背景:眼痛具有影响日常生活活动的多因素病因,心理健康,和健康相关的生活质量(QoL)。慢性眼表疼痛(COSP)是一种持续超过3个月的持续眼痛症状。
目的:这项社交媒体听力研究的目的是更好地了解COSP和相关症状,并确定其感知原因,合并症,以及社交媒体帖子对QoL的影响。
方法:2020年2月至2021年2月在社交媒体平台上进行了搜索(Twitter,Facebook,博客,和论坛)用于在网络上发布的英语内容。不提供公众获取信息或帖子的社交媒体平台被排除在外。来自澳大利亚的社交媒体帖子,加拿大,联合王国,和美国是使用SocialStudio平台检索的,这是一种基于网络的聚合工具。
结果:在最初确定的25,590个帖子中,464个关于COSP的帖子被认为是相关的;大多数对话(98.3%,n=456)由成年人(年龄>18岁)发布。在52次谈话中提到了工作状态。患者或护理人员在社交媒体平台上的讨论集中在症状上(61.9%,n=287)和原因(58%,n=269)的眼痛。提到有与COSP相关症状的患者,包括头痛或头压,干燥或砂砾的眼睛,光敏感度,等。患者发帖称,他们的COSP会影响日常活动,如阅读,驾驶,睡觉,和他们的社会,心理,和功能幸福。
结论:这项研究的见解报告了患者的经历,关注,以及对整体生活质量的不利影响。COSP给患者带来了巨大的负担,跨越日常生活的多个方面。
BACKGROUND: Ocular pain has multifactorial etiologies that affect activities of daily life, psychological well-being, and health-related quality of life (QoL). Chronic ocular surface pain (COSP) is a persistent eye pain symptom lasting for a period longer than 3 months.
OBJECTIVE: The objective of this social media
listening study was to better understand COSP and related symptoms and identify its perceived causes, comorbidities, and impact on QoL from social media posts.
METHODS: A search from February 2020 to February 2021 was performed on social media platforms (Twitter, Facebook, blogs, and forums) for English-language content posted on the web. Social media platforms that did not provide public access to information or posts were excluded. Social media posts from Australia, Canada, the United Kingdom, and the United States were retrieved using the Social Studio platform-a web-based aggregator tool.
RESULTS: Of the 25,590 posts identified initially, 464 posts about COSP were considered relevant; the majority of conversations (98.3%, n=456) were posted by adults (aged >18 years). Work status was mentioned in 52 conversations. Patients\' or caregivers\' discussions across social media platforms were centered around the symptoms (61.9%, n=287) and causes (58%, n=269) of ocular pain. Patients mentioned having symptoms associated with COSP, including headache or head pressure, dry or gritty eyes, light sensitivity, etc. Patients posted that their COSP impacts day-to-day activities such as reading, driving, sleeping, and their social, mental, and functional well-being.
CONCLUSIONS: Insights from this study reported patients\' experiences, concerns, and the adverse impact on overall QoL. COSP imposes a significant burden on patients, which spans multiple aspects of daily life.