儿童癌症是最繁重的慢性疾病之一,需要各种严重的医疗干预措施。因此,这种疾病及其治疗导致许多急性和长期的医疗,心理,以及年轻患者及其家人的社会经济压力。因此,以前使用循证干预措施(EBIs)进行心理社会护理,during,治疗后,对于确保患者获得足够的信息并最大程度地减少不利的情绪和社会心理影响,例如不安全感,至关重要。恐惧,和羞耻。本研究报告了在质量改进项目“我的日志”中开发的应用癌症特异性社会心理方法的第一个有希望的结果。“这四种评估工具是专门为儿科癌症患者做好手术准备的,化疗,放射治疗,和干细胞移植。在每次干预之前和之后,使用自我和代理评分来评估患者的主观知识和情绪健康状况。结果表明,以患者为中心的干预措施使用各种创造性和发展适应性方法(例如,心理教育,crafting,游戏)具有有效增强患者健康素养(V=120.5,p<.001,r=0.33)和幸福感的潜力,表现为更积极(斜率=0.121,p=.016)和更少的负面情绪(斜率=-0.350,p<.001)或中性情绪(斜率=-0.202,p=.002)。这些发现强调了在儿科肿瘤学中开发和实施心理社会工具以防止心理超负荷和负面情绪并增加主观控制信念的重要性。自主性,和赋权。此外,循证心理社会工具的有效应用和系统评估有助于建立儿科肿瘤学心理社会护理标准化指南.因此,最终目标是确保护理质量,并利用教育来提高所有儿科癌症患者的生活质量。试用注册:ClinicalTrials.gov标识符:NCT04474678(2020年7月17日)。
Pediatric cancer is one of the most burdensome chronic diseases, necessitating a variety of severe medical interventions. As a result, the disease and its treatment cause numerous acute and long-term medical, psychological, and socioeconomic strains for young patients and their families. Therefore, psychosocial care using evidence-based interventions (EBIs) before, during, and after medical treatments is essential to ensure that patients receive adequate information and to minimize the adverse emotional and psychosocial impacts such as insecurity, fear, and shame. The present study reports the first promising results of applying cancer-specific psychosocial methods developed in the quality improvement project \"My Logbook.\" The four assessed tools are specifically designed to adequately prepare pediatric cancer patients for surgery, chemotherapy, radiotherapy, and stem cell transplantation. Self and proxy ratings were used to assess the patients\' subjective knowledge and emotional well-being before and after each intervention session. The results showed that patient-centered interventions using various creative and developmentally adapted methodologies (e.g., psychoeducation, crafting, games) have the potential to effectively enhance patient health literacy (V = 120.5, p < .001, r = 0.33) and well-being as manifested in more positive (slope = 0.121, p = .016) and less negative (slope = - 0.350, p < .001) or neutral emotions (slope = - 0.202, p = .002). These findings highlight the importance of developing and implementing psychosocial tools in pediatric oncology to prevent psychological overload and negative emotions and to increase subjective control beliefs, autonomy, and empowerment. Moreover, the effective application and systematic evaluation of evidence-based psychosocial tools can facilitate the establishment of standardized guidelines for psychosocial care in pediatric oncology. Thereby, the final goal is to ensure the quality of care and to use education to increase the quality of life for all pediatric cancer patients.Trial registration: ClinicalTrials.gov Identifier: NCT04474678 (July 17, 2020).