family stigma

  • 文章类型: Journal Article
    精神障碍在社会中经常受到污名化。精神疾病的污名会影响患有精神疾病的人本身及其家庭成员-这种现象称为协会污名(SBA)。患有精神疾病(COPMI)的父母的孩子是SBA的特殊弱势群体。在我们的系统审查中,经验丰富的SBA,预期的SBA,附属SBA,结构性歧视被确定为患有精神疾病的父母子女的相关污名化维度。评估与患有精神疾病的父母一起长大的青少年的SBA,开发了COPMI-SQ。
    N=930名青少年完成了这项研究。其中,N=380名青少年(样本1;72.6%为女性,平均年龄17.12(SD=2.01)岁)报告与至少一位患有精神疾病的父母一起长大。使用验证性因素分析(CFA)和探索性因素分析(EFA)以及标准项目和可靠性分析,我们对第一个样本的COPMI-SQ进行了分析和修正。为了验证修订后的COPMI-SQ的阶乘结构,CFA也在其他N=550青少年的独立样本中进行(样本2;80.0%女性,平均年龄16.36(SD=1.98)岁),报告没有与患有精神疾病的父母一起长大。要测试四个测量不变性,在报告父母有或无精神疾病成长的青少年的合并样本中进行了多组CFA(样本1和样本2).
    样本1中的CFA导致理论上假定的四因素结构的模型拟合不充分(CFI=.687;RMSEA=.064(90%CI=.062-.066);SRMR=.092;AIC=229155.63)。在对样本1进行EFA和项目和可靠性分析后,COPMI-SQ降低到四个量表(“有经验的SBA,\“\”附属公司SBA,\"\"羞耻,\"和\"预期SBA\")和两个额外的筛查量表(\"医疗保健\"和\"社会支持\")。为了方便问卷的使用,每个量表只保留了三个最好的项目,将项目总数减少到12个,外加5个额外的筛选项目。样本2中的CFA也导致理论上假定的四因素结构的模型拟合不充分(CFI=.667;RMSEA=.065(90%CI=.063-.066);SRMR=.101;AIC=335651.99)。相比之下,最终版本的COPMI-SQ-r显示出最佳的模型拟合(CFI=.945;RMSEA=.062(90%CI=.052-.072);SRMR=.049;AIC=60008.05)。在多组CFA(样本1和样本2)中,建立了度量不变性(χ2(208)=481.58,p<.001;CFI=.939;RMSEA=.053(90%CI=.047-.059);SRMR=.056)。在样本2中,发现内部一致性对于总量表(α=.84)是好的,对于子量表(α=.64至.78)几乎可以接受。
    COPMI-SQ(COPMI-SQ-r)的修订版是一种可靠且经济的问卷,用于评估与患有精神疾病的父母一起长大的青少年的SBA。COPMI-SQ-r可用于帮助开发和评估受影响青少年的反污名和一般干预措施。
    UNASSIGNED: Mental disorders are often stigmatized in society. The stigma of mental illness affects people with a mental illness themselves as well as their family members-a phenomenon called stigma by association (SBA). Children of parents with a mental illness (COPMI) are a particular vulnerable group for SBA. In our systematic review, experienced SBA, anticipated SBA, affiliate SBA, and structural discrimination were identified as relevant stigma dimensions for children of parents with a mental illness. To assess SBA in adolescents who grow up with a parent with a mental illness, the COPMI-SQ was developed.
    UNASSIGNED: N = 930 adolescents completed the study. Of those, N = 380 adolescents (sample 1; 72.6% female, mean age 17.12 (SD = 2.01) years) reported growing up with at least one parent with a mental illness. Using confirmatory (CFA) and exploratory factor analyses (EFA) as well as standard item and reliability analyses, we analyzed and revised the COPMI-SQ in the first sample. To validate the factorial structure of the revised COPMI-SQ, CFA was also conducted in the independent sample of the other N = 550 adolescents (sample 2; 80.0% female, mean age 16.36 (SD = 1.98) years) who reported not growing up with a parent with a mental illness. To test four measurement invariance, a multiple-group CFA was conducted in the combined sample of adolescents who reported growing up with and without a parent with a mental illness (sample 1 and sample 2).
    UNASSIGNED: CFA in sample 1 resulted in an inadequate model fit for the theoretically assumed four-factor structure (CFI = .687; RMSEA = .064 (90% CI = .062-.066); SRMR = .092; AIC = 229 155.63). Following EFA and item and reliability analyses in sample 1, the COPMI-SQ was reduced to four scales (\"Experienced SBA,\" \"Affiliate SBA,\" \"Shame,\" and \"Anticipated SBA\") and two additional screening scales (\"Healthcare\" and \"Social support\"). To facilitate questionnaire use, only the three best items were retained in each scale, reducing the total item number to 12 plus five additional screener items. CFA in sample 2 also resulted in an inadequate model fit for the theoretically assumed four factor structure (CFI = .667; RMSEA = .065 (90% CI = .063-.066); SRMR = .101; AIC = 335 651.99). In comparison, the final version of the COPMI-SQ-r showed the best model fit (CFI = .945; RMSEA = .062 (90% CI = .052-.072); SRMR = .049; AIC = 60 008.05). In the multiple-group CFA (sample 1 and sample 2), metric invariance was established (χ2 (208) = 481.58, p < .001; CFI = .939; RMSEA = .053 (90% CI = .047-.059); SRMR = .056). In sample 2, internal consistency was found to be good for the total scale (α = .84) and almost acceptable to almost good for the subscales (α = .64 to.78).
    UNASSIGNED: The revised version of the COPMI-SQ (COPMI-SQ-r) is a reliable and economic questionnaire to assess SBA in adolescents who grow up with a parent with a mental illness. The COPMI-SQ-r can be used to help develop and evaluate anti-stigma and general interventions for affected adolescents.
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  • 文章类型: Journal Article
    BACKGROUND: Steeped in Chinese culture which considers continuing the family lineage highly important, infertility stigma endorsed by others and oneself can both negatively impact psychological well-being in women with infertility in Taiwan. The aim of the present study was to find out whether family stigma attached to infertility has a direct effect on psychological well-being, or whether it is only when family stigma is internalized into self-stigma that psychological well-being is affected.
    METHODS: The present study had a cross-sectional design, approved by an institutional review board in Taiwan. 245 female participants with infertility completed measures on infertility stigma, self-esteem, and positive and negative affect. The main question of this study was analyzed by conducting structural equation modeling.
    RESULTS: The present study found that none of the direct effects of family stigma on self-esteem, negative affect, or positive affect were significant, while the indirect effects of family stigma on the three psychological well-being indexes through the mediator of self-stigma were significant.
    CONCLUSIONS: Self-stigma fully mediates the effect of family stigma on self-esteem, positive affect, and negative affect in women with infertility. Collectively, stigma endorsed by others does not necessarily lead to negative psychological well-being. The negative influence comes from internalizing public/family stigma into self-stigma.
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  • 文章类型: Journal Article
    虽然成年被认为是关系发展的关键时期,大多数研究涉及异性恋青年或年长的性少数伴侣。使用40名大学生新兴成年人的叙述,我们试图了解女同性恋的特殊性和普遍性,同性恋,双性恋和其他性少数(LGB+)关系经历。特别是在LGB+关系中的积极经历涉及伴侣对进出的支持;很少提到家庭成员对这种关系的支持。被提及的负面经验是正面经验的两倍。他们担心伴侣处于不同程度的外向和家庭支持问题如何强调这种关系。与积极关系因素有关的普遍性包括满足支持需求和使用观点来处理冲突。负面因素包括对友谊和亲密关系的未满足需求,以及对这种关系是否有未来的分手焦虑。我们的发现表明,为新兴成年人发展基于力量的LGB肯定教育的重要性,以促进核心关系过程并加强技能,以应对性少数族裔浪漫伴侣关系特有的压力源。
    Although emerging adulthood is recognized as a pivotal time for relationship development, most studies concern heterosexual youth or older sexual minority partners. Using narratives from 40 college student emerging adults, we sought to understand the particularities and generalities of lesbian, gay, bisexual and other sexual minority (LGB+) relationship experiences. Positive experiences particular to being in a LGB+ relationship concerned partner support for coming and being out; support from family members for the relationship was rarely mentioned. Negative experiences were twice as likely to be mentioned as positive ones. They concerned how partners being at different levels of outness and problems with family support stressed the relationship. Generalities pertaining to positive relationship factors included meeting needs for support and using perspective taking to deal with conflict. Negative factors included unmet needs for companionship and intimacy and breakup anxiety about whether the relationship had a future. Our findings suggest the importance of developing strength-based LGB+ affirmative education for emerging adults to promote core relationship processes and strengthen skills to cope with stressors specific to sexual minority romantic partnerships.
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  • 文章类型: Journal Article
    患有精神疾病的父母的孩子是一个特别脆弱的群体,因为他们自己有很高的患精神障碍的风险,并且那些与高污名有关。此外,就像污名的主要接受者一样,他们受到围绕精神疾病的社会禁忌的影响:他们没有得到足够的信息,经常独自面对他们的问题,因此被认为是“看不见的孩子”。在以前的研究中,家庭污名仅通过对所有家庭成员的一般问卷进行评估。尚未得到充分调查的是,污名化困难如何特别影响患有精神疾病的父母的孩子。为了解决这些限制,我们开发了患有精神疾病的父母的孩子-污名问卷(COPMI-SQ),12-19岁年轻人的自我报告工具,旨在评估年轻人在日常生活中的污名体验。根据问卷前的系统回顾,我们为患有精神疾病的父母的孩子确定了相关的污名维度,这导致了93个项目,根据理论,这些项目被假定在四个不同的尺度上加载:经历的污名,预期的耻辱,自我污名,结构性歧视。专家讨论,随后对目标群体进行了可理解性分析。在本文中,我们报告了COPMI-SQ的心理测量特性的开发过程和初始试点数据(N=32)。通过项目难度指数进行项目分析,歧视性权力,以及内部一致性分析导致修订后的工具减少到67个项目。我们观察到分量表的内部一致性非常高(在α=0.868和α=0.975之间)。制定COPMI-SQ的方法遵循科学公认的原则,确保不同的施工阶段,被认为是进一步可靠性和有效性研究的坚实基础。该研究正在进行中,并正在进行进一步的验证调查;维度和因素结构也将被检查。
    Children of parents with a mental illness are a particularly vulnerable group as they have a high risk to develop a mental disorder themselves and those are associated with high stigma. Moreover, just like primary recipients of stigma, they are affected by the social taboo surrounding mental illness: they do not receive enough information, are often left alone with their problems, and are thus considered \"invisible children\". In previous research, family stigma has only been assessed through general questionnaires for all family members. What has not yet been adequately investigated is how stigma difficulties affect the children of parents with mental illness in particular. To address these limitations, we developed the Children of Parents with Mental Illness-Stigma-Questionnaire (COPMI-SQ), a self-report instrument for young people aged 12-19 years, designed to assess young people\'s stigma experiences in daily life. Based on a systematic review preceding the questionnaire, we identified relevant stigma dimensions for children of parents with a mental illness that resulted in 93 items that according to theory were assumed to load on four different scales: experienced stigma, anticipated stigma, self-stigma, and structural discrimination. An expert discussion, and a comprehensibility analysis with the target group followed. In this paper, we report on the development process and initial pilot data (N = 32) on the psychometric properties of the COPMI-SQ. Item analyses via an item difficulty index, discriminatory power, as well as internal consistency analysis resulted in a revised instrument reduced to 67 items. We observed very high internal consistencies (between α = 0.868 and α = 0.975) for the subscales. The approach taken to develop the COPMI-SQ followed scientifically accepted principles by ensuring different construction phases and is considered a solid basis for further reliability and validity studies. The study is ongoing and undergoing a further validation investigation; dimensionality and factor structure will also be examined.
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  • 文章类型: Journal Article
    研究记录了患有退行性神经系统疾病的人所经历的耻辱,但护理人员也会因联想而遭受耻辱(即,附属机构的耻辱)。为了揭示患有退行性神经系统疾病的人的照顾者的耻辱,本研究旨在探讨帕金森病(PD)看护者附属污名患病率的跨文化差异,以及PD症状与护理人员附属病耻感之间的关系。讨论了阿尔茨海默病的应用。
    调查数据是在公众的PD诊所收集的,学术医疗中心。来自美国(n=105)和墨西哥(n=148)的PD患者的非正式护理人员参与了这项研究。护理人员填写了一份问卷,其中包括MDS统一PD评定量表,以描述患有PD的个体的症状,以及会员污名量表和人口统计信息。
    进行了一系列多元回归,以检查PD症状是否与附属病耻感有关,以及这些症状是否因国家而异。这些回归表明,PD症状的不同模式预测了每个国家的附属污名。与墨西哥相比,美国的污名更高,在美国,肠/膀胱症状与附属病耻感之间的关系明显更强。
    患有神经退行性疾病的个体的症状与护理人员所经历的附属污名有关,这些关系可能在跨文化方面有所不同。公众对碗和膀胱问题以及伴随PD的身体症状的负面态度仍然是照顾者和家庭的耻辱来源,尤其是在美国。对神经退行性疾病患者的护理人员的干预应包括应对膀胱和肠道问题的耻辱的策略,以及其他身心健康问题。
    Research has documented the stigma that individuals with degenerative neurological diseases experience, but caregivers also experience stigma by association (i.e., affiliate stigma). In order to shed light on the stigma of caregivers of people with degenerative neurological diseases, the current study aimed to explore cross-cultural differences in the prevalence of Parkinson\'s disease (PD) caregiver affiliate stigma, as well as the relationship between PD symptoms and caregiver affiliate stigma. Applications for Alzheimer\'s disease are discussed.
    Survey data were collected in PD clinics at public, academic medical centers. Informal caregivers of an individual with PD from the US (n = 105) and from Mexico (n = 148) participated in the study. Caregivers completed a questionnaire that included the MDS Unified PD Rating Scale to describe the symptoms of the individual with PD, as well as the Affiliate Stigma Scale and demographic information.
    A series of multiple regressions was run to examine whether PD symptoms were associated with affiliate stigma and if these differed by country. These regressions suggested that different patterns of PD symptoms predicted affiliate stigma in each country. Stigma was higher in the US compared to Mexico, and the relationship between bowel/bladder symptoms and affiliate stigma was significantly stronger in the US.
    Symptoms of individuals with neurodegenerative diseases are related to affiliate stigma experienced by caregivers, and these relationships may differ cross-culturally. Negative public attitudes concerning bowl and bladder issues and the physical symptoms that accompany PD remain a source of stigma for caregivers and families, particularly in the US. Interventions for caregivers of individuals with neurodegenerative diseases should include strategies for coping with stigma concerning bladder and bowel problems, as well as other physical and mental health issues.
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  • 文章类型: Journal Article
    UNASSIGNED: Many studies have attempted to identify the factors that are associated with caregiver burden among family caregivers of people with Alzheimer\'s disease (AD), because of its plethora of negative consequences. One unique factor that has been investigated recently is family stigma. However, the path leading from family stigma to caregiver burden has not been thoroughly studied. Hence, this study had two main objectives. The first was to examine whether family stigma was a predictor of caregiver burden among Israeli Arab family caregivers of a person with AD. The second was to examine the interplay of family stigma and caregiver burden with coping strategies and social support.
    UNASSIGNED: Structured face-to-face interviews were conducted with 175 Israeli Arab family caregivers (adult children and spouses) of elderly people with AD (87.4% female; 71.4% adult children; mean age = 54.28).
    UNASSIGNED: Overall, the participants reported moderate levels of caregiver burden and family stigma. Additionally, as expected, family stigma made a unique - although modest - contribution to the explanation of caregiver burden. Whereas neither problem-focused coping nor emotion-focused coping played a significant role in mediating the relation between family stigma and caregiving burden, social support did mediate the relation between these variables.
    UNASSIGNED: Our findings reveal how social support is important as a specific way to reduce the impact of family stigma on caregiver burden.
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  • 文章类型: Journal Article
    Providing care to people with Parkinson\'s disease (PD) poses challenges for family carers, including experiencing stigmatic beliefs -i.e., family stigma. However, to the best of our knowledge, there is no empirical study examining the stigmatic experiences of family members of people with PD. This was the aim of the present study. Three focus groups with 22 Israeli spouses of people with PD were conducted. Data were analyzed using theory-led thematic analysis. Overall, the spouses in our study shared mainly experiences of the stigma attached to the illness and/or to their loved ones, and not to themselves as carers. Three major themes emerged: the stereotypes that typify PD, stigmatizing behaviors towards the person with the disease, and structural stigma. Our findings highlight the profound stigma confronting carers of persons with PD, particularly when it comes to structural stigma.
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  • 文章类型: Journal Article
    背景:酒精和阿片类药物使用障碍(OUD)患者的照顾者生活质量(QoL)较低,并且遭受家庭耻辱。然而,尚未在该人群中研究家庭污名对QoL的影响。
    方法:根据精神疾病诊断和统计手册,100名患有严重酒精使用障碍(AUD)(n=47)和OUD(n=53)的男性住院患者的主要照顾者,第五版被纳入横断面,描述性研究。参与者使用社会人口统计学和临床形式进行评估,世界卫生组织QoL-BREF印地语,和印地语家庭耻辱量表。采用Kolmogorov-Smirnov检验和Pearson相关性进行统计分析。
    结果:大多数照顾者是女性(64%),家庭主妇(48%),已婚(80%)。超过50%的照顾者居住在农村地区和核心家庭。46%,30%,24%的照顾者是父母,妻子们,兄弟姐妹和孩子。男性,31至45岁的照顾者,已婚护理人员的QoL明显较高。父母的QoL明显较低。AUD患者的照顾者总体QoL明显低于OUD患者。妻子面临更高的歧视和整体耻辱。总体QoL,对身体健康的满意度,环境与歧视呈显著负相关。总污名与环境满意度呈负相关。
    结论:污名和歧视对照顾者的生活质量有负面影响。减少病耻感和提高QoL应该是AUD和OUD患者护理人员的心理社会干预措施的组成部分。
    BACKGROUND: Caregivers of patients with alcohol and opioid use disorder (OUD) have low quality of life (QoL) and suffer from family stigma. However, impact of family stigma on QoL has not been studied in this population.
    METHODS: One hundred primary caregivers of male inpatients with severe alcohol use disorder (AUD) (n = 47) and OUD (n = 53) as per the Diagnostic and Statistical Manual of Mental Disorders, 5th Edition were enrolled into the cross-sectional, descriptive study.Participants were assessed using sociodemographic and clinical proforma, World Health Organization QoL-BREF Hindi, and Hindi family stigma scale. Kolmogorov-Smirnov tests and Pearson\'s correlation were used for statistical analysis.
    RESULTS: Majority of caregivers were females (64%), homemakers (48%), and married (80%). More than 50% of caregivers resided in rural areas and nuclear families. 46%, 30%, and 24% of caregivers were parents, wives, and siblings and children. Males, caregivers between 31 and 45 years of age, and married caregivers had significantly higher QoL. Parents had significantly lower QoL. Caregivers of patients with AUD had significantly lower overall QoL than that of OUD. Wives faced higher discrimination and overall stigma. Overall QoL, satisfaction with physical health, and environment were significantly negatively correlated with discrimination. Total stigma was negatively correlated with satisfaction with environment.
    CONCLUSIONS: Stigma and discrimination have negative impact on QoL of caregivers. Stigma reduction and QoL enhancement should be integral part of psychosocial interventions for caregivers of patients with AUD and OUD.
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  • 文章类型: Journal Article
    BACKGROUND: Family members experience stigma via their connection with the affected member. Family stigma contains stereotypes of blame, shame and contamination.
    OBJECTIVE: To establish the tendency towards stigmatization of family members of a person with autistic spectrum disorders (ASD) by a sample of the general public of Belgrade.
    METHODS: The sample encompassed 181 participants, of various ages and levels of education, and of different, self-assessed levels of knowledge about autism. The structure of stigmatization of family members of a person with ASD was explored applying the Family Stigma Questionnaire (FSQ) and the Level of Familiarity Questionnaire (LFQ).
    RESULTS: Analysis of the obtained results established that scores indicating the tendency towards stigmatization were most pronounced for variables connected to blame for deterioration of the condition of the person with autism, contamination of the individual family members by the condition, and to feeling pity for family members of a person with ASD. Statistically significant differences were established when the FSQ scores stigmatizing parents and siblings were compared. Significant differences in stigmatizing stereotypes were established according to gender and level of education, and according to the self-assessment of knowledge about autism and the level of previous contact to persons with mental disorders.
    CONCLUSIONS: Anti-stigma programmes are important especially bearing in mind that participants who self-evaluated as having the least knowledge about ASD demonstrated the highest tendency towards stigmatizing the parents of a person suffering from ASD, and those of lower education demonstrated the highest tendency towards stigmatizing the family members.
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