背景:中风是一种普遍的神经系统疾病,对女性的身体有深远的影响,社会心理,和精神福祉。在许多情况下,卒中女性可能有边缘化的姑息治疗需求,而医疗服务提供者往往无法充分满足这些需求.不幸的是,在约旦进行的研究中,中风女性的经验及其特定的姑息治疗需求在很大程度上被忽视.
目的:本研究的目的是检查患有中风且目前居住在约旦的女性的特定姑息治疗需求。通过进行这项研究,我们的目标是识别各种物理,情感,社会,以及中风妇女的精神需求,并更好地了解如何通过姑息治疗干预来解决这些需求。
方法:本研究采用现象学描述性研究方法,探讨从康复中心门诊招募的12名妇女的经验。数据是通过半结构化访谈收集的。分析使用Colaizzi(1978)的方法进行,这涉及识别重要的陈述,提取含义,并对所研究的现象进行详尽的描述。
结果:研究结果揭示了三个主要主题,这些主题反映了约旦目前患有中风的女性的姑息治疗需求。包括(1)精神实践,信仰,和需求;(2)应对令人痛苦的症状;(3)管理不利消息的传递。
结论:这项研究为约旦妇女中风患者的经历提供了宝贵的见解,强调这种状况对他们生活各个方面的深远影响。研究结果表明,中风对女性的身体有显著影响,情感,社会,和精神上的幸福,许多人面临着未满足的姑息治疗需求。通过阐明这些挑战,我们的研究强调了采取整体方法治疗中风患者的重要性,以满足中风患者的多方面需求.医疗保健提供者必须考虑这些发现,并将姑息治疗干预措施纳入治疗计划,以改善约旦中风妇女的生活质量。
结论:这项研究提供了对中风女性姑息治疗需求的宝贵见解。我们的发现强调了解决女性身体问题的重要性,社会心理,和精神需求作为中风护理综合方法的一部分。我们建议将姑息治疗干预措施纳入康复计划,以改善约旦中风妇女的生活质量。通过这样做,我们可以解决中风引起的疼痛和并发症,同时还提供整体支持,以解决疾病的情感和精神影响。这种方法有可能改善中风妇女的预后并提高她们的整体健康状况。
BACKGROUND: Stroke is a prevalent neurological disease that can have a profound impact on women\'s physical, psychosocial, and spiritual well-being. In many cases, women living with stroke may have marginalized palliative care needs that are often not adequately addressed by healthcare providers. Unfortunately, the experience of women with stroke and their specific palliative care needs have been largely overlooked in research conducted in Jordan.
OBJECTIVE: The purpose of this study is to examine the specific palliative care needs of women who have experienced a stroke and are currently living in Jordan. By conducting this research, we aim to identify the various physical, emotional, social, and spiritual needs of women with stroke and gain a better understanding of how these needs can be addressed through palliative care interventions.
METHODS: This research utilized a phenomenological descriptive study approach to explore the experiences of twelve women recruited from the outpatient clinic of rehabilitation centers. The data was collected through semi-structured interviews. The analysis was conducted using the method of Colaizzi (1978), which involves identifying significant statements, extracting meanings, and formulating an exhaustive description of the phenomenon under study.
RESULTS: The study findings uncovered three primary themes that reflect the palliative care needs of women who are currently living with stroke in Jordan, including (1) Spiritual practices, beliefs, and needs; (2) Coping with distressing symptoms; and (3) Managing the delivery of unfavorable news.
CONCLUSIONS: This study provides valuable insights into the experiences of Jordanian women living with stroke, highlighting the far-reaching consequences of this condition on various aspects of their lives. The findings reveal that stroke has a significant impact on women\'s physical, emotional, social, and spiritual well-being, with many facing unmet palliative care needs. By illuminating these challenges, our study underscores the importance of taking a holistic approach to stroke care that addresses the multifaceted needs of women living with stroke. Healthcare providers must consider these findings and integrate palliative care interventions into treatment plans to improve the quality of life of women living with stroke in Jordan.
CONCLUSIONS: This study provides valuable insights into the palliative care needs of women who have experienced a stroke. Our findings highlight the importance of addressing women\'s physical, psychosocial, and spiritual needs as part of a comprehensive approach to stroke care. We recommend integrating palliative care interventions into rehabilitation programs to improve the quality of life of women living with stroke in Jordan. By doing so, we can address the pain and complications that can arise from stroke, while also providing holistic support to address the emotional and spiritual impact of the illness. This approach has the potential to improve outcomes for women living with stroke and enhance their overall well-being.