背景:老年人群神经退行性疾病(NDD)的管理通常要求很高,并且涉及各种医疗保健服务机构提供的护理,导致医疗保健系统在成本和资源方面承担更大的负担。各种卫生服务在综合医疗模式中的融合,与信息和通信技术(ICT)共同启用和采用,已被确定为有效的替代医疗保健解决方案。然而,它的广泛实施面临着巨大的挑战。综合信通技术的开发和实施都与患者和保健专业人员以外的不同利益攸关方群体的合作和接受联系在一起,据报道,这些群体之间的需求和偏好存在差异。
目标:补充以前的出版物,报告了欧盟资助的项目PROCare4Life(促进老年人生活质量的个性化综合护理)的开发中最终用户的需求和要求,本文旨在报告来自各个领域的其他关键利益相关者的意见,包括学术界,媒体,市场,和决策,改善基于ICT的综合医疗保健平台的可接受性和实施,以支持NDD的管理。
方法:该研究包括2020年6月至8月在5个欧洲国家(德国,意大利,葡萄牙,罗马尼亚,和西班牙)。面试大多在网上进行,除非参与者要求亲自面试。在这些情况下,应用了COVID-19PROCare4Life安全程序。
结果:本研究确定了2个主题和5个子主题。用户参与度,提供培训和教育,媒体发挥的作用被确定为战略措施,以确保基于ICT的医疗保健平台的可接受性。预计可持续供资和与当局的合作是执行过程中需要考虑的其他问题。
结论:强调了以用户为中心的设计方法在确保用户参与基于ICT的平台开发方面的重要性。可以通过在用户的努力之间建立协同作用来解决阻碍基于ICT的医疗保健平台的可接受性和实施的最常见挑战,学术利益相关者,开发者,政策制定者,和决策者。为了支持未来开发基于ICT的医疗保健平台的项目,这项研究概述了在研究用户需求时可以整合的以下建议:(1)正确识别未来用户群体面临的特殊挑战,同时不忽视他们的社会和临床环境;(2)反复评估未来用户的数字技能和他们对拟议平台的接受程度;(3)使ICT平台的功能与未来用户的实际需求相一致;(4)让主要利益相关者参与指导思考如何在未来实施平台。
■RR2-10.2196/22463。
BACKGROUND: The management of neurodegenerative diseases (NDDs) in older populations is usually demanding and involves care provision by various health care services, resulting in a greater burden on health care systems in terms of costs and resources. The convergence of various health services within integrated health care models, which are enabled and adopted jointly with information and communication technologies (ICTs), has been identified as an effective alternative health care solution. However, its widespread implementation faces formidable challenges. Both the development and implementation of integrated ICTs are linked to the collaboration and acceptance of different groups of stakeholders beyond patients and health care professionals, with reported discrepancies in the needs and preferences among these groups.
OBJECTIVE: Complementing a previous publication, which reported on the needs and requirements of end users in the development of the European Union-funded project PROCare4Life (Personalized Integrated Care Promoting Quality of Life for Older People), this paper aimed to report on the opinions of other key stakeholders from various fields, including academia, media, market, and decision making, for improving the acceptability and implementation of an integrated ICT-based health care platform supporting the management of NDDs.
METHODS: The study included 30 individual semistructured interviews that took place between June and August 2020 in 5 European countries (Germany, Italy, Portugal, Romania, and Spain). Interviews were mostly conducted online, except in cases where participants requested to be interviewed in person. In these cases, COVID-19 PROCare4Life safety procedures were applied.
RESULTS: This study identified 2 themes and 5 subthemes. User engagement, providing training and education, and the role played by the media were identified as strategic measures to ensure the acceptability of ICT-based health care platforms. Sustainable funding and cooperation with authorities were foreseen as additional points to be considered in the implementation process.
CONCLUSIONS: The importance of the user-centered design approach in ensuring the involvement of users in the development of ICT-based platforms has been highlighted. The most common challenges that hinder the acceptability and implementation of ICT-based health care platforms can be addressed by creating synergies among the efforts of users, academic stakeholders, developers, policy makers, and decision makers. To support future projects in developing ICT-based health care platforms, this study outlined the following recommendations that can be integrated when conducting research on users\' needs: (1) properly identify the particular challenges faced by future user groups without neglecting their social and clinical contexts; (2) iteratively assess the digital skills of future users and their acceptance of the proposed platform; (3) align the functionalities of the ICT platform with the real needs of future users; and (4) involve key stakeholders to guide the reflection on how to implement the platform in the future.
UNASSIGNED: RR2-10.2196/22463.