Organisation of health services

卫生服务组织
  • 文章类型: Journal Article
    目的:可以改善手术前等待时间内的以患者为中心的护理。在这项研究中,我们旨在评估(1)患者对手术前等待时间的体验和偏好;(2)等待时间对生活质量(QoL)的影响;(3)影响患者等待时间的因素。
    方法:我们在两家三级医院的妇科癌症患者中进行了一项探索性序贯混合方法研究。我们进行了半结构化访谈,并通过主题分析确定了QoL的各个方面以及影响等待时间可接受性的因素。我们根据这项主题分析开发了一份问卷,该问卷由97名妇女完成。进行描述性统计以及单变量和多元回归分析。
    结果:平均理想等待时间为3.5周(±1.7周),最小和最大可接受等待时间分别为2.2和5.6周.许多患者的焦虑和抑郁评分高于医院焦虑和抑郁量表的阈值(48%)或抑郁(34%),有睡眠问题(56%)或经历过疼痛(54%)。在表明等待时间过长的患者中,许多因素更为常见:低教育水平(OR7.4,95%CI0.5至5.0,p=0.007),手术时间>4周(OR7.0,95%CI0.8至4.4,p=0.002),并且经历了睡眠障碍(OR3.27,95%CI0.0至3.1,p=0.05)。如果患者预期等待时间>4周(OR0.20,95%CI-4.0至-0.5p=0008)或患者出现疼痛(OR0.26,95%CI-3.6至-0.3,p=0.03),他们不太经常表示等待时间太长。
    结论:为了提高以患者为中心的护理,医疗保健提供者应将等待时间减少到3-4周,并确保患者充分了解等待时间的长短,并意识到高度焦虑,这段时间的抑郁和疼痛。未来的研究应该评估哪些干预措施可以改善等待时间内的QoL。
    OBJECTIVE: Patient-centredness of care during wait time before surgery can be improved. In this study we aimed to assess (1) patients\' experiences with and preferences regarding wait time before surgery; (2) the impact of wait time on quality of life (QoL) and (3) which factors influence patients\' wait time experience.
    METHODS: We performed an exploratory sequential mixed-methods study among women with gynaecological cancer in two tertiary hospitals. We conducted semistructured interviews and identified aspects of QoL and factors that influenced wait time acceptability through thematic analysis. We developed a questionnaire from this thematic analysis which was completed by 97 women. Descriptive statistics and univariate and multivariate regression analyses were performed.
    RESULTS: Average ideal wait time was 3.5 weeks (±1.7 weeks), minimum and maximum acceptable wait times were 2.2 and 5.6 weeks. Many patients scored above the threshold of the Hospital Anxiety and Depression Scale for anxiety (48%) or depression (34%), had sleeping problems (56%) or experienced pain (54%). A number of factors were more common in patients who indicated that their wait time had been too long: low education level (OR 7.4, 95% CI 0.5 to 5.0, p=0.007), time to surgery >4 weeks (OR 7.0, 95% CI 0.8 to 4.4, p=0.002) and experienced sleep disturbance (OR 3.27, 95% CI 0.0 to 3.1, p=0.05). If patients expectation of wait time was >4 weeks (OR 0.20, 95% CI -4.0 to -0.5 p=0008) or if patients experienced pain (OR 0.26, 95% CI -3.6 to -0.3, p=0.03), they less frequently indicated that wait time had been too long.
    CONCLUSIONS: To improve patient-centredness of care, healthcare providers should aim to reduce wait time to 3-4 weeks and ensure that patients are well informed about the length of wait time and are aware of high levels of anxiety, depression and pain during this time. Future studies should evaluate what interventions can improve QoL during wait time.
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  • 文章类型: Journal Article
    目的:描述一种新的共同设计框架,称为“知情证据”,基于经验的联合设计(E2CD)。
    背景:让消费者和临床医生参与规划,设计和实施服务会导致最终产品更有可能满足最终用户的需求,并增加其吸收和可持续性的可能性。文献中描述了共同设计的不同形式和定义,并且在卫生服务重新设计中取得了不同程度的成功。然而,许多人没有把有生活经验的人包括在这个过程的各个方面,特别是在确定服务(重新)设计的优先级方面。此外,卫生服务需要提供循证护理以及满足用户需求的护理,然而,很少描述将研究证据整合到共同设计过程中的方法。本文介绍了一种解决这些问题的方法协同设计的新框架。我们相信,它提供了一个路线图,以解决一些最邪恶的医疗保健问题,并有可能改善我们社会中一些最脆弱人群的结果。我们将为医疗保健服务利用率高的人改进服务作为框架应用程序的工作示例。
    结论:基于经验的证据共同设计有可能被用作共同设计的框架,将研究证据与生活经验相结合,并为具有生活经验的人提供决策中的核心作用,以确定优先次序和设计服务以满足他们的需求。
    OBJECTIVE: To describe a new co-design framework termed Evidence-informed, Experience-based Co-design (E2CD).
    BACKGROUND: Involving consumers and clinicians in planning, designing and implementing services results in the end-product being more likely to meet the needs of end-users and increases the likelihood of their uptake and sustainability. Different forms and definitions of co-design have been described in the literature and have had varying levels of success in health service redesign. However, many fall short of including people with lived experience in all aspects of the process, particularly in setting priorities for service (re)design. In addition, health services need to deliver evidence-based care as well as care that meets the needs of users, yet few ways of integrating research evidence into co-design processes are described. This paper describes a new framework to approach co-design which addresses these issues. We believe that it offers a roadmap to address some of healthcare\'s most wicked problems and potentially improve outcomes for some of the most vulnerable people in our society. We use improving services for people with high healthcare service utilisation as a working example of the Framework\'s application.
    CONCLUSIONS: Evidence-informed experience-based co-design has the potential to be used as a framework for co-design that integrates research evidence with lived experience and provides people with lived experience a central role in decision-making about prioritising and designing services to meet their needs.
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  • 文章类型: Journal Article
    目标:在2023年,澳大利亚政府紧急医疗服务(EMS)响应了超过400万消费者,其中超过56%的人没有被归类为“紧急情况”,耗资55亿澳元。我们探讨了政治家的观点,政策制定者,临床医生和消费者如何管理这些非紧急请求。
    方法:采用了现实主义框架;多学科团队(包括辅助医学,医学和护理)形成;数据是通过半结构化焦点小组或访谈收集的,并进行了专题分析。
    方法:有目的地并通过公开广告选择了56名参与者:国家和州议员(n=3);政府医疗保健学科负责人(n=3);政府决策者(n=5);急诊医学行业决策者,全科医学和辅助医学(n=6);EMS首席执行官,医疗主管和经理(n=7);学者(n=8),一线临床医生,护理和辅助医疗(n=8);和消费者(n=16)。
    结果:出现了三个主题:第一,EMS工作负载的现实(主题为“面对现实”);第二,对政策应该采取什么方向来管理这一点的看法(“没有银弹”),最后,EMS在社会中的未来角色应该是什么(“找到合适的空间”)。与会者提供了16条政策建议,其中10项得到广泛支持:提高公共卫生素养,移除医疗优先调度系统,支持多学科团队,增加24小时虚拟急诊部门,修改本科护理人员大学教育,以反映当代角色的现实,越来越多地为频繁的消费者使用管理计划,护理人员与医疗保健系统更好地整合,通过提供估计的等待时间来赋予呼叫者权力,减少无效的媒体活动,以“为紧急情况保存EMS”,并将EMS从医院转诊转向社区护理。
    结论:有必要就EMS在社会中的作用达成共识,特别是,关于范围是否应该继续扩大到紧急护理之外。这项研究报告了16种可能的想法,每一项都可能需要考虑,并将它们映射到标准的患者旅程上。
    OBJECTIVE: In 2023, Australian government emergency medical services (EMS) responded to over 4 million consumers, of which over 56% were not classified as an \'emergency\', at the cost of AU$5.5 billion. We explored the viewpoints of politicians, policymakers, clinicians and consumers on how these non-emergency requests should be managed.
    METHODS: A realist framework was adopted; a multidisciplinary team (including paramedicine, medicine and nursing) was formed; data were collected via semistructured focus groups or interviews, and thematic analysis was performed.
    METHODS: 56 participants were selected purposefully and via open advertisement: national and state parliamentarians (n=3); government heads of healthcare disciplines (n=3); government policymakers (n=5); industry policymakers in emergency medicine, general practice and paramedicine (n=6); EMS chief executive officers, medical directors and managers (n=7); academics (n=8), frontline clinicians in medicine, nursing and paramedicine (n=8); and consumers (n=16).
    RESULTS: Three themes emerged: first, the reality of the EMS workload (theme titled \'facing reality\'); second, perceptions of what direction policy should take to manage this (\'no silver bullet\') and finally, what the future role of EMS in society should be (\'finding the right space\'). Participants provided 16 policy suggestions, of which 10 were widely supported: increasing public health literacy, removing the Medical Priority Dispatch System, supporting multidisciplinary teams, increasing 24-hour virtual emergency departments, revising undergraduate paramedic university education to reflect the reality of the contemporary role, increasing use of management plans for frequent consumers, better paramedic integration with the healthcare system, empowering callers by providing estimated wait times, reducing ineffective media campaigns to \'save EMS for emergencies\' and EMS moving away from hospital referrals and towards community care.
    CONCLUSIONS: There is a need to establish consensus on the role of EMS within society and, particularly, on whether the scope should continue expanding beyond emergency care. This research reports 16 possible ideas, each of which may warrant consideration, and maps them onto the standard patient journey.
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  • 文章类型: Journal Article
    目标:越来越多,医疗保健和公共卫生战略家邀请我们将医疗保健组织视为不仅是护理提供者,而且是锚定机构(即,对当地经济有重大影响的大型社区组织,社会结构和整体社区福祉)。作为回应,本研究探讨了医疗机构影响当地健康和社区的社会决定因素的机制。
    方法:我们通过访谈进行了案例研究,并使用现实主义方法综合了研究结果,以提供一套解释(程序理论),说明医疗机构如何通过作为主要机构运营对当地社区的整体福祉产生积极影响。
    方法:英格兰的二级医疗机构,包括心理健康和社区服务。
    方法:来自案例研究网站的工作人员直接受雇或积极参与组织的锚定机构战略。数据收集从6月初到2023年8月底进行。
    结果:我们发现了有效的锚定活动的四个组成部分,包括就业,消费,地产和可持续性。作为主要机构的医疗保健组织可以通过为当地社区招聘和职业发展提供便利的途径来改善当地社区健康的社会决定因素;赋予当地企业加入供应链以增加收入和财富;将组织空间转化为社区资产;并支持当地创新和技术以实现其可持续发展目标。这些模块需要在支持性领导推动的人口健康方法的基础上跨组织进行整合,并与各种本地合作伙伴合作。
    结论:医疗机构有可能对当地社区的整体福祉产生积极影响。政策制定者应该支持医疗保健组织利用就业,消费,遗产和可持续性,以帮助解决健康的社会决定因素的不平等分配问题。
    OBJECTIVE: Increasingly, healthcare and public health strategists invite us to look at healthcare organisations as not just care providers but as anchor institutions (ie, large community-rooted organisations with significant impact in the local economy, social fabric and overall community well-being). In response, this study explores the mechanisms through which healthcare organisations can impact social determinants of health and communities in their local areas.
    METHODS: We conducted case studies with interviews and synthesised the findings using a realist approach to produce a set of explanations (programme theory) of how healthcare organisations can have a positive impact on the overall well-being of local communities by operating as anchor institutions.
    METHODS: Secondary healthcare organisations in England, including mental health and community services.
    METHODS: Staff from case study sites which were directly employed or actively engaged in the organisation\'s anchor institution strategy. Data collection took place from early June to the end of August 2023.
    RESULTS: We found four building blocks for effective anchor activity including employment, spending, estates and sustainability. Healthcare organisations-as anchor institutions-can improve the social determinants of health for their local communities through enabling accessible paths for local community recruitment and career progression; empowering local businesses to join supply chains boosting income and wealth; transforming organisational spaces into community assets; and supporting local innovation and technology to achieve their sustainability goals. These blocks need to be integrated across organisations on the basis of a population health approach promoted by supportive leadership, and in collaboration with a diverse range of local partners.
    CONCLUSIONS: Healthcare organisations have the potential for a positive impact on the overall well-being of local communities. Policymakers should support healthcare organisations to leverage employment, spending, estates and sustainability to help address the unequal distribution of the social determinants of health.
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  • 文章类型: Journal Article
    目的:在德国尚未进行过理论测试运行,将不同的导航系统与行业解决方案(MapTrip112)进行比较。这项研究的目的是比较导航系统,以阐明是否减少了应急响应时间(ERT),因此,对旅行时间的坚持是否有所改善。
    方法:前瞻性,模拟研究,横断面研究。
    方法:职业医学研究所办公室,社会医学与环境医学,法兰克福歌德大学(60590美因河畔法兰克福,德国)。与TomTom和GoogleMaps导航系统相比,情况适应性行业导航解决方案MapTrip112在其“灯光和警报器(L&S)”模式下进行了测试。MapTrip112设置为计算考虑特殊紧急通行权的路线。
    方法:所有三个导航系统同时计算虚拟路线的距离和持续时间。测试了三种情况:法兰克福大学医院(美因河畔法兰克福60596,德国)和中央消防局1(美因河畔法兰克福60435,德国)作为城市路线的起点,而奥登瓦尔德健康中心(64711Erbach,德国)是农村路线的起点。路线端点是在常规操作半径内任意选择的位置。这些路线是为短距离和长距离以及不同时期选择的,包括工作日,周末和晚上高峰时间(下午4-7点),在德国法兰克福和奥登瓦尔德克雷斯(黑森州南部)。
    结果:计算了总共4650次行程的时间和距离。在比较农村和城市地区以及工作日和周末之间的旅行时间和距离时,结果具有统计学意义(p<0.001).工作日和周末的时间优势从23.5s到300.5s(旅行时间的4.75%到50%),MapTrip112的表现始终优于TomTom和GoogleMaps。对于城市任务,MapTrip112比竞争对手获得了高达50%的时间收益,在高峰时段和特定地点(如法兰克福大学医院和消防站1)具有显着的优势。
    结论:MapTrip112总是获得最快的路线,尽管这些路线并不总是伴随着缩短的距离。这些发现强调了MapTrip112在各种场景中提供高效路由解决方案的优越性。出于这个原因,该软件的使用应在实践中考虑,并在进一步研究中在现实条件下进行调查。
    OBJECTIVE: There has not been a theoretical test run in Germany that compares different navigation systems with an industry solution (MapTrip112). The aim of this study was to compare navigation systems to elucidate whether the emergency response time (ERT) was reduced and, consequently, whether the adherence to the travel time improved.
    METHODS: Prospective, simulation study, cross-sectional study.
    METHODS: Offices of the Institute of Occupational Medicine, Social Medicine and Environmental Medicine, Goethe University Frankfurt (60 590 Frankfurt am Main, Germany). The situation-adaptable industry navigation solution MapTrip112 was tested in its \'Lights and Siren(s) (L&S)\' mode in comparison to the TomTom and Google Maps navigation systems. MapTrip112 was set to calculate a route that takes special emergency rights of way into account.
    METHODS: All three navigation systems simultaneously calculated the distances and durations of fictitious routes. Three scenarios were tested: the University Hospital Frankfurt (60 596 Frankfurt am Main, Germany) and the Central Fire Station 1 (60435 Frankfurt am Main, Germany) served as the starting points for the urban routes, while the Odenwald Health Centre (64 711 Erbach, Germany) served as the starting point for rural routes. The routes\' endpoints were arbitrarily chosen locations inside the customary operational radius. The routes were selected for short and long distances as well as for different periods, including weekdays, weekends and evening rush hour (4-7 pm), in the German cities of Frankfurt am Main and Odenwaldkreis (Southern Hesse).
    RESULTS: The time and distance were calculated for a total of 4650 trips. When comparing travel times and distances between rural and urban areas as well as between weekdays and weekends, statistically significant results were obtained (p<0.001). With time advantages ranging from 23.5 s to 300.5 s (4.75% to 50% of the travel time) on weekdays and weekends, MapTrip112 consistently outperformed both TomTom and Google Maps. For city missions, MapTrip112 achieved time gains of up to 50% over its competitors, with significant advantages during the rush hours and around specific locations such as the University Hospital Frankfurt and Fire Station 1.
    CONCLUSIONS: MapTrip112 always achieved the fastest routes although these were not always accompanied by a shortened distance. These findings underscore MapTrip112\'s superiority in providing efficient routing solutions across various scenarios. For this reason, the use of this software should be considered in practice and investigated in real-world conditions in further studies.
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  • 文章类型: Journal Article
    背景:将患者从儿科中心过渡到成年期是许多患有不同慢性病的患者的重要课题。很少有研究评估其在儿科手术病理中的有效性。这项范围审查的总体目标是评估描述专门针对患有手术疾病的年轻患者的过渡计划的文献的范围。主要问题将着眼于评估为患有手术或未手术的年轻患者提供哪些过渡计划。
    方法:拟议的范围审查将遵循Peters等人在2020年描述的JoannaBriggsInstitute手册中描述的指南。该方案将采用系统审查和荟萃分析方案检查表的首选报告项目。本综述将包括的概念是这些患者暴露于护理途径或护理计划的过渡。将包括年龄在16至30岁之间的具有手术条件的患者。不会有比较器。将不评估具体结果,然而,将审查过渡方案的成果。知识综合馆员将搜索MEDLINEAll(Ovid),Embase(Ovid),WebofScience核心合集(Clarivate)和CINAHLComplete(EBSCOhost)。文献检索将限于2000年以后的出版物。不适用语言或年龄组限制。所有包括的证据来源的参考列表将被筛选以进行其他研究。搜索结果的筛选和纳入研究的数据提取将由两名独立审稿人在Covidence中完成。我们还将使用PAGER(模式,预付款,间隙,实践证据和研究建议)报告和总结结果的框架。
    背景:本审查不需要道德批准。我们的传播策略包括同行评审出版物,会议介绍,与利益相关者和政策制定者共同构建的指导方针。
    背景:本评论已在OSF上注册。
    BACKGROUND: Transitioning patients from their paediatric centres to adulthood is an important subject for many of these patients living with different chronic pathologies. There are few studies that assess its effectiveness in paediatric surgical pathologies. The overall objective of this scoping review is to assess the extent of the literature describing transitional programmes dedicated to young patients living with surgical conditions. The primary question will look to assess what transitional programmes are available for young patients living with surgical conditions either operated or not.
    METHODS: The proposed scoping review will follow guidelines described by the Joanna Briggs Institute manual described by Peters et al in 2020. This protocol will employ the Preferred Reporting Items for Systematic review and Meta-Analysis Protocols checklist. The concept that will be included in this review is the exposure of these patients to a transition of care pathway or care programmes. Patients between the ages of 16 and 30 with a surgical condition will be included. There will be no comparator. No specific outcomes will be assessed, however, the outcomes that will be found from the transition programmes will be reviewed. A knowledge synthesis librarian will search MEDLINE All (Ovid), Embase (Ovid), Web of Science Core Collection (Clarivate) and CINAHL Complete (EBSCOhost). The literature search will be limited to 2000 onwards publications. No language or age group limitation will be applied. The reference list of all included sources of evidence will be screened for additional studies. Screening of search results and data extraction from included studies will be completed in Covidence by two independent reviewers. We will also use the PAGER (Patterns, Advances, Gaps, Evidence for practice and Research recommendations) framework to report and summarise the results.
    BACKGROUND: This review does not require ethics approval. Our dissemination strategy includes peer review publication, conference presentation, co-constructed guidelines with stakeholders and policymakers.
    BACKGROUND: This review is registered on OSF.
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  • 文章类型: Journal Article
    目的:评估Amhara地区医院医护人员(HCWs)在诊断和管理水痘疾病方面的信心水平及其相关因素。
    方法:基于机构的横断面研究。
    方法:阿姆哈拉地区的医院,埃塞俄比亚西北部。
    方法:总共640个HCWs,有效率为96.9%,参加时间为2022年10月1日至12月30日。采用比例分配的多阶段分层随机抽样技术招募研究参与者。使用KoboCollect工具箱收集数据并导出到STATAV.17用于分析。描述性统计用于描述数据。序数逻辑回归分析用于确定p<0.05时诊断和管理水痘的置信水平的预测因子。
    方法:HCWs诊断和管理水痘疾病的置信水平及其相关因素。
    结果:发现在诊断和管理水痘疾病中具有高置信度的医护人员的总体比例为31.5%(95%CI:27.9%,35.2%)。同样,26.8%(95%CI:23.2%,30.3%)和41.8%(95%CI:38.1%,45.4%)的HCWs表示诊断和管理疾病的中低置信水平,分别。对于定期访问适合网站的医护人员,诊断和管理痘的置信度较高与较低或中等置信度的几率更大(调整后的OR(AOR)=1.59,95%CI:1.16,2.2),是医生(AOR=1.9,95%CI:1.32,2.73),年龄30-35岁(AOR=1.64,95%CI:1.12,2.39),曾接受过突发公共卫生事件流行病管理培训(AOR=2.8,95%CI:1.94,4.04),与同行相比态度积极(AOR=1.72,95%CI:1.26,2.36)。
    结论:研究区域的HCW在诊断和管理水痘疾病方面的总体信心水平较低。因此,通过晨间课程和水痘疾病诊断和临床管理(包括感染预防和控制)培训,医护人员应定期更新水痘的相关信息.
    OBJECTIVE: To assess healthcare workers\' (HCWs) confidence level in diagnosing and managing mpox disease and its associated factors in hospitals in the Amhara Region.
    METHODS: Institution-based cross-sectional study.
    METHODS: Hospitals in the Amhara Region, Northwest Ethiopia.
    METHODS: A total of 640 HCWs, with a response rate of 96.9%, participated from 1 October to 30 December 2022. A multistage stratified random sampling technique with proportional allocation was used to recruit study participants. Data were collected using the KoboCollect toolbox and exported to STATA V.17 for analysis. Descriptive statistics were used to describe data. Ordinal logistic regression analysis was used to identify predictors of confidence level to diagnose and manage mpox at p<0.05.
    METHODS: HCWs\' confidence level in diagnosing and managing mpox disease and its associated factors.
    RESULTS: The overall proportion of HCWs who had high confidence level in diagnosing and managing mpox disease was found to be 31.5% (95% CI: 27.9%, 35.2%). Similarly, 26.8% (95% CI: 23.2%, 30.3%) and 41.8% (95% CI: 38.1%, 45.4%) of HCWs expressed medium and low confidence level to diagnose and manage the disease, respectively. The odds of higher confidence versus lower or medium confidence level in diagnosing and managing mpox were greater for HCWs who regularly visit amenable websites (adjusted OR (AOR)=1.59, 95% CI: 1.16, 2.2), were physicians (AOR=1.9, 95% CI: 1.32, 2.73), were aged 30-35 years old (AOR=1.64, 95% CI: 1.12, 2.39), had got public health emergency epidemic disease management training (AOR=2.8, 95% CI: 1.94, 4.04) and had positive attitudes (AOR=1.72, 95% CI: 1.26, 2.36) compared with their counterparts.
    CONCLUSIONS: The overall confidence level of HCWs in diagnosing and managing mpox disease in the study area was low. Therefore, the HCWs should be regularly updated about mpox disease through morning sessions and training in the diagnosis and clinical management of mpox disease including infection prevention and control.
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  • 文章类型: Journal Article
    目的:本研究旨在通过模型建立以患者为中心的急性A型主动脉夹层(ATAAD)负担方法。主要目标是确定在管理这种危及生命的心血管疾病方面的潜在改进,并提供基于证据的建议以优化结果。
    方法:我们开发了一种沿着患者路径的预测模型,通过寿命损失(YLL)指标来估计ATAAD的负担。该模型是基于对文献的系统回顾而创建的,并使用来自德国医疗保健环境的人口统计数据进行了参数化。该模型旨在对关键影响因素变化导致的不同场景进行交互式模拟。
    方法:本研究使用德国医疗环境的数据和文献综述的结果进行。
    方法:该研究包括德国ATAAD病例的综合建模,但没有直接涉及参与者。
    方法:本研究中没有基于建模设计的具体干预措施。
    方法:单一结果测量是对德国ATAAD导致的YLL的估计。
    结果:我们的模型估计德国ATAAD每年为102791年,男女共62432年和40359年,分别。与当前标准相比,对改善的护理环境进行建模可产生93191YLL或9.3%的YLL,而最坏的情况则导致113023或10.0%的YLL。该模型可在https://acuteaorticdissection.com/上访问,以估计自定义场景。
    结论:我们的研究提供了一种基于证据的方法来估计ATAAD的负担并确定途径管理的潜在改进。医疗保健决策者可以使用这种方法来告知旨在优化患者结果的政策变化。通过在任何医疗保健环境中考虑以患者为中心的方法,该模式有可能改善ATAAD患者的有效护理.
    OBJECTIVE: This study aimed to develop a patient-centred approach to the burden of acute type A aortic dissection (ATAAD) through modelling. The main objective was to identify potential improvements in managing this life-threatening cardiovascular condition and to provide evidence-based recommendations to optimise outcomes.
    METHODS: We developed a predictive model along patient pathways to estimate the burden of ATAAD through the years of life lost (YLLs) metric. The model was created based on a systematic review of the literature and was parameterised using demographic data from the German healthcare environment. The model was designed to allow interactive simulation of different scenarios resulting from changes in key impact factors.
    METHODS: The study was conducted using data from the German healthcare environment and results from the literature review.
    METHODS: The study included a comprehensive modelling of ATAAD cases in Germany but did not directly involve participants.
    METHODS: There were no specific interventions applied in this study based on the modelling design.
    METHODS: The single outcome measure was the estimation of YLL due to ATAAD in Germany.
    RESULTS: Our model estimated 102 791 YLL per year for ATAAD in Germany, with 62 432 and 40 359 YLL for men and women, respectively. Modelling an improved care setting yielded 93 191 YLL or 9.3% less YLL compared with the current standard while a worst-case scenario resulted in 113 023 or 10.0% more YLL. The model is accessible at https://acuteaorticdissection.com/ to estimate custom scenarios.
    CONCLUSIONS: Our study provides an evidence-based approach to estimating the burden of ATAAD and identifying potential improvements in the management of pathways. This approach can be used by healthcare decision-makers to inform policy changes aimed at optimising patient outcomes. By considering patient-centred approaches in any healthcare environment, the model has the potential to improve efficient care for patients suffering from ATAAD.
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  • 文章类型: Journal Article
    背景:气候变化对我们的健康构成了重大威胁,生计和地球。2020年,英国国家卫生服务(NHS)承诺减少其范围1、2和3的排放量,到2045年达到净零。尽管净零NHS将有助于限制气候变化的后果,对英国公众对达到净零所需的拟议服务变更的价值观和偏好知之甚少。
    方法:这项研究将通过离散选择实验(DCE),激发公众对帮助英格兰和苏格兰实现净零NHS的行动的偏好。DCE属性和级别描述了NHS可以在关键领域采取的行动:建筑物和庄园,户外空间,旅行和运输,提供护理,商品和服务以及食品和餐饮。这项调查是通过对17名公众进行在线思考采访而设计的。该调查的两个版本将对多达2200名受访者进行调查。随着所得税的增加,其中一个将包括支付工具。我们将估计每个属性的相对重要性,对于以前的调查,个人愿意在属性之间进行的货币权衡。在可能的情况下,我们将匹配两个样本,以衡量包含货币支付的偏好稳健性。我们将根据受访者的社会经济状况以及对NHS和气候变化的态度,测试受访者的偏好是否有所不同。
    背景:阿伯丁大学医学院,医学科学和营养伦理研究委员会已批准该研究(参考:SERB/690090)。所有参与者将提供知情同意书。结果将提交给同行评审的出版物,并在相关会议和研讨会上介绍。该研究的摘要将在卫生经济学研究部门的网站上发布。
    BACKGROUND: Climate change poses a major threat to our health, livelihoods and the planet. In 2020, the UK National Health Service (NHS) committed to reducing its Scope 1, 2 and 3 emissions to reach net zero by 2045. Although a net zero NHS would help to limit the consequences of climate change, little is known about the UK general public\'s values and preferences for the proposed service changes needed to reach net zero.
    METHODS: This study will elicit the public\'s preferences for actions to help achieve net zero NHS in England and Scotland using a discrete choice experiment (DCE). The DCE attributes and levels describe actions that can be taken by the NHS across key areas: buildings and estates, outdoor space, travel and transport, provision of care, goods and services and food and catering. The survey was designed using online think-aloud interviews with 17 members of the public. Two versions of the survey will be administered to a sample of up to 2200 respondents. One will include a payment vehicle as income tax increases. We will estimate the relative importance of each attribute and, for the former survey, the monetary trade-offs which individuals are willing to make between attributes. Where possible, we will match both samples to gauge preference robustness with the inclusion of the monetary payment. We will test whether respondents\' preferences differ based on their socioeconomic circumstances and attitudes toward the NHS and climate change.
    BACKGROUND: The University of Aberdeen\'s School of Medicine, Medical Sciences and Nutrition Ethics Research Board has approved the study (reference: SERB/690090). All participants will provide informed consent. Results will be submitted to peer-reviewed publications and presented at relevant conferences and seminars. A lay summary of the research will be published on the Health Economics Research Unit website.
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  • 文章类型: Journal Article
    退伍军人不是人口统计学上同质的群体,然而,少数群体在研究中的代表性仍然不足,并报告感到无法获得临床服务以寻求支持。虽然针对退伍军人的医疗保健已经满足了大多数人的需求,退伍军人精神卫生服务的成功取决于为整个退伍军人服务。医疗保健个性化的关键是获取问题,以及需要解决特定的不平等和寻求帮助行为的障碍。在本文中,我们从三个层面探讨获得退伍军人医疗保健的问题:所有退伍军人共同的障碍;所有少数退伍军人群体共同的障碍;以及与特定少数退伍军人群体相关的障碍。耻辱,军事态度和文化(例如,坚忍主义),获得具有退伍军人专业知识的服务和专业人员是退伍军人团体的普遍障碍。少数群体报告说这些障碍加剧了,除了在退伍军人护理环境中接受治疗,缺乏他们的代表性或他们在服务描述和广告方面的经验,在特定问题上缺乏专业文化能力,和退伍军人的环境可能会再次受到创伤。最后,讨论了个别群体特有的障碍。关注这些对于开发满足所有退伍军人需求的个性化医疗保健的整体方法至关重要。
    Veterans are not a demographically homogenous group, yet minority groups continue to be under-represented in research and report feeling less able to access clinical services to seek support. While veteran-specific healthcare has responded to the needs of the majority, the success of veteran mental health services is contingent on serving the whole veteran population. Key to the personalisation of healthcare is the question of access and a need to address specific inequalities and barriers to help-seeking behaviour. In this paper, we explore the issues of access to veteran healthcare at three levels: those barriers common to all veterans; those common to all minority groups of veterans; and those relevant to specific minority groups of veterans. Stigma, military attitudes and culture (eg, stoicism), and access to services and professionals with veteran-specific knowledge are universal barriers across veteran groups. Minority groups report a heightening of these barriers, alongside being \'othered\' in veteran care settings, a lack of representation of them or their experiences in service descriptions and advertising, a lack of professional cultural competencies on specific issue, and the veteran environment potentially being retraumatising. Finally, barriers specific to individual groups are discussed. Attending to these is essential in developing holistic approaches to personalised healthcare that meets the needs of all veterans.
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