■银屑病(PsD),包括斑块型银屑病(PsO)和银屑病关节炎(PsA),包括广泛的表现,并显着影响生活质量(QoL)。这里,我们评估了患者对PsO和PsA作为全身性疾病的理解,它对他们的身体和情感健康的影响,和患者与医疗保健专业人员的经验,以分享治疗决策。
■全球牛皮癣病及其他疾病调查是一项横断面调查,定性,对伴有/不伴有PsA的中重度PsO患者进行的在线调查。此分析报告了印度患者的发现。
■在接受调查的261名患者中,27%与PsO报告伴随PsA,其中89%报告PsA严重程度为中度或高度活跃。总的来说,92%的人听说过“PsD”这个词,90%的人知道他们的病情是全身性疾病。很少有人知道PsD表现(掌足底银屑病,49%;指甲牛皮癣,43%;轴性症状,40%;PSA,34%)和合并症(心血管疾病,33%;肥胖,30%;糖尿病,28%)。89%的患者表示他们的皮肤问题对QoL有“非常大”到“极端大”的影响。97%的患者经历了他人的歧视和污名化。81%的患者没有参与确定治疗目标。很少(PsO,6%;PsA,9%)的患者对目前的治疗不满意;≥50%的患者报告皮肤症状(PsO)和关节症状(PsA)的不完全缓解是不满意的原因。
■对与PsD和QoL差相关的表现和合并症缺乏认识突出了对患者进行教育的必要性,共同的治疗决策,以及印度PsD管理的多维方法。
UNASSIGNED: Psoriatic disease (PsD), including plaque psoriasis (PsO) and psoriatic arthritis (PsA), comprises a wide spectrum of manifestations and significantly impacts quality-of-life (QoL). Here, we assessed patients\' understanding of PsO and PsA as a systemic disease, its impact on their physical and emotional well-being, and patients\' experiences with healthcare professionals for shared treatment decision-making.
UNASSIGNED: The Global Psoriatic Disease and Beyond Survey was a cross-sectional, qualitative, online survey conducted on patients with moderate-to-severe PsO with/without concomitant PsA. This analysis reports findings from Indian patients.
UNASSIGNED: Of the 261 surveyed patients, 27% with PsO reported concomitant PsA, of whom 89% reported PsA severity as moderately or highly active. Overall, 92% had heard the term \"PsD,\" and 90% knew their condition was a systemic disease. Few were aware of PsD manifestations (palmoplantar psoriasis, 49%; nail psoriasis, 43%; axial symptoms, 40%; PsA, 34%) and comorbidities (cardiovascular disease, 33%; obesity, 30%; diabetes, 28%). Eighty-nine percent of patients indicated their skin problems had a \"very-large\" to \"extreme-large\" impact on QoL. Ninety-seven percent of patients experienced discrimination and stigmatization from others. Eighty-one percent of patients were not involved in deciding treatment goals. Few (PsO, 6%; PsA, 9%) patients were dissatisfied with current treatment; ≥50% patients reported incomplete relief of skin symptoms (PsO) and joint symptoms (PsA) as the reason for dissatisfaction.
UNASSIGNED: Lack of awareness of the manifestations and comorbidities associated with PsD and poor QoL highlights the need for patient education, shared treatment decision-making, and a multidimensional approach to PsD management in India.