partenariat patient

Partenariat 患者
  • 文章类型: English Abstract
    Impact计划旨在构建高级执业护士(APN)为慢性病患者提供的护理,基于人文健康伙伴关系模式。这个模型,基于患者伙伴关系,考虑到适应慢性病的四个决定因素的测量工具丰富了。影响旨在改善患者伙伴关系,个性化护理,并将投资促进机构整合到研究动态中。
    The Impact program aims to structure the care provided by advanced practice nurses (APNs) for people with chronic illnesses, based on the humanistic health partnership model. This model, based on patient partnership, is enriched by measurement tools that take into account four determinants of adaptation to chronic illness. Impact aims to improve patient partnership, individualize care and integrate IPAs into a research dynamic.
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  • 文章类型: Journal Article
    将心理健康和精神病学的患者伙伴关系引入初始培训是促进康复的创新方式,同时强调了医疗团队中同伴支持的不可否认的贡献,为了陪伴有关的人。这就是为什么Croix-RougeCompetenceAuvergne-Rone-Alpes正在为受训人员制定特定培训计划的原因。
    Introducing patient partnership in mental health and psychiatry to initial training is an innovative way of promoting recovery, while at the same time highlighting the undeniable contribution of peer support within healthcare teams, in order to accompany the people concerned. This is why Croix-Rouge Compétence Auvergne-Rhône-Alpes is developing a specific training program for trainees.
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  • 文章类型: English Abstract
    在肿瘤学中,患者的位置具有天然和强烈的合法性。癌症是一种常见病,有许多奇点,但病理之间也有共同的特征,从预防到可能的姑息期或癌症后,有利于个人和集体决策过程。现在,患者参与在医疗保健系统的各个层面都至关重要,从简单的信息到真正的参与(共建)。20年来,Gustave-Roussy,维勒朱夫的综合癌症中心,实施了具体的反思和行动,体现为建立患者和护理人员委员会,并辅之以一个机构指导机构,该机构说明了“为工作”向“与工作”的转变。在直接护理层面,主要工作促进了患者与专业和陪同患者之间的共同决策。在机构层面,我们发现医院项目或服务的专业知识,机构文件的发展(信息和预先指令表格,等。),和内部评估(审计)。在政治层面,参与Unicancer的患者体验工作组可以与其他中心更好地协调部署。Unicancer开发了一个定义患者资源的词汇指南,同伴助手,培训师,评估人员和协调员。这种合作方式对患者有利,他们所爱的人,看护者,必须加以放大,并引起新的研究工作。
    In oncology, the place of patients has a natural and strong legitimacy. Cancer is a common disease, with many singularities but also common features between pathologies, with issues ranging from prevention to possible palliative phases or post-cancer, and conducive to both individual and collective decision-making processes. Patient engagement is now essential at all levels of the healthcare system, from simple information to real involvement (co-construction). For 20 years, Gustave-Roussy, a comprehensive cancer centre in Villejuif, has implemented specific reflection and actions, embodied by the creation of a patients and caregivers committee and complemented by an institutional steering body that illustrates the transformation of \"working for\" into \"working with\". At the level of direct care, the main works promoted concern shared-decision-making between patient and professional and accompanying patients. At the institutional level, we find the expertise of hospital projects or services, the development of institutional documents (information and advance directives form, etc.), and internal evaluation (audit). At the political level, participation in Unicancer\'s patient-experience working group has allowed for a better coordinated deployment with other centers. Unicancer has developed a lexical guide defining patient resources, peer helpers, trainers, evaluators and coordinators. This partnership approach is beneficial for patients, their loved ones, caregivers, and must be amplified and give rise to new research work.
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  • 文章类型: English Abstract
    自闭症谱系障碍患者的临床特征可能使他们难以获得治疗,包括治疗和医学影像学检查。基于模拟的学习可以促进CT扫描的性能,就像Irène一样,由于这种干预,谁能够采取预期的身体姿势。
    The clinical characteristics of people with autism spectrum disorders can make it difficult for them to access care, including treatment and medical imaging examinations. Simulation-based learning can facilitate the performance of a CT scan, as in the case of Irène, who was able to adopt the expected body positions thanks to this intervention.
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  • 文章类型: English Abstract
    患者伙伴关系是一种新的方法,通过他从疾病经历中获得的知识,是医疗决策的利益相关者,卫生系统的组织和卫生政策方面的选择。来自Blois医院的一个团队(41)在分析复杂的医疗情况时,与一名患有镰状细胞疾病的年轻人在血管闭塞危机中分享了患者伙伴关系的经验。她在这里报告这种新的和丰富的经验。
    The patient partnership is a new approach in which the patient, through his knowledge acquired from his experience with the disease, is a stakeholder in decisions about care, the organization of the health system and choices in terms of health policy. A team from the Blois hospital (41) was able to share the experience of a patient partnership during the analysis of a complex medical situation with a young man with sickle cell disease in a vaso-occlusive crisis. She reports here this new and enriching experience.
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  • 文章类型: English Abstract
    背景:在过去的40年里,法国卫生系统已经向患者开放。社会已经认识到患者作为其自身健康的决策者和作为其疾病专家的合法性。在医患关系的背景下,在个人层面上是如此,在机构内部的组织层面,在决策或学术团体中。这项研究的目的是提出病人伙伴关系的概念,患者教育,并说明患者合作伙伴在组织患者教育计划中可以发挥的不同功能,在肿瘤学领域。
    方法:对文献进行了叙述性回顾,以提取相关和最新的开创性文章来解决这些问题。
    结果:蒙特利尔模型将患者伴侣确立为全面护理参与者。因此,他可以在许多应用领域贡献自己的专业知识:护理,研究或教学。患者教育的目的是使患者能够管理自己的疾病,治疗以及这些对日常生活的影响。患者伴侣在这个系统中有一个完整的位置,他可以陪伴同龄人,还与教育团队合作开发新项目,评估它们,甚至进行研究。这些系统的实施包括让具有不同文化和操作方法的个人一起工作。这是一个需要时间的过程,努力和关注对方。
    BACKGROUND: Over the last 40years, the French health system has opened up to patient engagement. Society has recognised the legitimacy of the patient as a decision-maker in his or her own health and as an expert in his or her illness. This is true at the individual level in the context of doctor-patient relationship, and at the organisational level within institutions, in decision-making or academic groups. The aim of this study is to present the concepts of patient-partnership, patient education and to illustrate the different functions that patient-partners can take within the organisation of patient education programmes, and in the field of oncology.
    METHODS: A narrative review of the literature was carried out to extract relevant and recent seminal articles to address these points.
    RESULTS: The Montreal model establishes the patient partner as a full care actor. He can thus contribute his expertise in many fields of application: care, research or teaching. The aim of patient education is to empower the patient in the management of his or her disease, treatment and the consequences of these on daily life. The patient partner has a full place in this system where he can accompany his peers, but also collaborate with the educational team to develop new programmes, evaluate them and even conduct research. The implementation of these systems consists of getting individuals with different cultures and operating methods to work together. It is a process that requires time, effort and attention to each other.
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  • 文章类型: Journal Article
    背景:建立通用的实用术语代表了在医疗机构中构建患者参与计划的第一步。然而,目前没有法语版本。作为在法国大学医院中心部署患者参与的一部分,我们提出了患者参与的术语。
    方法:我们对国际文献进行了范围审查,旨在确定患者参与的主要概念和术语框架,在PubMed和Cairn中,医疗保健系统中的用户和公民直到2019年。英语和法语文章的信息数据库。此外,我们确定了实施这种方法的国家的主要组织的概念和做法(美国,加拿大,尤其是魁北克省,联合王国),并通过与开发蒙特利尔模型的团队的密切交流和反思来完成这一方法。
    结果:总计,查阅了75份参考资料和互联网资源。病人,互动,患者体验,经验知识,患者参与,患者伴侣及其作为资源患者的变化,同行支持者,培训师,研究者和教练已经定义。
    结论:患者参与这一术语提出了词汇的初始稳定,使用务实的方法。这一贡献是第一步,旨在促进新的护理模式和更广泛的医疗保健系统管理的发展,涉及科学和经验知识。
    BACKGROUND: The establishment of a common pragmatic terminology represents the first step in structuring patient engagement initiatives in healthcare facilities. However, none is currently available in French. As part of the deployment of patient engagement within a French University Hospital Center, we propose a terminology of patient engagement.
    METHODS: We conducted a scoping review of the international literature that aimed at identifying the main conceptual and terminological frameworks for the engagement of patients, users and citizens in the healthcare system until 2019 in the PubMed and Cairn.info databases for English and French language articles. Additionally, we identified concepts and practices in the leading organizations of countries where this approach was implemented (United States, Canada and especially the province of Quebec, United Kingdom) and completed this approach by close exchanges and reflections with the team that developed the Montreal model.
    RESULTS: In total, 75 references and Internet resources were consulted. Patient, interaction, patient experience, experiential knowledge, patient engagement, patient partner and its variations as a resource patient, peer-supporter, trainer, researcher and coach have been defined.
    CONCLUSIONS: This terminology of patient engagement proposes an initial stabilization of the vocabulary, using a pragmatic approach. This contribution is a first step aiming at promoting the development of a new model of care and more broadly of healthcare system management, involving scientific and experiential knowledge.
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