背景:建立通用的实用术语代表了在医疗机构中构建患者参与计划的第一步。然而,目前没有法语版本。作为在法国大学医院中心部署患者参与的一部分,我们提出了患者参与的术语。
方法:我们对国际文献进行了范围审查,旨在确定患者参与的主要概念和术语框架,在PubMed和Cairn中,医疗保健系统中的用户和公民直到2019年。英语和法语文章的信息数据库。此外,我们确定了实施这种方法的国家的主要组织的概念和做法(美国,加拿大,尤其是魁北克省,联合王国),并通过与开发蒙特利尔模型的团队的密切交流和反思来完成这一方法。
结果:总计,查阅了75份参考资料和互联网资源。病人,互动,患者体验,经验知识,患者参与,患者伴侣及其作为资源患者的变化,同行支持者,培训师,研究者和教练已经定义。
结论:患者参与这一术语提出了词汇的初始稳定,使用务实的方法。这一贡献是第一步,旨在促进新的护理模式和更广泛的医疗保健系统管理的发展,涉及科学和经验知识。
BACKGROUND: The establishment of a common pragmatic terminology represents the first step in structuring patient engagement initiatives in healthcare facilities. However, none is currently available in French. As part of the deployment of patient engagement within a French University Hospital Center, we propose a terminology of patient engagement.
METHODS: We conducted a scoping review of the international literature that aimed at identifying the main conceptual and terminological frameworks for the engagement of patients, users and citizens in the healthcare system until 2019 in the PubMed and Cairn.info databases for English and French language articles. Additionally, we identified concepts and practices in the leading organizations of countries where this approach was implemented (United States, Canada and especially the province of Quebec, United Kingdom) and completed this approach by close exchanges and reflections with the team that developed the Montreal model.
RESULTS: In total, 75 references and Internet resources were consulted. Patient, interaction, patient experience, experiential knowledge, patient engagement, patient partner and its variations as a resource patient, peer-supporter, trainer, researcher and coach have been defined.
CONCLUSIONS: This terminology of patient engagement proposes an initial stabilization of the vocabulary, using a pragmatic approach. This contribution is a first step aiming at promoting the development of a new model of care and more broadly of healthcare system management, involving scientific and experiential knowledge.