Patient awareness

患者意识
  • 文章类型: Journal Article
    背景:尽管医疗保健发生了重大变化,工作实践,和休闲活动,提出的腹壁疝的诱发因素在近两个世纪以来基本保持不变。我们旨在通过检查患者对腹壁疝发展的诱发因素的感知,调查这些因素是否随时间发生了变化。这项研究是在爱尔兰皇家外科医学院进行的,康诺利医院,Blanchardstown,都柏林,腹壁疝患者填写了一份问卷。
    结果:共有277例腹壁疝患者(平均年龄55.7;男性85.6%)完成了问卷调查(腹股沟66.1%;脐带10.8%;脐旁6.9%;上腹10.5%;切口3.2%;股,和1.1%的港口站点)。一百二十名病人(百分之四十三点三)认为他们的疝气是由于解除,71(25.6%)提到了体育活动,17(6.1%)提到了其他体育活动。传统因素-慢性咳嗽和便秘-仅有11例患者(4.0%)累积引用,而前列腺梗阻没有被任何人引用。
    结论:这项研究表明,健身可能是腹壁疝发展的一个因素。应更加注意正确使用健身器材,以最大程度地减少疝气发展的风险。
    BACKGROUND: Despite significant changes in healthcare, work practices, and leisure activity, the proposed precipitating factors for abdominal wall hernias have remained largely unchanged for almost two centuries. We aimed to investigate if there have been shifts in these factors over time by examining patients\' perception of precipitating factors for abdominal wall hernia development. This study was conducted in the Royal College of Surgeons In Ireland Department of Surgery, Connolly Hospital, Blanchardstown, Dublin, where patients with abdominal wall hernias completed a questionnaire  .
    RESULTS: A total of 277 patients (mean age 55.7; 85.6% male) with abdominal wall hernia completed the questionnaire (66.1% inguinal; 10.8% umbilical; 6.9% paraumbilical; 10.5% epigastric; 3.2% incisional; 1.4% femoral, and 1.1% port-site). One hundred and twenty patients (43.3%) believed their hernia was due to lifting, 71 (25.6%) cited gym activity and 17 (6.1%) cited other sporting activities as the precipitating factor. Traditional factors - chronic cough and constipation - were cumulatively cited only by 11 patients (4.0%), while prostatic obstruction was not cited by any.
    CONCLUSIONS: This study suggests that fitness pursuits may be an increasing contributor to the development of abdominal wall hernia. Greater attention should be paid to the proper use of gym equipment to minimise the risk of hernia development.
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  • 文章类型: Journal Article
    该声明着重于以下事实:患有围产期心肌病(PPCM)的妇女具有相当高的死亡率和发病率。不到50%的患者在诊断后6个月内心脏功能完全恢复。此外,心功能恢复的患者经常患有合并症,如高血压或心律失常,需要长期治疗。这具有重大影响,超出了患者的寿命,因为这也可能对她的家庭产生重大影响。新诊断为PPCM的妇女应参与有关治疗的决策过程,例如,建议放弃母乳喂养,或使用心脏可植入电子设备。患有PPCM的女性面临着不确定的问题,即一段时间内不知道她们的心脏功能是否会恢复,从而使她们的预期寿命接近正常。这不仅影响他们的工作能力,这可能会有财务影响,但也可能影响大家庭的心理健康和生活质量。必须告知患有PPCM的妇女,将来怀孕总是有很大的风险,在心脏恢复不良的情况下,与高发病率和死亡率有关。PPCM患者最好通过跨学科和多专业方法进行管理,包括心脏病专家。妇科医生,护士,一个心理学家,和社会工作者。本文件的范围包括对诊断为PPCM的妇女的管理的当代挑战和方法。
    This statement focuses on the fact that women with peripartum cardiomyopathy (PPCM) have a substantial mortality and morbidity rate. Less than 50% of patients have full recovery of their cardiac function within 6 months of diagnosis. Also, patients with recovered cardiac function often suffer from comorbidities, such as hypertension or arrhythmias, which require long-term treatment. This has major implications which extend beyond the life of the patient, as it may also substantially impact her family. Women with a new diagnosis of PPCM should be involved in the decision-making processes regarding therapies, e.g. the recommendation to abstain from breastfeeding, or the use of cardiac implantable electronic devices. Women living with PPCM face the uncertainty of not knowing for some time whether their cardiac function will recover to allow them a near-to-normal life expectancy. This not only impacts their ability to work, which may have financial implications, but may also affect mental health and quality of life for the extended family. Women living with PPCM must be informed that a future pregnancy always carries a substantial risk and, in case of poor cardiac recovery, is associated with a high morbidity and mortality. Patients with PPCM are best managed by an interdisciplinary and multiprofessional approach including e.g. a cardiologist, a gynaecologist, nurses, a psychologist, and social workers. The scope of this document encompasses contemporary challenges and approaches for the management of women diagnosed with PPCM.
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  • 文章类型: Journal Article
    暂无摘要。
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  • 文章类型: Journal Article
    目的:本研究旨在评估知识,态度,伊朗地中海贫血主要患者对铁螯合剂(ICAs)的治疗和实践。
    方法:共有101例重型地中海贫血患者参与了这项横断面调查。进行了深入的药物审查,和参与者的知识,态度,和实践通过基于20评分系统的经过验证的仪器进行评估。
    结果:统计分析显示52名患者(51.5%)对药物的知识水平较差(得分<10),37(36.6%)处于中等水平(得分10-15),12人(11.9%)达到满意水平(分数>15分)。77(76.2%)患者对其当前健康状况对服用铁螯合剂的依赖性有积极的信念,63人(62.4%)认为如果不服药,他们会病得很重。结果还表明,接受去铁胺治疗的患者的平均实践得分为5.81±3.50;在接受去铁酮治疗的患者和接受地拉罗司治疗的患者中,平均得分为7.36±5.15和14.94±4.14。此外,基于回归分析,知识水平与实践水平呈直接线性相关(P<0.001).
    结论:结论:本研究的结果表明,患者对管理的知识,不良事件,国际注册会计师协会的必要性并不令人满意。强烈建议通过教育干预措施提高地中海贫血患者对药物的认识,以提高他们的实践水平。
    OBJECTIVE: This study aimed to evaluate the knowledge, attitude, and practice toward iron chelating agents (ICAs) in Iranian thalassemia major patients.
    METHODS: A total of 101 patients with thalassemia major were involved in this cross-sectional survey. A deep medication review was done, and participants\' knowledge, attitude, and practice were evaluated by a validated instrument based on a 20-scoring system.
    RESULTS: Statistical analyses showed 52 patients (51.5%) had a poor knowledge level (scores < 10) about their medications, 37 (36.6%) had a moderate level (scores 10-15), and 12 (11.9%) had a satisfactory level (scores > 15). Seventy-seven (76.2%) patients have positive beliefs regarding the dependence of their current health status on taking iron chelators, and 63 (62.4%) believed that they would become very ill without taking medication. The results also showed that the mean practice score in patients who received deferoxamine was 5.81 ± 3.50; in the patients who received deferiprone and those who received deferasirox, the mean scores were 7.36 ± 5.15 and 14.94 ± 4.14. Also, the knowledge and practice level had a direct linear correlation based on the regression analyses (P < 0.001).
    CONCLUSIONS: In conclusion, results of the present research suggests that the patients\' knowledge about the administration, adverse events, and necessity of ICAs was not satisfactory. Improving the knowledge of thalassemia patients toward their medicines through educational interventions is highly recommended to improve their practice level.
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  • 文章类型: Journal Article
    背景:在国际文献中,患者对妇科肿瘤领域术后淋巴水肿的认识很少。我们希望收集并记录妇科癌症幸存者对术后淋巴水肿的认识,包括围手术期咨询的充分性等方面,管理,和生活质量。
    方法:一项包含25个多项选择题的基于网络的调查被分发给了欧洲妇科癌症倡导团体网络(ENGAGe)小组内的妇科癌症倡导团体。在分配之前,该调查在妇科患者的试点组中得到了验证。
    结果:总体而言,来自20个国家的386名妇女填写了问卷。只有一半的患者(n=211)知道淋巴水肿是什么,而52%的受访者表示,他们在术前评估时从未被告知发生淋巴水肿的潜在风险.在被告知淋巴水肿风险和管理的妇女中,有53%通过自我主动获得了信息,主要与患者团体或在线联系。大约84%的淋巴水肿患者报告说,他们告诉他们的医生他们的症状。94例患者(55.3%,这不是386中的55%)接受了淋巴水肿治疗。136名妇女中有45名报告说淋巴水肿严重影响了她们的日常生活。
    结论:我们报告说,在妇科癌症幸存者中,人们对术后淋巴水肿的风险和治疗方案缺乏认识,并且在知识方面存在显著差距。需要紧急召回和调整专业人员的机构实践程序和意识,以充分告知和支持妇科癌症患者。
    BACKGROUND: Patient awareness of postoperative lymphedema in the field of gynecologic oncology has been poorly documented in the international literature. We wished to capture and document the awareness among gynecological cancer survivors about postoperative lymphedema, including aspects such as the adequacy of perioperative counseling, management, and quality of life.
    METHODS: A web-based survey comprising 25 multiple-choice questions was distributed to gynecological cancer advocacy groups within the European Network of Gynecological Cancer Advocacy Groups (ENGAGe) group. The survey was validated in a pilot group of gynecological patients prior to distribution.
    RESULTS: Overall, 386 women from 20 countries completed the questionnaire. Only half of the patients (n = 211) knew what lymphedema is, whereas 52% of the respondents stated that they were never informed at their pre-operative assessment about the potential risk of developing lymphedema. Fifty-three percent of those women who were informed about the risk and management of lymphedema received information through self-initiative, connecting mainly with patient groups or online. Approximately 84% of patients with lymphedema reported that they informed their doctor about their symptoms. Ninety-four patients (55.3%, which is not 55% of the 386) were treated for lymphedema. Forty-five women out of 136 reported that lymphedema significantly affected their everyday lives.
    CONCLUSIONS: We report a large lack of awareness and a significant gap of knowledge about the risks and treatment options related to postoperative lymphedema among gynecological cancer survivors. Institutional practice routines and awareness among professionals need to be urgently recalled and adapted to adequately inform and support gynecological cancer patients.
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  • 文章类型: Journal Article
    银屑病(PsD),包括斑块型银屑病(PsO)和银屑病关节炎(PsA),包括广泛的表现,并显着影响生活质量(QoL)。这里,我们评估了患者对PsO和PsA作为全身性疾病的理解,它对他们的身体和情感健康的影响,和患者与医疗保健专业人员的经验,以分享治疗决策。
    全球牛皮癣病及其他疾病调查是一项横断面调查,定性,对伴有/不伴有PsA的中重度PsO患者进行的在线调查。此分析报告了印度患者的发现。
    在接受调查的261名患者中,27%与PsO报告伴随PsA,其中89%报告PsA严重程度为中度或高度活跃。总的来说,92%的人听说过“PsD”这个词,90%的人知道他们的病情是全身性疾病。很少有人知道PsD表现(掌足底银屑病,49%;指甲牛皮癣,43%;轴性症状,40%;PSA,34%)和合并症(心血管疾病,33%;肥胖,30%;糖尿病,28%)。89%的患者表示他们的皮肤问题对QoL有“非常大”到“极端大”的影响。97%的患者经历了他人的歧视和污名化。81%的患者没有参与确定治疗目标。很少(PsO,6%;PsA,9%)的患者对目前的治疗不满意;≥50%的患者报告皮肤症状(PsO)和关节症状(PsA)的不完全缓解是不满意的原因。
    对与PsD和QoL差相关的表现和合并症缺乏认识突出了对患者进行教育的必要性,共同的治疗决策,以及印度PsD管理的多维方法。
    UNASSIGNED: Psoriatic disease (PsD), including plaque psoriasis (PsO) and psoriatic arthritis (PsA), comprises a wide spectrum of manifestations and significantly impacts quality-of-life (QoL). Here, we assessed patients\' understanding of PsO and PsA as a systemic disease, its impact on their physical and emotional well-being, and patients\' experiences with healthcare professionals for shared treatment decision-making.
    UNASSIGNED: The Global Psoriatic Disease and Beyond Survey was a cross-sectional, qualitative, online survey conducted on patients with moderate-to-severe PsO with/without concomitant PsA. This analysis reports findings from Indian patients.
    UNASSIGNED: Of the 261 surveyed patients, 27% with PsO reported concomitant PsA, of whom 89% reported PsA severity as moderately or highly active. Overall, 92% had heard the term \"PsD,\" and 90% knew their condition was a systemic disease. Few were aware of PsD manifestations (palmoplantar psoriasis, 49%; nail psoriasis, 43%; axial symptoms, 40%; PsA, 34%) and comorbidities (cardiovascular disease, 33%; obesity, 30%; diabetes, 28%). Eighty-nine percent of patients indicated their skin problems had a \"very-large\" to \"extreme-large\" impact on QoL. Ninety-seven percent of patients experienced discrimination and stigmatization from others. Eighty-one percent of patients were not involved in deciding treatment goals. Few (PsO, 6%; PsA, 9%) patients were dissatisfied with current treatment; ≥50% patients reported incomplete relief of skin symptoms (PsO) and joint symptoms (PsA) as the reason for dissatisfaction.
    UNASSIGNED: Lack of awareness of the manifestations and comorbidities associated with PsD and poor QoL highlights the need for patient education, shared treatment decision-making, and a multidimensional approach to PsD management in India.
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  • 文章类型: Journal Article
    许多成年冠心病患者在获得负担得起的旅行保险方面遇到困难。我们旨在通过问卷评估他们的旅行习惯和观点。我们的结果表明,许多成年冠心病患者使用旅行保险,但由于病情而产生保费。迫切需要为这些患者提供更好的旅行保险选择指导。
    Many adult CHD patients encounter difficulties in obtaining affordable travel insurance. We aimed to assess their travel habits and perspectives through a questionnaire. Our results indicate that many adult CHD patients use travel insurance but incur a premium due to their condition. There is an urgent need to provide better guidance to these patients on travel insurance options available to them.
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  • 文章类型: Journal Article
    背景:药物相关性颌骨坏死(MRONJ)是一种罕见但严重的疾病,近年来引起了越来越多的关注。它主要影响接受抗吸收和抗血管生成药物治疗的个体,如二膦酸盐和地诺单抗,通常用于骨质疏松症和癌症相关骨转移。因此,本研究旨在评估接受抗吸收和抗血管生成药物治疗的患者对MRONJ的认知和理解.方法对110例临床接受抗吸收和抗血管生成药物治疗的患者进行横断面调查。参与者接受了一份结构化问卷,以评估他们对MRONJ的认识。问卷涵盖了诸如MRONJ,双膦酸盐用法,以及对病情潜在并发症的认识。还收集了人口统计信息。采用SPSS统计软件进行卡方检验和Fisher检验。结果在性别分布方面,63.6%的参与者是女性。关于年龄分布,大多数(43.6%)属于21至40岁年龄组,而只有5.5%的人年龄在60岁以上。关于教育程度,绝大多数(58.2%)的参与者拥有学士学位。研究结果表明,相当比例(35.5%)的参与者对颌骨坏死有认识,并且这种关联在统计学上是显著的(p=0.002)。相当数量的参与者口服药物(30.9%),而其他人则使用各种给药途径,包括注射(静脉注射和其他)(40%),这种差异也具有统计学意义(p=0.001)。大多数参与者服用双膦酸盐治疗骨质疏松症(41.8%)或癌症(13.6%),两者均具有统计学意义(p<0.01)。性别无显著影响(p>0.01),但年龄显示出潜在的关联(p=0.07,药物使用p=0.003)。教育背景没有明显的联系,除了双膦酸盐的使用(p<0.01)和副作用报告(p<0.01)。结论值得注意的是,一小部分参与者表现出对这种情况的认识,表明需要继续教育和提高认识运动。可能需要进一步的研究和干预措施,以满足不同年龄段和教育背景的特定需求,以促进安全有效的药物管理。
    Background Medication-related osteonecrosis of the jaws (MRONJ) is a rare but severe condition that has garnered increasing attention in recent years. It primarily affects individuals undergoing treatment with antiresorptive and antiangiogenic medications, such as bisphosphonates and denosumab, commonly prescribed for osteoporosis and cancer-related bone metastases. Therefore, the present study aimed to assess awareness and understanding of MRONJ among patients receiving antiresorptive and antiangiogenic medications. Methods A cross-sectional survey was conducted among 110 patients receiving antiresorptive and antiangiogenic medications in a clinical setting. Participants were given a structured questionnaire to assess their awareness of MRONJ. The questionnaire covered aspects such as MRONJ, bisphosphonate usage, and awareness of the condition\'s potential complications. Demographic information was also collected. Chi-square and Fisher\'s tests were performed using SPSS statistical software. Results In terms of gender distribution, 63.6% of the participants were female. Concerning age distribution, the majority (43.6%) fell within the 21 to 40 age group, whereas only 5.5% were aged over 60. Regarding educational attainment, a substantial majority (58.2%) of the participants held a bachelor\'s degree. The study findings reveal that a considerable proportion (35.5%) of participants possess awareness regarding jaw osteonecrosis, and this association is statistically significant (p=0.002). A substantial number of participants administered the medication orally (30.9%), while others utilized various administration routes, including injection (IV and others) (40%), and this difference was also statistically significant (p=0.001). Most participants took bisphosphonates for osteoporosis (41.8%) or cancer (13.6%), both statistically significant (p<0.01). Gender had no significant impact (p>0.01), but age showed potential associations (p=0.07 for awareness, p=0.003 for medication use). Educational backgrounds had no significant link, except for bisphosphonate usage (p<0.01) and side effects reporting (p<0.01). Conclusion Notably, a small percentage of participants demonstrated awareness of this condition, indicating a need for continued education and awareness campaigns. Further research and interventions may be warranted to address the specific needs of different age groups and educational backgrounds in promoting safe and effective medication management.
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  • 文章类型: Journal Article
    评估急诊(ED)患者对辐射剂量的知识水平和与计算机断层扫描(CT)扫描相关的可能风险,进行了为期两个月的调查。共有357名成年患者(44%的男性和56%的女性)在ED中进行诊断成像,回答了由15个问题组成的调查。调查包括有关参与者的人口统计学和辐射知识的问题。大多数受访者(58.5%)报告说,医生在手术前没有解释辐射的潜在风险。此外,超过一半的受访者(58.1%)表示对辐射的潜在风险感到焦虑。大多数受访者(84.9%)表示,潜在的辐射风险并不影响他们继续手术的决定。总的来说,研究结果突出表明,在诊断程序之前,患者缺乏关于辐射及其潜在风险的信息.在现代社区中,应考虑提高对与这些成像方式相关的风险的认识和理解。应努力确保接受诊断成像的患者了解他们可能遇到的辐射风险。
    To evaluate the level of knowledge about radiation dose and possible risks related to computed tomography (CT) scans among patients visiting emergency departments (EDs), a survey was conducted over a two-month period. A total of 357 adult patients (44% men and 56% women) presenting for diagnostic imaging in the ED answered a survey consisting of 15 questions. The survey included questions about the participants\' demographics and knowledge of radiation. Most of the respondents (58.5%) reported that the physician did not explain the potential risk of radiation before the procedure. In addition, more than half of the respondents (58.1%) expressed feeling anxious about the potential risk of radiation. Most respondents (84.9%) stated that the potential radiation risk did not affect their decision to proceed with the procedure. Overall, the findings highlight a lack of information about radiation and its potential risks provided to patients prior to the diagnostic procedure. Increasing awareness and understanding of the risks associated with these imaging modalities should be considered essential in modern communities. Efforts should be made to ensure that patients undergoing diagnostic imaging are aware of the radiation risks they may encounter.
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  • 文章类型: Journal Article
    目的:研究年龄相关性黄斑变性(AMD)成人患者对其疾病的认识的患病率和预测因素。方法:这项研究分析了2005-2008年全国健康和营养检查调查中5553名40岁或以上的成年人进行了视网膜成像。基于视网膜图像确定AMD。通过自我报告的AMD诊断评估患者对其AMD的认识。建立多变量逻辑回归模型,以检查患者对AMD的认识与视网膜影像学上的社会人口统计学特征和特定AMD病变类型之间的关系。结果:在接受调查的425名成年人中发现了AMD(6.5%)(95%置信区间[CI],5.5%-7.5%),包括早期AMD的87.7%(95%CI,82.9%-92.5%)和晚期AMD的12.3%(95%CI,7.5%-17.1%)。在视网膜成像上患有两种AMD的成年人中,17.5%(95%CI,13.1%-22.0%)知道他们的疾病,其中早期AMD为11.6%(95%CI,8.4%-14.9%),晚期AMD为59.2%(95%CI,43.1%-75.3%)(P<0.0001)。在同一组中,60岁或以上的人(赔率比[OR],33.46;95%CI,7.67-146.03),最佳矫正视力为20/40或更差(OR,4.63;95%CI,2.95-7.26)对他们的AMD诊断有更高的认识,而西班牙裔(或,0.28;95%CI,0.09-0.88)与白人成年人和在家不会说英语的人(OR,0.05;95%CI,0.01-0.41)对其诊断的知晓率较低。结论:少于1/5的AMD成年人知道他们的个人诊断,包括少于3/5的晚期AMD成人。老年人和视力较差的人更有可能知道自己患有AMD,而西班牙裔成年人和在家不会说英语的人的可能性较小。努力提高患者对AMD的认识可能会提高随访率并防止视力丧失。
    Purpose: To examine the prevalence and predictors of patient awareness of their disease in adults with age-related macular degeneration (AMD). Methods: This study analyzed 5553 adults 40 years or older in the 2005-2008 National Health and Nutrition Examination Survey who underwent retinal imaging. AMD was determined based on retinal images. Patient awareness of their AMD was assessed by a self-reported AMD diagnosis. Multivariable logistic regression models were constructed to examine the association of patient awareness of their AMD with sociodemographic characteristics and specific AMD lesion types on retinal imaging. Results: AMD was identified in 425 of the adults surveyed (6.5%) (95% confidence interval [CI], 5.5%-7.5%), including 87.7% (95% CI, 82.9%-92.5%) with early AMD and 12.3% (95% CI, 7.5%-17.1%) with late AMD. Among adults with either type of AMD on retinal imaging, 17.5% (95% CI, 13.1%-22.0%) were aware of their disease, which included 11.6% (95% CI, 8.4%-14.9%) with early AMD and 59.2% (95% CI, 43.1%-75.3%) with late AMD (P < .0001). In the same group, those aged 60 years or older (odds ratio [OR], 33.46; 95% CI, 7.67-146.03) and with a best-corrected visual acuity of 20/40 or worse (OR, 4.63; 95% CI, 2.95-7.26) had higher awareness of their AMD diagnosis, whereas Hispanic (OR, 0.28; 95% CI, 0.09-0.88) vs White adults and those who did not speak English at home (OR, 0.05; 95% CI, 0.01-0.41) had lower awareness of their diagnosis. Conclusions: Fewer than 1 in 5 adults with AMD were aware of their personal diagnosis, including fewer than 3 in 5 adults with late AMD. Older adults and those with worse vision were more likely to know they have AMD, whereas Hispanic adults and those who did not speak English at home were less likely. Efforts to increase patients\' awareness of their AMD may improve rates of follow-up and prevent vision loss.
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