背景:健康研究中的共同设计涉及患者和公众在干预或服务设计中的参与和参与(PPIE)。传统上,共同设计是亲自进行的;然而,探索在线交付是有保证的。共同设计中的PPIE必须仔细考虑,和假设的人的方法将自动过渡到在线环境应该避免。目前,缺乏有证据的方法来促进在线共同设计。这项研究旨在开发和评估一个框架,使健康研究共同设计真正适应在线环境。
方法:最初的框架是通过文献综述开发的,亲自共同设计原则的综合,以及在线策略的一致性。然后将该框架应用于一个共同设计项目,该项目有10名参与者来自相关的PPIE组(最终用户[n=4],临床医生[n=2],教练[n=2]和临床医生-研究人员[n=2])。通过使用调查和半结构化访谈的混合方法设计,评估了参与者在在线共同设计过程中的经验。使用描述性统计和反身性专题分析对评估数据进行了分析,以为修订后的框架提供信息。
结果:开发的框架,以伙伴关系为中心的原则驱动的在线共同设计(P-POD)用于设计八个90分钟的在线共同设计研讨会。评估数据涉及46份调查答复,八名参与者就项目完成情况接受了采访。调查数据表明,这一过程令人满意,参与并遵守P-POD框架。来自采访数据的主题描述了一种尊重和协作的在线文化,重视健康辩论的不同观点和空间,权力如何被认为是共享的,但不是平等的,以及过程内外对成功的多重定义。最后,提出了改进的P-POD框架。
结论:通过对初始P-POD框架的评估,显示出遵守共同设计原则的证据,项目和参与者的积极参与者经验和目标成就,可以在未来的干预或服务设计中使用和评估完善的P-POD框架。
■这项研究涉及参与者(最终用户,临床医生和服务提供商)在描述的共同设计过程中,通过成员检查访谈回复来解释结果,协助开发最终框架,并作为本手稿的合著者。
BACKGROUND: Co-design in health research involves patient and public involvement and engagement (PPIE) in intervention or service design. Traditionally, co-design is undertaken in-person; however, exploring online delivery is warranted. PPIE in co-design must be considered carefully, and assumptions that in-person approaches will transition automatically to an online environment should be avoided. Currently, there are a lack of evidence-informed approaches to facilitating co-design online. This study aimed to develop and evaluate a framework for authentically adapting health research co-design into an online environment.
METHODS: The initial framework was developed through a literature review, synthesis of in-person co-design principles, and alignment of online strategies. The framework was then applied to a co-design project with 10 participants across relevant PPIE groups (end-users [n = 4], clinicians [n = 2], coaches [n = 2] and clinician-researchers [n = 2]). Participants\' experiences of the online co-design process were evaluated via a mixed-methods design using surveys and semi-structured interviews. Evaluation data were analysed using descriptive statistics and reflexive thematic analysis to inform a revised framework.
RESULTS: The developed framework, Partnership-focussed Principles-driven Online co-Design (P-POD) was used to design eight 90 min online co-design workshops. Evaluation data involved 46 survey responses, and eight participants were interviewed on project completion. Survey data indicated that the process was satisfying, engaging and adhered to the P-POD framework. Themes derived from interview data describe a respectful and collaborative online culture, valuing of diverse perspectives and space for healthy debate, how power was perceived as being shared but not equal and multiple definitions of success within and beyond the process. A final, refined P-POD framework is presented.
CONCLUSIONS: With evaluation of the initial P-POD framework showing evidence of adherence to co-design principles, positive participant experiences and goal achievement for both the project and the participants, the refined P-POD framework may be used and evaluated within future intervention or service design.
UNASSIGNED: This study involved the participants (end-users, clinicians and service providers) in the co-design process described, interpretation of the results through member-checking interview responses, assisting in development of the final framework and as co-authors for this manuscript.