背景:妊娠期糖尿病(GDM)的患病率近年来急剧上升。对一些人来说,自我管理包括在Facebook上使用GDM在线社区。这些社区可以填补参与者无法在其他地方获得的信息和支持方面的空白,以解决未满足的需求。鉴于在Facebook上分享怀孕信息的普及以及糖尿病在线社区的成文益处,GDM在线社区可能也是如此。
目的:本研究旨在对GDMFacebook群组中正在讨论的内容进行分类和量化,包括信息和情感上的求助行为,以及同行如何通过评论和反应来证明这种支持和参与。
方法:我们从澳大利亚两个最大的专注于GDM的Facebook团体中获取了数据。对两组的原始帖子进行了总结性内容分析,并针对主题和寻求帮助类型进行了编码。该编码方案基于Liang和Scammon的先前工作。可见的参与度指标,包括评论和“反应”的数量,“已提交表格并手动评估。
结果:有388个原始帖子,分析产生了6个主题:GDM自我管理(199/388,51.3%),GDM临床管理(120/388,30.9%),准备分娩(40/388,10.3%),精神困扰(35/388,9%),出生公告(29/388,7.5%),和GDM旅程反射(21/388,5.4%)。求助类型的二级编码显示,超过一半的帖子是信息求助(224/388,57.7%),虽然一小部分是信息和情感求助(44/388,11.3%),有些人(12/388,3.1%)只寻求情感帮助。自我披露被确定为第四类,占所有职位的近四分之一(90/388,23.2%)。针对原始帖子共发布了6022条评论,所有帖子都有4452个反应。情感求助吸引了最多的评论每个线程(平均21.5,标准差19.8),其次是信息和情感求助(平均值20.2,标准差14.7),信息求助(平均值15.6,标准差14.6),和自我披露(平均值14.3,标准差21.8)。在所有寻求帮助的类别中,与评论相比,反应很少;相比之下,自我披露吸引了大量的反应(平均9.4,SD45.3)。
结论:这是第一批在Facebook上的GDM在线社区中检查同伴支持的研究之一。我们的研究结果表明,活跃的参与者对GDM相关信息和支持的需求在一定程度上得到了同行主导的在线社区的满足。鉴于正规医疗保健的实际局限性,包括提供持续的社会支持,重要的是要认识到GDM在线社区如何补充正规医疗保健并帮助解决未满足的需求。
BACKGROUND: The prevalence of gestational diabetes mellitus (GDM) has drastically risen in recent years. For some, self-management includes the use of GDM online communities on Facebook. Such communities can fill gaps in information and support that participants are not able to access elsewhere to address unmet needs. Given the popularity of sharing information about pregnancy on Facebook and the documented benefits of diabetes online communities, the same may be true of GDM online communities.
OBJECTIVE: This study aimed to categorize and quantify what is being discussed in GDM Facebook groups, including informational and emotional help-seeking behavior, and how this support and engagement may be demonstrated by peers through comments and reactions.
METHODS: We sourced the data from the 2 largest Facebook groups focused on GDM in Australia. A summative content analysis was conducted on original posts across the 2 groups and coded for topics as well as help-seeking types. The coding scheme was based on the previous work of Liang and Scammon. Visible indicators of engagement, including the number of comments and \"reactions,\" were tabled and manually evaluated.
RESULTS: There were 388 original posts, and the analysis produced 6 topics: GDM self-management (199/388, 51.3%), GDM clinical management (120/388, 30.9%), preparing for birth (40/388, 10.3%), mental distress (35/388, 9%), birth announcement (29/388, 7.5%), and GDM journey reflections (21/388, 5.4%). Secondary coding of help-seeking type revealed more than half of the posts were informational help-seeking (224/388, 57.7%), while a small proportion were both informational and emotional help-seeking (44/388, 11.3%), and some (12/388, 3.1%) were emotional help-seeking only. Self-disclosure was identified as a fourth category, comprising almost a quarter of all posts (90/388, 23.2%). A total of 6022 comments were posted in response to the original posts, and there were 4452 reactions across all posts. Emotional help-seeking attracted the most comments per thread (mean 21.5, SD 19.8), followed by informational and emotional help-seeking (mean 20.2, SD 14.7), informational help-seeking (mean 15.6, SD 14.6), and self-disclosure (mean 14.3, SD 21.8). Across all help-seeking categories, few reactions occurred compared to comments; in contrast, self-disclosure attracted a large number of reactions (mean 9.4, SD 45.3).
CONCLUSIONS: This is one of the first studies to examine peer support in a GDM online community on Facebook. Our findings suggest that active participants\' needs around information and support in relation to GDM are being somewhat met by peer-led online communities. Given the practical limitations of formal health care, including the provision of ongoing social support, it is important to recognize how GDM online communities can complement formal health care and help address unmet needs.