■大疱性表皮松解症(EB)是一种罕见的,无法治愈的遗传性皮肤病引起水疱,可导致多系统并发症和死亡。南非的EB数据有限。研究表明,大多数非洲患者在寻求对抗疗法医疗保健之前会咨询传统保健医生(THP)。
■本研究旨在了解THP的信念系统,经验,在社会和文化背景下对EB患者及其家人的认知和管理,以改善EB患者的医疗保健。
■研究背景是纳尔逊·曼德拉医学院,德班,和格雷的医院,Pietermaritzburg,夸祖鲁-纳塔尔省.
■对10名THP进行了定性深入访谈。非概率,采用目的抽样法。在解释现象学分析的指导下进行了两个地点的定性研究。使用Guba的可信赖性框架来确保严格性。
■采访了三名男性和七名女性THP,包括Sangoma,inyanga和umthandazi.整合提出了五个全球主题:(1)THP实践,(2)对THP的感知,(3)THP与EB、(4)THP的诊断和治理计划和(5)THP的远景和感化。具有共同的非洲世界观的THP之间存在多种不同的观点。
■了解THP的信念系统和治疗方案对于患者的整体管理至关重要。知识交流可以促进安全的医疗保健实践,并促进传统和对抗疗法健康从业者之间的合作。
■这是第一个探索THP对EB的看法和实践的研究,一种罕见的疾病.
UNASSIGNED: Epidermolysis bullosa (EB) is a rare, incurable genodermatosis causing blisters that can result in multisystemic complications and death. Limited data exists on EB in South Africa. Research indicates that the majority of African patients consult traditional health practitioners (THPs) before seeking allopathic healthcare.
UNASSIGNED: This study aims to understand THPs belief systems, experiences, perceptions and management of EB patients and their families in the social and cultural context to improve the healthcare of EB patients.
UNASSIGNED: The study setting is Nelson Mandela School of Medicine, Durban, and Grey\'s hospital, Pietermaritzburg, KwaZulu-Natal.
UNASSIGNED: Qualitative in-depth interviews were conducted with 10 THPs. A non-probability, purposive sampling method was used. A two-site qualitative study was guided by interpretative phenomenological analysis. Guba\'s trustworthiness framework was used to ensure rigour.
UNASSIGNED: Three male and seven female THPs were interviewed, including sangoma, inyanga and umthandazi. The integration presented five global themes: (1) THP practices, (2) perceptions of THP, (3) experiences of THP with patients with EB, (4) diagnosis and management plans of THP and (5) vision and role of THPs. There were multiple divergent perspectives among the THPs with the shared African worldview.
UNASSIGNED: Understanding THPs belief systems and therapeutic options is crucial for holistic patient management. Knowledge exchange can promote safe healthcare practices and facilitate collaboration between traditional and allopathic health practitioners.
UNASSIGNED: This is the first study to explore THPs perceptions and practices regarding EB, a rare disease.