目的:儿童癌症幸存者在过渡和长期随访(LTFU)期间可能会遇到复杂的健康问题;因此,高质量的医疗保健是必要的。护理协调是高级医疗保健的基本概念之一。护理协调模型在转型中的儿童癌症幸存者和LTFU中有所不同。这项研究旨在确定过渡和LTFU中儿童癌症幸存者的护理协调模型,并合成模型的基本组成部分。
方法:本范围审查以Arksey和O'Malley的方法学框架为指导,并与系统审查和Meta分析扩展的首选报告项目一起报告。使用与儿童癌症幸存者相关的术语的可能组合,对六个数据库进行了系统的文献检索。过渡/LTFU和护理协调模型。通过描述性和内容分析对数据进行分析。
方法:文献检索首次于2023年5月进行,并于2024年5月进行了更新。包括Medline在内的六个数据库,PubMed,Embase,WebofScience,搜索了CINAHL和Cochrane图书馆;同时,还进行了手工搜查。
方法:与描述任何模型相关的研究,纳入了有关儿童癌症幸存者过渡或LTFU医疗保健服务的护理协调的干预措施或策略.
方法:两名评审员独立筛选并纳入研究。提取纳入研究的基本信息以及护理协调模型相关数据。描述性摘要和内容分析用于数据分析。
结果:在搜索策略产生的20545个引文中,确定了七项研究。纳入研究的模型的关键决定因素是多学科团队的合作,整合导航员的角色和提供以患者为中心的服务,涉及家庭,以需求为导向的临床服务。这些模型的主要功能包括风险筛选和管理,初级保健服务,社会心理支持,健康教育和咨询,和财政援助。在患者和临床层面评估护理协调模式。基于这篇综述,为过渡或LTFU中的儿童癌症幸存者提供成功的护理协调模型的核心概念被合成并作为“3I”框架提出:个性化,互动和整合。
结论:本范围综述总结了儿童癌症幸存者过渡和LTFU护理协调模型的核心要素。开发了一个拟议的概念框架,以支持和指导儿童癌症幸存者过渡和LTFU护理的护理协调策略的开发。未来的研究需要测试提出的模型,并制定适当的护理协调策略,为儿童癌症幸存者过渡和LTFU提供高质量的医疗保健。
OBJECTIVE: Childhood cancer survivors may experience complex health issues during transition and long-term follow-up (LTFU); therefore, high-quality healthcare is warranted. Care coordination is one of the essential concepts in advanced healthcare. Care coordination models vary among childhood cancer survivors in transition and LTFU. This study aimed to identify care coordination models for childhood cancer survivors in transition and LTFU and synthesise essential components of the models.
METHODS: This scoping review was guided by the methodological framework from Arksey and O\'Malley and was reported with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews. A systematic literature search was conducted on six databases using possible combinations of terms relevant to childhood cancer survivors, transition/LTFU and care coordination model. Data were analysed by descriptive and content analysis.
METHODS: The literature search was first conducted in May 2023 and updated in May 2024. Six databases including Medline, PubMed, Embase, Web of Science, CINAHL and Cochrane Library were searched; meanwhile, a hand search was also conducted.
METHODS: Studies relevant to describing any models, interventions or strategies about care coordination of transition or LTFU healthcare services among childhood cancer survivors were included.
METHODS: Two reviewers independently screened and included studies. Basic information as well as care coordination model-related data in the included studies were extracted. Descriptive summary and content analysis were used for data analysis.
RESULTS: In the 20 545 citations generated by the search strategy, seven studies were identified. The critical determinants of the models in the included studies were the collaboration of the multidisciplinary team, integration of the navigator role and the provision of patient-centred, family-involved, needs-oriented clinical services. The main functions of the models included risk screening and management, primary care-based services, psychosocial support, health education and counselling, and financial assistance. Models of care coordination were evaluated at patient and clinical levels. Based on this review, core concepts of successful care coordination models for childhood cancer survivors in transition or LTFU were synthesised and proposed as the \'3 I\' framework: individualisation, interaction and integration.
CONCLUSIONS: This scoping review summarised core elements of care coordination models for childhood cancer survivors\' transition and LTFU. A proposed conceptual framework to support and guide the development of care coordination strategies for childhood cancer survivors\' transition and LTFU care was developed. Future research is needed to test the proposed model and develop appropriate care coordination strategies for providing high-quality healthcare for childhood cancer survivors\' transition and LTFU.