community‐engaged research

社区参与研究
  • 文章类型: Journal Article
    黑人妇女在阿尔茨海默病和相关痴呆(ADRD)的研究中的代表性严重不足,尽管ADRD诊断率高于非西班牙裔白人妇女。代表性不足的原因有很多,包括医学上的不信任,有限的临床研究,和限制性研究纳入标准。在研究开发过程中通常不考虑这些普遍的研究参与障碍,如果最终想到的往往是在事实之后。社区参与研究(CER)方法是减少参与障碍的有效方法。本文介绍了如何使用CER方法来开发黑人女性炎症和Tau研究(BWITS),一项旨在确定黑人女性ADRD的生物心理社会危险因素的前瞻性研究。这里讨论的未来ADRD研究在不同人群中的指导方针是由基于社区的参与研究(CBPR)提供的,国家少数民族健康和健康差距研究所(NIMHD),和以患者为中心的结果研究所(PCORI)。重点:了解与医疗实践和研究设计相关的历史悲剧,这些悲剧可能导致美国黑人在今天的研究中代表性不足。强调社区参与的研究方法,可有效减少少数群体的参与障碍。回顾基于社区的参与式研究,国家少数民族健康和健康差异研究所,和以患者为中心的结果研究所指导与小型社区进行研究。描述使用三个框架来告知黑人女性炎症和Tau研究的研究开发方案。最后通过提供研究设计考虑因素,我们希望这些考虑因素可以成为其他人与小型社区进行研究的有用起点。
    Black women are sorely underrepresented in studies of Alzheimer\'s disease and related dementias (ADRD) despite higher rates of ADRD diagnoses than in non-Hispanic White women. There are many reasons for underrepresentation, including medical mistrust, limited access to clinical studies, and restrictive study inclusion criteria. These pervasive barriers to research participation are often not considered during study development and, if eventually thought of tend to be after the fact. Community-engaged research (CER) approaches are an effective method for reducing participation barriers. This article describes how CER approaches were used to develop the Black Women Inflammation and Tau Study (BWITS), a prospective study to identify biopsychosocial risk factors for ADRD in Black women. Guidelines discussed here for future ADRD research in diverse populations are informed by Community-Based Participatory Research (CBPR), the National Institute on Minority Health and Health Disparities (NIMHD), and the Patient-Centered Outcomes Research Institute (PCORI). HIGHLIGHTS: Understand the historical tragedies related to medical practices and research designs that may contribute to the underrepresentation of Black Americans in research studies today. Highlight community-engaged research approaches that effectively reduce participation barriers in minoritized groups. Review Community-Based Participatory Research, National Institute of Minority Health and Health Disparities, and the Patient-Centered Outcomes Research Institute guidelines for conducting research with minoritized communities. Describe using the three frameworks to inform the study development protocol for the Black Women Inflammation and Tau Study. Conclude by offering study design considerations that we hope can be a helpful starting point for others conducting research with minoritized communities.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

    求助全文

  • 文章类型: Journal Article
    目的:食物不安全与进食障碍精神病理学有关。该焦点描述了为什么食品储藏室可以成为传播和实施饮食失调干预措施的有希望的合作伙伴。
    方法:研究人员越来越多地与社区组织合作,以改善获得健康干预措施的机会。因为以社区为基础的组织通过物理嵌入他们所服务的社区来克服传统医疗保健的结构性障碍,方便参观,经常光顾,由值得信赖的社区成员领导。
    结果:我们描述了我们与合作伙伴确定的策略,以传播和实施我们对暴饮暴食的数字干预措施;我们还讨论了我们如何支持食品储藏室的需求,以改善伙伴关系的相互关系。
    结论:与食品储藏室合作的潜在好处使这一领域有待进一步探索。未来的研究方向包括深入参与食品储藏室,以确定储藏室如何从传播和实施饮食失调干预措施中受益,以及如何以非污名化的方式进行干预,他们需要什么资源来可持续地支持这些努力,客人愿意并能够参与哪些饮食失调干预模式,需要什么样的干预适应,这样有食物不安全的人就可以有意义地参与饮食失调干预,以及哪些实施战略有助于随着时间的推移可持续地采取干预措施。
    OBJECTIVE: Food insecurity is associated with eating disorder psychopathology. This Spotlight describes why food pantries could be promising partners for disseminating and implementing eating disorder interventions.
    METHODS: Researchers are increasingly collaborating with community-based organizations to improve access to health interventions, because community-based organizations overcome structural barriers to traditional healthcare by being embedded physically in the communities they serve, convenient to visit, regularly frequented, and led by trusted community members.
    RESULTS: We describe strategies we have identified with our partner to disseminate and implement our digital intervention for binge eating; we also discuss ways we support the pantry\'s needs to improve the mutuality of the partnership.
    CONCLUSIONS: The potential benefits of partnerships with food pantries make this an area to explore further. Future research directions include deeply engaging with food pantries to determine how pantries benefit from disseminating and implementing eating disorder interventions and how to intervene in non-stigmatizing ways, what resources they need to sustainably support these efforts, what eating disorder intervention modalities guests are willing and able to engage with, what intervention adaptations are needed so individuals with food insecurity can meaningfully engage in eating disorder intervention, and what implementation strategies facilitate uptake to intervention sustainably over time.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

    求助全文

  • 文章类型: Journal Article
    社区咨询委员会(CAB)和研究人员伙伴关系为加快代表性不足群体(URG)的入学提供了一个有希望的机会。我们概述了CAB和印第安纳州阿尔茨海默病研究中心(IADRC)的研究人员如何合作以加速URG参与AD神经影像学研究的框架。
    CAB和IADRC研究人员合作,通过社区和研究互动来增加CAB对URG研究注册的影响。社区互动包括CAB合作建立一个以URG为重点的社区组织网络,并与这些以URG为重点的组织合作主办IADRC外联和招聘活动。研究互动包括直接影响(CAB成员将自己或密切接触者称为参与者)和战略影响,主要由CAB与研究人员合作,为IADRC和附属研究制定和完善以URG为重点的外展和招聘策略,以增加URG的代表性。我们创建了一个数据库基础设施来衡量这些相互作用如何影响URG研究注册。
    在2019年10月至2022年12月期间向IADRC进行的354个URG研究推荐中,有267个推荐由CAB(N=36)或CAB成员在(N=231)组织和/或自愿参加的社区活动直接推荐。在这267次推荐中,34人参加IADRC,2人参加印第安纳大学纵向早发AD研究(IULEADS)。值得注意的是,两项研究都要求前瞻性参与者愿意进行MRI和PET扫描.截至2022年12月,34名参与者中有30人获得了共识诊断;大多数人认知正常(64.7%)。其余患者有轻度认知障碍(17.6%)或早期AD(2.9%)。
    IADRCCAB-研究者合作对AD神经影像学研究中的非裔美国人/黑人成年人的入学人数产生了可衡量的影响。未来的研究将需要测试此概念模型是否适用于其他站点和其他URG。
    UNASSIGNED: Community advisory boards (CABs) and researcher partnerships present a promising opportunity to accelerate enrollment of underrepresented groups (URGs). We outline the framework for how the CAB and researchers at the Indiana Alzheimer\'s Disease Research Center (IADRC) partnered to accelerate URG participation in AD neuroimaging research.
    UNASSIGNED: CAB and the IADRC researchers partnered to increase the CAB\'s impact on URG study enrollment through community and research interactions. Community interactions included the CAB collaboratively building a network of URG focused community organizations and collaborating with those URG-focused organizations to host IADRC outreach and recruitment events. Research interactions included direct impact (CAB members referring themselves or close contacts as participants) and strategic impact, mainly by the CAB working with researchers to develop and refine URG focused outreach and recruitment strategies for IADRC and affiliated studies to increase URG representation. We created a database infrastructure to measure how these interactions impacted URG study enrollment.
    UNASSIGNED: Out of the 354 URG research referrals made to the IADRC between October 2019 and December 2022, 267 referrals were directly referred by the CAB (N = 36) or from community events in which CAB members organized and/or volunteered at (N = 231). Out of these 267 referrals, 34 were enrolled in IADRC and 2 were enrolled in Indiana University Longitudinal Early Onset AD Study (IU LEADS). Of note, both studies require the prospective participants to be willing to do MRI and PET scans. As of December 2022, 30 out of the 34 enrolled participants have received a consensus diagnosis; the majority were cognitively normal (64.7%), with the remainder having mild cognitive impairment (17.6%) or early-stage AD (2.9%).
    UNASSIGNED: The IADRC CAB-researcher partnership had a measurable impact on the enrollment of African American/Black adults in AD neuroimaging studies. Future studies will need to test whether this conceptual model works for other sites and for other URGs.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Pubmed)

  • 文章类型: Journal Article
    城市农业正在成为改善美国城市粮食安全和公共卫生的一种方法。然而,通过与污染土壤的相互作用,存在暴露于重金属和类金属(HMM)的风险增加。社区参与研究(CEnR)是一种在研究土壤中的HMM等暴露时可以促进所有合作伙伴参与的方法。研究人员和社区园丁共同设计了这项研究来测量铅(Pb)的浓度,使用X射线荧光(XRF)对来自亚特兰大西区19个城市农业和居民点以及佐治亚州3个农村地区的土壤进行了电感耦合等离子体质谱(ICP-MS)验证。测量了其他17个HMM,但不包括在本研究中,因为它们不会对社区构成与铅水平升高相当的风险。将铅浓度与环境保护局(EPA)的住宅土壤区域筛选水平(RSL)和乔治亚大学(UGA)推广服务的农业低风险水平(LRL)进行了比较。来自大多数地点的土壤中铅的水平低于EPARSL,但高于UGALRL。然而,在某些含有金属精炼废物或炉渣的地点,土壤Pb浓度比EPARSL高三倍。我们的发现导致地方和联邦政府机构采取直接行动,开始清除炉渣残留物。涉及社区暴露的研究应在整个过程中吸引受影响的人,以产生最大影响。
    Urban agriculture is emerging as a method to improve food security and public health in cities across the United States. However, an increased risk of exposure to heavy metals and metalloids (HMM) exists through interaction with contaminated soil. Community-engaged research (CEnR) is one method that can promote the inclusion of all partners when studying exposures such as HMM in soil. Researchers and community gardeners co-designed this study to measure the concentrations of lead (Pb), using X-Ray Fluorescence (XRF) verified with Inductively Coupled Plasma-Mass Spectrometry (ICP-MS) in soils from 19 urban agricultural and residential sites in the Westside of Atlanta and three rural sites in Georgia. Seventeen other HMM were measured but not included in this study, because they did not pose risks to the community comparable to elevated Pb levels. Pb concentrations were compared to the Environmental Protection Agency (EPA)\'s regional screening levels (RSLs) for residential soil and the University of Georgia (UGA) extension service\'s low-risk levels (LRLs) for agriculture. Soils from the majority of sites had levels below EPA RSLs for Pb, yet above the UGA LRL. However, soil Pb concentrations were three times higher than the EPA RSL on some sites that contained metal refining waste or slag. Our findings led to direct action by local and federal government agencies to initiate the cleanup of slag residue. Studies involving exposures to communities should engage those affected throughout the process for maximum impact.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Pubmed)

  • 文章类型: Journal Article
    社论重点介绍了2021年6月14日至16日举行的虚拟GeoHealth研讨会中的四个主要主题。该研讨会的主题包括饮用水和慢性化学品暴露,环境不公正,公共卫生和饮用水政策,和命运,运输,以及水污染物在气候变化背景下对人类的影响。研讨会的目的是进一步界定GeoHealth领域。该讲习班强调了推动人类健康的化学毒物。研讨会提出的主要行动呼吁包括加强社区参与,倡导公平和正义,培养下一代。
    The editorial focuses on four major themes contextualized in a virtual GeoHealth workshop that occurred from June 14 to 16, 2021. Topics in that workshop included drinking water and chronic chemical exposure, environmental injustice, public health and drinking water policy, and the fate, transport, and human impact of aqueous contaminants in the context of climate change. The intent of the workshop was to further define the field of GeoHealth. This workshop emphasized on chemical toxicants that drive human health. The major calls for action emerged from the workshop include enhancing community engagement, advocating for equity and justice, and training the next generation.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Pubmed)

  • 文章类型: Journal Article
    GeoHealth as a research paradigm offers the opportunity to re-evaluate common research engagement models and science training practices. GeoHealth challenges are often wicked problems that require both transdisciplinary approaches and the establishment of intimate and long-term partnerships with a range of community members. We examine four common modes of community engagement and explore how research projects are launched, who has the power in these relationships, and how projects evolve to become truly transformative for everyone involved.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Pubmed)

公众号