Patients’ attitudes

  • 文章类型: Journal Article
    UNASSIGNED: Poor discharge planning can lead to increases in adverse drug events, hospital readmissions, and costs. Prior research has identified the pharmacist as an integral part of the discharge process.
    UNASSIGNED: To gain patients\' perspectives on the discharge process and what they would like pharmacists to do to ensure a successful discharge.
    UNASSIGNED: Twenty patients discharged from tertiary care hospitals were interviewed after discharge. A phenomenological approach was used to conduct this qualitative study.
    UNASSIGNED: Five main themes were identified from the patient interviews: interactions with health care professionals, importance of discharge documentation, importance of seamless care, comprehensive and patient-specific medication counselling, and patients\' preference for involvement and communication at all stages of hospital stay.
    UNASSIGNED: Although participants generally reported positive interactions with health care providers at discharge, several areas for improvement were identified, particularly in terms of communication, discharge documentation, and continuity of care. A list of recommendations aligning with patient preferences is provided for clinicians.
    UNASSIGNED: Une mauvaise planification du congé hospitalier peut entraîner une augmentation des événements indésirables liés aux médicaments, des réadmissions et des coûts. Des recherches antérieures ont reconnu le pharmacien comme faisant partie intégrante du processus associé au congé de l’hôpital.
    UNASSIGNED: Recueillir le point de vue des patients sur le processus relatif au congé et sur ce qu’ils aimeraient que les pharmaciens fassent pour assurer la réussite de celui-ci.
    UNASSIGNED: Vingt patients d’hôpitaux de soins tertiaires ont été interrogés après leur congé. Cette étude qualitative a été menée en adoptant une approche phénoménologique.
    UNASSIGNED: Cinq thèmes principaux ont émergé à partir des entretiens avec les patients: les interactions avec les professionnels de la santé, l’importance de la documentation au moment du congé, l’importance de soins continus, des conseils complets et spécifiques au patient en matière de médication, et la préférence des patients pour l’implication et la communication à toutes les étapes de leur séjour à l’hôpital.
    UNASSIGNED: Bien que les participants aient généralement signalé des interactions positives avec les prestataires de soins de santé au moment de leur congé, plusieurs domaines d’amélioration ont été dépistés, notamment sur les plans de la communication, de la documentation au moment du congé et de la continuité des soins. Une liste de recommandations alignées sur les préférences des patients est fournie aux cliniciens.
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  • 文章类型: Journal Article
    背景:老龄化与慢性疾病患病率升高相关,导致多发病率影响60%的65岁或以上的人。多症通常导致多药,提高潜在不适当药物(PIM)使用和不良健康结局的风险。为了解决这些问题,开处方已成为一种以患者为中心的方法,该方法考虑了患者对药物的信念和态度,并减少了老年人不适当的多重用药。我们的研究旨在调查某些慢性疾病是否与老年患者停用药物的意愿有关。
    方法:一项横断面研究纳入192名65岁或以上的社区居民,至少服用一种常规药物。数据包括人口统计,临床特征,以及对葡萄牙修订的患者对处方无效的态度(rPATD)问卷的回应。描述性统计数据表征参与者,而多元二元逻辑回归确定了慢性疾病和放弃处方意愿之间的关联。
    结果:在参与者中(平均年龄:72岁,65.6%女性),91.6%具有多浊度。分析显示,随着胃病的存在(校正比值比[aOR]=4.123;95%CI1.221,13.915)和年龄(aOR=1.121;95%CI1.009,1.246),停用处方的意愿显着增加。相反,前列腺病理学(aOR=0.266;95%CI0.077,0.916),rPATD适当性因子得分较高(aOR=0.384;95%CI0.190,0.773),rPATD对停药因素的担忧(aOR=0.450;95%CI0.229,0.883)降低了患者的处方意愿。
    结论:这项研究强调了老年患者对开药的态度与慢性疾病之间的复杂关系。我们发现胃病与停用药物的意愿增加有关,而前列腺疾病与相反的效果有关。未来的研究应该探索特定疾病或疾病组的患者如何看待一般药物和特定药物的处方,帮助制定有针对性的干预措施。
    BACKGROUND: Aging correlates with a heightened prevalence of chronic diseases, resulting in multimorbidity affecting 60% of those aged 65 or older. Multimorbidity often leads to polypharmacy, elevating the risk of potentially inappropriate medication (PIM) use and adverse health outcomes. To address these issues, deprescribing has emerged as a patient-centered approach that considers patients\' beliefs and attitudes toward medication and reduces inappropriate polypharmacy in older adults. Our study aims to investigate whether certain chronic medical conditions are associated with older patients\' willingness to deprescribe medications.
    METHODS: A cross-sectional study enrolled 192 community-dwelling individuals aged 65 or older taking at least one regular medication. Data included demographics, clinical characteristics, and responses to the Portuguese revised Patients\' Attitudes Towards Deprescribing (rPATD) questionnaire. Descriptive statistics characterized participants, while multiple binary logistic regression identified associations between chronic medical conditions and willingness to deprescribe.
    RESULTS: Among the participants (median age: 72 years, 65.6% female), 91.6% had multimorbidity. The analysis revealed that willingness to deprescribe significantly increased with the presence of gastric disease (adjusted odds ratio [aOR] = 4.123; 95% CI 1.221, 13.915) and age (aOR = 1.121; 95% CI 1.009, 1.246). Conversely, prostatic pathology (aOR = 0.266; 95% CI 0.077, 0.916), higher scores in the rPATD appropriateness factor (aOR = 0.384; 95% CI 0.190, 0.773), and rPATD concerns about stopping factor (aOR = 0.450; 95% CI 0.229, 0.883) diminished patients\' willingness to deprescribe.
    CONCLUSIONS: This study highlights the intricate relationship between older patients\' attitudes toward deprescribing and chronic medical conditions. We found that gastric disease was associated with an increased willingness to deprescribe medications, while prostate disease was associated with the opposite effect. Future research should explore how patients with specific diseases or groups of diseases perceive deprescribing of medications general and for specific medications, aiding in the development of targeted interventions.
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  • 文章类型: Journal Article
    UNASSIGNED:本研究的主要目的是确定确定多发性硬化症(MS)患者无法进行家庭治疗锻炼(HTE)和其他身体活动(OPA)的选定因素。
    UNASSIGNED:这项研究是使用一项自我完成的在线调查进行的,该调查针对被诊断患有MS的成年人,在门户网站TacyJakJa上注册。pl.总的来说,335人参与其中。
    未经评估:完成调查的人中几乎有一半(49.9%),报告说没有人鼓励他们使用HTE,只有16.1%的人受到医生的鼓励。多达51%的受访者还报告说,没有人鼓励他们进行OPA,只有18.5%的人受到医生的鼓励。作为不使用HTE的最重要原因,受访者选择担心锻炼可能会使他们的病情恶化(47.3%)。然而,不使用OPA的最重要原因是高疲劳(61.9%)。在家锻炼的人数随着年龄的增长而增加(P=0.013)。与继发性进行性MS(10.0%)和原发性进行性MS(4.4%)的受访者相比,接受复发缓解型MS的受访者(P=0.002)的OPA(60.7%)明显更高。
    未经授权:医生相对很少鼓励MS患者进行HTE和OPA。患者不执行HTE主要是因为担心健康恶化或疲劳。进行HTE受年龄的影响,但进行其他形式的身体活动受MS类型的影响。应采取行动普及HTE和OPA,尤其是年轻患者中的HTE。
    UNASSIGNED: The main aim of the study was to identify selected factors that determine patients with multiple sclerosis (MS\') failure to take home therapeutic exercises (HTE) and other physical activity (OPA).
    UNASSIGNED: The study was conducted using a self-completed online survey that was aimed at adult people diagnosed with MS, registered on the portal TacyJakJa.pl. In total, 335 persons were involved.
    UNASSIGNED: Almost half of all people who completed the survey (49.9%), reported that no one encouraged them to use HTE, and only 16.1% were encouraged by their doctor. As many as 51% of the respondents reported also that no one encouraged them to undertake OPA, and only 18.5% were encouraged by their doctor. As the most important reason for not using HTE, the respondents chose fear that exercises may worsen their condition (47.3%). However, the most important reason for not using the OPA was high fatigue (61.9%). The number of people exercising at home increased with age (P = 0.013). Those surveyed with relapsing-remitting MS significantly more often (P = 0.002) took up OPA (60.7%) than the respondents with a secondary progressive MS (10.0%) and a primary progressive (4.4%).
    UNASSIGNED: Physicians relatively rarely encourage patients with MS to undertake HTE and OPA. The patients do not perform HTE primarily because of fears of health deterioration or fatigue. Undertaking HTE is influenced by age but undertaking other forms of physical activity by the type of MS. Actions should be taken to popularize HTE and OPA, especially HTE among young patients.
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  • 文章类型: Journal Article
    非酒精性脂肪性肝病的许多新疗法正在临床试验(CT)中进行评估,但这些试验很少涉及中国的地点。我们评估了中国患者参与非酒精性脂肪性肝病CTs的影响因素。
    设计了一份问卷,由中国八家附属医院的非酒精性脂肪肝患者填写。
    本次分析纳入了428例患者,63%为男性,中位年龄为37.9岁(30.0-44.0)。54%的患者认为“帮助他人”和30%的患者认为“改善我的健康状况”是CT的最大益处。最重要的问题是安全性(43%)和患者获益(26%)。改善肝纤维化或肝硬化(53%)和减少肝脏脂肪(21%)是新药的理想疗效。接受安慰剂治疗长达2-6年的可能性对参与发挥了影响(21%)或非常有影响(73%)的作用。教育水平较低,较低的体重指数,肝硬化与接受肝活检呈正相关。对新药不良反应的焦虑和2-3次肝活检的需求与患者对参与试验的态度呈负相关。
    本次调查中超过三分之一的中国NAFLD患者愿意参加NASH的CTs。对于NASH治疗的CT,对逆转纤维化或肝硬化的潜在影响将产生积极影响,而新药的不良反应和多次肝活检的要求会对我们研究的参与产生负面影响。
    Many new therapies of non-alcoholic fatty liver disease are being evaluated in clinical trials (CTs), but few of these trials involved sites in China. We evaluated influencing factors of Chinese patients\' perspectives in participation in CTs of non-alcoholic fatty liver disease.
    A questionnaire was designed to be completed by patients with non-alcoholic fatty liver disease at eight affiliated hospitals across China.
    428 patients were included in this analysis, 63% were male and median age was 37.9 years (30.0-44.0). 54% patients rated \"to help others\" and 30% \"to improve my health status\" as the greatest benefit from CTs. The most important concerns were safety (43%) and patients\' benefit (26%). Improving liver fibrosis or cirrhosis (53%) and reducing fat in liver (21%) were desired efficacy of new drugs. Possibility of being treated with a placebo for up to 2-6 years played an influential (21%) or very influential (73%) role on participation. Lower education level, lower body mass index, and cirrhosis were positively associated with acceptance of liver biopsies. Anxiety of adverse effects of the new drug and requirement of 2-3 liver biopsies were negatively associated with patients\' attitudes toward participating in the trial.
    More than one-third of Chinese patients with NAFLD in this survey are willing to participate in CTs of NASH. For CTs of NASH treatment, potential effects on reversing fibrosis or cirrhosis would positively influence, while adverse effects of the new drug and requirement of multiple liver biopsies would negatively influence participation in our study.
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  • 文章类型: Journal Article
    医疗需求未得到满足的患者有时会诉诸非标准治疗方案,包括使用未经批准的,临床试验中的研究药物,富有同情心的使用或指定患者的计划。医疗需求未得到满足的患者对未经批准的看法和经验,研究药物尚未进行实证检查。
    在这项定性研究中,对慢性或危及生命的疾病患者进行探索性访谈和焦点小组(n=39),关于非标准治疗方案相关的主题,例如寻找非标准治疗方案,患者对医生道德义务的看法,以及他们希望或不希望使用非标准治疗方案的条件,包括扩大对未经批准的访问,研究药物。
    受访者对扩大研究药物的现有机会知之甚少和/或缺乏经验。尽管一些受访者积极寻找非标准治疗方案.他们对主治医生有很高的期望,假设他们知道非标准治疗方案,包括其他地方的临床试验和扩大的接入计划,并假设他们会告诉他们的病人这些选择。受访者仔细权衡了追求扩大准入的风险和潜在利益,引用与药物安全性和有效性的科学证据相关的担忧,副作用,药物-药物相互作用,以及保持良好的生活质量。受访者强调了教育和自信对获得高质量医疗保健的重要性,并愿意自掏腰包购买研究药物。患者对平等获得新的和/或非标准的治疗方案表示担忧。
    当标准治疗轨迹的终点出现时,患者可能更喜欢治疗医生与他们讨论非标准治疗方案,包括扩大访问未经批准的机会,研究药物。尽管我们的受访者对扩展访问计划的理解程度不同,他们似乎能够就非标准治疗方案做出深思熟虑的选择,并且对此类方案的安全性和有效性抱有现实的期望.与通常的假设相比,荷兰患者可能不太可能成为虚假希望的牺牲品。
    Patients with unmet medical needs sometimes resort to non-standard treatment options, including the use of unapproved, investigational drugs in the context of clinical trials, compassionate use or named-patient programs. The views and experiences of patients with unmet medical needs regarding unapproved, investigational drugs have not yet been examined empirically.
    In this qualitative study, exploratory interviews and focus groups were held with patients with chronic or life-threatening diseases (n = 39), about topics related to non-standard treatment options, such as the search for non-standard treatment options, patients\' views of the moral obligations of doctors, and the conditions under which they would or would not wish to use non-standard treatment options, including expanded access to unapproved, investigational drugs.
    Respondents had very little knowledge about and/or experience with existing opportunities for expanded access to investigational drugs, although some respondents were actively looking for non-standard treatment options. They had high expectations of their treating physicians, assuming them to be aware of non-standard treatment options, including clinical trials elsewhere and expanded access programs, and assuming that they would inform their patients about such options. Respondents carefully weighed the risks and potential benefits of pursuing expanded access, citing concerns related to the scientific evidence of the safety and efficacy of the drug, side effects, drug-drug interactions, and the maintaining of good quality of life. Respondents stressed the importance of education and assertiveness to obtain access to good-quality health care, and were willing to pay out of pocket for investigational drugs. Patients expressed concerns about equal access to new and/or non-standard treatment options.
    When the end of a standard treatment trajectory comes into view, patients may prefer that treating physicians discuss non-standard treatment options with them, including opportunities for expanded access to unapproved, investigational drugs. Although our respondents had varying levels of understanding of expanded access programs, they seemed capable of making well-considered choices with regard to non-standard treatment options and had realistic expectations with regard to the safety and efficacy of such options. Dutch patients might be less likely to fall prey to false hope than often presumed.
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  • 文章类型: Journal Article
    Understanding patient-physician relationships in mental care services is an indispensable element to improve the quality of mental care, yet little is known about it in Iran. This study measured the attitudes of the patients\' family and personal caregivers (FPCs) and psychiatrists toward patient-centered care. A sample of 88 FPCs of mental patients and 29 psychiatrists in four teaching hospitals of Isfahan city, Iran, providing mental care, were asked to complete the patient-practitioner orientation scale (PPOS). Results showed mean scores of PPOS, sharing and caring for the psychiatrists were 3.4, 3.8, and 3.1, compared to 3.9, 4.2, and 3.7 for the mental patients\' FPCs. There was a significant difference between the PPOS mean scores of the FPC and psychiatrist groups (p < 0.05) indicating that psychiatrists\' attitudes were less patient-centered. Developing medical training interventions, establishing communication skills workshops, and increasing patients\' awareness are some approaches to address the low level of patient-centered care.
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  • 文章类型: Journal Article
    Shifting care from the secondary to the primary system may present an opportunity to ensure that the increasing number of patients with chronic heart failure (CHF) receive high-quality care while containing costs. However, shifting from secondary to primary care might seem radical to patients. A qualitative insight into patients\' issues, preferences, expectations and needs may help arrange a smooth transition from secondary to primary care for CHF patients. The aim of this exploratory study is therefore to gain insights into the way CHF patients in secondary care perceive the possibility of substitution of CHF care from secondary to primary care.
    In total, fifteen semi-structured interviews were conducted with CHF patients. Topics discussed during the interviews were the advantages and disadvantages, attitudes of patients, preferences regarding the substitution and trust in the GP and cardiologist. A thematic analysis was performed.
    The minority of the patients welcomed the idea of substitution. Against that, the majority of the patients had various concerns. This attitude was mainly influenced by two main themes, confidence and security and accessibility. Most patients had more confidence in secondary than in primary care because of the greater level of knowledge and more possibilities for examination in secondary care and because of good relationships and positive previous experiences in secondary care. Patients also indicated that the general practice is geographically more easily accessible than the hospital.
    Patients had various concerns regarding the substitution of care for chronic heart failure. Addressing these concerns by informing them appropriately may contribute to a smooth and patient-friendly substitution from secondary to primary care. The fears and needs of patients could also be taken into account by policymakers when optimising the way substitution is organised, or when substitution is introduced.
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  • 文章类型: Journal Article
    OBJECTIVE: To construct and assess the psychometric properties of an instrument to measure patients\' attitudes towards involuntary hospitalization.
    METHODS: This is a two phase study. In the first phase, based on comprehensive literature review, a twenty one item scale to measure patients\' attitudes to involuntary admission was constructed. Forensic and inpatient Psychiatrists, patients\' advocates and legal experts (n = 15) were invited to participate in the validation process of the written instrument, by formally rating each item of the instrument for its relevancy in measuring patients\' attitudes to involuntary admission. In the second phase of the project, the instrument was administered to a sample of eighty consecutive patients, who were admitted involuntarily to an acute psychiatric unit of a teaching hospital. All patients completed the constructed attitudes towards involuntary admission scale, and the client satisfaction questionnaire.
    RESULTS: Responses from psychiatry and advocacy experts provided evidence for face and content validity for the constructed instrument. The internal consistency reliability of the instrument is 0.84 (Chronbach\' alpha), factor analysis resulted in three correlated, and theoretically meaningful factors. There was evidence for content, convergent, and concurrent validity.
    CONCLUSIONS: A reliable twenty one item instrument scale to measure patients\' attitudes to involuntary admission was developed. The developed instrument has high reliability, there is strong evidence for validity, and it takes ten minutes to complete.
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  • 文章类型: Journal Article
    BACKGROUND: The incidence of diabetes is rising across the world. This global problem significantly affects the economic and social development in the 21st century. If the disease is diagnosed in time, the number of complications as well as the costs of therapy will be lower. Modern technologies permeate all spheres of medicine, and diabetes treatment is no exception. Therefore, the aim of this article is to analyze patients\' attitudes to the use of modern technologies in the treatment of diabetes (type 1 diabetes mellitus [T1DM] and type 2 diabetes mellitus [T2DM]).
    METHODS: A total of 313 respondents from the Czech Republic in the period from June 24, 2015, to July 24, 2015, participated in a questionnaire survey. The target group was diabetics regardless of the type of illness. Collected data were analyzed using descriptive statistical methods, Z-test, and test of independence (Pearson\'s chi-squared test).
    RESULTS: Although in other areas mobile applications are used to monitor patients\' health condition in ~30% of cases, in the case of diabetes they are used by only 4% of respondents. Approximately 8% of participants use an application, but they do not like it. The rest of the respondents have never used any mobile application. These low figures are due to a lack of knowledge about the availability and possibilities of mobile applications. A positive correlation was proven between technical skills and methods of entering data. Gender and age show only a weak dependency of the method of writing data on their own health condition. Furthermore, the monitored parameters show that patients with T1DM control and know more about their health condition than patients with T2DM, which is reflected, for example, by more frequent blood glucose measurements or larger track of their physical activity. Conversely, the relationship between the associated complications and self-care activities has not been demonstrated.
    CONCLUSIONS: Despite the current fast development of modern technologies, these technologies are not frequently used in treating patients. The principal problem lies in patients\' low technological knowledge and their higher age, which makes learning new skills, including the use of modern technologies, more difficult.
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  • 文章类型: Journal Article
    OBJECTIVE: The objective of this study was to compare patients\' attitudes and satisfaction with medication and patient-rated tolerability between those prescribed a first-generation antipsychotic long-acting injection (FGA-LAI) and those prescribed risperidone long-acting injection (RLAI).
    METHODS: A cross-sectional study of a representative sample of outpatients prescribed an FGA-LAI or RLAI for a minimum of 6 months and attending a depot clinic. Attitudes to medication were assessed by the Drug Attitude Inventory (DAI-30), tolerability was measured by the Liverpool University Neuroleptic Side Effect Rating Scale (LUNSERS) and satisfaction with antipsychotic medication was assessed by the Satisfaction with Antipsychotic Medication (SWAM) scale.
    RESULTS: The RLAI (n = 28) and FGA-LAI (n = 39) groups did not differ in terms of mean age, sex, diagnosis and ethnicity. All individual LAIs were prescribed within British National Formulary limits. The most commonly prescribed FGA-LAI was flupentixol decanoate (n = 22). There was no significant difference between the RLAI and FGA-LAI groups in terms of mean total scores on the DAI-30, LUNSERS and SWAM or the tolerability subscales of the LUNSERS or the two subscales (treatment acceptability and medication insight) of the SWAM. In both LAI groups there was a low level of side effects (LUNSERS) and a generally positive attitude (DAI-30) and reasonable satisfaction (SWAM) with medication.
    CONCLUSIONS: Patients treated with FGA-LAI and RLAI for at least 6 months did not differ in terms of patient-rated tolerability, attitudes and satisfaction with medication. The current design cannot determine whether differences would have been evident earlier on during treatment. These results should be regarded as preliminary and are subject to prescribing bias. Randomized studies avoid prescribing bias and are a superior way to compare specific LAIs. Ideally randomized studies should include patient-rated outcome measures including medication tolerability; assessment of side effects, efficacy and quality of life made by blinded raters; and additional objective side-effect data including changes in weight and key blood parameters.
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