Social care research

  • 文章类型: Clinical Trial Protocol
    背景:洗澡的残疾发作对老年人尤为重要,因为它可以迅速跟随其他日常活动的残疾;这可能是一个明智的干预时间点,以改善健康,幸福和相关的生活质量。一项重要的环境和预防性干预措施是住房适应,但是法律规定的等待时间往往很长。在这项随机对照试验(RCT)中,我们旨在评估洗浴适应与无适应相比的有效性和成本效益,并探讨与常规和加速实施洗浴适应相关的因素。
    方法:BATH-OUT-2是一个多中心,双臂,平行组RCT。60岁及以上的成年人将被随机分配到当地当局进行无障碍淋浴,使用成对随机化,1:1,以通过地方当局或通常的护理控制等待名单接收快速提供的无障碍淋浴。参与者将接受最长12个月的随访,在此期间将接受多达4次随访。主要结果将是参与者的身体健康,通过简短表格36(SF-36)的物理成分汇总评分进行评估,4周后,干预组接受无障碍淋浴。次要结果包括SF-36的心理成分汇总评分,自我报告的跌倒,健康和社会护理资源的使用,健康相关生活质量(EQ-5D-5L),与社会护理相关的生活质量(成人社会护理结果工具包(ASCOT)),害怕跌倒(短期跌倒功效量表),洗澡的独立性(Barthel指数洗澡问题),日常活动的独立性(Barthel指数)和洗澡的难度(0-100量表)。混合方法过程评估将包括与利益相关者的访谈以及对英格兰承担社会护理责任的地方当局的调查。
    结论:BATH-OUT-2试验的设计目的是使研究结果能够为未来关于为老年人提供洗浴适应的决定提供信息。这次审判有可能凸显,然后减少,与洗澡适应等待时间相关的健康不平等,并影响老年人的政策。
    背景:ISRCTN注册表ISRCTN48563324。于2021年04月09日登记。
    BACKGROUND: The onset of disability in bathing is particularly important for older adults as it can be rapidly followed by disability in other daily activities; this may represent a judicious time point for intervention in order to improve health, well-being and associated quality of life. An important environmental and preventative intervention is housing adaptation, but there are often lengthy waiting times for statutory provision. In this randomised controlled trial (RCT), we aim to evaluate the effectiveness and cost-effectiveness of bathing adaptations compared to no adaptations and to explore the factors associated with routine and expedited implementation of bathing adaptations.
    METHODS: BATH-OUT-2 is a multicentre, two-arm, parallel-group RCT. Adults aged 60 and over who are referred to their local authority for an accessible level access shower will be randomised, using pairwise randomisation, 1:1, to receive either an expedited provision of an accessible shower via the local authority or a usual care control waiting list. Participants will be followed up for a maximum of 12 months and will receive up to four follow-ups in this duration. The primary outcome will be the participant\'s physical well-being, assessed by the Physical Component Summary score of the Short Form-36 (SF-36), 4 weeks after the intervention group receives the accessible shower. The secondary outcomes include the Mental Component Summary score of the SF-36, self-reported falls, health and social care resource use, health-related quality of life (EQ-5D-5L), social care-related quality of life (Adult Social Care Outcomes Toolkit (ASCOT)), fear of falling (Short Falls Efficacy Scale), independence in bathing (Barthel Index bathing question), independence in daily activities (Barthel Index) and perceived difficulty in bathing (0-100 scale). A mixed-methods process evaluation will comprise interviews with stakeholders and a survey of local authorities with social care responsibilities in England.
    CONCLUSIONS: The BATH-OUT-2 trial is designed so that the findings will inform future decisions regarding the provision of bathing adaptations for older adults. This trial has the potential to highlight, and then reduce, health inequalities associated with waiting times for bathing adaptations and to influence policies for older adults.
    BACKGROUND: ISRCTN Registry ISRCTN48563324. Prospectively registered on 09/04/2021.
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  • 文章类型: Journal Article
    与健康研究相比,在英格兰建立和促进成人社会护理研究的努力在历史上遇到了更多的挑战,由于缺乏资源,一个部门在促进研究活动方面面临重大障碍,对社会护理研究概况的评价或理解不佳。支持成人社会护理研究的前景相当黯淡,但近年来,人们已经认识到有必要培养一个研究社区。英国国家健康与护理研究所致力于通过资助六个成人社会护理伙伴关系来投资社会护理研究能力,一个总部设在英格兰东南部。
    在项目实施的第一年举办了三次大型在线网络活动,以吸引地方当局和更广泛的成人社会护理部门的管理人员和从业人员。这些活动发生在2021年7月和11月,最后一次活动发生在2022年3月。确定了两个COP,在网络事件反馈的排序和主题化过程之后,(a)在整个生命周期中支持有复杂需求的人,(b)加强,多样化和维持社会护理劳动力。虽然现在确定它们的长期影响还为时过早,通过为迄今为止举行的20次缔约方会议提供便利,除了参与平台和丰富资源之外,这些为该部门的定期交流提供了空间,缔约方会议成员之间的知识共享和联网。
    COP框架提供了一种协作方法,可以从基层开始进行成人社会护理研究。本文重点介绍了COP模型如何为知识交流提供了巨大的希望,为在我们两个COP领域中围绕社会护理产生和传播知识提供了一个论坛。
    社会护理研究着眼于如何提供护理和支持,使人们能够继续独立,保持他们的尊严,帮助他们获得更好的生活质量。社会护理部门负责提供服务,并由地方当局提供,第三或私营部门组织。成人社会护理的研究对于帮助社会护理工作者了解哪些方法和干预措施有效以及如何提高护理和支持的质量非常重要。然而,在社会护理部门建立和开展研究存在障碍,包括有限的社会护理工作时间进行研究,通过提供商访问参与者,专员或无薪照顾者,由于该部门的分散性,促进或支持研究的困难。社会护理劳动力很少有机会发展他们的技能和经验来进行自己的研究。为了帮助社会护理工作者培养研究和学习的文化,我们使用了一个名为“实践社区”(COP)的著名小组学习和共享框架,以帮助形成一种涉及所有社会护理提供者和使用者的研究文化.我们通过邀请他们参加三个在线网络活动来开发COP,以确定哪些研究主题对提供者和用户很重要。然后他们的想法被放到主题中讨论,最后为COP决定了两个方面:(a)在整个生命周期中支持有复杂需求的人,(b)加强,多样化和维持社会护理劳动力。COP为用户和提供者提供了一个会面和讨论对他们重要的研究的地方,以确定成人社会护理中遇到的问题的一些潜在解决方案。
    UNASSIGNED: Efforts to build and foster adult social care research in England have historically encountered more challenges to its growth and expansion compared with health research, with a sector facing significant barriers in facilitating research activity due to a lack of resourcing, poor valuation or understanding of the profile of social care research. The landscape for supporting research in adult social care has been rather bleak, but in recent years there has been recognition of the need to foster a research community. The National Institute for Health and Care Research in England have committed to investing in social care research capacity by funding six adult social care partnerships, with one based in Southeast England.
    UNASSIGNED: Three large online networking events were held in the first year of the project to engage managers and practitioners from the local authority and from the wider adult social care sector. These took place in July and November 2021, with a last event in March 2022. Two COPs were identified, following an ordering and thematising process of feedback from the networking events, of: (a) Supporting people with complex needs throughout the lifespan, and (b) Enhancing, diversifying and sustaining the social care workforce. Whilst it would be premature to identify their long-term impacts, through the facilitation of 20 COP meetings held so far, alongside the engagement platforms and enrichment resources, these have provided a space for regular communication in the sector, knowledge sharing and networking between COP members.
    UNASSIGNED: The COP framework offers a collaborative approach to initiating research from the grass-roots level in adult social care. This paper focuses on how the COP model offers great promise for knowledge-exchange providing a forum to generate and disseminate knowledge around social care in our two COP domains.
    Social care research looks into how care and support is delivered enabling people to continue to be independent, keep their dignity and help them achieve a better quality of life. The social care sector is responsible for delivering services and are provided by local authorities, third or private sector organisations. Research in adult social care is important to help the social care workforce understand which approaches and interventions work and how to improve the quality of care and support. However, there are barriers with setting up and running a research study in the social care sector, including limited dedicated time for the social care workforce to do research, accessing participants through providers, commissioners or unpaid carers, and due to the fragmented nature of the sector, difficulties in facilitating or supporting research. There are few opportunities for the social care workforce to develop their skills and experiences to undertake their own research. In order to help the social care workforce foster a culture of research and learning, we have used a well-known group learning and sharing framework called Communities of Practice (COPs) to help generate a culture of research involving all providers and users of social care. We developed the COPs by inviting them to three online networking events to identify what topics of research are important to providers and users. Their ideas were then put into themes and discussed, and two areas were finally decided upon for the COPs of: (a) Supporting people with complex needs throughout the lifespan, and (b) Enhancing, diversifying and sustaining the social care workforce. The COPs provide a place for users and providers to meet and discuss what research is important to them to identify some potential solutions to the problems encountered in adult social care.
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  • 文章类型: Journal Article
    目的:临床研究护士在临床试验的支点上工作,角色和职责明确。在英国,国家卫生研究所(卫生研究的主要资助者)扩大了其范围,以涵盖社会护理研究。预计临床研究护士将扩大他们的技能,以支持这些新的研究,其中许多将采用定性和混合方法。本文通过对无家可归的健康和社会护理研究项目的案例研究,探讨了促进这种临床学术劳动力发展的挑战。这是第一个让临床研究护士参与这个新的和扩大的角色的研究之一。
    背景:关于研究型护士队伍的许多知识都是通过肿瘤学临床试验的研究产生的。“关怀-招募”二分法已被用作一种启发式手段,用于识别可能影响研究交付的劳动力问题,例如招募研究参与者的巨大压力如何导致工作满意度低。
    方法:本案例研究反映了作者在社会护理研究项目中雇用临床研究护士的经验,该项目涉及无家可归的人出院。“关怀-招募”二分法用于生成有关劳动力发展与成功提供社会关怀研究之间关系的新信息。
    结论:该案例研究阐明了社会护理研究如何为研究护士带来不同的压力和道德挑战。招募被确定为“难以达到”的研究参与者所花费的时间和技能表明,需要超越优先考虑招聘指标的绩效指标。还需要不同类型的工作人员监督和培训,因为支持无家可归的研究参与者往往令人痛苦,导致专业边界问题。
    这项研究强调了绩效管理,培训和监督安排必须根据每项新研究的特点进行调整,以确保研究护士在这一新的和扩大的角色中得到充分支持。
    OBJECTIVE: Clinical research nurses work at the fulcrum of clinical trials with clearly defined roles and responsibilities. In England, the National Institute for Health Research (the main funder of health research) has broadened its scope to encompass social care research. The expectation is that clinical research nurses will expand their skill set to support these new studies, many of which will employ qualitative and mixed methods. This discussion paper explores the challenges of facilitating this clinical academic workforce development through a case study of a homeless health and social care research project. This was one of the first studies to engage clinical research nurses in this new and expanded role.
    BACKGROUND: Much of what is known about the research nurse workforce has been generated through studies of clinical trials in oncology. The \'caring-recruiting\' dichotomy has been used as a heuristic device for identifying workforce issues that can impact on study delivery such as how intense pressure to recruit study participants leads to low job satisfaction.
    METHODS: This case study reflects on the authors\' experiences of employing a clinical research nurse in a social care research project concerned with the discharge of homeless people from hospital. The \'caring-recruiting\' dichotomy is used to generate new information about the relationship between workforce development and the successful delivery of social care research.
    CONCLUSIONS: The case study illuminates how social care research can generate different pressures and ethical challenges for research nurses. The time and skill it took to recruit study participants identified as \'hard to reach\' was suggestive of the need to move beyond performance measures that prioritise recruitment metrics. The need for different types of staff supervision and training was also warranted as supporting study participants who were homeless was often distressing, leading to professional boundary issues.
    UNASSIGNED: This study highlights that performance management, training and supervisory arrangements must be tailored to the characteristics of each new study coming onto the portfolio to ensure research nurses are fully supported in this new and expanded role.
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