背景:痴呆症的护理是一个动态的多维过程。为了全面了解痴呆症患者的非正式护理(PLWD),评估非正式护理人员的生活质量(QoL)至关重要。
目的:评估护理接受者关系类型是否可以预测PLWD非正式护理人员在两年期间的QoL变化。
方法:这是对纵向数据的二次分析。数据来自国家健康与老龄化趋势研究(NHATS)和国家护理研究(NSOC)的两波相关数据(2015:NHATSR5&NSOCII;2017:NHATSR7&NSOCIII)。照顾者分为配偶,成年子女,\"其他\"看护者和\"多个\"看护者。通过负面情绪负担(NEB)评估QoL,积极的情感利益和社会压力(SS)。广义估计方程模型用于检查不同类型关系的护理人员QoL结果随时间的变化。
结果:关于,包括与601PLWD相关的882名护理人员。在调整护理人员的社会人口统计学后,“其他”照顾者的NEB和SS风险低于配偶照顾者(OR=0.34,P=0.003,95CI[0.17,0.70];OR=0.37,P=0.019,95CI0.16,0.85],分别),和PLWD的痴呆状态不会改变这些显著性(OR=0.33,P=0.003,95CI[0.16,0.68];OR=0.31,P=0.005,95CI[0.14,0.71],分别)。
结论:研究表明,随着时间的推移,配偶照顾者面临更高的NEB和SS风险,强调迫切需要为PLWD的非正式护理人员提供无障碍和有效的支持,尤其是照顾配偶的人.
BACKGROUND: Dementia caregiving is a dynamic and multidimensional process. To gain a comprehensive understanding of informal caregiving for people living with dementia (PLWD), it is pivotal to assess the quality of life (QoL) of informal caregivers.
OBJECTIVE: To evaluate whether the care-recipient relationship type predicts changes in the QoL of informal caregivers of PLWD over a two-year period.
METHODS: This was a secondary analysis of longitudinal data. The data were drawn from two waves of linked data from the National Health and Aging Trends Study (NHATS) and the National Study of Caregiving (NSOC) (2015: NHATS R5 & NSOC II; 2017: NHATS R7 & NSOC III). Caregivers were categorized into spousal, adult-child, \"other\" caregiver and \"multiple\" caregivers. QoL was assessed through negative emotional burden (NEB), positive emotional benefits and social strain (SS). Generalized estimating equation modelling was used to examine changes in caregivers\' QoL outcomes across types of relationship over time.
RESULTS: About, 882 caregivers were included who linked to 601 PLWD. After adjusting caregivers\' socio-demographics, \"other\" caregivers had lower risk of NEB and SS than spousal caregivers (OR = 0.34, P = 0.003, 95%CI [0.17, 0.70]; OR = 0.37, P = 0.019, 95%CI 0.16, 0.85], respectively), and PLWD\'s dementia status would not change these significance (OR = 0.33, P = 0.003, 95%CI [0.16, 0.68]; OR = 0.31, P = 0.005, 95%CI [0.14, 0.71], respectively).
CONCLUSIONS: The study demonstrates that spousal caregivers face a higher risk of NEB and SS over time, underscoring the pressing need to offer accessible and effective support for informal caregivers of PLWD, especially those caring for their spouses.