背景:妊娠滋养细胞疾病(GTD)的临床结局通常很好,但是GTD是一种罕见且复杂的疾病,需要专家信息和支持才能提供黄金护理标准。整个欧洲,专业护士和/或助产士在GTD多学科团队中越来越普遍,可以与医疗专业人员一起在整体护理模式中工作;但是,GTD中心之间的作用有时不存在或可能差异很大。
目的:欧洲滋养细胞疾病治疗组织(EOTTD)的目标是协调欧洲的最佳实践。为欧洲GTD护理最佳实践标准化提供依据,一组欧洲GTD护士/助产士为GTD患者的最低要求和最佳护理制定了指南.
方法:拥有护理代表的EOTTD成员国成员参加了多个研讨会,无论是虚拟的还是亲自的,和指南是通过共识和现有证据制定的。
结果:来自4个国家的16名护士和1名助产士(英国,爱尔兰,瑞典,荷兰)做出了贡献。该小组为治疗和筛查患者创建了流程图,显示GTD患者的最低和最佳实践护理。
结论:尽管GTD服务有许多不同的护理模式和资源,这个共识工作组提供了一套指南,以推动GTD患者以患者为中心的整体护理模式.这是一篇原创论文,以前没有GTD护理指南。准则的实施将鼓励其他医疗保健专业人员改善患者护理的提供。
BACKGROUND: Clinical outcomes in gestational trophoblastic disease (GTD) are generally excellent, but GTD is a rare and complex condition that requires specialist information and support to offer a gold standard of care. Across Europe, specialist nurses and/or midwives are increasingly common in the GTD multidisciplinary team to work alongside medical professionals in a holistic model of care; however, the role is sometimes non-existent or can vary significantly between GTD centres.
OBJECTIVE: The aim of the European Organisation for Treatment of Trophoblastic Diseases\' (EOTTD) is to harmonise best practice in Europe. To provide a basis for the European standardisation of best practice nursing care in GTD, a group of European GTD nurses/midwives composed guidelines for minimal requirements and optimal nursing care of GTD patients.
METHODS: Members of the EOTTD member countries with nursing representation attended multiple workshops, both virtual and in person, and guidelines were created by consensus and evidence where available.
RESULTS: 16 nurses and 1 midwife from 4 countries (England, Ireland, Sweden, and the Netherlands) contributed. The group created flow diagrams for treatment and screening patients, showing minimum and best practice nursing care for patients with GTD.
CONCLUSIONS: Despite the many different models of care and resources available to GTD services, this consensus working group has provided a set of guidelines to drive forward a patient focused holistic model of care for GTD patients. This is an original paper, whereby no such guidelines in GTD nursing have been developed before. The implementation of guidelines will encourage other health care professionals to improve the provision of patient care.