Specialty palliative care

专业姑息治疗
  • 文章类型: Journal Article
    临床医生的困扰在严重疾病护理中很常见。对于主要团队中涉及重大痛苦的病例,通常会咨询姑息专家。当感觉(1)姑息治疗专家没有合适的技能来提供帮助或(2)姑息治疗专家被要求“修复”困难情况需要改变其他人的态度时,信仰,或行为,或者医疗保健系统很大。本文使用三个复合案例来说明临床医生的痛苦类型,并检查姑息性专科医师参与的益处和风险。最后,我们讨论了姑息治疗咨询对姑息治疗领域的临床医生困扰的潜在影响,并考虑了在护理患者时支持和维持整个劳动力的重要努力的下一步步骤-无论是姑息专家还是非专业专家-患有严重疾病及其家庭护理人员。
    Clinician distress is common in serious illness care. Palliative specialists are often consulted for cases involving significant distress among primary teams. Consults involving clinician distress can be challenging to navigate when it feels like 1) palliative specialists do not have the right skills to be helpful or 2) palliative specialists are being asked to \'fix\' difficult situations that would require changing other people\'s attitudes, beliefs, or behaviors, or healthcare systems writ large. This article uses three composite cases to illustrate types of clinician distress and examine the benefits and risks of palliative specialist involvement. We conclude with a discussion of potential impacts of palliative care consults for clinician distress on the field of palliative care and consider next steps in critically important efforts to support and sustain the entire workforce-both palliative specialists and nonspecialists alike-when caring for patients with serious illness and their family caregivers.
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  • 文章类型: Journal Article
    背景:尽管接受上消化道(GI)癌症治疗的患者经常经历一系列后遗症和疾病复发,患者通常在诊断后不久就不会接受特殊的姑息治疗,并且未知他们可能在哪些方面受益。
    目的:了解寻求根治性上消化道肿瘤手术的患者在围手术期接受专业姑息治疗的经验。
    方法:作为一项随机对照试验的一部分,我们在2019年11月至2021年7月间对介入治疗组的23例患者进行了深度访谈,这些患者正在接受上消化道癌症的根治性意向治疗,并由专业姑息治疗团队随访.
    结果:我们发现了五个主题,这些主题表征了患者对特殊姑息治疗的体验和看法。患者通常对姑息治疗的认识有限(主题1),但在研究期间,开始将其理解为“谈话”干预(主题2)。关注与姑息治疗一致的患者将其描述为对他们的护理有影响(主题3)。然而,大多数患者表示关注癌症的治愈,而认为姑息治疗整合的相关性较低(主题4).将专业姑息治疗从业者与手术团队相结合,使某些患者很难确定姑息治疗从业者与其他护理团队成员之间的差异(主题5)。
    结论:虽然在围手术期接受专业姑息治疗通常被认为是积极的,并且患者赞赏姑息治疗就诊,他们没有描述许多通常由姑息治疗从业者满足的需求.
    BACKGROUND: Though patients undergoing treatment for upper gastrointestinal (GI) cancers frequently experience a range of sequelae and disease recurrence, patients often do not receive specialty palliative care soon after diagnosis and it is unknown in what ways they may benefit.
    OBJECTIVE: To understand patient experiences of specialty palliative care in the perioperative period for patients seeking curative intent upper GI oncologic surgery.
    METHODS: As part of a randomized controlled trial, we conducted in-depth interviews between November 2019 and July 2021 with 23 patients in the intervention arm who were undergoing curative intent treatment for upper GI cancers and who were also followed by the specialty palliative care team.
    RESULTS: We found five themes that characterized patient experiences and perceptions of specialty palliative care. Patients typically had limited prior awareness of palliative care (theme 1), but during the study, came to understand it as a \"talking\" intervention (theme 2). Patients whose concerns aligned with palliative care described it as being impactful on their care (theme 3). However, most patients expressed a focus on cure from their cancer and less perceived relevance for integration of palliative care (theme 4). Integrating specialist palliative care practitioners with surgical teams made it difficult for some patients to identify how palliative care practitioners differed from other members of their care team (theme 5).
    CONCLUSIONS: While receipt of specialty palliative care in the perioperative period was generally perceived positively and patients appreciated palliative care visits, they did not describe many needs typically met by palliative care practitioners.
    BACKGROUND: clinicaltrials.gov registration: NCT03611309.
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  • 文章类型: Journal Article
    姑息治疗改善了结果,然而,农村居民往往缺乏充分和公平的机会。这项研究提供了解决农村社区姑息治疗(PC)相关挑战的实用技巧。策略包括吸引可信赖的社区合作伙伴,解决文化因素,改善儿科护理,利用远程医疗,与包括护理人员在内的农村团队建立联系,并扩大护士和高级实践提供者的角色。尽管有复杂的障碍,提供商可以定制PC以患者为中心,尊重当地价值观,桥梁的差距。“十大”格式强调相关问题,使临床医生能够为农村地区的人们提供最佳护理。
    Palliative care improves outcomes, yet rural residents often lack adequate and equitable access. This study provides practical tips to address palliative care (PC)-related challenges in rural communities. Strategies include engaging trusted community partners, addressing cultural factors, improving pediatric care, utilizing telehealth, networking with rural teams including caregivers, and expanding roles for nurses and advanced practice providers. Despite complex barriers to access, providers can tailor PC to be patient-centered, respect local values, and bridge gaps. The \"Top 10\" format emphasizes the relevant issues to enable clinicians to provide optimal care for people from rural areas.
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  • 文章类型: Journal Article
    姑息治疗不再是临终关怀的代名词,因为供应已经远远超过了需求,在患者患病的早期,姑息治疗的大部分实践将在初级护理诊所进行-称为初级姑息治疗。转诊专业姑息治疗以进行复杂的症状管理或明确决策是适当的,可以方便临终关怀转诊,如果需要,并符合患者/家庭目标。
    Palliative care is no longer synonymous with end-of-life care, and because supply has been well outstripped by demand, much of the practice of palliative care early in a patient\'s illness journey will take place in the primary care clinic-referred to as primary palliative care. Referral to specialty palliative care for complex symptom management or clarification on decision-making is appropriate, and can facilitate hospice referral, if indicated and in line with patient/family goals.
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  • 文章类型: Journal Article
    背景:晚期癌症患者的姑息治疗可以改善患者的症状,和生活质量(QoL)。然而,在晚期癌症住院患者中,通过专业姑息治疗咨询常规实施姑息治疗的需求仍未得到满足.我们的研究目的是与医学肿瘤学家的常规实践相比,评估基于团队的方法对QoL和再入院率的有效性。
    方法:这项研究是一项前瞻性的,准实验设计。晚期癌症住院患者被非随机分配接受姑息治疗服务,由基于团队的方法或仅医学肿瘤学家。主要终点是QoL。次要终点是出院后7天和30天的再入院率。
    结果:纳入了122名住院患者。通过基于团队的方法评估的住院患者与另一组相比,主观幸福感(SWB)的变化得分显着提高(ΔSWB:-1[-19-11]vs0[-9-15],p值=0.043)。此外,在基于团队的方法下进行评估的患者在出院7天时的再入院率显着降低(基于团队的方法组的4.92%与19.67%的医学肿瘤学家组,p值=0.013)。
    结论:跨学科合作是成功建立护理目标的关键,它们支持尽可能好的QoL并缓解晚期癌症住院患者的痛苦症状。此外,通过以团队为基础的方法,出院7天时的再入院率显著降低.因此,需要通过跨专业合作实践进行全面的姑息治疗评估。
    背景:泰国临床试验注册(TCTR):编号20200312001。首次注册日期:2020年9月3日。
    BACKGROUND: Palliative care for patients with advanced cancer improves suffering symptoms, and quality of life (QoL). However, routine implementation of palliative care by specialty palliative care consultation is still an unmet need among in-patients with advanced cancer. Our study aim is to evaluate the effectiveness of a team-based approach on QoLs and readmission rate when compared to routine practice by among medical oncologists.
    METHODS: This study was a prospective, Quasi-Experimental design. In-patients with advanced cancer were non-randomly assigned to receive palliative care service by team-based approach or medical oncologists only. The primary endpoint was QoL. The secondary endpoint was the readmission rate at 7 and 30 days of hospital discharge.
    RESULTS: One hundred twenty-two in-patients were enrolled. In-patients who were assessed by a team-based approach had significantly improved change scores of subjective well-being (SWB) when compared to another group (∆ SWB: -1 [-19 - 11] vs 0 [-9 - 15], p-value = 0.043). Furthermore, patients who were assessed under a team-based approach had significantly decreased in terms of readmission rate at 7 days of hospital discharge (4.92% in the team-based approach group vs. 19.67% in the medical oncologist group, p-value = 0.013).
    CONCLUSIONS: Interdisciplinary collaboration is the key to success in establishing goals of care, which are supporting the best possible QoL and relieving suffering symptoms for those in-patients with advanced cancer. Furthermore, the readmission rate at 7 days of hospital discharge was significantly reduced by a team-based approach. Therefore, comprehensive palliative care assessment by interprofessional collaborative practice is required.
    BACKGROUND: Thai Clinical Trials Registry (TCTR): number 20200312001. Date of first registration on 09/03/2020.
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  • 文章类型: Journal Article
    目标:外科医生占HPM培训医师的2%。对于HPM培训对外科医生或医学界的感知价值知之甚少。我们的目标是从受过HPM奖学金培训的外科医生的角度来证明HPM奖学金培训对外科医生和外科实践的价值。设计:使用半结构化缩放访谈进行定性分析,以激发HPM训练有素的外科医生的生活经验。使用描述性统计和专题分析对数据进行分析。研究人员来自堪萨斯大学医学院和阿拉巴马大学伯明翰分校。参与者在美国各地接受培训并在各种环境中工作。参与者:资格包括普外科培训,妇产科,或附属亚专业,并完成为期1年的HPM奖学金。结果:进行了17次访谈。关于HPM培训对其医疗和外科实践的转化价值,出现了几个主题:(1)学习将共享决策和目标一致的护理应用于外科决策,(2)减少医疗决策中的个人偏见,和(3)使外科医生健康。关于对外科社区和HPM社区的感知价值,出现了两个主题:(1)HPM奖学金培训的外科医生对外科社区的价值,和(2)HPM奖学金培训外科医生对HPM社区的价值。所有研究参与者都重视他们的HPM培训,并受到医疗团队的高度重视。结论:经过HPM培训的外科医生在医疗团队中受到高度重视,并改善了以患者为中心的外科护理。
    Objective: Surgeons comprise 2% of HPM-trained physicians. Little is known about the perceived value of HPM training to the surgeon or medical community. We aim to demonstrate the value of HPM fellowship training to surgeons and surgical practice from the point of view of HPM fellowship trained surgeons. Design: A qualitative analysis was performed using semi-structured zoom interviews that elicited the lived experiences of HPM trained surgeons. Data was analyzed using descriptive statistics and thematic analysis. Setting: Researchers were from the University of Kansas School of Medicine and the University of Alabama at Birmingham. Participants were trained and worked across the United States in a variety of settings. Participants: Eligibility included training in general surgery, obstetrics and gynecology, or affiliated subspecialties and completion of a 1-year HPM fellowship. Results: 17 interviews were performed. Several themes emerged regarding the transformative value of HPM training to their medical and surgical practice: (1) Learning to apply shared decision making and goal-concordant care to surgical decision making, and (2) Decreasing personal bias in medical decision making, and (3) Enabling wellness in surgeons. Two themes emerged regarding the perceived value to both the surgical community and the HPM community: (1) Value of the HPM Fellowship Trained Surgeon to the Surgical Community, and (2) Value of the HPM Fellowship Trained Surgeon to the HPM Community. All study participants valued their HPM training and felt highly valued by the healthcare team. Conclusion: HPM trained surgeons are highly valued on the healthcare team and improve patient-centered surgical care.
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  • 文章类型: Journal Article
    儿科姑息治疗高级实践注册护士(APRN)领导者对于推进儿科姑息治疗领域至关重要。具有儿科专业知识和强大的儿童宣传技能,APRN非常适合领导跨专业临床团队,教育计划,社区临终关怀和姑息组织,政策变化,和研究倡议。尽管他们的地位很突出,关于小儿姑息性APRN的文献很少。本文探讨了儿科姑息性APRN的领导作用,提供支持领导力发展的资源,并展示了这种作用在儿科姑息治疗各个领域的重要性。
    Pediatric palliative advanced practice registered nurses (APRNs) leaders are essential in advancing the field of pediatric palliative care. With expertise in pediatrics and strong advocacy skills for children, APRNs are well suited to lead interprofessional clinical teams, educational programs, community hospice and palliative organizations, policy changes, and research initiatives. Despite the prominence of their positions, there is a paucity of literature on pediatric palliative APRNs. This paper explores the leadership roles of the pediatric palliative APRN, offers resources to support leadership development, and showcases the importance of this role in various domains of pediatric palliative care.
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  • 文章类型: Journal Article
    通才与专科姑息治疗的问题是各地医疗保健领导者的想法。我们正处于不断变化的医生人口统计数据之中。在美国和发展中国家,医学的工业化正在顺利进行。确定从专科姑息治疗中受益最大的患者是否很重要,鉴于目前资源有限?我们应该退出标准做法,使用人口管理原则重新设计姑息治疗吗?COVID大流行迅速引入了虚拟姑息治疗咨询。这是促进广泛获得专业姑息治疗的更好方法吗?展望未来,我们应该推广推进初级姑息治疗的方法,并为将从这种水平的治疗中受益最多的患者保留专业姑息治疗?这些问题,和其他人,在这个领域的领先医生之间的转录讨论中被考虑。
    The issue of generalist versus specialist palliative care is on the minds of healthcare leaders everywhere. We are amid changing demographics of physicians. The industrialization of medicine is well underway in the US and around the developing world. Is it important to identify patients who benefit the most from specialist palliative care, given that it is currently a limited resource? Should we step out of standard practice and redesign palliative care using principles of population management? The COVID pandemic rapidly introduced virtual palliative care consults. Is it a better way to promote wide access to specialty palliative care? Looking forward, should we promote ways to advance primary palliative care and reserve specialty palliative care to patients who will benefit most from this level of care? These questions, and others, are considered in this transcribed discussion between leading physicians in the field.
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  • 文章类型: Historical Article
    The practice of surgical palliative care is not new. Dr Balfour M. M. Mount, a retired urologic surgeon is considered the father of North American Palliative Care and coined the term Palliative Care in 1975. Dr Geoffrey P. Dunn, a retired general surgeon and hospice and palliative medicine specialist along with other like minded surgical colleagues were instrumental in developing the field of surgical palliative care. Dr Olga Jonasson, championed the American Board of Surgery becoming one of the sponsoring boards of the Hospice and Palliative Medicine certifying exam. Dr Anne Mosenthal advocated for palliative care to be integrated as parallel clinical aims so espoused in the Trauma Quality and Improvement Program Palliative Care Best Practice Guidelines. Dr Mosenthal currently chairs the American College of Surgeons Committee on Surgical Palliative Care. This introductory article is a brief history about the origins of surgical palliative care and sheds light on the current landscape of surgeons integrating primary and specialty palliative care into surgical practice. The aim of this surgical palliative care symposium is to take everyday surgical problems and highlight the application and benefit of palliative care when treating surgical patients with serious illness. Integrating palliative care principles into standard clinical management is evidenced based patient-centered practice.
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  • 文章类型: Journal Article
    Kidney palliative care is a growing subspecialty of clinical practice, education, and research in nephrology. It is an essential aspect of care for patients across the continuum of advanced kidney disease who have high symptom burden, multidimensional communication needs, and limited life expectancy. Training in kidney palliative care can occur in a variety of ways, from didactic curricula and clinical experiences embedded in nephrology fellowship training to the pursuit of additional dedicated fellowship training in palliative care. At this time, a minority of nephrologists pursue formal fellowship training in specialty palliative care. This article will discuss opportunities and challenges in building a skilled workforce that will address the palliative needs of patients living with advanced kidney disease.
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