patient empowerment

患者赋权
  • 文章类型: Journal Article
    背景:全球65岁及以上的老年人口正在增加,这意味着生活在长期健康状况和多发病率的人增加。实施新的数字健康技术可以增强患者的能力和责任感。以及对自身状况变化做出反应的能力,减少医疗保健专业人员的参与。需要解决重要的参数,才能使这种数字化授权取得成功,这些包括提高个人和组织的健康素养,建立患者和医疗保健专业人员之间的联合决策活动,以及针对个人管理其状况的能力的努力,其中包括提高技能的教育和提供自我监控技术。
    目标:确定数字医疗专业人员所需的能力,以便能够在24/7数字医疗服务中为患有慢性阻塞性肺疾病的用户提供所需的服务。
    方法:每周观察5名注册护士的工作,为期5个月。总共进行了13次参与性观察。通过归纳内容分析转录和分析来自观察的数据。
    结果:分析中确定了五个主要类别;1)任务,2)沟通,3)注册护士之间的关系,4)服务用户,5)技术。这些类别包含在数字化医疗保健系统中工作的注册护士所需的不同能力。
    结论:未来的数字医疗保健专业人员将需要多种能力,能够在超越传统医疗保健能力的数字健康社区中提供适当的护理,包括社会,技术,和沟通技巧。
    BACKGROUND: The global population of older aged 65 and over is increasing, which means an increase in people living with long-term health conditions and multimorbidity. Implementing new digital health technologies enables increased patient empowerment and responsibility, and the ability to respond to changes in their condition themselves, with less involvement of healthcare professionals. Important parameters need to be addressed for this digitally enabled empowerment to be successful, these include increased individual and organizational health literacy, the establishment of joint decision-making activities among patients and healthcare professionals, and efforts that target the individual\'s ability to manage their condition, which include education to increase skills and providing technology for self-monitoring.
    OBJECTIVE: To identify needed competencies of digital healthcare professionals to be able to provide the needed services to service users with chronic obstructive pulmonary disease in a 24/7 digital healthcare service.
    METHODS: Five registered nurses\' work was observed weekly for five months. In total 13 participatory observations were conducted. Data from the observations was transcribed and analysed through inductive content analysis.
    RESULTS: Five main categories were identified in the analysis; 1) tasks, 2) communication, 3) the relationships between the registered nurses, 4) service users, and 5) technology. These categories contain different competencies needed for registered nurses working in a digitalized healthcare system.
    CONCLUSIONS: Future digital healthcare professionals will require several competencies, to be able to deliver proper care in a digital health community that goes beyond traditional healthcare competencies, including social, technological, and communication skills.
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  • 文章类型: Journal Article
    本文探讨了心血管疾病(CVD)患者赋权的多方面概念,强调从以依从性为导向的模式向患者积极参与的转变。在认识到心血管疾病是一个至关重要的全球卫生挑战,这项研究阐明了赋予患者权力的迫切需要,强调他们作为医疗旅程积极参与者的角色。以5P为基础-医学原理-预测性,预防性,参与性,个性化,和精准医学-通过分析赋予CVD患者权力的重要性,预防,参与式决策,并强调个性化治疗。纳入患者赋权策略的全面概述,包括自我管理,健康素养,患者参与,和共同决策,这篇文章倡导与个人需求相一致的量身定制的方法,文化背景,和医疗保健系统。检查技术集成以增强患者参与度和个性化医疗体验。强调了以患者为中心的设计在整合数字工具用于CVD管理中的关键作用,确保成功采用并对医疗保健结果产生有意义的影响。结论提出了解决CVD患者赋权中的挑战和机遇的重要研究问题。这些问题强调了医学界研究的重要性,了解用户期望,评估现有技术,定义理想的授权场景,并进行文献综述,了解进展情况。本文为今后的研究奠定了基础,促进持续的以患者为中心的医疗保健发展,特别是在授权个人使用5P-医学方法来治疗心血管疾病。
    This article explores the multifaceted concept of cardiovascular disease (CVD) patients\' empowerment, emphasizing a shift from compliance-oriented models to active patient participation. In recognizing that cardiovascular disease is a paramount global health challenge, this study illuminates the pressing need for empowering patients, underscoring their role as active participants in their healthcare journey. Grounded in 5P-Medicine principles-Predictive, Preventive, Participatory, Personalized, and Precision Medicine-the importance of empowering CVD patients through analytics, prevention, participatory decision making, and personalized treatments is highlighted. Incorporating a comprehensive overview of patient empowerment strategies, including self-management, health literacy, patient involvement, and shared decision making, the article advocates for tailored approaches aligned with individual needs, cultural contexts, and healthcare systems. Technological integration is examined to enhance patient engagement and personalized healthcare experiences. The critical role of patient-centered design in integrating digital tools for CVD management is emphasized, ensuring successful adoption and meaningful impact on healthcare outcomes. The conclusion proposes vital research questions addressing challenges and opportunities in CVD patient empowerment. These questions stress the importance of medical community research, understanding user expectations, evaluating existing technologies, defining ideal empowerment scenarios, and conducting a literature review for informed advancements. This article lays the foundation for future research, contributing to ongoing patient-centered healthcare evolution, especially in empowering individuals with a 5P-Medicine approach to cardiovascular diseases.
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  • 文章类型: Journal Article
    心房颤动(AF)是西方世界最常见的心律紊乱。从2010年到2019年,全球房颤患病率从3350万上升到5900万,强调为患者制定公平治疗的重要性。这种疾病与心悸等症状有关,头晕,疲劳,呼吸急促,和认知功能障碍。此外,AF增加发生中风和心力衰竭的风险。尽管对可能导致房颤发展的风险因素有了新的见解,当前治疗的成功是次优的。许多风险因素,比如高血压,糖尿病,肥胖,与房颤的发展和进展有关。由于这些可能是与生活方式相关的风险因素,改变生活方式可能是减少AF相关症状和发作的解决方案。研究结果表明,某些饮食变化可以减少AF和许多AF的危险因素。人们越来越关注地中海和整个地中海,以植物为基础的饮食模式,强调吃谷物,豆类,蔬菜,水果,和坚果,同时不包括大多数或所有动物产品。因此,主要由未加工食品组成的地中海和植物性饮食的有益方面是什么?在当前的审查中,我们讨论了以饮食为基础的治疗的结果。此外,其他饮食相关治疗,由患者倡议提出,被突出显示。这些患者发起的研究包括L-谷氨酰胺和电解质作为治疗AF的选择。此外,我们强调了重视患者需求和以生活质量为中心的医学方法的重要性.正如最近的研究和患者经验所表明的那样,公民科学可以创造包容性的解决方案,导致患者赋权和房颤管理的整体方法。
    Atrial fibrillation (AF) is the most common heart rhythm disorder in the Western world. Between the years 2010 and 2019, the global prevalence of AF rose from 33.5 million to 59 million, highlighting the importance of developing equitable treatments for patients. The disease is associated with symptoms such as palpitations, dizziness, fatigue, shortness of breath, and cognitive dysfunction. In addition, AF increases the risk of developing a stroke and heart failure. Despite new insights into risk factors that can lead to the development of AF, the success of current treatments is suboptimal. Numerous risk factors, such as hypertension, diabetes, and obesity, have been associated with the development and progression of AF. As these can be lifestyle-related risk factors, lifestyle modification may be a solution to reduce AF-related symptoms as well as episodes. Research results show that certain dietary changes can reduce AF and numerous risk factors for AF. Increasing attention is being given to Mediterranean and whole, plant-based eating patterns, which emphasize eating grains, legumes, vegetables, fruits, and nuts, while excluding most-or all-animal products. Hence, what are the beneficial aspects of a Mediterranean and plant-based diet which consists mainly of unprocessed foods? In the current review, we discuss the outcomes of diet-based treatments. Moreover, other diet-related treatments, brought up by patient initiatives, are highlighted. These patient-initiated studies include L-glutamine and electrolytes as options to manage AF. Also, we highlight the emerging importance of valuing patient needs and a quality-of-life-centered approach to medicine. As indicated by recent studies and patient experiences, citizen science can create inclusive solutions that lead to patient empowerment and a holistic approach for AF management.
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  • 文章类型: Journal Article
    纤维肌痛是一种慢性疾病,影响全球相当一部分人口,主要是女性。通常建议将身体活动作为管理症状的工具。在这项研究中,我们试图通过体育锻炼来复制减轻疼痛的积极结果。在收集了7名纤维肌痛女性的疼痛和体力活动数据后,一名患者的疼痛强度大大降低。根据病人的说法,改善与身体活动有关。我们的研究是通过个性化活动推荐来调查该结果的可复制性。在其他六个病人中,三个人的疼痛减轻了。其余三名患者没有任何疼痛缓解。我们的结果表明,其中两个未能遵循活动建议。这些结果表明,身体活动可能对慢性疼痛患者产生积极影响。为了估计身体活动对这个患者群体有多有效,未来需要进行更长时间随访和更大样本量的干预.
    Fibromyalgia is a chronic disease that affects a considerable fraction of the global population, primarily women. Physical activity is often recommended as a tool to manage the symptoms. In this study, we tried to replicate a positive result of pain reduction through physical activity. After collecting pain and physical activity data from seven women with fibromyalgia, one patient experienced a considerable reduction in pain intensity. According to the patient, the improvement was related to physical activity. Our study was conducted to investigate the replicability of this result through personalized activity recommendations. Out of the other six patients, three experienced a reduction in pain. The remaining three patients did not experience any pain relief. Our results show that two of these were not able to follow the activity recommendations. These results indicate that physical activity may have a positive effect on chronic pain patients. To estimate how effective physical activity can be for this patient group, an intervention with longer follow-ups and larger sample sizes needs to be performed in the future.
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  • 文章类型: Journal Article
    目的:研究根据计划行为理论为2型糖尿病患者提供的培训对自我效能和患者授权的影响。
    方法:本研究,前测-后测主动对照组单盲实验设计,于2023年4月至10月在一家州立医院的内科门诊进行。参与者被随机分为干预组(IG;n=45)和对照组(CG;n=47)。干预组接受了基于理论的培训计划,包括5个疗程,持续约40分钟。each.糖尿病管理自我效能量表,患者授权量表和患者的实验室结果用于数据收集。
    结果:在研究中,而干预组的测后自我效能感和患者赋权得分比预测试增加,HbA1C水平下降。在组间的测试后测量中,干预组的自我效能和患者授权得分较高,效应大小较高,而HbA1C值无差异。
    结论:根据糖尿病患者计划行为理论提供的培训计划为疾病管理提供了积极的贡献。
    OBJECTIVE: To examine the effect of training provided to type 2 diabetes patients according to the theory of planned behavior on self-efficacy and patient empowerment.
    METHODS: This study, pre-test-post-test active control group single-blind experimental design, was conducted in the internal medicine outpatient clinic of a state hospital between April and October 2023. Participants were randomly assigned to the intervention group (IG; n = 45) and control group (CG; n = 47). The intervention group received a theory-based training program consisting of 5 sessions lasting approximately 40 min. each. Diabetes Management Self-Efficacy Scale, Patient Empowerment Scale and the patient\'s laboratory results were used for data collection.
    RESULTS: In the study, while the posttest self-efficacy and patient empowerment scores of the intervention group increased compared to the pretest, there was an decrease in HbA1C level. On the post-test measurements between groups, self-efficacy and patient empowerment scores were higher and effect sizes were higher in the intervention group, while no difference was found in HbA1C values.
    CONCLUSIONS: The training program provided according to the theory of planned behavior in diabetes patients provides positive contributions to disease management.
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  • 文章类型: Journal Article
    健康素养使人们能够获得,了解和应用健康信息,以有效地管理自己的健康,并成为医疗保健决策的积极参与者。在本文中,我们提出了影响健康素养和相关社会经济方面的认知因素的概念模型。然后我们开发HEALIE知识图来表示模型,从各种医学本体论中汲取,资源,和领域专家的见解。最后,我们将知识图谱与大型语言模型相结合,以生成个性化的医疗内容,并通过示例展示结果。
    Health literacy empowers people to access, understand and apply health information to effectively manage their own health and to be an active participant in healthcare decisions. In this paper we propose a conceptual model for cognitive factors affecting health literacy and related socioeconomic aspects. Then we develop the HEALIE Knowledge Graph to represent the model, drawing from various medical ontologies, resources, and insights from domain experts. Finally, we combine the Knowledge Graph with a Large Language Model to generate personalised medical content and showcase the results through an example.
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  • 文章类型: Journal Article
    患者生成的健康数据(PGHD)是在临床环境之外收集的患者的健康相关数据。将这些数据集成到电子健康记录(EHR)中,支持更好的患者-提供者沟通和共享决策。使患者能够积极管理自己的健康状况。在这项研究中,我们调查了患者和医疗保健提供者将PGHD功能有效集成到EHR系统中所需的必要功能.通过我们涉及医疗保健专业人员(HCP)和患者的协作设计方法,我们开发了一个原型和建议,以爱沙尼亚为榜样,这是收集PGHD并将其集成到EHR中的理想方法。
    Patient-generated health data (PGHD) is the person\'s health-related data collected outside the clinical environment. Integrating this data into the electronic health record (EHR) supports better patient-provider communication and shared decision-making, empowering patients to actively manage their health conditions. In this study, we investigated the essential features needed for patients and healthcare providers to effectively integrate PGHD functionality into the EHR system. Through our collaborative design approach involving healthcare professionals (HCPs) and patients, we developed a prototype and suggestion, using Estonia as a model, which is the ideal approach for collecting and integrating PGHD into the EHR.
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  • 文章类型: Journal Article
    近年来,快速变化的疾病模式,医疗保健专业人员的短缺和不均衡利用给印度医疗保健系统造成了巨大的负担,这导致了不同的,支离破碎,向患者提供不一致的医疗保健服务和不良的患者管理。患者经常面临和经历许多挑战,例如缺乏可访问性,不良的患者-医疗保健提供者关系,护理质量不足,在管理他们的健康状况时造成不必要的经济负担。因此,印度的医疗改革对于提高其满足患者健康需求的能力至关重要,可以通过关注旨在加强护理协调的关键可持续战略和举措来解决这些需求。扩大服务可访问性,重建医疗基础设施,实施劳动力创新和强有力的治理,并纳入以患者为中心的核心原则,综合护理和协作护理方法。临床和门诊药房实践是医疗保健交付的一部分,可提供药学服务并满足患者在医疗保健环境中的需求。本文重点介绍了印度门诊药房实践的当前和未来观点,以及在患者护理中实施该实践应考虑的因素。
    In recent years, rapidly changing disease profile patterns, shortage & uneven utilization of healthcare professionals contributed massive burden on the Indian healthcare system, which resulted in varying, fragmented, inconsistent healthcare delivery to the patients and poor patient management. Patients often face and experience many challenges like lack of accessibility, poor patient-healthcare provider relationships, and inadequate quality of care, resulting in unnecessary economic burden in managing their health conditions. Thus Indian healthcare reform is essential in enhancing its capacity to fulfill patients\' health needs that can be addressed by focusing on key sustainable strategies and initiatives meant for enhancing coordination of care, expanding services accessibility, redeveloping healthcare infrastructure, implementing workforce innovation and strong governance with the incorporation of core principles such as patient-centeredness, integrated care and collaborative care approaches. The clinical and ambulatory pharmacy practice are fragment of the healthcare delivery which delivers pharmaceutical care and fulfils the needs of patients across healthcare settings. This paper focuses on the present & future perspectives of ambulatory pharmacy practice in India and the factors to be considered for implementing it in patient care.
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  • 文章类型: Journal Article
    非洲传染病发病率上升和非传染性疾病发病率上升的双重负担,比如心血管疾病和糖尿病,需要创新的疾病监测方法,回应,和跨境卫生管理,以应对日益增长的经济一体化和全球连通性。在这种情况下,我们提出了在非洲开发和实施多疾病数字健康护照(MDDHP)的话语框架。MDDHP将作为存储和共享个人健康数据的安全平台。提供全面的解决方案来跟踪和应对传染病,促进非传染性疾病的管理,并改善跨境医疗服务。使个人能够主动管理自己的健康并改善整体结果是MDDHP的一个关键方面。在论文中,我们研究了有效实施MDDHP所需的关键要素,专注于最小化风险,保持疗效,并推动其采用,同时也考虑到非洲大陆的独特环境。该文件旨在了解所涉及的关键原则,并有助于讨论在非洲发展和成功实施MDDHP。
    Africa\'s dual burden of rising incidence of infectious diseases and increasing prevalence of non-communicable diseases (NCDs), such as cardiovascular diseases and diabetes, demands innovative approaches to disease surveillance, response, and cross-border health management in response to growing economic integration and global connectivity. In this context, we propose a discursive framework for the development and implementation of a multi-disease digital health passport (MDDHP) in Africa. The MDDHP would serve as a secure platform for storing and sharing individual health data, offering a comprehensive solution to track and respond to infectious diseases, facilitate the management of NCDs, and improve healthcare access across borders. Empowering individuals to proactively manage their health and improve overall outcomes is a key aspect of the MDDHP. In the paper, we examine the key elements necessary to effectively implement MDDHP, focusing on minimizing risks, maintaining efficacy, and driving its adoption while also taking into consideration the unique contexts of the continent. The paper is intended to provide an understanding of the key principles involved and contribute to the discussion on the development and successful implementation of MDDHP in Africa.
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  • 文章类型: Journal Article
    帕金森病(PD)给个体带来了许多挑战,影响他们的身体,精神上,情感上,和社会。PD的复杂性需要授权患者解决他们独特的需求和挑战,促进改善的健康结果和更好的生活质量。患者赋权是一个多方面的概念,对增强医疗保健成果至关重要,特别是在慢性疾病,如PD。然而,定义患者赋权面临挑战,由于其跨学科和个人的不同解释。基本要素包括获取信息,自我护理技能的发展,营造有利的环境。赋予患者权力的策略包括健康素养,教育,并在值得信赖的医疗保健提供者-患者关系中共享决策。在警察局,由于疾病的表型变异性和对生活质量的主观影响,患者赋权至关重要。患者必须浏览个性化的治疗计划,并倡导他们的需求,鉴于缺乏疾病进展的客观标志物。授权促进了共同决策,并使患者能够有效地传达他们独特的经验和管理目标。本文全面概述了与患者赋权相关的维度和策略,它的定义和必要的促进者,强调其在帕金森管理中的关键重要性和相关性。在这篇评论的最后是个人观点,因为其中一位作者是一个有生活经验的人。
    Parkinson\'s disease (PD) poses a number of challenges for individuals, affecting them physically, mentally, emotionally, and socially. The complex nature of PD necessitates empowering patients to address their unique needs and challenges, fostering improved health outcomes and a better quality of life. Patient empowerment is a multifaceted concept crucial to enhancing healthcare outcomes, particularly in chronic conditions such as PD. However, defining patient empowerment presents challenges due to its varied interpretations across disciplines and individuals. Essential components include access to information, development of self-care skills, and fostering a supportive environment. Strategies for patient empowerment encompass health literacy, education, and shared decision-making within a trusted healthcare provider-patient relationship. In PD, patient empowerment is crucial due to the disease\'s phenotypic variability and subjective impact on quality of life. Patients must navigate individualized treatment plans and advocate for their needs, given the absence of objective markers of disease progression. Empowerment facilitates shared decision-making and enables patients to communicate their unique experiences and management goals effectively. This paper provides a comprehensive overview of the dimensions and strategies associated with patient empowerment, its definition and the facilitators that are necessary, emphasizing its critical importance and relevance in Parkinson\'s management. At the end of this review is a personal perspective as one of the authors is a person with lived experience.
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