■雅芳父母与子女纵向研究(ALSPAC)计划时,假设临床产科数据可以从新开发的国家卫生服务计算机化的“STORK”系统中轻松获取。试点研究,然而,表明,虽然在劳动力和分娩方面相当准确,它是,当时(1990-2),不足以确定研究中妇女的产前和产后临床并发症和治疗的全部细节。
■因此开发了一种计划,以培训研究人员从临床记录中查找和抽象相关细节到为此目的设计的形式。提取这些数据证明非常耗时(复杂怀孕长达六个小时),因此昂贵。企业的资金是使用特定的重点赠款零碎获得的,以提取研究子样本的数据,包括作为对照的随机样本。
■到目前为止,已经完成了8369例怀孕的详细记录,另有5336人(共13,705人)有关于特定产前区域的完整细节,包括一系列的产妇血压测量,蛋白尿和体重。在本数据说明中,我们描述了从产科医疗记录中提取的有关怀孕期间母亲的信息,劳动,分娩和产褥期的前两周。与胎儿有关的信息(包括胎儿监护,介绍,分娩方法)和新生儿(窒息的迹象,复苏,治疗和福祉)已在进一步的数据说明中进行了描述。
■这些数据为ALSPAC增加了有关体征和症状的方式的深度,产前母亲的程序和治疗,产前和产后,可能会影响母亲和孩子的长期健康和发育。他们增加了从母亲问卷(其他地方描述)和数字医院数据收集的数据。
UNASSIGNED: When the Avon Longitudinal Study of Parents and Children (ALSPAC) was planned, it was assumed that the clinical obstetric data would be easily accessible from the newly developed National Health Service computerised \'STORK\' system. Pilot studies, however, showed that, although fairly accurate in regard to aspects of
labour and delivery, it was, at the time (1990-2), inadequate for identifying the full antenatal and postnatal details of clinical complications and treatments of the women in the Study.
UNASSIGNED: A scheme was therefore developed to train research staff to find and abstract relevant details from clinical records onto proformas designed for the purpose. Extracting such data proved very time consuming (up to six hours for complicated pregnancies) and consequently expensive. Funding for the enterprise was obtained piecemeal using specific focussed grants to extract data for subsamples of the Study, including a random sample to serve as controls.
UNASSIGNED: To date, detailed records have been completed for 8369 pregnancies, and a further 5336 (13,705 in total) have complete details on specific prenatal areas, including serial measures of maternal blood pressure, proteinuria and weight. In this Data Note we describe the information abstracted from the obstetric medical records concerning the mother during pregnancy,
labour, delivery and the first two weeks of the puerperium. Information abstracted relating to the fetus (including fetal monitoring, presentation, method of delivery) and neonate (signs of asphyxia, resuscitation, treatment and well-being) have been described in a further Data Note.
UNASSIGNED: These data add depth to ALSPAC concerning ways in which the signs and symptoms, procedures and treatments of the mother prenatally, intrapartum and postnatally, may impact on the long-term health and development of both mother and child. They augment the data collected from the mothers\' questionnaires (described elsewhere) and the \'STORK\' digital hospital data.