较小,参与者可能已经受到社会期望的答案。结论:这些发现表明,寄宿同伴支持服务可能为有自杀风险的人提供常规住院治疗的有价值的替代方案。
    Aim: This paper reports preliminary evidence of the impacts of Australia\'s first residential peer-support service for people at risk of suicide. Methods: Psychological distress was measured preintervention, postintervention, and after 3 months and analyzed using paired t tests. Interviews were held postintervention and were analyzed using thematic analysis. Results: Psychological distress significantly improved from preintervention to postintervention (n = 16, d = 1.77) and at follow-up (n = 5, d = 1.12). Interviews (n = 10) indicated that participants experienced improvements in mental well-being and feelings of connectedness, respite, and confidence to engage with other services. The peer-support workers were key. Some participants felt that the location was too remote, too little information was given, and a longer stay would have been preferable. Limitations: The study did not include a control group, the sample was relatively small, and participants may have been subject to socially desirable answers. Conclusions: These findings indicate that residential peer-support services potentially offer a valuable alternative to conventional inpatient treatment for people at risk of suicide.
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  • 文章类型: Journal Article
    目的:检查参与者在LLL后的同伴支持体验以及同伴支持体验(感知的利益和障碍)与流动性结果之间的关联。
    方法:采用横断面设计的定量和定性描述性研究。
    方法:全国调查(分发给美国44个州的169个同行支持团体)。
    方法:调查由82名下肢严重截肢的个体完成(53%为女性,55岁以上的54%)。
    方法:一项32项调查,旨在调查受访者在同伴支持活动中的经验。使用“假肢使用者流动性调查”(PLUS-M)测量了假肢的流动性。
    结果:三分之二的受访者在截肢后获得了某种形式的同伴支持。其中75%的人报告说,同伴支持对他们的人生观有积极影响,78%的人报告说,从同行支持中获得的信息是有帮助的。陪伴,利他行为,获取有关如何应对截肢的信息是受访者为什么喜欢同伴支持体验的首要主题。几乎所有(94%)的受访者都会向LLL的其他人推荐同伴支持。接受同伴支持的个人表现出更大的流动性趋势(第55位与PLUS-M的第36百分位数;p=0.055)。
    结论:患有LLL的个体报告了他们参与同伴支持活动的总体积极经验。同伴支持小组被视为信息和情感支持的有用来源,截肢后可能有利于功能和心理恢复。获得同伴支持的个人也表现出更大的流动性。
    OBJECTIVE: To examine participants\' experiences with peer-support after lower limb loss (LLL) and the associations between the peer-support experience (perceived benefits and barriers) and mobility outcomes.
    METHODS: Quantitative and qualitative descriptive study with a cross-sectional design.
    METHODS: National survey (distributed to 169 peer-support groups in 44 states in the US).
    METHODS: The survey was completed by 82 individuals with a major lower limb amputation (53% female, 54% over 55 years of age; N=82).
    METHODS: A 32-item survey to examine respondents\' experiences in peer-support activities. Prosthetic mobility was measured using the Prosthetic Limb Users Survey of Mobility (PLUS-M).
    RESULTS: Two out of 3 respondents received some forms of peer-support after amputation. Among them 75% reported peer-support having a positive effect on their outlook on life, and 78% reported that information gained from peer-support was helpful. Companionship, altruistic acts, and gaining information on how to cope with amputation were the top themes of why respondents enjoyed the peer-support experience. Nearly all (94%) respondents would recommend peer-support to other people with LLL. Individuals who received peer-support exhibited a trend of greater mobility (55th vs 36th percentile on PLUS-M; P=.055).
    CONCLUSIONS: Individuals with LLL reported generally positive experiences regarding their engagement in peer-support activities. Peer-support groups are viewed as a helpful source for both information and emotional support, potentially benefiting functional and psychological recovery after amputation. Individuals who have received peer-support also exhibited greater mobility.
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  • 文章类型: Journal Article
    目的:中风幸存者的同伴支持小组通常由卫生当局和康复计划中的残疾相关组织组织和促进。然而,同行主导的好处,同行支持小组尚未评估。这项研究的目的是探索参与者在社区中的经验,同行主导,卒中幸存者同伴支持小组。
    方法:根据建构主义扎根理论,对11名参与者进行了半结构化访谈并进行了分析,中风患者的同伴支持小组。数据还补充了一个关于他们参加小组的经验的定量评级问题。
    结果:确定了三个主题。中风后满足未满足的需求捕获了中风幸存者如何创建该小组以解决中风后社区的生活。伙伴们帮助伙伴们强调,中风恢复是该小组的共同过程,成员互相帮助和鼓励,尽他们所能。建立真实的友谊揭示了人们如何在同伴主导下体验社交联系和发展关系,同行支持组。
    结论:同行领导,同伴支持小组可以为中风幸存者提供与社区中志同道合的人联系的机会,以在探索他们的能力的同时获得乐趣。
    Peer-support groups for stroke survivors are often organized and facilitated by health authorities and disability related organizations within rehabilitation programs. However, the benefits of peer-led, peer-support groups have not yet been evaluated. The purpose of this study was to explore participants\' experiences in a community-based, peer-led, peer-support group for stroke survivors.
    Semi-structured interviews were conducted and analyzed following constructivist grounded theory with 11 participants who attended a peer-led, peer-support group for people with stroke. The data were also complemented with one quantitative rating question regarding their experience attending the group.
    Three themes were identified. Meeting unmet needs after stroke captured how the group was created by stroke survivors to address life in the community post-stroke. Buddies helping buddies highlighted that stroke recovery is a shared process at the group, where members help and encourage each other to contribute what they can. Creating authentic friendships revealed how people experienced social connection and developed relationships in the peer-led, peer-support group.
    Peer-led, peer-support groups may provide opportunities for stroke survivors to connect with like-minded people in their community to have fun while exploring their abilities.
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  • 文章类型: Journal Article
    背景:英语能力有限(LEP)的拉丁人经历了较长的时间未经治疗的抑郁和焦虑。由于讲西班牙语的行为/心理健康临床医生不足以满足需求,LEPLatinxs难以获得精神医疗保健。这些资源不足的医疗保健系统不太可能成为实施创新的场所。数字干预可以为克服这些障碍提供有效的选择;然而,当基于数字证据的治疗可用时,摄取和参与度通常很低。该手稿提出了SUPERA(从PEeRs扩展访问权限的支持)研究的协议,该研究将评估基于证据的实施,西班牙语,数字认知行为疗法(dCBT)干预(即,SilverCloud)在患有抑郁症或焦虑症的LEPLatinx患者的安全网初级保健诊所中。
    方法:我们将进行有效性实施混合试验(2型)设计,比较两种dCBT交付方式的参与和临床结果(同行支持与不支持)。我们还将比较提供者级别的外展(使用临床患者注册表)与内展(传统提供者转诊),以比较启动率,完成,和成本。参与者将是426名LEP拉丁裔成年人≥18岁,PHQ-9≥10或GAD-7≥8,可通过智能手机访问互联网,目前没有接受单独的心理治疗。我们将收集基线,干预后(8周),和随访(3个月)数据。
    结论:这项研究的长期目标是帮助实施可以在低资源环境中可持续实施的数字心理健康干预措施。在减少对专业人士依赖的同时,克服劳动力短缺,与不同人群的相关性日益增强。
    Limited English Proficiency (LEP) Latinxs experience a longer duration of untreated depression and anxiety. LEP Latinxs have difficulty accessing mental healthcare due to insufficient Spanish-speaking behavioral/mental health clinicians to meet demand. These under-resourced healthcare systems are less likely to be the site for the implementation of innovations. Digital interventions can provide an effective option for overcoming these barriers; yet, when digital evidence-based treatments are available, uptake and engagement is often low. This manuscript presents the protocol for the SUPERA (SUpport from PEeRs to expand Access) study which will evaluate the implementation of an evidence-based, Spanish language, digital cognitive-behavioral therapy (dCBT) intervention (i.e., SilverCloud) in safety-net primary care clinics for LEP Latinx patients with depression or anxiety.
    We will conduct an effectiveness-implementation hybrid trial (Type 2) design comparing engagement and clinical outcomes in two modalities of dCBT delivery (peer-supported vs. unsupported). We will also compare provider-level outreach (using a clinic patient registry) versus inreach (traditional provider referral) to compare rates of initiation, completion, and cost. Participants will be 426 LEP Latinx adults ≥18 years of age, PHQ-9 ≥ 10 or GAD-7 ≥ 8, with access to the internet via smartphone, and not currently receiving individual psychotherapy. We will collect baseline, post-intervention (8 weeks), and follow up (3 months) data.
    The long-term goal of this research is to aid in the implementation of digital mental health interventions that can be sustainably implemented in low-resourced settings, while reducing the reliance on professionals, overcoming workforce deficits, and increasing relevance for diverse populations.
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