背景:基于经验的协同设计(EBCD)是参与式质量改进的宝贵工具。然而,EBCD流程需要调整,使其适合长期护理。改善过程的重点需要转移到护理关系上,因为这是这些环境中护理质量的重要组成部分。此外,需要使脆弱人群更容易获得EBCD进程。
方法:通过参与式研究方法,EBCD调整为长期护理。这项研究是在两个护理组织中进行的:一个支持患有严重精神疾病和智力障碍者的独立生活,另一个为老年人提供家庭护理服务。
结果:参与式研究导致了“问我们!”的发展。该研究还为弱势客户的参与性项目提供了宝贵的经验教训。长期护理参与性研究的一个常见问题是确保客户和非正式护理人员的参与。我们报告了各种策略,包括各种服务用户的体验,例如将访谈与参与者观察相结合,照片-声音和涉及专家的经验,作为合作人种学家。与一家包容性戏剧公司密切合作,这些经历被翻译成42个短视频,从客户的角度讲述护理关系中的复杂情况,专业人员或非正式护理人员。这些视频引发了批判性反思,并加速了参与式质量改进过程。此外,开发了实用工具来克服残疾人参与方面的障碍。这些措施包括使用照片启发来使残疾客户参与异质小组讨论,并让专家根据经验作为代理分享客户的经验,这些客户的经验仍然无法参与“询问我们”方法。
结论:强大的参与过程的结果,“问我们!”是长期护理中参与性质量改进的一种有前途的方法。该研究还为弱势群体参与参与性研究和共同设计提供了经验教训。
未经评估:客户作为线人参与,在面试中分享他们与护理关系的经验,语音和观察。他们还作为顾问参与其中,帮助在数据验证会话期间分析电影脚本的输入。
BACKGROUND: Experience-based codesign (EBCD) is a valuable tool for participatory quality improvement. However, the EBCD process needs to be adjusted to make it suitable for long-term care. The focus of the improvement process needs to shift to the care relationship, as this is an important part of the quality of care in these settings. Furthermore, the EBCD process needs to be made more accessible to vulnerable populations.
METHODS: Through a participatory research approach, EBCD was adjusted to long-term care. The research was conducted in two care organisations: one supporting people with serious mental illness and intellectual disabilities in independent living and one providing homecare services for older persons.
RESULTS: The participatory research resulted in the development of \'Ask us!\'-a method for critical reflective codesign. The research furthermore provided valuable lessons for participatory projects with vulnerable clients. A common problem with participatory research in long-term care is ensuring the involvement of clients and informal carers. We report on various strategies developed to include experiences of a diverse set of services users, such as combining interviews with participant observation, photo-voice and involving experts-by-experiences as co-ethnographers. In close collaboration with an inclusive theatre company, these experiences were translated into 42 short videos on complex situations in the care relationship from the perspective of clients, professionals or informal carers. These videos instigate critical reflection and accelerate the participatory quality improvement process. Moreover, practical tools were developed to overcome barriers regarding the involvement of people with disabilities. These include the use of photo-elicitation to enable participation of clients with disabilities in heterogeneous group discussions and involving experts-by-experience as proxies to share experiences of clients for whom participation in the \'Ask us\' method remains inaccessible.
CONCLUSIONS: The result of a robust participatory process, \'Ask us!\' is a promising method for participatory quality improvement in long-term care. The research furthermore generated lessons for involving vulnerable populations in participatory research and codesign.
UNASSIGNED: Clients were involved as informants, sharing their experiences with the care relationship in interviews, photovoice and observations. They were also involved as consultants, helping to analyse input for the film scripts during data validation sessions.