ethnic and racial minorities

族裔和种族少数
  • 文章类型: Journal Article
    背景:民族社会化在少数民族青少年的发展中起着至关重要的作用。然而,在美国移民社会背景下的研究结果是否具有普遍性尚不清楚.
    方法:采用以人为本的方法,这项研究分析了中国2600名少数民族青少年的样本(55.8%为女性,法师=14.93±1.82)探索民族社会化模式,以及它们与抑郁症的相关性。
    结果:潜在特征分析揭示了四个不同的种族社会化特征:低频,中等频率,高频和主动整合导向。高频率的青少年表现出最高的抑郁水平,其次是那些中等频率的人,而具有低频率和主动整合定向特征的青少年显示出更低的抑郁风险.
    结论:在中国的社会文化背景下,少数民族家庭\“民族社会化实践表现出独特的特点。各种种族社会化信息以不同的模式整合在一起,对青少年产生影响。
    BACKGROUND: Ethnic socialisation plays a vital role in the development of ethnic minority adolescents. However, the generalizability of research findings beyond the context of immigrant societies in the United States remains unclear.
    METHODS: Utilising a person-centred approach, this study analysed a sample of 2,600 ethnic minority adolescents in China (55.8% female, Mage = 14.93 ± 1.82) to explore ethnic socialisation patterns, and their correlations with depression.
    RESULTS: Latent profile analysis revealed four distinct ethnic socialisation profiles: low-frequency, moderate-frequency, high-frequency and proactive integration orientation. Adolescents with the high-frequency profile displayed the highest levels of depression, followed by those with the moderate-frequency profile, whereas adolescents with the low-frequency and proactive integration orientation profiles showed a lower risk of depression.
    CONCLUSIONS: Within the sociocultural context of China, ethnic minority families\' ethnic socialisation practices demonstrate unique characteristics. Various ethnic socialisation messages are integrated in diverse patterns to exert influence on adolescents.
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  • 文章类型: Journal Article
    青少年接触二手烟(SHSe)是一个严重的公共卫生问题,导致哮喘和呼吸道感染等疾病的风险增加。然而,在脆弱人群中很少有关于SHSe的研究,例如种族和性少数群体。了解与家庭和车辆中的青年SHSe相关的因素对于制定更好的保护政策至关重要。
    这项研究利用了全国青年烟草调查的2020年数据,美国中学生和高中生的代表性样本。主要结果是在家中和乘车时的青年SHSe。多项回归模型用于评估与SHSe相关的因素。
    数据包括美国6至12年级的9,912名学生,他们报告从未使用任何形式的烟草。与不使用任何形式烟草制品的人一起生活的非西班牙裔黑人学生明显更有可能经历中度[OR=2.1(1.1-3.9),p=0.03]和严重[OR=5.1(2.2-11.7),p<0.001]与非西班牙裔白人相比,家庭中的二手烟暴露(SHSe)。与异性恋男性相比,异性恋女学生在家中报告中等SHSe的几率较低[OR=0.7(0.6-0.99),p=0.02],而双性恋女性在家庭中发生严重SHSe的几率增加了两倍[OR=2.0(1.2-3.4),p=0.01]。
    需要做出重大努力来制定有针对性的干预措施,以减少家庭和车辆中的SHSe,特别是在这些弱势群体中。
    UNASSIGNED: Secondhand smoke exposure (SHSe) among youth is a serious public health concern, leading to an increased risk of conditions such as asthma and respiratory infections. However, there is little research on SHSe among vulnerable populations, such as racial and sexual minorities. Understanding the factors associated with youth SHSe in homes and vehicles is crucial to developing better protective policies.
    UNASSIGNED: This study utilized 2020 data from the National Youth Tobacco Survey, a representative sample of middle- and high-school students in the US. The primary outcomes were youth SHSe at home and while riding in a vehicle. Multinomial regression models were used to assess factors associated with SHSe.
    UNASSIGNED: The data included 9,912 students enrolled in grades 6 through 12 in the United States who reported never using any form of tobacco. Non-Hispanic Black students living with someone who does not use any form of tobacco products were significantly more likely to experience moderate [OR = 2.1 (1.1-3.9), p = 0.03] and severe [OR = 5.1 (2.2-11.7), p < 0.001] secondhand smoke exposure (SHSe) in homes compared to their non-Hispanic White counterparts. Heterosexual female students had lower odds of reporting moderate SHSe in the home compared to heterosexual males [OR = 0.7 (0.6-0.99), p = 0.02], whereas bisexual females had two-fold increased odds of severe SHSe in homes [OR = 2.0 (1.2-3.4), p = 0.01].
    UNASSIGNED: Significant efforts are needed to develop targeted interventions to reduce SHSe in homes and vehicles, particularly in these vulnerable populations.
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  • 文章类型: Journal Article
    背景:少数民族人口经历了巨大的健康和社会护理差距;尽管经历了更大的疾病负担,这些群体在健康和社会护理研究中的代表性不足。因此,相关研究可能不太适用于这些人群。REPRESENT研究旨在探索少数民族和其他人口的健康和社会护理经验,他们的研究兴趣和适当的研究实践。
    方法:2022年5月至9月,对英格兰一些少数民族社区的成员进行了焦点小组和半结构化访谈。数据是音频记录的,使用NVivo12进行转录和主题编码。严谨是通过广泛取样确定的,迭代数据收集和分析。
    结果:52名少数民族成员进行了集体访谈和一对一访谈。与会者包括以下小组的代表:非洲加勒比,东欧,吉普赛旅行者,女同性恋,同性恋,双性恋,变性人,酷儿,双性恋和无性系+,难民/寻求庇护者,索马里和南亚社区。还对少数民族医疗保健提供者和研究人员进行了采访。确定了三个总体类别:健康信息,医疗服务经验,健康和社会护理问题以及健康研究。卫生和社会护理服务挑战主要归因于歧视,延迟服务,文化相关性差,语言和文化障碍。最有影响力的信息来源是当地社区组织和口碑。主要的健康和社会护理问题是慢性长期健康状况,心理健康,孕产妇健康和儿童发育。研究建议涉及了解参与的动机,改善沟通和赋予社区权力。最重要的研究重点是长期的健康状况,健康促进和教育,早期护理干预和了解社区需求。
    结论:健康和社会护理提供中的歧视和偏见对种族健康不平等的恶化具有严重影响。医疗保健委托当局和政策制定者可以利用少数族裔群体对药房服务和社区组织的偏好,以改善获得护理的机会。提高研究兴趣和参与度需要了解个人社区需求,社区敏感性,研究的相关性和文化适宜性。
    少数民族患者和公众参与和参与小组以及社区咨询委员会的成员支持REPRESENT研究设计,概念化和报告开发。
    BACKGROUND: Ethnic minority populations experience significant health and social care disparities; despite experiencing a greater burden of diseases, these groups are underrepresented in health and social care research. Consequently, related research can be less applicable to these population groups. The REPRESENT study aims to explore the health and social care experiences of ethnic minorities and other minoritised populations, their research interests and appropriate research practices.
    METHODS: Focus groups and semistructured interviews were conducted between May and September 2022 with members of a number of ethnic minority communities in England. Data were audio recorded, transcribed and thematically coded using NVivo 12. Rigour was determined through extensive sampling, iterative data collection and analysis.
    RESULTS: Fifty-two ethnic minority members were engaged in group interviews and one-to-one interviews. Participants included representatives of the following groups: African Caribbean, Eastern European, Gypsy Travellers, Lesbian, Gay, Bisexual, Transgender, Queer, Intersex and Asexual+, Refugee/Asylum Seekers, Somali and South Asian communities. Interviews were also conducted with ethnic minority healthcare providers and researchers. Three overarching categories were identified: health information, medical service experiences, health and social care concerns and health research. Health and social care services challenges were mostly attributed to discrimination, delayed services, poor cultural relevance and language and cultural barriers. The most influential information sources were local community organisations and word-of-mouth. The main health and social care concerns were chronic long-term health conditions, mental health, maternal health and child development. Recommendations for research involved understanding the motivations for participation, improving communication and empowering communities. Top research priorities were long-term health conditions, health promotion and education, early care interventions and understanding community needs.
    CONCLUSIONS: Discrimination and bias in health and social care provision have severe implications for worsening ethnic health inequalities. Healthcare commissioning authorities and policymakers can leverage the preference of ethnic minority groups for pharmacy services and community organisations to improve access to care. Improving research interest and engagement requires understanding individual community needs, community sensitivity, research relevance and cultural appropriateness.
    UNASSIGNED: Members of ethnic minority Patient and Public Involvement and Engagement group and Community Advisory Board supported the REPRESENT study design, conceptualisation and report development.
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  • 文章类型: Journal Article
    背景:有效的消费者参与实践可以提高患者的安全性。这对于来自少数民族背景的消费者来说是重要的,他们面临着增加的患者安全事件风险。使用系统工程计划患者安全模型,这项研究探索了员工创造机会与来自少数族裔背景的消费者接触的经验,以促进他们的癌症护理安全。
    方法:对来自澳大利亚两个州的四个癌症服务机构的癌症服务人员进行了半结构化访谈,进行了一项定性研究。目的抽样用于从各种职业中招募医护人员。使用框架分析方法对数据进行了分析。
    结果:对医护人员进行了54次访谈。对定性访谈数据的分析确定了促成因素和相关挑战,这些挑战有助于在消费者和员工之间建立对信息的共同理解,进程,护理中出现的期望和问题。报告了与四个主题有关的推动者和挑战:(1)通过对护理过程的共同理解共同创造安全;(2)支持计划沟通的工具和技术;(3)存在组织政策杠杆,但缺乏直接护理的实施;(4)正式任务比非正式互动更容易纳入消费者参与。
    结论:支持与来自少数民族背景的消费者沟通的基础设施和资源的可用性仅限于整个癌症护理连续体的特定任务。现在,卫生服务部门为促进正式互动期间的有效沟通而实施的战略需要扩大,以支持和创造条件,使消费者在非正式和日常护理任务中有效参与。在服务和系统级别需要使用创新的语言支持工具和文化考虑,以支持消费者参与所有类型的护理互动。
    该研究嵌入了一个更大的项目,该项目包括一名消费者调查员,并由一个消费者咨询小组(CAG)指导。这些消费者团队成员经历过癌症,来自不同的种族背景。CAG成员对本研究的采访指南草案和参与者信息提供了反馈。
    BACKGROUND: Effective consumer engagement practices can enhance patient safety. This is important for consumers from ethnic minority backgrounds who are exposed to increased risk of patient safety events. Using the Systems Engineering Initiative for Patient Safety model, this study explored staff experiences of creating opportunities for engagement with consumers from ethnic minority backgrounds to contribute to their cancer care safety.
    METHODS: A qualitative study was conducted using semistructured interviews with cancer service staff from four cancer services across two states in Australia. Purposive sampling was used to recruit healthcare staff from a diverse range of professions. Data were analysed using the Framework Analysis method.
    RESULTS: Fifty-four interviews were conducted with healthcare staff. Analysis of the qualitative interview data identified enablers and associated challenges that contributed to creating a shared understanding between consumers and staff of the information, processes, expectations and problems arising in care. Enablers and challenges are reported in relation to four themes: (1) co-creating safety through shared understanding of care processes; (2) tools and technologies support planned communication; (3) organisational policy levers exist but lack implementation in direct care and (4) formal tasks incorporate consumer engagement more readily than informal interactions.
    CONCLUSIONS: The availability of infrastructure and resources to support communication with consumers from ethnic minority backgrounds was limited to specific tasks across the cancer care continuum. Strategies implemented by health services to foster effective communication during formal interactions now require expansion to support and create conditions for effective consumer engagement during informal and everyday care tasks. The use of innovative language support tools and cultural considerations are required at the service and system level to support consumer engagement in all types of care interactions.
    UNASSIGNED: The study was embedded within a larger project that included a consumer investigator and was guided by a consumer advisory group (CAG). These consumer team members have lived experience of cancer and are from diverse ethnic backgrounds. CAG members provided feedback on the draft interview guide and participant information for this study.
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  • 文章类型: Journal Article
    众所周知,COVID-19大流行对少数民族社区产生了重大影响,并加剧了全球这些人群所经历的现有健康不平等。在整个大流行期间,来自少数民族背景的个人不仅更有可能感染COVID-19,但他们也有更高的不良症状和感染后死亡的风险。造成这些差异的因素影响广泛,涵盖了健康社会决定因素(SDoH)的所有方面。尽管始终是医疗保健专业人员关注的领域,在COVID-19大流行期间,当所有人都需要充分和持续地获得医疗保健系统时,少数民族人口所经历的医疗保健障碍成为一个更相关的问题(无论是用于COVID-19检测,疫苗接种或治疗)。这些医疗障碍加剧了少数群体所经历的COVID-19负担的增加,并将在未来的COVID-19浪潮中继续对这些人群的健康产生不利影响,未来的小说大流行。本章旨在总结在COVID-19大流行期间少数群体经历的主要医疗保健障碍,包括COVID-19预防,疫苗推广,长期COVID患者住院期间的护理和COVID后的护理。为了结束,本章将总结经验教训和需要采取的未来方向,以改善与COVID大流行及以后的少数群体的健康差距和医疗保健服务。
    It is well established that the COVID-19 pandemic has had a substantial impact on ethnic minority communities and has worsened existing health inequalities experienced by these populations globally. Individuals from ethnic minority backgrounds have not only been more likely to become infected with COVID-19 throughout the pandemic, but they have also higher risk of adverse symptoms and death following infection. Factors responsible for these discrepancies are wide reaching and encompass all aspects of the social determinants of health (SDoH). Although always an area of concern among healthcare professionals, barriers to health care experienced by ethnic minority populations became a more pertinent issue during the COVID-19 pandemic when all individuals required sufficient and sustained access to a healthcare system (whether this be for COVID-19 testing, vaccination or treatment). These healthcare barriers exacerbated the increased COVID-19 burden experienced by minority populations and will continue to detrimentally impact the health of these populations during future COVID-19 waves or indeed, future novel pandemics. This chapter aims to summarise the major healthcare barriers experienced by minority populations throughout the COVID-19 pandemic, including COVID-19 prevention, vaccine rollout, care during hospitalisation and post-COVID care for long COVID patients. To end, this chapter will summarise lessons learned and future directions that need to be taken to improve health disparities and healthcare access for minority populations in relation to the COVID pandemic and beyond.
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  • 文章类型: Journal Article
    长期护理机构中的居民对居民的侵略(RRA)已成为一个严重的问题。种族/族裔冲突可能是RRA事件的一个促成因素,但研究还不够充分。我们的目标是探索RRA中公开的种族/族裔冲突。
    我们使用了大量现有数据的定量和定性二次分析,对RRA进行了严格的研究,以描述涉及的居民和公开的种族/民族冲突的模式。
    家长研究包括了10个随机选择的纽约州疗养院中2011年居民的信息,这些疗养院具有广泛的种族/少数民族居民(4.2%-63.2%)。407名居民的一部分参与了RRA。
    我们重新检查了来自母体研究的数据,它使用一种创新的方法来识别RRA事件,方法是根据居民的自我报告重建每个事件,员工访谈,现场观测,和医学图表审查。收集居民和设施信息。
    共有35名居民(参与RRA事件的人数占8.6%)被确定为参与公开的种族/族裔冲突。与参与其他类型的RRA的居民相比,这些居民受教育程度更低,但没有明显的种族/族裔冲突。在涉及一对特定居民之间公开种族/族裔冲突的51起RRA事件中,有一半以上(56.9%)反复发生。种族/族裔冲突的表现包括身体暴力,歧视,种族/族裔诽谤,刻板印象,微侵略。这些事件的急性诱因包括各种社区生活挑战和设施未满足的需求,关系,和个人水平。还描述了心理和行为后果。
    我们发现了广泛的表现,急性沉淀剂,周围的环境,以及RRA中公开的种族/族裔冲突的后果。需要进行更多的研究,以提高对这种现象的理解,以及工作人员如何有效地干预和预防这种现象。
    UNASSIGNED: Resident-to-resident aggression (RRA) in long-term care facilities is gaining recognition as a serious problem. Racial/ethnic conflict may be a contributing factor to RRA incidents, but it remains insufficiently studied. Our goal was to explore overt racial/ethnic conflict in RRA.
    UNASSIGNED: We used quantitative and qualitative secondary analyses of existing data from a large, rigorously conducted study of RRA to describe the involved residents and patterns of overt racial/ethnic conflicts.
    UNASSIGNED: The parent study included information of 2011 residents in 10 randomly selected New York State nursing homes with a wide range of racial/ethnic minority residents (4.2%-63.2%). A subset of 407 residents were involved in RRA.
    UNASSIGNED: We re-examined data from the parent study, which used an innovative approach to identify RRA incidents by reconstructing each incident based on residents\' self-reports, staff interviews, field observations, and medical chart review. Resident and facility information was collected.
    UNASSIGNED: A total of 35 residents (8.6% of those involved in RRA incidents) were identified as involved in overt racial/ethnic conflicts. These residents were more likely to have had less education than residents involved in other types of RRA but not in overt racial/ethnic conflicts. More than half (56.9%) of the 51 incidents of RRA involving overt racial/ethnic conflict between a specific pair of residents occurred repeatedly. Manifestation of racial/ethnic conflicts included physical violence, discrimination, racial/ethnic slurs, stereotypes, and microaggression. Acute precipitants of these incidents included various communal-living challenges and unmet needs at the facility, relational, and individual levels. Psychological and behavioral consequences were also described.
    UNASSIGNED: We found a broad range of manifestations, acute precipitants, circumstances surrounding, and consequences of overt racial/ethnic conflicts in RRA. Additional research is needed to improve understanding of this phenomenon and how staff may effectively intervene and prevent it.
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  • 文章类型: Journal Article
    背景:目前的研究已经确定了少数民族妇女在围产期的健康状况如何较差。在英国,专科围产期心理健康服务为妇女提供整个围产期的心理健康治疗。服务使用者此前曾强调,围产期服务难以获得,缺乏文化敏感性,而医疗保健专业人员描述了发展文化能力的有限机会和资源。
    目的:我们在国家卫生服务(NHS)围产期专家团队中探索了少数民族妇女的经验,并确定了文化敏感的围产期心理保健对该群体的意义。
    方法:进行个人半结构化访谈,并采用解释性现象学分析框架对访谈笔录进行分析。
    方法:参与者从NHS围产期专家团队招募,并通过社交媒体在线招募。
    结果:采访了6名女性。出现了四个小组体验主题,这些主题是参与者体验的核心:(1)加强社区网络和同伴支持;(2)重视文化好奇心;(3)了解文化,种族,种族和种族主义影响心理健康;(4)为少数民族妇女及其家庭量身定制干预措施。
    结论:研究结果捕获了少数民族妇女如何体验围产期专家团队,并提供了对实践文化敏感护理的见解。围产期心理健康专业人员可以通过加强获得社区资源和同伴支持的机会来支持少数民族妇女;对他们的文化感到好奇;帮助他们理解文化,种族,种族和心理健康相互作用;并将文化和实践适应应用于干预措施。
    由少数民族妇女组成的生活经验咨询小组(LEAG)为本研究的设计和实施做出了贡献。LEAG有过围产期心理健康状况的经历,并进入了围产期专家团队。LEAG选择共同制作他们认为符合他们的技能和可用时间的研究的具体方面在整个五个小组会议。这些方面包括制定面试主题指南,向参与者汇报和就社交媒体招聘策略提供建议的结构。
    BACKGROUND: Current research has identified how ethnic minority women experience poorer health outcomes during the perinatal period. In the United Kingdom, specialist perinatal mental health services provide mental health treatment for women throughout the perinatal period. Service users have previously highlighted that perinatal services are hard to access and lack cultural sensitivity, whereas healthcare professionals have described limited opportunities and resources for developing cultural competency.
    OBJECTIVE: We explored the experiences of ethnic minority women with National Health Service (NHS) specialist perinatal teams and identified what culturally sensitive perinatal mental health care means to this group.
    METHODS: Individual semi-structured interviews were conducted, and an interpretative phenomenological analysis framework was used to analyse the interview transcripts.
    METHODS: Participants were recruited from NHS specialist perinatal teams and online via social media.
    RESULTS: Six women were interviewed. Four group experiential themes central to the experiences of participants emerged: (1) strengthening community networks and peer support; (2) valuing cultural curiosity; (3) making sense of how culture, ethnicity, race and racism impact mental health; and (4) tailoring interventions to ethnic minority women and their families.
    CONCLUSIONS: The findings capture how ethnic minority women experience specialist perinatal teams and offer insights into practising culturally sensitive care. Perinatal mental health professionals can support ethnic minority women by strengthening their access to community resources and peer support; being curious about their culture; helping them to make sense of how culture, ethnicity, race and mental health interact; and applying cultural and practical adaptations to interventions.
    UNASSIGNED: A Lived Experience Advisory Group (LEAG) of women from ethnic minority groups contributed to the design and conduct of this study. The LEAG had lived experience of perinatal mental health conditions and accessing specialist perinatal teams. The LEAG chose to co-produce specific aspects of the research they felt fit with their skills and available time throughout five group sessions. These aspects included developing the interview topic guide, a structure for debriefing participants and advising on the social media recruitment strategy.
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    文章类型: Journal Article
    在COVID-19大流行的高峰期,乔治王子县的种族/少数族裔居民不成比例地受到该病毒的影响。这份来自实地的报告详细介绍了一项干预措施,该措施培训了从种族/少数民族社区招募的社区卫生工作者,以在种族/种族不同的社区中推广COVID-19疫苗接种和健康素养。
    At the height of the COVID-19 pandemic, racial/ethnic minority residents of Prince George\'s County were disproportionately affected by the virus. This report from the field details an intervention that trained community health workers recruited from racial/ethnic minority communities to promote COVID-19 vaccination and health literacy among racially/ethnically diverse communities.
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  • 文章类型: Journal Article
    背景:尼古丁的共同使用,酒精和/或大麻在美国成年人中很常见。与单一物质使用相比,共同使用可能代表更大的成瘾严重程度。最近的研究已经检查了频率的程度,订单,同时性,动机,与共同使用相关的环境因素与单次使用不同。在表现出不同的共同使用模式和相关结果的种族/族裔少数群体中,共同使用已变得普遍;然而,这些研究大多依赖于横截面或稀疏的纵向观察。生态瞬时评估(EMA)可以阐明这种模式和与时变环境的关联。这篇综述总结了2008年至2023年发表的涉及种族/族裔少数群体的共同使用EMA研究,并指出了差距。我们的评论涉及:1)使用一种物质是否会导致另一种物质的替代或补充使用,2)前身/背景是否因共同使用模式和少数群体地位而有所不同,和3)共同使用的后果在共同使用模式或少数群体地位中得到了记录。
    方法:搜索结果产生了465篇文章,33符合纳入标准。我们提取了研究水平的特征并综合了研究结果。
    结果:研究结果主要集中在共同使用模式上,共同使用的类别,近端前身和背景,和后果。很少检查少数民族地位的差异;很少检查可能有助于种族/少数民族成年人共同使用的独特经历的严重影响。
    结论:关于联合使用的EMA文献近年来正在兴起,并支持互补假设。有必要进行更多的研究,以捕获有关经验的时间密集型数据,以将种族/族裔多样性更大的种族/族裔少数群体之间的共同使用背景化。
    BACKGROUND: Co-use of nicotine, alcohol and/or cannabis is common among adults in the United States. Co-use may represent greater addiction severity than single substance use. Recent studies have examined the extent to which the frequency, order, simultaneity, motivations, and contextual factors associated with co-use differ from that of single use. Co-use has become prevalent among racial/ethnic minority individuals who exhibit distinct co-use patterns and related outcomes; however, most of these studies rely on cross-sectional or sparse longitudinal observations. Ecological momentary assessment (EMA) can illuminate such patterns and associations with time-varying contexts. This review summarizes EMA studies on co-use published from 2008 to 2023 involving racial/ethnic minority individuals and point to gaps. Our review addresses: 1) whether use of one substance leads to substitution or complementary use of another, 2) whether antecedents/contexts differ by co-use patterns and minority status, and 3) what consequences of co-use have been documented across co-use patterns or minority status.
    METHODS: Search results yielded 465 articles, with 33 meeting inclusion criteria. We extracted study-level characteristics and synthesized the findings.
    RESULTS: The findings largely focused on co-use patterns, categories of co-use, proximal antecedents and contexts, and consequences. Variations by minority status were rarely examined; few examined acute effects of unique experiences that may contribute to co-use among racial/ethnic minority adults.
    CONCLUSIONS: The EMA literature on co-use is burgeoning in recent years and supports complementary hypothesis. More research to capture time-intensive data on experiences to contextualize the co-use among racial/ethnic minority groups with greater diversity in race/ethnicity is warranted.
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  • 文章类型: Systematic Review
    对降低痴呆风险和早期发现阿尔茨海默病和相关疾病的认识提高了对痴呆风险识别的兴趣,潜在的推定生物学,或者痴呆症本身。实施这些方法需要公众的接受。2012年之前的研究表明,人群痴呆筛查的可接受性有限。痴呆症预防研究的变化可能会影响最近的看法。此外,来自服务不足的人群的观点,如少数民族和低社会经济群体,缺乏。
    在这篇系统综述中,我们寻求自2012年以来发表的关于痴呆症患者态度和偏好的研究,照顾者和来自少数民族和低社会经济群体的公众对痴呆症筛查。
    此评论已在PROSPERO(CRD42023384115)上进行了预注册,并遵循了PRISMA指南。关键搜索项被输入到五个数据库中。如果文章侧重于人群或通过基于初级/社区护理的评估进行痴呆症的风险筛查,其中包括多数少数民族或低社会经济群体,或在数据分析中离散地考虑了这些群体。数据是叙述式合成的。
    七项研究报道了少数民族对痴呆症筛查的看法;一项研究包括来自低社会经济群体的人。结果表明,来自少数民族的参与者愿意接受痴呆症筛查。意愿的预测因素包括对福利的信念,渴望促进多样性,并实施生活方式的改变。不愿意与对结果的焦虑有关。
    尽管在研究组中似乎对筛查具有很高的可接受性,需要更多的研究来探索诸如文化和经济障碍之类的筛查的实际考虑因素,信任,和筛查后的行动。
    UNASSIGNED: Increased understanding of dementia risk-reduction and early detection of Alzheimer\'s disease and related disorders has spurred interest in the identification of risks for dementia, underlying putative biologies, or dementia itself. Implementation of such approaches require acceptability to the public. Research prior to 2012 indicated limited acceptability for population dementia screening. The changing landscape of dementia prevention research may influence recent perceptions. Additionally, perspectives from underserved populations, such as ethnic minorities and low socio-economic groups, are lacking.
    UNASSIGNED: In this systematic review, we sought published studies since 2012 on attitudes and preferences of people with dementia, carers and the general public from ethnic minorities and low socio-economic groups regarding dementia screening.
    UNASSIGNED: This review was preregistered on PROSPERO (CRD42023384115) and followed PRISMA guidelines. Key search terms were entered into five databases. Articles were included if they focused on population or risk screening for dementia via primary/community care-based assessments, and which included majority ethnic minority or low socio-economic groups or discretely considered these groups in data analysis. Data were synthesized narratively.
    UNASSIGNED: Seven studies reported perspectives of ethnic minorities regarding dementia screening; one study included people from low socio-economic groups. Results indicated that participants from ethnic minorities were willing to undergo dementia screening. Predictors of willingness included belief in benefits, desire to boost diversity, and to implement lifestyle changes. Unwillingness was associated with anxiety regarding results.
    UNASSIGNED: Although there seems to be high acceptability for screening in the studied groups, more research is necessary to explore the practical considerations for screening such as cultural and economic barriers, trust, and post-screening actions.
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