pediatric colorectal

  • 文章类型: Journal Article
    肛门直肠畸形(ARM)的治疗和临床结果的管理对家庭来说是具有挑战性的。虽然大多数研究都集中在患有护理负担的母亲身上,高应力,生活质量低,对有ARM经历的孩子的父亲的知识有限;因此,这项研究旨在研究父母如何照顾ARM患儿的经验,以及信仰和文化问题如何影响对先天性异常的感知。
    定性设计。本研究使用了报告定性研究指南的综合标准。数据分析遵循主题分析指南。
    采访了10位母亲和6位父亲,他们的平均年龄为32.5±4.2岁。在75%(n=12)的文盲和93.7%(n=15)的家庭类型扩大中,他们所有的宗教信仰都是穆斯林。四个主要主题是(1)模糊,(2)挑战,(3)污名,(4)应对,这与父母对拥有和照顾ARM儿童的看法的数据分析结果一致。
    在这项研究中,许多索马里父母报告说他们缺乏疾病和治疗知识,身体疲惫,以及由于生活在农村地区而无法进入医院的一些困难,照顾孩子,处理长期并发症,结肠造口术,肛门扩张,在肛门成形术之前或之后灌肠。虽然所有的父母都提到有一个ARM的孩子是一种命运,这被他们密切的社会环境视为惩罚。因此,这项研究可以为多学科卫生专业人员规划全面的医疗保健以及身体和心理社会支持奠定基础.
    UNASSIGNED: Treatment of anorectal malformations (ARM) and the management of clinical outcomes are challenging for families. While most studies focus on mothers suffering from care burden, high stress, and low quality of life, there is limited knowledge of what fathers of children with ARM experience; therefore, this study aimed to examine how both mothers and fathers have experience caring for children with ARM and how beliefs and cultural issues affect the perception of congenital anomalies.
    UNASSIGNED: A qualitative design. Consolidated criteria for reporting the qualitative research guidelines were used in this study. The guidelines for thematic analysis were followed for data analysis.
    UNASSIGNED: Ten mothers and six fathers were interviewed, and their mean age was 32.5 ± 4.2 years. Of the 75% (n = 12) illiterate and 93.7% (n = 15) had an expanded family type, all their religious affiliations were Muslim. The four main themes were (1) ambiguity, (2) challenges, (3) stigma, and (4) coping, which were determined in line with the results of the data analysis of parents\' views on having and caring for children with ARM.
    UNASSIGNED: In this study, many Somali parents reported that they lacked disease and treatment knowledge, physical exhaustion, and some difficulties related to a lack of access to the hospital because of living in rural areas, caring for the child, and dealing with long-term complications, colostomy, anal dilatation, and enema before or after anoplasty. While all parents mentioned that having a child with ARM was a fate, it was seen as punishment by their close social environment. Consequently, this study could serve as a foundation for planning comprehensive healthcare and physical and psychosocial support for multidisciplinary health professionals.
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  • 文章类型: Journal Article
    结直肠疾病患者的治疗需要在其一生中从各种医学和外科专业的护理。理想情况下,这是由一个协作中心处理,该中心可促进多个专业之间的患者护理评估和发展,从而提高治疗计划的质量和实施。改善不同专业之间的沟通,降低发病率,提高患者满意度和治疗效果。这种协作方法可以作为需要类似的多学科和综合护理方法的其他医学部分的模型。我们描述了这个过程,以及在制定这样一个计划中吸取的教训。
    The treatment of patients with colorectal disorders requires care from a wide variety of medical and surgical specialties over the course of their lifetime. This is ideally handled by a collaborative center which facilitates the assessment and development of patient care among multiple specialties which can enhance the quality and implementation of treatment plans, improve communication among different specialties, decrease morbidity, and improve patient satisfaction and outcomes. This collaborative approach can serve as a model for other parts of medicine requiring a similar multi-disciplinary and integrated method of care delivery. We describe the process, as well as the lessons learned in developing such a program.
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  • 文章类型: Journal Article
    护理复杂患者的一个基本前提是经验,案件数量增加,和一个综合的,多学科方法产生更好的结果。以照顾有结肠直肠和骨盆重建需要的儿童为例,这是真的吗?这篇综述给出了一个简短的历史背景,关于这个病人群体的护理是如何演变的,描绘了创建协作护理模型的关键要素,并描述了已经开发的多种进步,基于模型,改善了患者的护理和生活质量。证据级别:审查。
    A basic premise in the care of complex patients is that experience, increased volume of cases, and an integrated, multi-disciplinary approach yields improved outcomes. Is this true using the example of the care of children with colorectal and pelvic reconstructive needs? This review gives a brief historical context on how care for this patient group evolved, delineates the key elements to create a collaborative care model, and describes multiple advances that have been developed, based on the model, which have improved patient care and quality of life. LEVEL OF EVIDENCE: Review.
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  • 文章类型: Journal Article
    目的:儿科结直肠研究表明,增强术后恢复(ERAS)方案可以安全地改善预后。本研究旨在确定ERAS通路对接受结肠造口术或Malone手术的结直肠疾病患儿结局的影响。
    方法:单一机构,我们对2016~2020年接受结肠造口关闭或Malone手术的儿童进行了回顾性队列研究.测试了ERAS之前和ERAS队列之间的结果差异。进行了基于程序类型的子分析。
    结果:有96例患者包括:ERAS实施前22例,实施后74例。接受ERAS的患者口服摄入的平均时间(小时)较短,平均几天直到正常饮食,术后阿片类药物体积,和中位住院时间(p<0.05)。ERAS和ERAS前队列的并发症发生率无差异(12.2vs9.1%,p=0.99)。ERAS后进行结肠造口闭合的患者术后阿片类药物使用率较低,但在接受马龙治疗的患者中没有发现差异。
    结论:实施ERAS方案可缩短口服时间,正常饮食,在不增加并发症发生率的情况下减少阿片类药物的使用。基于过程类型看到的差异可以反映ERAS协议的效果是过程特定的。
    OBJECTIVE: Pediatric colorectal studies have shown enhanced recovery after surgery (ERAS) protocols can safely improve outcomes. This study sought to determine the impact of an ERAS pathway on the outcomes of children with colorectal conditions who underwent colostomy closure or Malone procedure.
    METHODS: A single-institution, retrospective cohort study of children who underwent colostomy closure or Malone procedure between 2016 and 2020 was performed. Differences in outcomes between pre-ERAS and ERAS cohorts were tested. A sub-analysis based on procedure type was performed.
    RESULTS: There were 96 patients included: 22 prior to ERAS implementation and 74 after. Patients who underwent ERAS had shorter mean time (hours) to oral intake, mean days until regular diet, post-operative opioid volume, and median length of stay (p < 0.05). There was no difference in complication rates in the ERAS and pre-ERAS cohort (12.2 vs 9.1%, p = 0.99). Patients who underwent colostomy closure after ERAS had lower post-operative opioid use, but no differences were seen in those who underwent Malone.
    CONCLUSIONS: Implementation of an ERAS protocol resulted in quicker time to oral intake, normal diet, and decreased opioid use without increasing complication rates. Differences seen based on procedure type may reflect that the effect of an ERAS protocol is procedure specific.
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  • 文章类型: Journal Article
    目标:由于COVID-19大流行,我们从人肠道管理计划(BMP)过渡到远程医疗BMP.远程医疗BMP包括视频和/或电话呼叫访问(远程)或单个初始亲自访问,然后是远程访问(混合)。我们假设患者/家庭对远程医疗BMP的满意度与现场BMP相当,并且在远程医疗BMP后,生活质量和功能结果会有所改善。
    方法:IRB批准后,我们获得了2020年5月-10月接受远程医疗BMP的患者的人口统计学和结局数据.结果包括父母/患者满意度调查,儿科生活质量量表(PedsQL),和父母/患者报告的结局指标(温哥华,贝勒,和克利夫兰得分)在基线,随访1和3个月。使用卡方或Wilcoxon-Mann-Whitney检验比较变量,并使用广义混合模型评估随访时与基线相比的结果评分。
    结果:67例患者纳入我们的分析,平均年龄为8.6岁(SD:3.9)。患者有以下诊断肛门直肠畸形(52.2%),先天性巨结肠病(20.9%),功能性便秘(19.4%),脊髓膜膨出(6.0%),脊髓损伤(1.5%)。48名患者(72%)接受了远程BMP,19名(28%)接受了混合BMP。62%的家长完成了满意度调查,所有问题的中位数为5分(非常满意)。超过75%的父母表示,他们更喜欢远程医疗计划而不是面对面计划。BMP后的贝勒和温哥华评分有显著改善(p<0.01),但PedsQL或Cleveland评分无差异(p>0.05)。BMP治疗后大便失禁有显著改善(p<0.01)。
    结论:远程医疗BMP可以替代传统的面对面计划。父母/患者满意度高,结果明显改善。需要进一步的研究来评估长期结果。
    方法:III.
    OBJECTIVE: Due to the COVID-19 pandemic, we transitioned from an in-person bowel management program (BMP) to a telemedicine BMP. The telemedicine BMP consisted of video and/or phone call visits (remote) or a single initial in-person visit followed by remote visits (hybrid). We hypothesized that patient/family satisfaction of a telemedicine BMP would be comparable to an in-person BMP and that there would be improvement in quality of life and functional outcomes after the telemedicine BMP.
    METHODS: After IRB approval, demographic and outcomes data were obtained for patients who underwent the telemedicine BMP from May-October 2020. Outcomes included a parent/patient satisfaction survey, Pediatric Quality of Life Inventory (PedsQL), and parent/patient-reported outcome measures (Vancouver, Baylor, and Cleveland scores) at baseline, 1 and 3 month follow-up. Variables were compared using Chi-square or Wilcoxon-Mann-Whitney tests and a generalized mixed model was used to evaluate outcomes scores at follow-up compared to baseline.
    RESULTS: Sixty-seven patients were included in our analysis with an average age of 8.6 years (SD: 3.9). Patients had the following diagnoses anorectal malformation (52.2%), Hirschsprung\'s disease (20.9%), functional constipation (19.4%), myelomeningocele (6.0%), and spinal injury (1.5%). Forty-eight patients (72%) underwent the remote BMP and 19 (28%) underwent the hybrid BMP. Sixty-two percent of parents completed the satisfaction survey, with a median score of 5 (very satisfied) for all questions. Over 75% of parents said they would prefer a telemedicine program over an in-person program. There was significant improvement in the Baylor and Vancouver scores after the BMP (p < 0.01), but no difference in the PedsQL or Cleveland scores (p > 0.05). There was a significant improvement in stool continence after the BMP (p < 0.01).
    CONCLUSIONS: A telemedicine BMP can be an acceptable alternative to a traditional in-person program. There was high parental/patient satisfaction and significant improvement in outcomes. Further research is needed to assess long-term outcomes.
    METHODS: III.
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  • 文章类型: Journal Article
    OBJECTIVE: In September 2020, the colorectal team of the International Center for Colorectal and Urogenital Care joined the spina bifida and spinal cord injury multidisciplinary clinic at Children\'s Hospital Colorado. Many important lessons were learned.
    METHODS: A retrospective review of patients seen in the spina bifida and spinal cord injury multidisciplinary clinic from September 2020 to May 2021 was conducted. Data collected included demographics, diagnosis, pre or post-natal repair for those with myelomeningocele, whether the patient was previously seen by the colorectal team, wheelchair usage, voluntary bowel control vs. fecal incontinence, urinary control vs. clean intermittent catheterization, characteristics of contrast enema, and our proposed intervention.
    RESULTS: Overall, 189 children were seen during the study period, ranging from 3 months to 20 years of age (average = 9.5 years). One hundred and two were males and 87 were females. Diagnosis included myelomeningocele (n = 153), spinal cord injury (n = 18), transverse myelitis (n = 7), sacral agenesis (n = 5), diastematomyelia (n = 2), spinal stenosis (n = 2), and tethered cord with lipoma (n = 2). Fifteen patients with myelomeningocele were repaired in-utero. One hundred and sixty patients were new to the colorectal team. Eighty-one patients were wheelchair users. One hundred and twenty-three patients suffered from fecal incontinence and needed enemas to be artificially clean for stool and thirty-eight patients had voluntary bowel movements and were clean with laxatives, suppository, or rectal stimulations. Twenty-eight patients were younger than three years of age and still in diapers. Despite a non-dilated colon on contrast enema, this population has a hypomotile colon. One hundred and twenty-eight patients required clean intermittent catheterization.
    CONCLUSIONS: Joining the spina bifida and spinal cord injury multidisciplinary clinic allowed us to better serve this population and gave us enormous satisfaction to contribute to improve the quality of life of the patients and their parents.
    METHODS: III.
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  • 文章类型: Journal Article
    OBJECTIVE: Pediatric colorectal conditions require complex medical care and can require lifelong support. Caregivers often seek medical information on the internet. The aim of this study was to characterize the use of three social media platforms for information sharing about pediatric colorectal conditions.
    METHODS: A systematic study of Instagram, Facebook, and Twitter was performed using standardized search terms. Accounts with activity within the last year were included. Quantitative data were collected. Accounts were qualitatively assessed and assigned a functional category. Group differences were tested via Kruskal-Wallis test and Fisher\'s exact tests for continuous and categorical variables, respectively.
    RESULTS: A total of 96 Instagram accounts, 57 Twitter accounts, 49 Facebook pages, and 45 Facebook groups were identified. Accounts originated from 24 countries and the greatest number of accounts was created in 2013. The most common source of information on Instagram was from personal accounts (74.0%), on Facebook was from support groups (45.7%), and on Twitter was from health care providers (35.1%), (p < 0.001). The most common functional categories on Instagram were personal story (69.8%), on Twitter were scientific information/medical research (57.9%), and on Facebook were supportive/story sharing (47.8%), (p < 0.001).
    CONCLUSIONS: Social media serves as a source for medical information and allows for supportive communities for pediatric colorectal patients and their families to exist.
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  • 文章类型: Journal Article
    A successful flush is the ability to flush through the appendicostomy or cecostomy channel, empty the flush through the colon, and achieve fecal cleanliness. We evaluated our experience with patients who were having flush difficulties based on a designed algorithm.
    Eight patients with flush difficulties were initially evaluated. Based on the need for additional surgery versus changes in bowel management therapy (BMT), we developed an algorithm to guide future management. The algorithm divided flush issues into before, during, and after flushing. Children aged <20 y who presented with flush issues from September 2018 to August 2019 were evaluated to determine our algorithm\'s efficacy. Specific outcomes analyzed included changes in BMT versus need for additional surgery.
    After algorithm creation, 29 patients were evaluated for flush issues. The median age was 8.4 y (interquartile range: 6, 14); 66% (n = 19) were men. Underlying diagnoses included anorectal malformations (n = 17), functional constipation (n = 7), Hirschsprung\'s disease (n = 2), spina bifida (n = 2), and prune belly (n = 1). A total of 35 flush issues/complaints were noted: 29% before the flush, 9% during the flush, and 63% after the flush. Eighty percent of issues before the flush required surgical intervention, wherease 92% of issues during or after the flush were managed with changes in BMT.
    Most flush issues respond to changes in BMT. This algorithm can help delineate which types of flush issues would benefit from surgical intervention and what problems might be present if patients are not responding to changes in their flush regimen.
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  • 文章类型: Journal Article
    There are no clear guidelines for the use of mechanical bowel preparation and postoperative antibiotics in children undergoing elective colorectal pull-through surgery. The objective of this study was to determine whether preoperative bowel preparation administration or duration of postoperative antibiotics impacted the rate of complications after elective pediatric pull-through surgery.
    Patients aged <18 y who underwent a pull-through procedure between 2011 and 2017 were retrospectively identified. Patient data included diagnosis, procedure, administration of mechanical bowel preparation, and duration of perioperative intravenous (IV) antibiotics. Outcomes of interest included surgical site infections and anastomotic complications.
    A total of 180 patients met inclusion criteria, of which 47.2% received mechanical bowel preparation. The combined rate of infectious and anastomotic complications was 12.2%. There was no significant difference in combined complication rate among those receiving bowel preparation compared with those who did not (14.1% versus 10.5%, P = 0.46). Administration of bowel preparation in the perineal anoplasty subgroup was associated with higher rates of wound infection (33.3% versus 3.3%, P = 0.05). One hundred five patients (58.3%) received perioperative IV antibiotics for ≤24 h. This group had similar rates of complications (13.3%) compared with those receiving IV antibiotics for longer than 24 h (11.6%, P = 0.74).
    Although mechanical bowel preparation did not affect the overall complication rate for pull-through procedures, it was associated with more wound infections in those undergoing perineal anoplasty. Duration of postoperative IV antibiotics was not significantly associated with the rate of wound and anastomotic complications.
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