背景:18-30岁的新兴成年人在人生转型中面临挑战,增加了医疗保健系统的导航负担和与糖尿病相关的额外费用。这一人群的健康保险识字率总体较低,加剧了这种压力,因为人们可能不知道可用的财务和医疗保健资源来最大程度地减少次优糖尿病结局。这项研究旨在为1型糖尿病的新兴成年人量身定制金融和健康保险工具包。包括种族,种族多样化,和医疗补助保险的个人,通过基于社区的参与行动研究。
方法:来自国家组织的学术研究团队和社区成员举行了六次在线社区咨询委员会(CAB)内容创建会议,以了解如何定制金融和健康保险工具包。CAB由六名种族和保险多样化的1型糖尿病新兴成年人和四名内容专家(临床,金融,和保险)。通过大学医院(UH)加密的Zoom在五个月内举行了六次60分钟的在线CAB会议。会议之前,已将预读材料通过电子邮件发送给CAB成员。主持人确定了每次会议的目的,并在每次会议开始之前简要讨论了会议规则。会议期间,主持人指导了讨论,并为CAB成员提供了回应和建立彼此反馈的机会。采用演绎主题定性分析。三名研究人员独立地对交叉引用和去识别的CAB会议笔录进行编码,然后召集小组达成共识。两名CAB成员执行成员检查。
结果:出现了以下关键主题来定制工具包:确保内容涵盖授权和自我宣传,包括真实的故事和美学的多媒体视觉效果,解决临床医生的偏见,承认护理方面的种族和族裔差异,融入文化代表性,揭开医疗补助的污名。
结论:通过基于社区的参与行动研究方法,与CAB和社区组织成功合作,我们将开发一个金融和健康保险工具包,以适应种族和种族多样化和医疗补助保险的1型糖尿病新兴成年人的需求。
目的:本研究旨在为新兴成年人量身定制金融和健康保险工具包,年龄18-30岁,患有1型糖尿病。在开发工具包时,包括种族和种族多样化和医疗补助保险的个人的洞察力至关重要。
■患有1型糖尿病的新兴成年人面临着压力很大的挑战,例如导航医疗保健系统,糖尿病的成本,和一般的糖尿病自我管理。这种压力因健康保险知识水平低而恶化,并导致糖尿病结局不佳。这个问题会影响许多人,但会极大地影响那些种族和种族多样化或医疗补助保险的人。
■举行了六次在线内容创建会议,以了解Toolkit的内容需求和偏好。我们分析了会议记录,以发现共同的主题。患者和公众参与:一个学术研究团队,一个全国性组织(糖尿病链接),与社区顾问委员会(CAB)合作。CAB成员是种族和保险多样化的新兴成年人,患有1型糖尿病和内容(金融,保险,临床糖尿病)专家。我们将继续与CAB成员合作开发研究协议,以测试工具包的效果。
结果:研究结果将与年轻的1型糖尿病患者分享,医疗保健提供者,以及社区和专业组织。传播策略将包括出版物,社区和科学会议演讲,社区活动,以及社交媒体资源和内容。最终的工具包将在糖尿病链接资源中心公开提供。
BACKGROUND: Emerging adults aged 18-30 years face challenges during life transitions, with an added burden of navigating the health care system and additional costs associated with diabetes. This stress is compounded by overall low levels of health insurance literacy in this population, as people may not know about available financial and health care resources to minimize suboptimal diabetes outcomes. This study aimed to tailor a financial and health insurance toolkit to emerging adults with type 1 diabetes, including racially, ethnically diverse, and Medicaid-insured individuals, through community-based participatory action research.
METHODS: An academic research team and community members from a national organization held six online community advisory board (CAB) content-creation meetings to understand how to tailor a financial and health insurance Toolkit. The CAB was comprised of six racially and insurance-diverse emerging adults with type 1 diabetes and four content experts (clinical, financial, and insurance). Six 60-minute online CAB meetings were held via University Hospitals (UH)-encrypted Zoom over five months. Pre-reading materials were emailed to CAB members before the meetings. A moderator established the purpose of each meeting and briefly discussed meeting rules before each meeting commenced. During the meetings, the moderator guided the discussions and provided the CAB members opportunities to respond and build on one another\'s feedback. A deductive thematic qualitative analysis was utilized. Three researchers independently coded the cross-referenced and de-identified CAB meeting transcripts and then convened to reach a group consensus. Two CAB members performed member-checking.
RESULTS: The following key themes emerged to tailor the Toolkit: ensuring that content covers empowerment and self-advocacy, including genuine stories and multimedia visuals for aesthetics, addressing clinician bias, acknowledging racial and ethnic disparities in care, incorporating cultural representation, and demystifying Medicaid stigma.
CONCLUSIONS: By successfully partnering with the CAB and a community organization through a community-based participatory action research approach, we will develop a financial and health insurance Toolkit tailored to the needs of racially and ethnically diverse and Medicaid-insured emerging adults with type 1 diabetes.
OBJECTIVE: This study aims to tailor a financial and health insurance Toolkit to emerging adults, ages 18–30, with type 1 diabetes. Including the insight from racially and ethnically diverse and Medicaid-insured individuals in developing the Toolkit is essential.
UNASSIGNED: Emerging adults with type 1 diabetes have stressful challenges such as navigating the healthcare system, the costs of diabetes, and general diabetes self-management. This stress is worsened by low levels of health insurance literacy and leads to suboptimal diabetes outcomes. This issue affects many individuals but dramatically impacts those who are racially and ethnically diverse or Medicaid-insured.
UNASSIGNED: Six online content-creation meetings were held to understand the Toolkit content needs and preferences. We analyzed the meeting transcripts to uncover common themes. Patient and public involvement: An academic research team, a national organization (The Diabetes Link), and a Community Advisory Board (CAB) partnered together. The CAB members were racially and insurance-diverse emerging adults with type 1 diabetes and content (financial, insurance, clinical diabetes) experts. We will continue to collaborate with the CAB members to develop a research protocol to test the effects of the Toolkit.
RESULTS: The research findings will be shared with young adult type 1 diabetes stakeholders, healthcare providers, and community and professional organizations. Dissemination strategies will include publications, community and scientific conference presentations, community events, and social media resources and content. The finalized Toolkit will be publicly available on the Diabetes Link Resource Hub.