背景:对于注意力缺陷/多动症(ADHD)青少年从儿童过渡到成人服务,指导过渡过程的协议至关重要。虽然有一些指导方针,他们并不总是考虑有效的工作量和稀缺资源。在意大利,目前可用的指导方针很少,他们不遵守共同的标准,可能导致非统一使用。
方法:本研究分析了从参与TransiDEA(糖尿病过渡,癫痫,和多动症患者)项目。描述了协议的内容,并与美国国家临床健康与卓越研究所(NICE)指南进行比较,以确定是否存在八个NICE基本维度。
结果:根据NICE指南,6个分析文件中的维度地址是:早期过渡计划(尽管年龄标准有差异)(6/6),个性化规划(5/6),以及对转移需求的评估(5/6)。所有协议还预见了儿童和成人服务之间的联席会议。6个方案中有4个考虑了包括家庭的需要,同时监测(2/6),和培训计划(1/6)较少涵盖。总的来说,在提供的法规的质量和数量方面,出现了高度异构的情况。
结论:虽然一些坚实的观点和核心要素与国际准则有共同之处,内容的可变性凸显了标准化实践的必要性。最后,未来的治疗方案应更多地符合患者的需求和临床医生可用的资源.
BACKGROUND: For Attention Deficit/Hyperactivity Disorder (ADHD) youth transitioning from child to adult services,
protocols that guide the transition process are essential. While some guidelines are available, they do not always consider the effective workload and scarce resources. In Italy, very few guidelines are currently available, and they do not adhere to common standards, possibly leading to non-uniform use.
METHODS: The present study analyzes 6
protocols collected from the 21 Italian services for ADHD patients that took part in the TransiDEA (Transitioning in Diabetes, Epilepsy, and ADHD patients) Project. The
protocols\' content is described, and a comparison with the National Institute for Clinical Health and Excellence (NICE) guidelines is carried out to determine whether the eight NICE fundamental dimensions were present.
RESULTS: In line with the NICE guidelines, the dimensions addresses in the 6 analyzed documents are: early transition planning (although with variability in age criteria) (6/6), individualized planning (5/6), and the evaluation of transfer needs (5/6). All
protocols also foresee joint meetings between child and adult services. The need to include the families is considered by 4 out of 6
protocols, while monitoring (2/6), and training programs (1/6) are less encompassed. In general, a highly heterogeneous picture emerges in terms of quality and quantity of regulations provided.
CONCLUSIONS: While some solid points and core elements are in common with international guidelines, the content\'s variability highlights the need to standardize practices. Finally, future protocols should adhere more to the patients\' needs and the resources available to clinicians.