背景:在突发卫生事件期间,有效的信息技术管理已成为一项首要挑战。一个以快速变化的信息生态系统为标志的新时代,加上错误信息和虚假信息的广泛传播,放大了问题的复杂性。为使传染病管理措施有效,可接受,值得信赖,需要一个健全的道德考虑框架。
目的:本系统范围审查旨在确定和分析与信息管理相关的伦理考虑和程序原则,最终提高这些做法的有效性,并增加利益相关者的信任,这些利益相关者执行信息流行病管理做法,以保障公众健康为目标。
方法:该综述涉及对2002年至2022年与疾病管理中的伦理考虑相关的文献进行了全面审查,这些文献来自PubMed的出版物,Scopus,和WebofScience。政策文件和相关材料被纳入搜索战略。论文根据纳入和排除标准进行筛选,根据PRISMA(系统审查和荟萃分析的首选报告项目)指南,对核心主题领域进行了系统识别和分类。我们分析了文献,以确定实质性的道德原则,这些原则对于指导信息管理和社会倾听领域的行动至关重要。以及相关的程序伦理原则。在这次审查中,我们考虑文献中广泛讨论的道德原则,比如股权,正义,或尊重自主权。然而,我们承认程序实践的存在和相关性,我们也认为这是道德原则或实践,当实施时,在确保尊重实质性道德原则的同时,提高信息管理的效力。
结果:从103种出版物中提取,审查产生了几个与道德原则有关的关键发现,方法,和传染病管理背景下的实践指南。社区参与,通过教育赋权,包容性作为程序原则和实践出现,提高了沟通和社会倾听努力的质量和有效性,培养信任,一个关键的新兴主题和重要的道德原则。审查还强调了透明度的重要性,隐私,和数据收集中的网络安全。
结论:这篇综述强调了伦理学在增强疾病控制效果方面的关键作用。从分析的文学主体来看,很明显,道德考虑是培养信任和信誉的重要工具,同时也促进了信息管理方法的中期和长期可行性。
BACKGROUND: During health emergencies, effective infodemic management has become a paramount challenge. A new era marked by a rapidly changing information ecosystem, combined with the widespread dissemination of misinformation and disinformation, has magnified the complexity of the issue. For infodemic management measures to be effective, acceptable, and trustworthy, a robust framework of ethical considerations is needed.
OBJECTIVE: This systematic scoping review aims to identify and analyze ethical considerations and procedural principles relevant to infodemic management, ultimately enhancing the effectiveness of these practices and increasing trust in stakeholders performing infodemic management practices with the goal of safeguarding public health.
METHODS: The review involved a comprehensive examination of the literature related to ethical considerations in infodemic management from 2002 to 2022, drawing from publications in PubMed, Scopus, and Web of Science. Policy documents and relevant material were included in the search strategy. Papers were screened against inclusion and exclusion criteria, and core thematic areas were systematically identified and categorized following PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) guidelines. We analyzed the literature to identify substantive ethical principles that were crucial for guiding actions in the realms of infodemic management and social listening, as well as related procedural ethical principles. In this review, we consider ethical principles that are extensively deliberated upon in the literature, such as equity, justice, or respect for autonomy. However, we acknowledge the existence and relevance of procedural practices, which we also consider as ethical principles or practices that, when implemented, enhance the efficacy of infodemic management while ensuring the respect of substantive ethical principles.
RESULTS: Drawing from 103 publications, the review yielded several key findings related to ethical principles, approaches, and guidelines for practice in the context of infodemic management. Community engagement, empowerment through education, and inclusivity emerged as procedural principles and practices that enhance the quality and effectiveness of communication and social listening efforts, fostering trust, a key emerging theme and crucial ethical principle. The review also emphasized the significance of transparency, privacy, and cybersecurity in data collection.
CONCLUSIONS: This review underscores the pivotal role of ethics in bolstering the efficacy of infodemic management. From the analyzed body of literature, it becomes evident that ethical considerations serve as essential instruments for cultivating trust and credibility while also facilitating the medium-term and long-term viability of infodemic management approaches.